{"id":"https://openalex.org/W4411200700","doi":"https://doi.org/10.1200/go-24-00532","title":"International Fibrolamellar Cancer Registry: Opportunities and Challenges","display_name":"International Fibrolamellar Cancer Registry: Opportunities and Challenges","publication_year":2025,"publication_date":"2025-06-01","ids":{"openalex":"https://openalex.org/W4411200700","doi":"https://doi.org/10.1200/go-24-00532","pmid":"https://pubmed.ncbi.nlm.nih.gov/40499052"},"language":"en","primary_location":{"id":"doi:10.1200/go-24-00532","doi":"https://doi.org/10.1200/go-24-00532","is_oa":true,"landing_page_url":"https://doi.org/10.1200/go-24-00532","pdf_url":"https://ascopubs.org/doi/pdfdirect/10.1200/GO-24-00532","source":{"id":"https://openalex.org/S4210209558","display_name":"JCO Global Oncology","issn_l":"2687-8941","issn":["2687-8941"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JCO Global Oncology","raw_type":"journal-article"},"volume":null,"type":"editorial","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://ascopubs.org/doi/pdfdirect/10.1200/GO-24-00532","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5071506648","display_name":"Layal Al Mahmasani","orcid":"https://orcid.org/0000-0002-0661-4383","observed_orcids":["https://orcid.org/0000-0002-0661-4383"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Layal Al Mahmasani","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":"https://orcid.org/0000-0002-0661-4383","affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045756365","display_name":"Marinela Capanu","orcid":"https://orcid.org/0000-0003-4953-3193","observed_orcids":["https://orcid.org/0000-0003-4953-3193"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Marinela Capanu","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043454039","display_name":"Kurt Losert","orcid":"https://orcid.org/0009-0003-4360-0399","observed_orcids":["https://orcid.org/0009-0003-4360-0399"]},"institutions":[{"id":"https://openalex.org/I4210089664","display_name":"Fibrolamellar Cancer Foundation","ror":"https://ror.org/008t3fy21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210089664"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kurt Losert","raw_affiliation_strings":["Fibrolamellar Cancer Foundation, Greenwich, CT"],"raw_orcid":"https://orcid.org/0009-0003-4360-0399","affiliations":[{"raw_affiliation_string":"Fibrolamellar Cancer Foundation, Greenwich, CT","institution_ids":["https://openalex.org/I4210089664"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038396374","display_name":"Joanne F. Chou","orcid":"https://orcid.org/0000-0002-6866-2022","observed_orcids":["https://orcid.org/0000-0002-6866-2022"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joanne F. Chou","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057803141","display_name":"Maeve Aine Lowery","orcid":"https://orcid.org/0000-0003-1354-7606","observed_orcids":["https://orcid.org/0000-0003-1354-7606"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Maeve Aine Lowery","raw_affiliation_strings":["Trinity St James Cancer Institute, Dublin, Ireland"],"raw_orcid":"https://orcid.org/0000-0003-1354-7606","affiliations":[{"raw_affiliation_string":"Trinity St James Cancer Institute, Dublin, Ireland","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082659686","display_name":"Martina Hennessy","orcid":"https://orcid.org/0000-0002-2153-5288","observed_orcids":["https://orcid.org/0000-0002-2153-5288"]},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Martina Hennessy","raw_affiliation_strings":["Trinity College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108591092","display_name":"Mathew Ray","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1291425158","display_name":"Google (United States)","ror":"https://ror.org/00njsd438","country_code":"US","type":"company","lineage":["https://openalex.org/I1291425158","https://openalex.org/I4210128969"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mathew Ray","raw_affiliation_strings":["Creative Lab at Google, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Creative Lab at Google, New York, NY","institution_ids":["https://openalex.org/I1291425158"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Suzanne Chambers","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1291425158","display_name":"Google (United States)","ror":"https://ror.org/00njsd438","country_code":"US","type":"company","lineage":["https://openalex.org/I1291425158","https://openalex.org/I4210128969"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Suzanne