{"id":"https://openalex.org/W4411069701","doi":"https://doi.org/10.1111/hex.70318","title":"Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals","display_name":"Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals","publication_year":2025,"publication_date":"2025-06-01","ids":{"openalex":"https://openalex.org/W4411069701","doi":"https://doi.org/10.1111/hex.70318","pmid":"https://pubmed.ncbi.nlm.nih.gov/40469004","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/12138285"},"language":"en","primary_location":{"id":"doi:10.1111/hex.70318","doi":"https://doi.org/10.1111/hex.70318","is_oa":true,"landing_page_url":"https://doi.org/10.1111/hex.70318","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.70318","source":{"id":"https://openalex.org/S134406477","display_name":"Health Expectations","issn_l":"1369-6513","issn":["1369-6513","1369-7625"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Expectations","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.70318","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5041428446","display_name":"Alice Faux\u2010Nightingale","orcid":"https://orcid.org/0000-0002-4865-181X","observed_orcids":["https://orcid.org/0000-0002-4865-181X"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Alice Faux\u2010Nightingale","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":"https://orcid.org/0000-0002-4865-181X","affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089196029","display_name":"Benjamin Saunders","orcid":"https://orcid.org/0000-0002-0856-1596","observed_orcids":["https://orcid.org/0000-0002-0856-1596"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Benjamin Saunders","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":"https://orcid.org/0000-0002-0856-1596","affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5067240291","display_name":"Claire L. Burton","orcid":"https://orcid.org/0000-0003-4688-3075","observed_orcids":["https://orcid.org/0000-0003-4688-3075"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Claire Burton","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5012491915","display_name":"Carolyn Anne Chew-Graham","orcid":"https://orcid.org/0000-0002-9722-9981","observed_orcids":["https://orcid.org/0000-0002-9722-9981"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Carolyn A. Chew\u2010Graham","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033260822","display_name":"Glenys Somayajula","orcid":"https://orcid.org/0000-0002-2212-5555","observed_orcids":["https://orcid.org/0000-0002-2212-5555"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Glenys Somayajula","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030940650","display_name":"Helen Twohig","orcid":"https://orcid.org/0000-0001-8781-1268","observed_orcids":["https://orcid.org/0000-0001-8781-1268"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Helen Twohig","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5032400010","display_name":"Victoria K. Welsh","orcid":"https://orcid.org/0000-0002-9156-5271","observed_orcids":["https://orcid.org/0000-0002-9156-5271","https://orcid.org/0000-0003-1571-8405"]},"institutions":[{"id":"https://openalex.org/I56007636","display_name":"Keele University","ror":"https://ror.org/00340yn33","country_code":"GB","type":"education","lineage":["https://openalex.org/I56007636"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Victoria Welsh","raw_affiliation_strings":["School of Medicine, Keele University, Keele, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, Keele University, Keele, UK","institution_ids":["https://openalex.org/I56007636"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5041428446"],"corresponding_institution_ids":["https://openalex.org/I56007636"],"apc_list":{"value":4190,"currency":"USD","value_usd":4190},"apc_paid":{"value":4190,"currency":"USD","value_usd":4190},"fwci":0.9953,"has_fulltext":true,"cited_by_count":2,"citation_normalized_percentile":{"value":0.69892929,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":95},"biblio":{"volume":"28","issue":"3","first_page":"e70318","last_page":"e70318"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11368","display_name":"Long-Term Effects of COVID-19","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11368","display_name":"Long-Term Effects of COVID-19","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10168","display_name":"COVID-19 and Mental Health","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/long-covid","display_name":"long COVID","score":0.9070000052452087},{"id":"https://openalex.org/keywords/children-and-young-people","display_name":"children and young people","score":0.9750000238418579},{"id":"https://openalex.org/keywords/parents-and-caregivers","display_name":"parents and caregivers","score":0.7400000095367432},{"id":"https://openalex.org/keywords/healthcare-workers","display_name":"healthcare workers","score":0.8379999995231628},{"id":"https://openalex.org/keywords/access-to-support","display_name":"access to support","score":0.847000002861023},{"id":"https://openalex.org/keywords/school-involvement","display_name":"school