{"id":"https://openalex.org/W4416694672","doi":"https://doi.org/10.1080/29933021.2025.2593280","title":"\u201cWe need them to listen to both of us\u201d: A race-stratified CBPR focus-group study of communication, inclusion, and care for older lesbian and bisexual women living with serious illness in the Deep South","display_name":"\u201cWe need them to listen to both of us\u201d: A race-stratified CBPR focus-group study of communication, inclusion, and care for older lesbian and bisexual women living with serious illness in the Deep South","publication_year":2025,"publication_date":"2025-11-26","ids":{"openalex":"https://openalex.org/W4416694672","doi":"https://doi.org/10.1080/29933021.2025.2593280"},"language":"en","primary_location":{"id":"doi:10.1080/29933021.2025.2593280","doi":"https://doi.org/10.1080/29933021.2025.2593280","is_oa":false,"landing_page_url":"https://doi.org/10.1080/29933021.2025.2593280","pdf_url":null,"source":{"id":"https://openalex.org/S67544685","display_name":"Sexual and Gender Diversity in Social Services","issn_l":"1053-8720","issn":["1053-8720","1540-4056","2993-3021","2993-303X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","jufo-1","norway-1","poland-70"],"host_organization":"https://openalex.org/P4310319847","host_organization_name":"Routledge","host_organization_lineage":["https://openalex.org/P4310319847","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Routledge","Taylor & Francis"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sexual and Gender Diversity in Social Services","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5090928571","display_name":"Sara N. Lappan","orcid":"https://orcid.org/0000-0002-0956-3702","observed_orcids":["https://orcid.org/0000-0002-0956-3702","https://orcid.org/0000-0002-3010-9686"]},"institutions":[{"id":"https://openalex.org/I126533617","display_name":"Alliant University","ror":"https://ror.org/04k8zab17","country_code":"US","type":"education","lineage":["https://openalex.org/I126533617"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sara Lappan","raw_affiliation_strings":["Couple and Family Therapy, Alliant International University, Los Angeles Campus","Couple and Family Therapy, Alliant International University, Los Angeles Campus, Alhambra, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Couple and Family Therapy, Alliant International University, Los Angeles Campus","institution_ids":["https://openalex.org/I126533617"]},{"raw_affiliation_string":"Couple and Family Therapy, Alliant International University, Los Angeles Campus, Alhambra, CA, USA","institution_ids":["https://openalex.org/I126533617"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5086799028","display_name":"Korijna G. Valenti","orcid":"https://orcid.org/0000-0001-9393-3915","observed_orcids":["https://orcid.org/0000-0001-9393-3915"]},"institutions":[{"id":"https://openalex.org/I32389192","display_name":"University of Alabama at Birmingham","ror":"https://ror.org/008s83205","country_code":"US","type":"education","lineage":["https://openalex.org/I32389192"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Korijna Valenti","raw_affiliation_strings":["Department of Medicine, University of Alabama at Birmingham","Department of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, University of Alabama at Birmingham","institution_ids":["https://openalex.org/I32389192"]},{"raw_affiliation_string":"Department of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA","institution_ids":["https://openalex.org/I32389192"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Amber Martin","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Amber Martin","raw_affiliation_strings":["Department of Public Health, University of California San Francisco","Department of Public Health, University of California San Francisco, San Francisco, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health, University of California San Francisco","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"Department of Public Health, University of California San Francisco, San Francisco, CA, USA","institution_ids":["https://openalex.org/I180670191"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5029172659","display_name":"Ronit A. Elk","orcid":"https://orcid.org/0000-0003-3151-7830","observed_orcids":["https://orcid.org/0000-0003-3151-7830"]},"institutions":[{"id":"https://openalex.org/I32389192","display_name":"University of Alabama at Birmingham","ror":"https://ror.org/008s83205","country_code":"US","type":"education","lineage":["https://openalex.org/I32389192"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ronit Elk","raw_affiliation_strings":["Department of Medicine, University of Alabama at Birmingham","Department of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, University