Chambers","raw_affiliation_strings":["Creative Lab at Google, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Creative Lab at Google, New York, NY","institution_ids":["https://openalex.org/I1291425158"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5067725384","display_name":"Amin Yaqubie","orcid":"https://orcid.org/0009-0001-0158-6774","observed_orcids":["https://orcid.org/0009-0001-0158-6774"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Amin Yaqubie","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101126018","display_name":"Andrew Zarski","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew Zarski","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5073117308","display_name":"Imane Hassan El Dika","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Imane H. El Dika","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056690226","display_name":"Joseph S. Light","orcid":"https://orcid.org/0009-0006-5143-4425","observed_orcids":["https://orcid.org/0009-0006-5143-4425"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joseph S. Light","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":"https://orcid.org/0009-0006-5143-4425","affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002140630","display_name":"Michael P. LaQuaglia","orcid":"https://orcid.org/0000-0002-7059-9851","observed_orcids":["https://orcid.org/0000-0002-7059-9851"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Michael P. La Quaglia","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076438320","display_name":"Eileen Mary O'Reilly","orcid":"https://orcid.org/0000-0002-8076-9199","observed_orcids":["https://orcid.org/0000-0002-8076-9199"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eileen M. O'Reilly","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY","Weill Medical College, New York, NY"],"raw_orcid":"https://orcid.org/0000-0002-8076-9199","affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]},{"raw_affiliation_string":"Weill Medical College, New York, NY","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5081273660","display_name":"Ghassan K. Abou\u2010Alfa","orcid":"https://orcid.org/0000-0002-1522-8054","observed_orcids":["https://orcid.org/0000-0002-1522-8054"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]},{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE","US"],"is_corresponding":false,"raw_author_name":"Ghassan K. Abou-Alfa","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY","Trinity College Dublin, Dublin, Ireland","Weill Medical College, New York, NY"],"raw_orcid":"https://orcid.org/0000-0002-1522-8054","affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]},{"raw_affiliation_string":"Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I205274468"]},{"raw_affiliation_string":"Weill Medical College, New York, NY","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":2472,"currency":"USD","value_usd":2472},"apc_paid":{"value":2472,"currency":"USD","value_usd":2472},"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"11","issue":"11","first_page":"e2400532","last_page":"e2400532"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10073","display_name":"Hepatocellular Carcinoma Treatment and Prognosis","score":0.22709999978542328,"subfield":{"id":"https://openalex.org/subfields/2721","display_name":"Hepatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10073","display_name":"Hepatocellular Carcinoma Treatment and Prognosis","score":0.22709999978542328,"subfield":{"id":"https://openalex.org/subfields/2721","display_name":"Hepatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10231","display_name":"Pancreatic and Hepatic Oncology Research","score":0.16259999573230743,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10253","display_name":"Sarcoma Diagnosis and Treatment","score":0.04800000041723251,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/fibrolamellar-carcinoma","display_name":"fibrolamellar hepatocellular carcinoma","score":0.9940000176429749},{"id":"https://openalex.org/keywords/rare-tumor","display_name":"rare tumor","score":0.5379999876022339},{"id":"https://openalex.org/keywords/cancer-registry","display_name":"cancer registry","score":0.7419999837875366},{"id":"https://openalex.org/keywords/stakeholder-collaboration","display_name":"stakeholder collaboration","score":0.7929999828338623},{"id":"https://openalex.org/keywords/patient-advocacy","display_name":"patient