{"id":"https://openalex.org/W4412500554","doi":"https://doi.org/10.1080/08959420.2025.2523137","title":"Responding to the Needs of Dementia Care Partners: Recommendations for Policy Change at the State and Federal Levels","display_name":"Responding to the Needs of Dementia Care Partners: Recommendations for Policy Change at the State and Federal Levels","publication_year":2025,"publication_date":"2025-07-20","ids":{"openalex":"https://openalex.org/W4412500554","doi":"https://doi.org/10.1080/08959420.2025.2523137","pmid":"https://pubmed.ncbi.nlm.nih.gov/40684294"},"language":"en","primary_location":{"id":"doi:10.1080/08959420.2025.2523137","doi":"https://doi.org/10.1080/08959420.2025.2523137","is_oa":true,"landing_page_url":"https://doi.org/10.1080/08959420.2025.2523137","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/08959420.2025.2523137?needAccess=true","source":{"id":"https://openalex.org/S190760531","display_name":"Journal of Aging & Social Policy","issn_l":"0895-9420","issn":["0895-9420","1545-0821"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","jufo-1","ki-jl-1","medline","norway-2"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Aging & Social Policy","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://www.tandfonline.com/doi/pdf/10.1080/08959420.2025.2523137?needAccess=true","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5058542258","display_name":"Walter D Dawson","orcid":"https://orcid.org/0000-0002-1172-0471","observed_orcids":["https://orcid.org/0000-0002-1172-0471"]},"institutions":[{"id":"https://openalex.org/I126345244","display_name":"Portland State University","ror":"https://ror.org/00yn2fy02","country_code":"US","type":"education","lineage":["https://openalex.org/I126345244"]},{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Walter D. Dawson","raw_affiliation_strings":["Oregon Health & Science University","Portland State University","Institute on Aging, College of Urban & Public Affairs, Portland State University, Portland, USA","Layton Aging & Alzheimer's Disease Research Center, School of Medicine, Oregon Health & Science University, Portland, USA"],"raw_orcid":"https://orcid.org/0000-0002-1172-0471","affiliations":[{"raw_affiliation_string":"Oregon Health & Science University","institution_ids":["https://openalex.org/I165690674"]},{"raw_affiliation_string":"Portland State University","institution_ids":["https://openalex.org/I126345244"]},{"raw_affiliation_string":"Institute on Aging, College of Urban & Public Affairs, Portland State University, Portland, USA","institution_ids":["https://openalex.org/I126345244"]},{"raw_affiliation_string":"Layton Aging & Alzheimer's Disease Research Center, School of Medicine, Oregon Health & Science University, Portland, USA","institution_ids":["https://openalex.org/I165690674"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5116102799","display_name":"Jenn Reed","orcid":"https://orcid.org/0009-0004-9979-5436","observed_orcids":["https://orcid.org/0009-0004-9979-5436"]},"institutions":[{"id":"https://openalex.org/I126345244","display_name":"Portland State University","ror":"https://ror.org/00yn2fy02","country_code":"US","type":"education","lineage":["https://openalex.org/I126345244"]},{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jenn Reed","raw_affiliation_strings":["Oregon Health & Science University-Portland State University School of Public Health","Oregon Health & Science University-Portland State University School of Public Health, Portland, USA"],"raw_orcid":"https://orcid.org/0009-0004-9979-5436","affiliations":[{"raw_affiliation_string":"Oregon Health & Science University-Portland State University School of Public Health","institution_ids":["https://openalex.org/I126345244","https://openalex.org/I165690674"]},{"raw_affiliation_string":"Oregon Health & Science University-Portland State University School of Public Health, Portland, USA","institution_ids":["https://openalex.org/I126345244","https://openalex.org/I165690674"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5019313417","display_name":"Allison Lindauer","orcid":"https://orcid.org/0000-0002-4488-3373","observed_orcids":["https://orcid.org/0000-0002-4488-3373"]},"institutions":[{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Allison Lindauer","raw_affiliation_strings":["Oregon Health & Science University","Layton Aging & Alzheimer's Disease Research Center, School of Medicine, Oregon Health & Science University, Portland, USA"],"raw_orcid":"https://orcid.org/0000-0002-4488-3373","affiliations":[{"raw_affiliation_string":"Oregon Health & Science University","institution_ids":["https://openalex.org/I165690674"]},{"raw_affiliation_string":"Layton