{"id":"https://openalex.org/W4414716108","doi":"https://doi.org/10.1016/s1569-1993(25)02059-4","title":"441 Improving Life with CF: feasibility and adult outcomes from a multi-site US primary palliative care trial","display_name":"441 Improving Life with CF: feasibility and adult outcomes from a multi-site US primary palliative care trial","publication_year":2025,"publication_date":"2025-10-01","ids":{"openalex":"https://openalex.org/W4414716108","doi":"https://doi.org/10.1016/s1569-1993(25)02059-4"},"language":"en","primary_location":{"id":"doi:10.1016/s1569-1993(25)02059-4","doi":"https://doi.org/10.1016/s1569-1993(25)02059-4","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s1569-1993(25)02059-4","pdf_url":null,"source":{"id":"https://openalex.org/S147774598","display_name":"Journal of Cystic Fibrosis","issn_l":"1569-1993","issn":["1569-1993","1873-5010"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cystic Fibrosis","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033647267","display_name":"A. Georgiopoulos","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"A. Georgiopoulos","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006896292","display_name":"Stephanie DiFiglia","orcid":"https://orcid.org/0000-0002-6288-701X","observed_orcids":["https://orcid.org/0000-0002-6288-701X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"S. DiFiglia","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002824505","display_name":"Elizabeth K. Seng","orcid":"https://orcid.org/0000-0002-8938-4949","observed_orcids":["https://orcid.org/0000-0002-8938-4949"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"E. Seng","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090628353","display_name":"Russell K. Portenoy","orcid":"https://orcid.org/0000-0001-9637-9577","observed_orcids":["https://orcid.org/0000-0001-9637-9577"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"R. Portenoy","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033713353","display_name":"N. Chaudhary","orcid":"https://orcid.org/0009-0008-2567-9933","observed_orcids":["https://orcid.org/0009-0008-2567-9933"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"N. Chaudhary","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082977318","display_name":"Jonathan C. Wang","orcid":"https://orcid.org/0000-0002-7670-0535","observed_orcids":["https://orcid.org/0000-0002-7670-0535"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"J. Wang","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"P. Walker","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"P. Walker","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033481450","display_name":"B. Middour-Oxler","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"B. Middour-Oxler","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020267507","display_name":"Rachel W. Linnemann","orcid":"https://orcid.org/0000-0002-6839-0936","observed_orcids":["https://orcid.org/0000-0002-6839-0936"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"R. Linnemann","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069593757","display_name":"Catherine Kier","orcid":"https://orcid.org/0000-0003-3694-9122","observed_orcids":["https://orcid.org/0000-0003-3694-9122"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"C. Kier","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"D. Friedman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"D. Friedman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"B. Diener","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"B. Diener","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091807804","display_name":"Maria N. Berdella","orcid":"https://orcid.org/0000-0001-5816-9501","observed_orcids":["https://orcid.org/0000-0001-5816-9501"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"M. Berdella","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065047031","display_name":"Jessica Trentacoste","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"J. Trentacoste","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5079603573","display_name":"Teresa Stables-Carney","orcid":"https://orcid.org/0000-0002-0770-9165","observed_orcids":["https://orcid.org/0000-0002-0770-9165"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"T. Stables-Carney","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070643398","display_name":"Amy Plachta","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"A. Plachta","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5092547245","display_name":"Katherine Papia","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"K. Papia","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042035919","display_name":"T. Frantzen","orcid":"https://orcid.org/0000-0001-8282-7682","observed_orcids":["https://orcid.org/0000-0001-8282-7682"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"T. Frantzen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082742745","display_name":"C. Esposito","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"C. Esposito","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5019729863","display_name":"Lael M. Yonker","orcid":"https://orcid.org/0000-0003-1711-8227","observed_orcids":["https://orcid.org/0000-0003-1711-8227"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"L. Yonker","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"R. Wei","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"R. Wei","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074385540","display_name":"Tara M. D. Mullen","orcid":"https://orcid.org/0009-0009-9618-5145","observed_orcids":["https://orcid.org/0009-0009-9618-5145"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"T. Mullen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5080911111","display_name":"Lara K Dhingra","orcid":"https://orcid.org/0000-0001-5924-4139","observed_orcids":["https://orcid.org/0000-0001-5924-4139"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"L. Dhingra","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":4370,"currency":"USD","value_usd":4370},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.31568431,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"24","issue":null,"first_page":"S251a","last_page":"S252"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9028000235557556,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9028000235557556,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.08560000360012054,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.0008999999845400453,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.843999981880188},{"id":"https://openalex.org/keywords/primary-palliative-care","display_name":"primary palliative care","score":0.8009999990463257},{"id":"https://openalex.org/keywords/adult-outcomes","display_name":"adult outcomes","score":0.6079999804496765},{"id":"https://openalex.org/keywords/feasibility","display_name":"feasibility","score":0.8009999990463257},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.8270000219345093}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9783999919891357},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.7193999886512756},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.5777000188827515},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.548799991607666},{"id":"https://openalex.org/C2776938444","wikidata":"https://www.wikidata.org/wiki/Q178194","display_name":"Cystic fibrosis","level":2,"score":0.36570000648498535},{"id":"https://openalex.org/C194828623","wikidata":"https://www.wikidata.org/wiki/Q2861470","display_name":"Emergency medicine","level":1,"score":0.28790000081062317},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.2768000066280365},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.26840001344680786},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.25999999046325684},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.23389999568462372}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1016/s1569-1993(25)02059-4","doi":"https://doi.org/10.1016/s1569-1993(25)02059-4","is_oa":false,"landing_page_url":"https://doi.org/10.1016/s1569-1993(25)02059-4","pdf_url":null,"source":{"id":"https://openalex.org/S147774598","display_name":"Journal of Cystic Fibrosis","issn_l":"1569-1993","issn":["1569-1993","1873-5010"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cystic Fibrosis","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4387746746","https://openalex.org/W2947325388","https://openalex.org/W3172396959","https://openalex.org/W4414695440","https://openalex.org/W4414696390","https://openalex.org/W7163136314","https://openalex.org/W4249517934","https://openalex.org/W4402233967","https://openalex.org/W2970119020","https://openalex.org/W3033990951"],"abstract_inverted_index":null,"counts_by_year":[],"updated_date":"2026-10-14T16:39:01.820549","created_date":"2025-10-10T00:00:00"}