participation","score":0.9300000071525574},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.37400001287460327}],"concepts":[{"id":"https://openalex.org/C2780876879","wikidata":"https://www.wikidata.org/wiki/Q3054749","display_name":"Meaning (existential)","level":2,"score":0.7044785022735596},{"id":"https://openalex.org/C3008058167","wikidata":"https://www.wikidata.org/wiki/Q84263196","display_name":"Coronavirus disease 2019 (COVID-19)","level":4,"score":0.689132809638977},{"id":"https://openalex.org/C534262118","wikidata":"https://www.wikidata.org/wiki/Q177719","display_name":"Medical diagnosis","level":2,"score":0.6676199436187744},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.6211832761764526},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.5290675759315491},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.49213308095932007},{"id":"https://openalex.org/C72563966","wikidata":"https://www.wikidata.org/wiki/Q1303415","display_name":"Cohort","level":2,"score":0.45209744572639465},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4342220723628998},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.37146055698394775},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3327024281024933},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.13440489768981934},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.12817999720573425},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.09224924445152283},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.09097567200660706},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C524204448","wikidata":"https://www.wikidata.org/wiki/Q788926","display_name":"Infectious disease (medical specialty)","level":3,"score":0.0}],"mesh":[{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D000086402","descriptor_name":"SARS-CoV-2","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006282","descriptor_name":"Health Personnel","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":5,"locations":[{"id":"doi:10.1111/hex.70318","doi":"https://doi.org/10.1111/hex.70318","is_oa":true,"landing_page_url":"https://doi.org/10.1111/hex.70318","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.70318","source":{"id":"https://openalex.org/S134406477","display_name":"Health Expectations","issn_l":"1369-6513","issn":["1369-6513","1369-7625"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Expectations","raw_type":"journal-article"},{"id":"pmid:40469004","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40469004","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health expectations : an international journal of public participation in health care and health policy","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:12138285","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12138285/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Expect","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:2f02fa02c7a34400bf08798accb65986","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/2f02fa02c7a34400bf08798accb65986","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Health Expectations, Vol 28, Iss 3, Pp n/a-n/a (2025)","raw_type":"article"},{"id":"pmh:oai:pure.atira.dk:openaire_cris_publications/bd26731c-60ff-450e-8f8e-e44fe8960bcd","doi":null,"is_oa":true,"landing_page_url":"https://research.manchester.ac.uk/en/publications/bd26731c-60ff-450e-8f8e-e44fe8960bcd","pdf_url":null,"source":{"id":"https://openalex.org/S4306400662","display_name":"Research Explorer (The University of Manchester)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28407311","host_organization_name":"University of Manchester","host_organization_lineage":["https://openalex.org/I28407311"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Faux\u2010Nightingale, A, Saunders, B, Burton, C, Chew\u2010Graham, C A, Somayajula, G, Twohig, H & Welsh, V K 2025, 'Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals', Health Expectations, vol. 28, no. 3, e70318. https://doi.org/10.1111/hex.70318","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1111/hex.70318","doi":"https://doi.org/10.1111/hex.70318","is_oa":true,"landing_page_url":"https://doi.org/10.1111/hex.70318","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.70318","source":{"id":"https://openalex.org/S134406477","display_name":"Health Expectations","issn_l":"1369-6513","issn":["1369-6513","1369-7625"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Expectations","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9922999739646912}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320319990","display_name":"National Institute for Health and Care Research","ror":"https://ror.org/0187kwz08"},{"id":"https://openalex.org/F4320336046","display_name":"NIHR School for Primary Care