{"id":"https://openalex.org/W4409435294","doi":"https://doi.org/10.1186/s10194-025-02018-y","title":"Overview of migraine care, impact of the disease, and patient experience in France through patient voices: a cross-sectional and participatory survey study","display_name":"Overview of migraine care, impact of the disease, and patient experience in France through patient voices: a cross-sectional and participatory survey study","publication_year":2025,"publication_date":"2025-04-14","ids":{"openalex":"https://openalex.org/W4409435294","doi":"https://doi.org/10.1186/s10194-025-02018-y","pmid":"https://pubmed.ncbi.nlm.nih.gov/40229668"},"language":"en","primary_location":{"id":"doi:10.1186/s10194-025-02018-y","doi":"https://doi.org/10.1186/s10194-025-02018-y","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s10194-025-02018-y","pdf_url":"https://thejournalofheadacheandpain.biomedcentral.com/counter/pdf/10.1186/s10194-025-02018-y","source":{"id":"https://openalex.org/S143427143","display_name":"The Journal of Headache and Pain","issn_l":"1129-2369","issn":["1129-2369","1129-2377"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of Headache and Pain","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://thejournalofheadacheandpain.biomedcentral.com/counter/pdf/10.1186/s10194-025-02018-y","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5002202005","display_name":"Anne Duburcq","orcid":"https://orcid.org/0009-0003-4344-9393","observed_orcids":["https://orcid.org/0009-0003-4344-9393"]},"institutions":[{"id":"https://openalex.org/I4210088905","display_name":"Cemka-Eval (France)","ror":"https://ror.org/006fc7318","country_code":"FR","type":"company","lineage":["https://openalex.org/I4210088905"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Anne Duburcq","raw_affiliation_strings":["CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France","institution_ids":["https://openalex.org/I4210088905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104007691","display_name":"Manon Molins","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Manon Molins","raw_affiliation_strings":["MoiPatient - Participatory Research Platform, 29 Bis, Rue Buffon, Paris, 75005, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"MoiPatient - Participatory Research Platform, 29 Bis, Rue Buffon, Paris, 75005, France","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031970863","display_name":"Sabine Debremaeker","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Sabine Debremaeker","raw_affiliation_strings":["La Voix des Migraineux - Patient Association, 7 B Impasse des Rosiers, Eragny-Sur-Oise, 95610, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"La Voix des Migraineux - Patient Association, 7 B Impasse des Rosiers, Eragny-Sur-Oise, 95610, France","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Julie Joie","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Julie Joie","raw_affiliation_strings":["La Voix des Migraineux - Patient Association, 7 B Impasse des Rosiers, Eragny-Sur-Oise, 95610, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"La Voix des Migraineux - Patient Association, 7 B Impasse des Rosiers, Eragny-Sur-Oise, 95610, France","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002205674","display_name":"Luna Lopes","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210088905","display_name":"Cemka-Eval (France)","ror":"https://ror.org/006fc7318","country_code":"FR","type":"company","lineage":["https://openalex.org/I4210088905"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Luna Lopes","raw_affiliation_strings":["CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France","institution_ids":["https://openalex.org/I4210088905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006861571","display_name":"Camille Nevoret","orcid":"https://orcid.org/0000-0002-5485-1535","observed_orcids":["https://orcid.org/0000-0002-5485-1535"]},"institutions":[{"id":"https://openalex.org/I4210088905","display_name":"Cemka-Eval (France)","ror":"https://ror.org/006fc7318","country_code":"FR","type":"company","lineage":["https://openalex.org/I4210088905"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Camille Nevoret","raw_affiliation_strings":["CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CEmka - Healthcare Consulting and Research, 43, Boulevard du Mar\u00e9chal Joffre, Bourg-La-Reine, 92340, France","institution_ids":["https://openalex.org/I4210088905"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5045698330","display_name":"Olivia Begasse de Dhaem","orcid":"https://orcid.org/0000-0001-8885-1499","observed_orcids":["https://orcid.org/0000-0001-8885-1499"]},"institutions":[{"id":"https://openalex.org/I140172145","display_name":"University of Connecticut","ror":"https://ror.org/02der9h97","country_code":"US","type":"education","lineage":["https://openalex.org/I140172145"]},{"id":"https://openalex.org/I75929689","display_name":"UConn Health","ror":"https://ror.org/02kzs4y22","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I75929689"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Olivia Begasse de Dhaem","raw_affiliation_strings":["Department of Neurology, University of Connecticut, Farmington, CT, USA. begassededhaem@gmail.com","Global Patient Advocacy Coalition for Headache (GPACH), Brussels, Belgium. begassededhaem@gmail.com","Institute for Headache and Brain Health, 1275 Summer Street Suite 306, Stamford, CT, 06905, USA. begassededhaem@gmail.com"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Neurology, University of