of Alabama at Birmingham","institution_ids":["https://openalex.org/I32389192"]},{"raw_affiliation_string":"Department of Medicine, University of Alabama at Birmingham, Birmingham, AL, USA","institution_ids":["https://openalex.org/I32389192"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5090928571"],"corresponding_institution_ids":["https://openalex.org/I126533617"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.31984467,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"38","issue":"1","first_page":"142","last_page":"173"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10156","display_name":"LGBTQ Health, Identity, and Policy","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/3207","display_name":"Social Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10156","display_name":"LGBTQ Health, Identity, and Policy","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/3207","display_name":"Social Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.0008999999845400453,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12275","display_name":"Gender and Feminist Studies","score":0.000699999975040555,"subfield":{"id":"https://openalex.org/subfields/3318","display_name":"Gender Studies"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/serious-illness","display_name":"serious illness","score":0.871999979019165},{"id":"https://openalex.org/keywords/healthcare-communication","display_name":"healthcare communication","score":0.5659999847412109},{"id":"https://openalex.org/keywords/racial-disparities","display_name":"racial disparities","score":0.4009999930858612},{"id":"https://openalex.org/keywords/black-women","display_name":"Black women","score":0.7710000276565552},{"id":"https://openalex.org/keywords/intersectionality","display_name":"intersectionality","score":0.7099999785423279},{"id":"https://openalex.org/keywords/lgbtq-health-disparities","display_name":"LGBTQ health disparities","score":0.6669999957084656},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.7829999923706055},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.949999988079071},{"id":"https://openalex.org/keywords/cultural-competence","display_name":"cultural competence","score":0.7379999756813049},{"id":"https://openalex.org/keywords/sexuality-disclosure","display_name":"sexuality disclosure","score":0.6000000238418579},{"id":"https://openalex.org/keywords/caregiver-relationships","display_name":"caregiver relationships","score":0.4390000104904175},{"id":"https://openalex.org/keywords/urban-rural-differences","display_name":"urban-rural differences","score":0.7689999938011169},{"id":"https://openalex.org/keywords/deep-south","display_name":"Deep South","score":0.6460000276565552}],"concepts":[{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45179998874664307},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.4359999895095825},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.4311000108718872},{"id":"https://openalex.org/C2780540011","wikidata":"https://www.wikidata.org/wiki/Q6649","display_name":"Lesbian","level":2,"score":0.4074000120162964},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3310999870300293},{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.3086000084877014},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.28290000557899475},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.28220000863075256},{"id":"https://openalex.org/C3013748606","wikidata":"https://www.wikidata.org/wiki/Q15787","display_name":"Human immunodeficiency virus (HIV)","level":2,"score":0.28029999136924744},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.2702000141143799},{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.2653999924659729},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.26409998536109924},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.2578999996185303},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.25220000743865967}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1080/29933021.2025.2593280","doi":"https://doi.org/10.1080/29933021.2025.2593280","is_oa":false,"landing_page_url":"https://doi.org/10.1080/29933021.2025.2593280","pdf_url":null,"source":{"id":"https://openalex.org/S67544685","display_name":"Sexual and Gender Diversity in Social Services","issn_l":"1053-8720","issn":["1053-8720","1540-4056","2993-3021","2993-303X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","jufo-1","norway-1","poland-70"],"host_organization":"https://openalex.org/P4310319847","host_organization_name":"Routledge","host_organization_lineage":["https://openalex.org/P4310319847","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Routledge","Taylor & Francis"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sexual and Gender Diversity in Social