Aging & Alzheimer's Disease Research Center, School of Medicine, Oregon Health & Science University, Portland, USA","institution_ids":["https://openalex.org/I165690674"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5027597577","display_name":"Sherril B. Gelmon","orcid":"https://orcid.org/0000-0002-5143-535X","observed_orcids":["https://orcid.org/0000-0002-5143-535X"]},"institutions":[{"id":"https://openalex.org/I126345244","display_name":"Portland State University","ror":"https://ror.org/00yn2fy02","country_code":"US","type":"education","lineage":["https://openalex.org/I126345244"]},{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sherril B. Gelmon","raw_affiliation_strings":["Oregon Health & Science University-Portland State University School of Public Health","Oregon Health & Science University-Portland State University School of Public Health, Portland, USA"],"raw_orcid":"https://orcid.org/0000-0002-5143-535X","affiliations":[{"raw_affiliation_string":"Oregon Health & Science University-Portland State University School of Public Health","institution_ids":["https://openalex.org/I126345244","https://openalex.org/I165690674"]},{"raw_affiliation_string":"Oregon Health & Science University-Portland State University School of Public Health, Portland, USA","institution_ids":["https://openalex.org/I126345244","https://openalex.org/I165690674"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5058542258"],"corresponding_institution_ids":["https://openalex.org/I126345244","https://openalex.org/I165690674"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.17165407,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"38","issue":"1","first_page":"71","last_page":"91"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10009","display_name":"Dementia and Cognitive Impairment Research","score":0.9458000063896179,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10009","display_name":"Dementia and Cognitive Impairment Research","score":0.9458000063896179,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.02500000037252903,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11376","display_name":"Geriatric Care and Nursing Homes","score":0.008299999870359898,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/dementia-care-partners","display_name":"dementia care partners","score":0.9919999837875366},{"id":"https://openalex.org/keywords/alzheimer-s-disease-and-related-dementias","display_name":"Alzheimer's disease and related dementias","score":0.9670000076293945},{"id":"https://openalex.org/keywords/policy-recommendations","display_name":"policy recommendations","score":0.6320000290870667},{"id":"https://openalex.org/keywords/underserved-populations","display_name":"underserved populations","score":0.9070000052452087},{"id":"https://openalex.org/keywords/respite-care","display_name":"respite care","score":0.875},{"id":"https://openalex.org/keywords/home-care","display_name":"home care","score":0.7739999890327454},{"id":"https://openalex.org/keywords/care-coordination","display_name":"care coordination","score":0.46399998664855957},{"id":"https://openalex.org/keywords/asian-americans","display_name":"Asian Americans","score":0.4320000112056732},{"id":"https://openalex.org/keywords/african-americans","display_name":"African Americans","score":0.9409999847412109},{"id":"https://openalex.org/keywords/native-americans","display_name":"Native Americans","score":0.8420000076293945},{"id":"https://openalex.org/keywords/latinx-americans","display_name":"Latinx Americans","score":0.9380000233650208},{"id":"https://openalex.org/keywords/health-care-financing","display_name":"health care financing","score":0.3700000047683716},{"id":"https://openalex.org/keywords/federal-and-state-policy","display_name":"federal and state policy","score":0.6140000224113464}],"concepts":[{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.7009527683258057},{"id":"https://openalex.org/C48103436","wikidata":"https://www.wikidata.org/wiki/Q599031","display_name":"State (computer science)","level":2,"score":0.5766465067863464},{"id":"https://openalex.org/C3019808023","wikidata":"https://www.wikidata.org/wiki/Q546113","display_name":"State policy","level":3,"score":0.47256535291671753},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.45890870690345764},{"id":"https://openalex.org/C3116431","wikidata":"https://www.wikidata.org/wiki/Q31728","display_name":"Public