{"id":"https://openalex.org/W4414927092","doi":"https://doi.org/10.51847/vws8jjn9xi","title":"Guiding Ethical, Legal, and Social Practices in Genomic Medicine","display_name":"Guiding Ethical, Legal, and Social Practices in Genomic Medicine","publication_year":2021,"publication_date":"2021-01-01","ids":{"openalex":"https://openalex.org/W4414927092","doi":"https://doi.org/10.51847/vws8jjn9xi"},"language":"en","primary_location":{"id":"doi:10.51847/vws8jjn9xi","doi":"https://doi.org/10.51847/vws8jjn9xi","is_oa":true,"landing_page_url":"https://doi.org/10.51847/vws8jjn9xi","pdf_url":"https://smerpub.com/storage/files/article/288d2822-ce6f-42da-b1f5-c1940c82d737-DPmPO1AqrHG5VLmi/Ucm7NbhA0jK3rpZ.pdf","source":{"id":"https://openalex.org/S5407052943","display_name":"Asian Journal of Ethics in Health and Medicine","issn_l":"3108-5059","issn":["3108-5059"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Asian Journal of Ethics in Health and Medicine","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://smerpub.com/storage/files/article/288d2822-ce6f-42da-b1f5-c1940c82d737-DPmPO1AqrHG5VLmi/Ucm7NbhA0jK3rpZ.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5070876018","display_name":"Marilyn J. Hammer","orcid":"https://orcid.org/0000-0002-9561-6144","observed_orcids":["https://orcid.org/0000-0002-9561-6144"]},"institutions":[{"id":"https://openalex.org/I1324220072","display_name":"Mount Sinai Hospital","ror":"https://ror.org/01zkyz108","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1320796813","https://openalex.org/I1324220072"]},{"id":"https://openalex.org/I98704320","display_name":"Icahn School of Medicine at Mount Sinai","ror":"https://ror.org/04a9tmd77","country_code":"US","type":"education","lineage":["https://openalex.org/I1320796813","https://openalex.org/I98704320"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Marilyn J. Hammer","raw_affiliation_strings":["Department of Medicine, Hematology and Medical Oncology , Icahn School of Medicine at Mount Sinai , New York , NY , USA","Department of Nursing , The Mount Sinai Hospital , New York , NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Hematology and Medical Oncology , Icahn School of Medicine at Mount Sinai , New York , NY , USA","institution_ids":["https://openalex.org/I98704320"]},{"raw_affiliation_string":"Department of Nursing , The Mount Sinai Hospital , New York , NY","institution_ids":["https://openalex.org/I1324220072"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5070876018"],"corresponding_institution_ids":["https://openalex.org/I1324220072","https://openalex.org/I98704320"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.34196712,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"1","issue":"1","first_page":"63","last_page":"75"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13275","display_name":"Medical and Health Sciences Research","score":0.8833000063896179,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13275","display_name":"Medical and Health Sciences Research","score":0.8833000063896179,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.05090000107884407,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.04820000007748604,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/ethical-legal-and-social-implications","display_name":"ethical, legal and social implications","score":0.9470000267028809},{"id":"https://openalex.org/keywords/genomic-medicine","display_name":"genomic medicine","score":0.9210000038146973},{"id":"https://openalex.org/keywords/genetic-privacy","display_name":"genetic privacy","score":0.6620000004768372},{"id":"https://openalex.org/keywords/risk-reduction","display_name":"risk mitigation","score":0.6370000243186951}],"concepts":[{"id":"https://openalex.org/C2992545694","wikidata":"https://www.wikidata.org/wiki/Q1071953","display_name":"Genomic medicine","level":2,"score":0.7044000029563904},{"id":"https://openalex.org/C2776035688","wikidata":"https://www.wikidata.org/wiki/Q1606558","display_name":"Affect (linguistics)","level":2,"score":0.49939998984336853},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.4950000047683716},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.4918000102043152},{"id":"https://openalex.org/C2780673598","wikidata":"https://www.wikidata.org/wiki/Q285223","display_name":"Genetic testing","level":2,"score":0.45649999380111694},{"id":"https://openalex.org/C163763905","wikidata":"https://www.wikidata.org/wiki/Q17075943","display_name":"Precision medicine","level":2,"score":0.44429999589920044},{"id":"https://openalex.org/C32220436","wikidata":"https://www.wikidata.org/wiki/Q2072214","display_name":"Personalized medicine","level":2,"score":0.4250999987125397},{"id":"https://openalex.org/C3020077223","wikidata":"https://www.wikidata.org/wiki/Q222046","display_name":"Genomic information","level":4,"score":0.37630000710487366},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.34619998931884766},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3352999985218048},{"id":"https://openalex.org/C189206191","wikidata":"https://www.wikidata.org/wiki/Q222046","display_name":"Genomics","level":4,"score":0.326200008392334},{"id":"https://openalex.org/C3018587665","wikidata":"https://www.wikidata.org/wiki/Q7268696","display_name":"Qualitative