{"id":"https://openalex.org/W4411265728","doi":"https://doi.org/10.12688/hrbopenres.14164.3","title":"A literature review of cancer diagnostic tests and treatments in adults with intellectual disability","display_name":"A literature review of cancer diagnostic tests and treatments in adults with intellectual disability","publication_year":2025,"publication_date":"2025-06-13","ids":{"openalex":"https://openalex.org/W4411265728","doi":"https://doi.org/10.12688/hrbopenres.14164.3","pmid":"https://pubmed.ncbi.nlm.nih.gov/41868999","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/13000398"},"language":"en","primary_location":{"id":"doi:10.12688/hrbopenres.14164.3","doi":"https://doi.org/10.12688/hrbopenres.14164.3","is_oa":true,"landing_page_url":"https://doi.org/10.12688/hrbopenres.14164.3","pdf_url":null,"source":{"id":"https://openalex.org/S4210186582","display_name":"HRB Open Research","issn_l":"2515-4826","issn":["2515-4826"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","vabb-shw"],"host_organization":"https://openalex.org/P4310320357","host_organization_name":"Faculty of 1000","host_organization_lineage":["https://openalex.org/P4310320357","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Faculty of 1000","Taylor & Francis"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Research","raw_type":"journal-article"},"volume":null,"type":"review","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.12688/hrbopenres.14164.3","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5118196174","display_name":"Kennedy Smihula","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kennedy Smihula","raw_affiliation_strings":["College of Nursing, The Pennsylvania State University, University Park, Pennsylvania"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"College of Nursing, The Pennsylvania State University, University Park, Pennsylvania","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5118138493","display_name":"Mikayla Danon","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mikayla Danon","raw_affiliation_strings":["College of Nursing, The Pennsylvania State University, University Park, Pennsylvania"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"College of Nursing, The Pennsylvania State University, University Park, Pennsylvania","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5134570823","display_name":"Shauna Walsh","orcid":"https://orcid.org/0009-0001-6898-5104","observed_orcids":["https://orcid.org/0009-0001-6898-5104"]},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Shauna Walsh","raw_affiliation_strings":["Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster"],"raw_orcid":"https://orcid.org/0009-0001-6898-5104","affiliations":[{"raw_affiliation_string":"Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015412283","display_name":"Martin J. McMahon","orcid":"https://orcid.org/0000-0002-3340-9537","observed_orcids":["https://orcid.org/0000-0002-3340-9537"]},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Martin McMahon","raw_affiliation_strings":["Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster"],"raw_orcid":"https://orcid.org/0000-0002-3340-9537","affiliations":[{"raw_affiliation_string":"Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5074771160","display_name":"Louise Lynch","orcid":"https://orcid.org/0000-0002-2209-4859","observed_orcids":["https://orcid.org/0000-0002-2209-4859"]},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":true,"raw_author_name":"Louise Lynch","raw_affiliation_strings":["Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster"],"raw_orcid":"https://orcid.org/0000-0002-2209-4859","affiliations":[{"raw_affiliation_string":"Trinity College Dublin School of Nursing and Midwifery, Dublin, Leinster","institution_ids":["https://openalex.org/I205274468"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5074771160"],"corresponding_institution_ids":["https://openalex.org/I205274468"],"apc_list":{"value":859,"currency":"EUR","value_usd":926},"apc_paid":{"value":859,"currency":"EUR","value_usd":926},"fwci":0.2461,"has_fulltext":true,"cited_by_count":2,"citation_normalized_percentile":{"value":0.30870617,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":95,"max":96},"biblio":{"volume":"8","issue":null,"first_page":"66","last_page":"66"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13544","display_name":"Women's