administration","level":1,"score":0.3894757926464081},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3808985948562622},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3799729347229004},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.3729850649833679},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3442494571208954},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3289383053779602},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3201488256454468},{"id":"https://openalex.org/C123587114","wikidata":"https://www.wikidata.org/wiki/Q2101508","display_name":"Policy analysis","level":2,"score":0.16785481572151184},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.0},{"id":"https://openalex.org/C11413529","wikidata":"https://www.wikidata.org/wiki/Q8366","display_name":"Algorithm","level":1,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000544","descriptor_name":"Alzheimer Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D000544","descriptor_name":"Alzheimer Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D003704","descriptor_name":"Dementia","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D003704","descriptor_name":"Dementia","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006291","descriptor_name":"Health Policy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006291","descriptor_name":"Health Policy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006301","descriptor_name":"Health Services Needs and Demand","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006301","descriptor_name":"Health Services Needs and Demand","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1080/08959420.2025.2523137","doi":"https://doi.org/10.1080/08959420.2025.2523137","is_oa":true,"landing_page_url":"https://doi.org/10.1080/08959420.2025.2523137","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/08959420.2025.2523137?needAccess=true","source":{"id":"https://openalex.org/S190760531","display_name":"Journal of Aging & Social Policy","issn_l":"0895-9420","issn":["0895-9420","1545-0821"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","jufo-1","ki-jl-1","medline","norway-2"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Aging & Social Policy","raw_type":"journal-article"},{"id":"pmid:40684294","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40684294","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of aging & social policy","raw_type":"Journal Article"},{"id":"pmh:oai:pdxscholar.library.pdx.edu:aging_pub-1163","doi":null,"is_oa":false,"landing_page_url":"https://pdxscholar.library.pdx.edu/aging_pub/162","pdf_url":null,"source":{"id":"https://openalex.org/S4377196300","display_name":"PDXScholar  (Portland State University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I126345244","host_organization_name":"Portland State University","host_organization_lineage":["https://openalex.org/I126345244"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Institute on Aging Publications","raw_type":"text"}],"best_oa_location":{"id":"doi:10.1080/08959420.2025.2523137","doi":"https://doi.org/10.1080/08959420.2025.2523137","is_oa":true,"landing_page_url":"https://doi.org/10.1080/08959420.2025.2523137","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/08959420.2025.2523137?needAccess=true","source":{"id":"https://openalex.org/S190760531","display_name":"Journal of Aging & Social Policy","issn_l":"0895-9420","issn":["0895-9420","1545-0821"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","jufo-1","ki-jl-1","medline","norway-2"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Aging & Social Policy","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9476000070571899},{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.7578999996185303}],"sustainable_development_goals_aurora":[{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.41999998688697815}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320309493","display_name":"Portland State University","ror":"https://ror.org/00yn2fy02"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4412500554.pdf","grobid_xml":"https://content.openalex.org/works/W4412500554.grobid-xml"},"referenced_works_count":73,"referenced_works":["https://openalex.org/W561751346","https://openalex.org/W802759804","https://openalex.org/W1979290264","https://openalex.org/W1984367196","https://openalex.org/W2004516038","https://openalex.org/W2075979240","https://openalex.org/W2085028749","https://openalex.org/W2136817231","https://openalex.org/W2164110844","https://openalex.org/W2176679799","https://openalex.org/W2260084861","https://openalex.org/W2490867851","https://openalex.org/W2509974885","https://openalex.org/W2520560270","https://openalex.org/W2529646990","https://openalex.org/W2572865572","https://openalex.org/W2597569477","https://openalex.org/W2605833293","https://openalex.org/W2729458811","https://openalex