Connecticut, Farmington, CT, USA. begassededhaem@gmail.com","institution_ids":["https://openalex.org/I140172145","https://openalex.org/I75929689"]},{"raw_affiliation_string":"Global Patient Advocacy Coalition for Headache (GPACH), Brussels, Belgium. begassededhaem@gmail.com","institution_ids":[]},{"raw_affiliation_string":"Institute for Headache and Brain Health, 1275 Summer Street Suite 306, Stamford, CT, 06905, USA. begassededhaem@gmail.com","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5045698330"],"corresponding_institution_ids":["https://openalex.org/I140172145","https://openalex.org/I75929689"],"apc_list":{"value":3990,"currency":"USD","value_usd":3990},"apc_paid":{"value":3990,"currency":"USD","value_usd":3990},"fwci":6.8482,"has_fulltext":true,"cited_by_count":11,"citation_normalized_percentile":{"value":0.97416699,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":97,"max":99},"biblio":{"volume":"26","issue":"1","first_page":"76","last_page":"76"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10498","display_name":"Migraine and Headache Studies","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10498","display_name":"Migraine and Headache Studies","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10416","display_name":"Traumatic Brain Injury Research","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10084","display_name":"Musculoskeletal pain and rehabilitation","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2736","display_name":"Pharmacology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/migraine","display_name":"migraine","score":0.996999979019165},{"id":"https://openalex.org/keywords/patient-journey","display_name":"patient journey","score":0.9079999923706055},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.9330000281333923},{"id":"https://openalex.org/keywords/delayed-diagnosis","display_name":"delayed diagnosis","score":0.7490000128746033},{"id":"https://openalex.org/keywords/treatment-delay","display_name":"treatment delay","score":0.9909999966621399},{"id":"https://openalex.org/keywords/hit-6","display_name":"HIT-6","score":0.593999981880188},{"id":"https://openalex.org/keywords/adverse-drug-reactions","display_name":"adverse drug reactions","score":0.7870000004768372},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.8259999752044678},{"id":"https://openalex.org/keywords/physician-patient-relationship","display_name":"physician-patient relationship","score":0.7440000176429749},{"id":"https://openalex.org/keywords/unmet-patient-needs","display_name":"unmet patient needs","score":0.6909999847412109},{"id":"https://openalex.org/keywords/patient-advocacy","display_name":"patient advocacy","score":0.4410000145435333},{"id":"https://openalex.org/keywords/france","display_name":"France","score":0.5370000004768372}],"concepts":[{"id":"https://openalex.org/C2778541695","wikidata":"https://www.wikidata.org/wiki/Q133823","display_name":"Migraine","level":2,"score":0.6738669276237488},{"id":"https://openalex.org/C142052008","wikidata":"https://www.wikidata.org/wiki/Q954027","display_name":"Cross-sectional study","level":2,"score":0.6321009397506714},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.613438069820404},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4938426613807678},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.48724833130836487},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4705919027328491},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.20716425776481628},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.10954517126083374},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.06114962697029114},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005602","descriptor_name":"France","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005602","descriptor_name":"France","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005602","descriptor_name":"France","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D008881","descriptor_name":"Migraine Disorders","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017060","descriptor_name":"Patient Satisfaction","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017060","descriptor_name":"Patient Satisfaction","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017060","descriptor_name":"Patient Satisfaction","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":5,"locations":[{"id":"doi:10.1186/s10194-025-02018-y","doi":"https://doi.org/10.1186/s10194-025-02018-y","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s10194-025-02018-y","pdf_url":"https://thejournalofheadacheandpain.biomedcentral.com/counter/pdf/10.1186/s10194-025-02018-y","source":{"id":"https://openalex.org/S143427143","display_name":"The Journal of Headache and Pain","issn_l":"1129-2369","issn":["1129-2369","1129-2377"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of Headache and Pain","raw_type":"journal-article"},{"id":"pmid:40229668","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40229668","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The journal of headache and pain","raw_type":"Journal Article"},{"id":"pmh:oai:europepmc.org:10807994","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/11995651","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:11995651","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/11995651","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Headache Pain","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:eb9f21fee3574211be29a1d8a0eb58a2","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/eb9f21fee3574211be29a1d8a0eb58a2","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"The