cancer prevention and management","score":0.0003000000142492354,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.9950000047683716},{"id":"https://openalex.org/keywords/tumor-screening","display_name":"cancer screening","score":0.734000027179718},{"id":"https://openalex.org/keywords/cancer-diagnosis","display_name":"cancer diagnosis","score":0.9449999928474426},{"id":"https://openalex.org/keywords/cancer-therapy","display_name":"cancer therapy","score":0.9459999799728394},{"id":"https://openalex.org/keywords/adults-with-intellectual-disabilities","display_name":"adults with intellectual disabilities","score":0.8119999766349792},{"id":"https://openalex.org/keywords/barriers-to-healthcare-access","display_name":"barriers to health care access","score":0.8560000061988831},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.9070000052452087},{"id":"https://openalex.org/keywords/patient-autonomy","display_name":"patient autonomy","score":0.8109999895095825},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.6980000138282776},{"id":"https://openalex.org/keywords/tailored-treatment","display_name":"tailored treatment","score":0.6570000052452087},{"id":"https://openalex.org/keywords/delayed-diagnosis","display_name":"delayed diagnosis","score":0.4880000054836273},{"id":"https://openalex.org/keywords/health-disparities","display_name":"health disparities","score":0.6489999890327454},{"id":"https://openalex.org/keywords/breast-cancer","display_name":"breast cancer","score":0.46700000762939453},{"id":"https://openalex.org/keywords/cervical-cancer","display_name":"cervical cancer","score":0.9929999709129333},{"id":"https://openalex.org/keywords/colorectal-cancer","display_name":"colorectal cancer","score":1.0}],"concepts":[{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4811883568763733},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4576491415500641},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3576700687408447},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.17331236600875854}],"mesh":[],"locations_count":8,"locations":[{"id":"doi:10.12688/hrbopenres.14164.3","doi":"https://doi.org/10.12688/hrbopenres.14164.3","is_oa":true,"landing_page_url":"https://doi.org/10.12688/hrbopenres.14164.3","pdf_url":null,"source":{"id":"https://openalex.org/S4210186582","display_name":"HRB Open Research","issn_l":"2515-4826","issn":["2515-4826"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","vabb-shw"],"host_organization":"https://openalex.org/P4310320357","host_organization_name":"Faculty of 1000","host_organization_lineage":["https://openalex.org/P4310320357","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Faculty of 1000","Taylor & Francis"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Research","raw_type":"journal-article"},{"id":"doi:10.12688/hrbopenres.14164.2","doi":"https://doi.org/10.12688/hrbopenres.14164.2","is_oa":true,"landing_page_url":"https://doi.org/10.12688/hrbopenres.14164.2","pdf_url":null,"source":{"id":"https://openalex.org/S4210186582","display_name":"HRB Open Research","issn_l":"2515-4826","issn":["2515-4826"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","vabb-shw"],"host_organization":"https://openalex.org/P4310320357","host_organization_name":"Faculty of 1000","host_organization_lineage":["https://openalex.org/P4310320357","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Faculty of 1000","Taylor & Francis"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Research","raw_type":"journal-article"},{"id":"doi:10.12688/hrbopenres.14164.1","doi":"https://doi.org/10.12688/hrbopenres.14164.1","is_oa":true,"landing_page_url":"https://doi.org/10.12688/hrbopenres.14164.1","pdf_url":"https://hrbopenresearch.org/articles/8-66/pdf","source":{"id":"https://openalex.org/S4210186582","display_name":"HRB Open Research","issn_l":"2515-4826","issn":["2515-4826"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","vabb-shw"],"host_organization":"https://openalex.org/P4310320357","host_organization_name":"Faculty