.org/W2746470689","https://openalex.org/W2886320675","https://openalex.org/W2905760655","https://openalex.org/W2921543158","https://openalex.org/W2922228416","https://openalex.org/W2927819526","https://openalex.org/W2941255803","https://openalex.org/W2948166643","https://openalex.org/W2966417949","https://openalex.org/W2976855290","https://openalex.org/W3004425956","https://openalex.org/W3012382009","https://openalex.org/W3016238476","https://openalex.org/W3016735756","https://openalex.org/W3024212446","https://openalex.org/W3036674917","https://openalex.org/W3037405589","https://openalex.org/W3092566518","https://openalex.org/W3117092297","https://openalex.org/W3117655626","https://openalex.org/W3125656453","https://openalex.org/W3130709955","https://openalex.org/W3132179731","https://openalex.org/W3132193694","https://openalex.org/W3134616641","https://openalex.org/W3170399214","https://openalex.org/W3185797914","https://openalex.org/W3196304975","https://openalex.org/W3197869141","https://openalex.org/W3207285386","https://openalex.org/W4200084151","https://openalex.org/W4205468470","https://openalex.org/W4206055706","https://openalex.org/W4220932331","https://openalex.org/W4221023005","https://openalex.org/W4280520987","https://openalex.org/W4281785153","https://openalex.org/W4283687387","https://openalex.org/W4285182475","https://openalex.org/W4292410795","https://openalex.org/W4308253902","https://openalex.org/W4313312279","https://openalex.org/W4362454578","https://openalex.org/W4366351919","https://openalex.org/W4377220449","https://openalex.org/W4384819968","https://openalex.org/W4388781088","https://openalex.org/W4388949097","https://openalex.org/W4390421041","https://openalex.org/W4391542039","https://openalex.org/W4396560090","https://openalex.org/W4400981306","https://openalex.org/W4404152984","https://openalex.org/W4406234794"],"related_works":["https://openalex.org/W2409059799","https://openalex.org/W364817481","https://openalex.org/W1972242255","https://openalex.org/W2890927416","https://openalex.org/W2775021631","https://openalex.org/W2128765271","https://openalex.org/W2966412519","https://openalex.org/W2028416698","https://openalex.org/W3126949736","https://openalex.org/W4285295191"],"abstract_inverted_index":{"The":[0],"need":[1],"to":[2,22,111,133,172,184],"optimize":[3],"supports":[4],"of":[5,29,70,157,167],"Alzheimer\u2019s":[6],"disease":[7],"and":[8,26,45,56,78,100,126,129,140,144,148,155,175,178],"related":[9,171],"dementias":[10],"(ADRD)":[11],"care":[12,25,53,86,116,135,153,163,192],"partners":[13,87,164],"through":[14,63],"policy":[15,169],"innovation":[16],"is":[17],"high.":[18],"This":[19],"study":[20],"sought":[21],"frame":[23],"the":[24,94],"support":[27,73,151],"needs":[28],"multiple":[30],"historically":[31,91,197],"underrepresented":[32],"populations":[33,189],"who":[34],"may":[35,50],"be":[36,182],"underserved":[37,92,198],"and/or":[38],"have":[39],"difficulty":[40],"accessing":[41],"culturally":[42],"specific":[43,47,168],"services":[44],"determine":[46],"policies":[48,180],"that":[49,72],"reduce":[51],"ADRD":[52,77,191],"partner":[54,193],"burden":[55],"improve":[57],"wellbeing.":[58],"Qualitative":[59],"data":[60],"were":[61,120],"gathered":[62],"interviews":[64],"(N":[65,81],"=":[66,82],"24)":[67],"with":[68,76,84],"leaders":[69,103],"organizations":[71],"people":[74],"living":[75],"focus":[79],"groups":[80],"5)":[83],"dementia":[85],"from":[88],"four":[89],"communities":[90],"in":[93,106,190],"United":[95],"States":[96],"(Asian,":[97],"Black,":[98],"Indigenous,":[99],"Latinx).":[101],"Organizational":[102],"also":[104],"participated":[105],"a":[107],"modified":[108],"Delphi":[109],"process":[110],"identify":[112],"priorities":[113,160,187],"for":[114,152,161,196],"supporting":[115,162],"partners.":[117],"Multiple":[118],"themes":[119],"identified":[121],"including:":[122],"information":[123],"resources;":[124],"navigation":[125],"coordination":[127],"within":[128],"across":[130,188],"systems;":[131],"access":[132],"clinicians,":[134],"teams,":[136],"health/personal":[137],"records;":[138],"legal":[139],"financial":[141],"issues;":[142],"in-home":[143],"respite":[145],"care;":[146],"psychological":[147],"physical":[149],"health":[150],"partners;":[154],"flexibility":[156],"schedules.":[158],"Policy-related":[159],"informed":[165],"development":[166],"recommendations":[170],"financing,":[173],"supports,":[174,194],"respite.":[176],"State":[177],"national":[179],"can":[181],"enhanced":[183],"address":[185],"these":[186],"especially":[195],"groups.":[199]},"counts_by_year":[],"updated_date":"2026-09-09T07:26:56.047234","created_date":"2025-10-10T00:00:00"}