advocacy","score":0.7379999756813049}],"concepts":[{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.5097519755363464},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.46016690135002136},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.2225697636604309}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1200/go-24-00532","doi":"https://doi.org/10.1200/go-24-00532","is_oa":true,"landing_page_url":"https://doi.org/10.1200/go-24-00532","pdf_url":"https://ascopubs.org/doi/pdfdirect/10.1200/GO-24-00532","source":{"id":"https://openalex.org/S4210209558","display_name":"JCO Global Oncology","issn_l":"2687-8941","issn":["2687-8941"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JCO Global Oncology","raw_type":"journal-article"},{"id":"pmid:40499052","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40499052","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JCO global oncology","raw_type":"Journal Article"},{"id":"pmh:oai:doaj.org/article:ba4bde438744490bb7d4c85b36dd81fe","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/ba4bde438744490bb7d4c85b36dd81fe","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"JCO Global Oncology, Iss 11 (2025)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1200/go-24-00532","doi":"https://doi.org/10.1200/go-24-00532","is_oa":true,"landing_page_url":"https://doi.org/10.1200/go-24-00532","pdf_url":"https://ascopubs.org/doi/pdfdirect/10.1200/GO-24-00532","source":{"id":"https://openalex.org/S4210209558","display_name":"JCO Global Oncology","issn_l":"2687-8941","issn":["2687-8941"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JCO Global Oncology","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9476000070571899,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4411200700.pdf","grobid_xml":"https://content.openalex.org/works/W4411200700.grobid-xml"},"referenced_works_count":25,"referenced_works":["https://openalex.org/W1977324534","https://openalex.org/W2001886660","https://openalex.org/W2013918422","https://openalex.org/W2038556982","https://openalex.org/W2121500708","https://openalex.org/W2196148060","https://openalex.org/W2246474004","https://openalex.org/W2400968868","https://openalex.org/W2466838025","https://openalex.org/W2485282009","https://openalex.org/W2753836667","https://openalex.org/W2911777613","https://openalex.org/W2917678543","https://openalex.org/W3006558871","https://openalex.org/W3011472951","https://openalex.org/W3025814925","https://openalex.org/W3125930589","https://openalex.org/W3196279698","https://openalex.org/W4212916808","https://openalex.org/W4310920083","https://openalex.org/W4372294445","https://openalex.org/W4376564369","https://openalex.org/W4385458457","https://openalex.org/W4388048366","https://openalex.org/W4393276710"],"related_works":["https://openalex.org/W4400272775","https://openalex.org/W4233967185","https://openalex.org/W3175069713","https://openalex.org/W4310125394","https://openalex.org/W3047180665","https://openalex.org/W4287375910","https://openalex.org/W4400415108","https://openalex.org/W2151989575","https://openalex.org/W3013917401","https://openalex.org/W2153473992"],"abstract_inverted_index":{"and":[0,26,35,46,50,63,71,79,101],"Learning":[1],"Points":[2],"FLC":[3,38,94],"is":[4,86],"a":[5,9,99],"rare":[6,33,84],"disease":[7],"affecting":[8],"young":[10],"demographic":[11],"with":[12,43,110],"no":[13],"standard-of-care":[14],"therapy.Registries":[15],"represent":[16,27],"an":[17,28,87],"important":[18],"way":[19],"of":[20,23,54,75,108],"addressing":[21],"some":[22],"these":[24],"challenges":[25,70],"opportunity":[29],"to":[30,89,97],"better":[31],"understand":[32],"diseases":[34],"advance":[36],"knowledge.This":[37],"registry,":[39],"despite":[40],"unique":[41],"collaborations":[42,64],"academia,":[44],"technology,":[45],"advocacy,":[47],"was":[48],"unsuccessful":[49],"terminated":[51],"early":[52],"because":[53],"low":[55],"enrollment":[56],"without":[57],"new":[58],"insights":[59],"into":[60],"FLC.Unifying":[61],"efforts":[62],"can":[65],"help":[66],"overcome":[67],"the":[68,73,83,106],"current":[69],"accelerate":[72],"buildup":[74],"resources":[76],"for":[77,82,95,104],"research":[78],"practice":[80],"improvement":[81],"FLC.This":[85],"invitation":[88],"all":[90],"stakeholders":[91],"involved":[92],"in":[93],"collaboration":[96],"generate":[98],"successful":[100],"valuable":[102],"tool":[103],"improving":[105],"management":[107],"patients":[109],"FLC.":[111]},"counts_by_year":[{"year":2026,"cited_by_count":1}],"updated_date":"2026-11-03T10:50:19.383937","created_date":"2025-10-10T00:00:00"}