of 1000","host_organization_lineage":["https://openalex.org/P4310320357","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Faculty of 1000","Taylor & Francis"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Research","raw_type":"journal-article"},{"id":"pmid:41868999","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/41868999","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB open research","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:13000398","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13000398/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Res","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:7f2deb0cd30f42aca3cba81b4646c028","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/7f2deb0cd30f42aca3cba81b4646c028","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"HRB Open Research, Vol 8 (2026)","raw_type":"article"},{"id":"pmh:oai:doaj.org/article:f9192772e55f40d18dc4307bb552ab02","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/f9192772e55f40d18dc4307bb552ab02","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"HRB Open Research, Vol 8 (2026)","raw_type":"article"},{"id":"pmh:oai:lenus.ie:10147/647677","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/10147/647677","pdf_url":null,"source":{"id":"https://openalex.org/S4306401756","display_name":"Lenus, The Irish Health Repository (Dr Steevens Hospital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.12688/hrbopenres.14164.3","doi":"https://doi.org/10.12688/hrbopenres.14164.3","is_oa":true,"landing_page_url":"https://doi.org/10.12688/hrbopenres.14164.3","pdf_url":null,"source":{"id":"https://openalex.org/S4210186582","display_name":"HRB Open Research","issn_l":"2515-4826","issn":["2515-4826"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","vabb-shw"],"host_organization":"https://openalex.org/P4310320357","host_organization_name":"Faculty of 1000","host_organization_lineage":["https://openalex.org/P4310320357","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Faculty of 1000","Taylor & Francis"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"HRB Open Research","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"},{"display_name":"Reduced inequalities","score":0.7578999996185303,"id":"https://metadata.un.org/sdg/10"}],"study_designs":[{"display_name":"Systematic Review","id":"https://openalex.org/study-designs/systematic-review"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320309370","display_name":"University of Pennsylvania","ror":"https://ror.org/00b30xv10"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4411265728.pdf","grobid_xml":"https://content.openalex.org/works/W4411265728.grobid-xml"},"referenced_works_count":50,"referenced_works":["https://openalex.org/W1498035993","https://openalex.org/W1898131003","https://openalex.org/W1924456307","https://openalex.org/W1953001144","https://openalex.org/W1963721961","https://openalex.org/W1976000522","https://openalex.org/W1979290264","https://openalex.org/W1990668770","https://openalex.org/W1996500964","https://openalex.org/W2023586846","https://openalex.org/W2060031076","https://openalex.org/W2067926561","https://openalex.org/W2069224417","https://openalex.org/W2077075290","https://openalex.org/W2079895831","https://openalex.org/W2085526005","https://openalex.org/W2091538045","https://openalex.org/W2123517111","https://openalex.org/W2144582106","https://openalex.org/W2153488129","https://openalex.org/W2154301013","https://openalex.org/W2163664503","https://openalex.org/W2333148700","https://openalex.org/W2470314249","https://openalex.org/W2597886184","https://openalex.org/W2609484411","https://openalex.org/W2808138471","https://openalex.org/W2905206747","https://openalex.org/W2963236736","https://openalex.org/W2980485898","https://openalex.org/W2985731865","https://openalex.org/W2988078389","https://openalex.org/W2999848163","https://openalex.org/W3201133800","https://openalex.org/W4200153032","https://openalex.org/W4220843489","https://openalex.org/W4226173297","https://openalex.org/W4233284496","https://openalex.org/W4289135229","https://openalex.org/W4312449426","https://openalex.org/W4313532723","https://openalex.org/W4367031895","