Journal of Headache and Pain, Vol 26, Iss 1, Pp 1-14 (2025)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1186/s10194-025-02018-y","doi":"https://doi.org/10.1186/s10194-025-02018-y","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s10194-025-02018-y","pdf_url":"https://thejournalofheadacheandpain.biomedcentral.com/counter/pdf/10.1186/s10194-025-02018-y","source":{"id":"https://openalex.org/S143427143","display_name":"The Journal of Headache and Pain","issn_l":"1129-2369","issn":["1129-2369","1129-2377"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The Journal of Headache and Pain","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0},{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.5}],"sustainable_development_goals_aurora":[{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.7599999904632568}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4409435294.pdf","grobid_xml":"https://content.openalex.org/works/W4409435294.grobid-xml"},"referenced_works_count":17,"referenced_works":["https://openalex.org/W2027222492","https://openalex.org/W2027386893","https://openalex.org/W2047455969","https://openalex.org/W2061884768","https://openalex.org/W2073160193","https://openalex.org/W2076659308","https://openalex.org/W2123738212","https://openalex.org/W2463900009","https://openalex.org/W2730152904","https://openalex.org/W2788340920","https://openalex.org/W2902418797","https://openalex.org/W3107747907","https://openalex.org/W4210696369","https://openalex.org/W4220723068","https://openalex.org/W4317853356","https://openalex.org/W4386317769","https://openalex.org/W4401706095"],"related_works":["https://openalex.org/W2417298702","https://openalex.org/W2035274043","https://openalex.org/W2052935256","https://openalex.org/W2094030539","https://openalex.org/W2409692956","https://openalex.org/W2117659224","https://openalex.org/W2503191148","https://openalex.org/W2092748655","https://openalex.org/W4380899684","https://openalex.org/W2147082846"],"abstract_inverted_index":{"BACKGROUND:":[0],"This":[1,63,284],"study":[2,137,285],"aims":[3],"to":[4,54,148,249,257],"improve":[5],"the":[6,9,13,30,41,56,60,68,82,129,190,210,259,270,273],"understanding":[7],"of":[8,15,32,40,59,81,156,164,209,233,253,265,272,280],"patient":[10,42,61,187],"journey":[11,212,222],"via":[12],"perspectives":[14],"patients":[16,34,200,234],"with":[17,35,215,246],"migraine.":[18],"METHODS:":[19],"The":[20,263],"questionnaire":[21],"was":[22,27,65],"created":[23],"by":[24,241,269],"patients.":[25],"It":[26],"based":[28],"on":[29,67,114,128,178],"experiences":[31],"24":[33],"migraine":[36,95,104,247,274],"and":[37,75,123,168,180,189,196,201,213,282],"4":[38],"members":[39],"advocacy":[43],"organization":[44],"La":[45],"Voix":[46],"des":[47],"Migraineux.":[48],"Two":[49],"focus":[50],"groups":[51],"were":[52],"held":[53],"assess":[55],"various":[57],"dimensions":[58],"journey.":[62],"survey":[64],"accessible":[66],"MoiPatient":[69],"online":[70],"platform":[71],"between":[72,199],"March":[73],"19th":[74],"May":[76],"17th,":[77],"2022.":[78],"RESULTS:":[79],"Out":[80],"683":[83],"participants":[84,116,177],"(average":[85],"age:":[86],"41.8":[87],"years;":[88],"female:":[89],"92.4%;":[90],"average":[91,163],"age":[92],"at":[93],"first":[94],"attack:":[96],"16.2":[97],"years),":[98,143],"95.9%":[99],"had":[100,110,118,125,160,205],"received":[101],"a":[102,107,111,119,193,206,251],"formal":[103],"diagnosis":[105,139,281],"from":[106],"physician.":[108],"Migraine":[109],"significant":[112],"impact":[113],"most":[115],"(96.0%":[117],"severe":[120,126],"HIT-6":[121],"score":[122],"70.7%":[124],"disability":[127],"MIDAS).":[130],"Unmet":[131],"patients'":[132],"needs":[133],"highlighted":[134],"in":[135,278,289],"this":[136],"included":[138],"delay":[140],"(mean":[141],"7.5":[142],"treatment":[144],"delay,":[145],"limited":[146],"access":[147],"neurologists":[149],"and/or":[150],"headache":[151],"specialists,":[152],"long":[153],"trial-and-error":[154],"process":[155],"different":[157],"medications":[158],"(participants":[159],"tried":[161],"an":[162,224],"5.6":[165],"acute":[166],"treatments":[167],"5.0":[169],"preventive":[170],"treatments),":[171],"numerous":[172],"(7.2":[173],"side":[174,184],"effects":[175],"per":[176],"average)":[179],"often":[181],"inadequately":[182],"addressed":[183],"effects,":[185],"suboptimal":[186],"education,":[188],"need":[191,290],"for":[192,291],"therapeutic,":[194],"empathic,":[195],"supportive":[197],"relationship":[198],"healthcare":[202,216,242],"professionals.":[203,243],"Participants":[204],"negative":[207],"perception":[208],"care":[211,221,260],"experience":[214],"professionals:":[217],"36.2%":[218],"described":[219],"their":[220],"as":[223],"uphill":[225],"battle":[226],"(\"parcours":[227],"du":[228],"combatant\").":[229],"More":[230],"than":[231],"half":[232],"did":[235],"not":[236],"feel":[237],"heard":[238],"nor":[239],"supported":[240],"CONCLUSION:":[244],"Patients":[245],"have":[248],"face":[250],"multitude":[252],"complex":[254],"obstacles":[255],"trying":[256],"get":[258],"they":[261],"deserve.":[262],"burden":[264],"disease":[266],"is":[267],"amplified":[268],"complexity":[271],"patient's":[275],"journey,":[276],"both":[277],"terms":[279],"treatment.":[283],"highlights":[286],"specific":[287],"areas":[288],"improvement.":[292]},"counts_by_year":[{"year":2026,"cited_by_count":7},{"year":2025,"cited_by_count":4}],"updated_date":"2026-10-12T09:40:04.860316","created_date":"2025-10-10T00:00:00"}