Services","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10"},{"score":0.9537000060081482,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"},{"score":0.7307999730110168,"display_name":"Gender equality","id":"https://metadata.un.org/sdg/5"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320310431","display_name":"University of Alabama at Birmingham","ror":"https://ror.org/008s83205"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":40,"referenced_works":["https://openalex.org/W79229537","https://openalex.org/W575260816","https://openalex.org/W1547450212","https://openalex.org/W1924618820","https://openalex.org/W1957890759","https://openalex.org/W1971337449","https://openalex.org/W1979290264","https://openalex.org/W1984152675","https://openalex.org/W2017532745","https://openalex.org/W2023616568","https://openalex.org/W2050336499","https://openalex.org/W2069322450","https://openalex.org/W2072524881","https://openalex.org/W2115635458","https://openalex.org/W2119018198","https://openalex.org/W2136164972","https://openalex.org/W2137460360","https://openalex.org/W2171146524","https://openalex.org/W2222481952","https://openalex.org/W2301666607","https://openalex.org/W2318639802","https://openalex.org/W2330375207","https://openalex.org/W2337002970","https://openalex.org/W2520560270","https://openalex.org/W2751100827","https://openalex.org/W2782373136","https://openalex.org/W2900243550","https://openalex.org/W2927080877","https://openalex.org/W3001088662","https://openalex.org/W3034664657","https://openalex.org/W3158116477","https://openalex.org/W3210041443","https://openalex.org/W4200466031","https://openalex.org/W4252859387","https://openalex.org/W4254599233","https://openalex.org/W4285796521","https://openalex.org/W4293163543","https://openalex.org/W4311420296","https://openalex.org/W4388209444","https://openalex.org/W4408845456"],"related_works":["https://openalex.org/W4405723298","https://openalex.org/W7118084419","https://openalex.org/W2883698201","https://openalex.org/W4414795798","https://openalex.org/W7019054118","https://openalex.org/W2579928383","https://openalex.org/W7160855784","https://openalex.org/W2009389160","https://openalex.org/W2164094637","https://openalex.org/W2112086855"],"abstract_inverted_index":{"This":[0,159],"community-based":[1],"participatory":[2],"research,":[3],"employing":[4],"socio-ecological":[5],"and":[6,15,18,24,30,38,63,70,82,92,104,117,146,156,175],"queer":[7],"gerontology":[8],"frameworks,":[9],"explored":[10],"the":[11,99,131,140],"experiences":[12,67,109],"of":[13,45,90,101],"Black":[14],"white":[16],"lesbian":[17],"bisexual":[19],"(LB)":[20],"women":[21],"aged":[22],"50":[23],"above":[25],"living":[26],"with":[27,40,49],"serious":[28],"illness":[29],"their":[31],"chosen":[32],"caregivers.":[33],"Focusing":[34],"on":[35],"communication,":[36,111],"inclusivity,":[37],"decision-making":[39],"healthcare":[41,150],"professionals,":[42],"qualitative":[43],"analysis":[44],"focus":[46],"group":[47],"interviews":[48],"18":[50],"participants":[51],"(Black,":[52],"n":[53,57],"=":[54,58],"8;":[55],"white,":[56],"10)":[59],"revealed":[60],"eight":[61],"themes":[62],"27":[64],"sub-themes.":[65],"Positive":[66],"highlighted":[68],"empathy":[69],"respect,":[71],"while":[72],"dismissive":[73],"behavior":[74],"reflected":[75],"feeling":[76],"invalidated.":[77],"Challenges":[78],"in":[79,136],"disclosing":[80],"sexuality":[81],"navigating":[83],"relationships":[84],"were":[85],"evident,":[86],"alongside":[87],"varying":[88],"levels":[89],"disrespect":[91],"discrimination.":[93],"Advocacy":[94],"emerged":[95],"as":[96],"crucial,":[97],"emphasizing":[98,130],"importance":[100],"patient":[102],"preferences":[103],"inclusive":[105],"decision-making.":[106,158],"Factors":[107],"influencing":[108],"included":[110],"health":[112,173],"care":[113,145,178],"protocols,":[114],"systemic":[115],"issues,":[116],"rural-urban":[118],"disparities.":[119],"The":[120],"study":[121],"identified":[122],"proxy":[123],"marginalization":[124],"experienced":[125],"by":[126],"older":[127,165],"LB":[128,166],"women,":[129],"need":[132],"for":[133,142,149,179],"intersectionality":[134],"recognition":[135],"healthcare.":[137],"Findings":[138],"stress":[139],"necessity":[141],"inclusive,":[143],"patient-centered":[144],"training":[147],"programs":[148],"professionals":[151],"to":[152,171],"improve":[153],"cultural":[154],"competence":[155],"shared":[157],"research":[160],"offers":[161],"critical":[162],"insights":[163],"into":[164],"women\u2019s":[167],"experiences,":[168],"urging":[169],"interventions":[170],"address":[172],"disparities":[174],"promote":[176],"equitable":[177],"diverse":[180],"LGBTQ+":[181],"populations.":[182]},"counts_by_year":[],"updated_date":"2026-10-08T09:06:37.294493","created_date":"2025-11-27T00:00:00"}