analysis","level":3,"score":0.3260999917984009},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.32100000977516174},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.31459999084472656},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3050999939441681},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3034999966621399},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.29350000619888306},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.28519999980926514},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.28189998865127563},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.272599995136261},{"id":"https://openalex.org/C3019806175","wikidata":"https://www.wikidata.org/wiki/Q11974939","display_name":"Health professionals","level":3,"score":0.2648000121116638},{"id":"https://openalex.org/C112930515","wikidata":"https://www.wikidata.org/wiki/Q4389547","display_name":"Risk analysis (engineering)","level":1,"score":0.25540000200271606},{"id":"https://openalex.org/C539667460","wikidata":"https://www.wikidata.org/wiki/Q2414942","display_name":"Management science","level":1,"score":0.2542000114917755},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.2533000111579895}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.51847/vws8jjn9xi","doi":"https://doi.org/10.51847/vws8jjn9xi","is_oa":true,"landing_page_url":"https://doi.org/10.51847/vws8jjn9xi","pdf_url":"https://smerpub.com/storage/files/article/288d2822-ce6f-42da-b1f5-c1940c82d737-DPmPO1AqrHG5VLmi/Ucm7NbhA0jK3rpZ.pdf","source":{"id":"https://openalex.org/S5407052943","display_name":"Asian Journal of Ethics in Health and Medicine","issn_l":"3108-5059","issn":["3108-5059"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Asian Journal of Ethics in Health and Medicine","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.51847/vws8jjn9xi","doi":"https://doi.org/10.51847/vws8jjn9xi","is_oa":true,"landing_page_url":"https://doi.org/10.51847/vws8jjn9xi","pdf_url":"https://smerpub.com/storage/files/article/288d2822-ce6f-42da-b1f5-c1940c82d737-DPmPO1AqrHG5VLmi/Ucm7NbhA0jK3rpZ.pdf","source":{"id":"https://openalex.org/S5407052943","display_name":"Asian Journal of Ethics in Health and Medicine","issn_l":"3108-5059","issn":["3108-5059"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Asian Journal of Ethics in Health and Medicine","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.5683000087738037,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4414927092.pdf","grobid_xml":"https://content.openalex.org/works/W4414927092.grobid-xml"},"referenced_works_count":29,"referenced_works":["https://openalex.org/W1979028226","https://openalex.org/W1991911208","https://openalex.org/W1994601488","https://openalex.org/W1996085686","https://openalex.org/W2016030740","https://openalex.org/W2033501549","https://openalex.org/W2037283500","https://openalex.org/W2068021528","https://openalex.org/W2102085984","https://openalex.org/W2108260468","https://openalex.org/W2110454937","https://openalex.org/W2120194063","https://openalex.org/W2133722455","https://openalex.org/W2142883724","https://openalex.org/W2147572466","https://openalex.org/W2183891019","https://openalex.org/W2277529540","https://openalex.org/W2484686480","https://openalex.org/W2501122491","https://openalex.org/W2560266279","https://openalex.org/W2605869170","https://openalex.org/W2729521425","https://openalex.org/W2954382688","https://openalex.org/W2982421626","https://openalex.org/W3197057224","https://openalex.org/W4244416740","https://openalex.org/W4246867795","https://openalex.org/W4247105338","https://openalex.org/W4254749460"],"related_works":["https://openalex.org/W3196002274","https://openalex.org/W4390725044","https://openalex.org/W3016490195","https://openalex.org/W3138762628","https://openalex.org/W3157008389","https://openalex.org/W2082904128","https://openalex.org/W6927699632","https://openalex.org/W7203946707","https://openalex.org/W2141497413","https://openalex.org/W4405363991"],"abstract_inverted_index":{"Genetic":[0],"and":[1,12,27,38,47,58,66],"genomic":[2,53],"testing":[3],"(GGT)":[4],"offer":[5],"valuable":[6],"tools":[7],"for":[8],"enhancing":[9],"health":[10],"outcomes":[11],"preventing":[13],"disease.":[14],"However,":[15],"because":[16],"GGT":[17],"involves":[18],"sensitive":[19],"personal":[20],"information":[21],"that":[22],"can":[23],"significantly":[24],"affect":[25],"patients":[26],"their":[28],"families,":[29,57],"it":[30],"is":[31],"crucial":[32],"to":[33,45,55],"address":[34],"its":[35],"Ethical,":[36],"Legal,":[37],"Social":[39],"Implications":[40],"(ELSI).":[41],"ELSI":[42],"research":[43],"seeks":[44],"identify":[46],"mitigate":[48],"potential":[49],"risks":[50],"posed":[51],"by":[52],"studies":[54],"individuals,":[56],"society.":[59],"Existing":[60],"literature,":[61],"however,":[62],"shows":[63],"both":[64],"quantitative":[65],"qualitative":[67]},"counts_by_year":[],"updated_date":"2026-08-23T07:36:19.812096","created_date":"2025-10-10T00:00:00"}