https://openalex.org/W4379598332","https://openalex.org/W4380878667","https://openalex.org/W4388034869","https://openalex.org/W4389099255","https://openalex.org/W4391819479","https://openalex.org/W4396676469","https://openalex.org/W4401030818","https://openalex.org/W6958798410"],"related_works":["https://openalex.org/W7154495956","https://openalex.org/W4220936283","https://openalex.org/W7223182333","https://openalex.org/W7064470136","https://openalex.org/W4200153032","https://openalex.org/W4413990695","https://openalex.org/W6944050292","https://openalex.org/W7119788461","https://openalex.org/W7220859832","https://openalex.org/W2050929464"],"abstract_inverted_index":{"Background:":[0],"Adults":[1,243],"with":[2,111,202,244],"intellectual":[3,43,92,112,203,245],"disabilities":[4],"have":[5],"significantly":[6],"lower":[7],"rates":[8],"of":[9,67,90,96,137,183,187,215,234,280],"routine":[10],"cancer":[11,14,103,236,252,267],"screening":[12,30,52,68,171,184],"and":[13,38,58,106,114,121,135,146,163,172,189,206,218,231,254,262,269,282],"is":[15,100],"often":[16],"diagnosed":[17],"at":[18],"more":[19],"advanced":[20],"stages.":[21],"Some":[22],"studies":[23,192],"highlight":[24],"gaps":[25],"that":[26,174,179,223],"exist":[27],"in":[28,41,55,60,80,213,228],"national":[29],"programmes":[31],"for":[32,87,109,200],"cancers":[33],"such":[34,49],"as":[35,50],"breast,":[36],"cervical":[37],"colorectal.":[39],"Evidence":[40],"the":[42,144,181,274],"disability":[44,113,246],"population":[45],"points":[46],"towards":[47],"factors":[48,75],"limited":[51,65],"education,":[53,161,217],"distrust":[54],"healthcare":[56],"providers,":[57],"challenges":[59],"providing":[61],"consent,":[62],"leading":[63],"to":[64,76,101,117,265,273],"uptake":[66],"programmes.":[69],"While":[70],"there":[71,239],"are":[72,240],"many":[73,211],"contributing":[74],"these":[77],"inequalities,":[78],"changes":[79],"individuals'":[81],"health":[82],"status":[83],"may":[84],"go":[85],"unrecognised":[86],"longer":[88],"because":[89],"their":[91,235],"disability.":[93,204],"The":[94,277],"aim":[95],"this":[97],"literature":[98],"review":[99],"explore":[102],"diagnostic":[104,119],"approaches":[105],"treatment":[107,196],"options":[108],"adults":[110],"examine":[115],"barriers":[116,173,249],"accessing":[118,251],"procedures":[120],"treatments.":[122],"Methods:":[123],"Five":[124],"electronic":[125],"databases":[126],"were":[127,198,208,285],"systematically":[128],"searched:":[129],"Cinahl":[130],"Ultimate,":[131],"Medline,":[132],"PsycINFO,":[133],"PubMed,":[134],"Web":[136],"Science.":[138],"Thematic":[139],"analysis":[140],"was":[141,221],"completed":[142],"using":[143],"Braun":[145],"Clark":[147],"Six":[148],"Step":[149],"process.":[150],"Results:":[151],"Four":[152],"main":[153],"themes":[154,209],"emerged":[155],"from":[156],"28":[157],"included":[158],"studies:":[159],"Prevention,":[160],"adaptation,":[162],"ethical":[164],"practice.":[165],"Prevention":[166],"encompassed":[167],"individuals":[168],"receiving":[169],"regular":[170],"prevented":[175],"access.":[176],"Educational":[177],"tools":[178],"explained":[180],"importance":[182],"reduced":[185],"feelings":[186],"stress":[188],"anxiety.":[190],"Case":[191],"illustrated":[193],"how":[194],"specific":[195],"plans":[197],"adapted":[199],"patients":[201,224],"Autonomy":[205],"honesty":[207],"throughout":[210],"studies,":[212],"terms":[214],"treatment,":[216],"diagnostics.":[219],"It":[220],"determined":[222],"should":[225],"be":[226,232],"involved":[227],"decision":[229],"making":[230],"aware":[233],"diagnosis":[237,253,268],"unless":[238],"contra-indications.":[241],"Conclusion:":[242],"face":[247],"considerable":[248],"when":[250],"treatment.":[255],"Barriers,":[256],"including":[257],"living":[258],"conditions,":[259],"communication":[260],"difficulties":[261],"age,":[263],"contributed":[264],"later":[266],"worse":[270],"outcomes,":[271],"compared":[272],"general":[275],"population.":[276],"successful":[278],"use":[279],"education":[281],"tailored":[283],"treatments":[284],"enabling":[286],"factors.":[287]},"counts_by_year":[{"year":2026,"cited_by_count":2}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2025-10-10T00:00:00"}