Research","ror":"https://ror.org/03wz10q85"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4411069701.pdf","grobid_xml":"https://content.openalex.org/works/W4411069701.grobid-xml"},"referenced_works_count":37,"referenced_works":["https://openalex.org/W35365499","https://openalex.org/W1961427669","https://openalex.org/W1971796909","https://openalex.org/W2052944792","https://openalex.org/W2061305120","https://openalex.org/W2094537081","https://openalex.org/W2168490582","https://openalex.org/W2274878395","https://openalex.org/W2897669568","https://openalex.org/W2976484598","https://openalex.org/W2981974161","https://openalex.org/W2996564975","https://openalex.org/W3014454210","https://openalex.org/W3086278079","https://openalex.org/W3092142861","https://openalex.org/W3128533836","https://openalex.org/W3154654337","https://openalex.org/W3168051520","https://openalex.org/W3202017904","https://openalex.org/W4200091524","https://openalex.org/W4295905851","https://openalex.org/W4311968572","https://openalex.org/W4318317849","https://openalex.org/W4319334285","https://openalex.org/W4319729406","https://openalex.org/W4320881351","https://openalex.org/W4323351230","https://openalex.org/W4386524904","https://openalex.org/W4386865973","https://openalex.org/W4388129750","https://openalex.org/W4391282685","https://openalex.org/W4395071181","https://openalex.org/W4396717938","https://openalex.org/W4399461497","https://openalex.org/W4401160614","https://openalex.org/W4405035258","https://openalex.org/W4409452652"],"related_works":["https://openalex.org/W4410594147","https://openalex.org/W4388129750","https://openalex.org/W4392707154","https://openalex.org/W4392857422","https://openalex.org/W4396717938","https://openalex.org/W7160833140","https://openalex.org/W4409452652","https://openalex.org/W4415350906","https://openalex.org/W4317038679","https://openalex.org/W3159363960"],"abstract_inverted_index":{"INTRODUCTION:":[0],"Long":[1,21,69,78,110,128,151,199,249,282],"Covid,":[2,79],"the":[3,15,42,58,63,73,146,177,212,231,235,278,309,319],"patient-preferred":[4],"term,":[5],"describes":[6],"symptoms":[7],"persisting":[8],"after":[9],"an":[10,99,293],"acute":[11],"Covid-19":[12],"infection.":[13],"Understanding":[14],"importance":[16,66,178,279],"and":[17,26,32,55,65,82,87,188,194,204,208,220,256,261,264,297,308,315,324],"meaning":[18,64],"of":[19,57,67,75,148,156,179,190,198,217,230,275,280,292,326],"a":[20,68,117,181,215,221,281],"Covid":[22,70,111,129,152,200,250,283],"diagnosis":[23,71,183,197,213,284],"to":[24,52,94,114,186,223,243,285],"children":[25],"young":[27],"people":[28],"(CYP),":[29],"their":[30,36,80,88,218],"families":[31,233,286],"professionals":[33,142,227],"associated":[34],"with":[35,77,104,107,109,124,127,143],"care":[37,54,147],"can":[38],"give":[39],"insight":[40],"into":[41],"way":[43,222],"that":[44],"these":[45,50,270],"diagnoses":[46,251],"are":[47,174,252],"used":[48],"across":[49],"groups":[51],"support":[53,187,299],"needs":[56],"patient.":[59],"This":[60],"study":[61,320],"explores":[62],"from":[72,273],"perspectives":[74,189],"CYP":[76,86,108,126,149],"parents":[81,89,135,207],"relevant":[83],"professionals.":[84,195,209],"METHODS:":[85],"or":[90,150],"carers":[91],"were":[92,112,121,136,161],"invited":[93,113],"interview":[95],"following":[96],"participation":[97],"in":[98,116,145,154,267],"initial":[100],"cohort":[101],"study.":[102],"Professionals":[103],"experience":[105,144],"working":[106],"participate":[115],"focus":[118,158],"group.":[119,302],"Interviews":[120],"carried":[122],"out":[123],"four":[125],"(all":[130],"female,":[131],"aged":[132],"10-17":[133],"years);":[134],"present":[137],"at":[138],"three":[139,170],"interviews.":[140],"Seven":[141],"participated":[153],"one":[155],"two":[157],"groups.":[159],"Data":[160],"analysed":[162],"thematically":[163],"using":[164],"constant":[165],"comparison":[166],"techniques.":[167],"RESULTS:":[168],"The":[169,196],"main":[171],"themes":[172],"presented":[173],"as":[175,214],"follows:":[176],"receiving":[180],"diagnosis,":[182,236],"facilitates":[184],"access":[185,224,263],"discordance":[191],"between":[192],"family":[193],"has":[201],"different":[202],"meanings":[203],"significance":[205],"for":[206,254,300],"Families":[210],"described":[211],"legitimisation":[216],"experiences":[219],"support,":[225],"but":[226],"questioned":[228],"some":[229],"ways":[232],"use":[234],"focusing":[237],"instead":[238],"on":[239,318],"appropriate":[240],"treatment":[241],"according":[242],"CYP's":[244],"needs.":[245],"CONCLUSION:":[246],"For":[247],"families,":[248],"important":[253],"validating":[255],"legitimising":[257],"symptoms,":[258],"removing":[259],"uncertainty,":[260],"supporting":[262],"participation,":[265],"particularly":[266],"school.":[268],"While":[269],"uses":[271],"differ":[272],"those":[274],"professionals,":[276],"understanding":[277],"may":[287],"ensure":[288],"effective":[289],"communication,":[290],"negotiation":[291],"acceptable":[294],"management":[295],"plan,":[296],"ongoing":[298],"this":[301,313],"PATIENT":[303],"OR":[304],"PUBLIC":[305],"CONTRIBUTION:":[306],"Patients":[307],"public":[310],"contributed":[311],"throughout":[312],"project":[314],"had":[316],"input":[317],"design,":[321],"topic":[322],"guides,":[323],"dissemination":[325],"findings.":[327]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":1}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2025-10-10T00:00:00"}