{"id":"https://openalex.org/W4409102355","doi":"https://doi.org/10.3390/healthcare13070801","title":"Connecting Care Closer to Home: Evaluation of a Regional Motor Neurone Disease Multidisciplinary Clinic","display_name":"Connecting Care Closer to Home: Evaluation of a Regional Motor Neurone Disease Multidisciplinary Clinic","publication_year":2025,"publication_date":"2025-04-02","ids":{"openalex":"https://openalex.org/W4409102355","doi":"https://doi.org/10.3390/healthcare13070801","pmid":"https://pubmed.ncbi.nlm.nih.gov/40218098"},"language":"en","primary_location":{"id":"doi:10.3390/healthcare13070801","doi":"https://doi.org/10.3390/healthcare13070801","is_oa":true,"landing_page_url":"https://doi.org/10.3390/healthcare13070801","pdf_url":"https://www.mdpi.com/2227-9032/13/7/801/pdf?version=1743607576","source":{"id":"https://openalex.org/S4210214101","display_name":"Healthcare","issn_l":"2227-9032","issn":["2227-9032"],"is_oa":true,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","poland-40","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Healthcare","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.mdpi.com/2227-9032/13/7/801/pdf?version=1743607576","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5037888564","display_name":"Karen Hutchinson","orcid":"https://orcid.org/0000-0002-1353-3100","observed_orcids":["https://orcid.org/0000-0002-1353-3100"]},"institutions":[{"id":"https://openalex.org/I31746571","display_name":"UNSW Sydney","ror":"https://ror.org/03r8z3t63","country_code":"AU","type":"education","lineage":["https://openalex.org/I31746571"]},{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]},{"id":"https://openalex.org/I78757542","display_name":"University of Newcastle Australia","ror":"https://ror.org/00eae9z71","country_code":"AU","type":"education","lineage":["https://openalex.org/I78757542"]},{"id":"https://openalex.org/I99043593","display_name":"Macquarie University","ror":"https://ror.org/01sf06y89","country_code":"AU","type":"education","lineage":["https://openalex.org/I99043593"]}],"countries":["AU"],"is_corresponding":true,"raw_author_name":"Karen Hutchinson","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia","Central Coast Research Institute, University of Newcastle, Gosford, NSW 2250, Australia","Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW 2109, Australia","School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, NSW 2052, Australia"],"raw_orcid":"https://orcid.org/0000-0002-1353-3100","affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]},{"raw_affiliation_string":"Central Coast Research Institute, University of Newcastle, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I78757542"]},{"raw_affiliation_string":"Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW 2109, Australia","institution_ids":["https://openalex.org/I99043593"]},{"raw_affiliation_string":"School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, NSW 2052, Australia","institution_ids":["https://openalex.org/I31746571"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5073910072","display_name":"Georgia Fisher","orcid":"https://orcid.org/0000-0002-7252-7800","observed_orcids":["https://orcid.org/0000-0002-7252-7800"]},"institutions":[{"id":"https://openalex.org/I99043593","display_name":"Macquarie University","ror":"https://ror.org/01sf06y89","country_code":"AU","type":"education","lineage":["https://openalex.org/I99043593"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Georgia Fisher","raw_affiliation_strings":["Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW 2109, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW 2109, Australia","institution_ids":["https://openalex.org/I99043593"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011108283","display_name":"Anna K. Sch\u00fctz","orcid":"https://orcid.org/0009-0009-5444-5906","observed_orcids":["https://orcid.org/0009-0009-5444-5906"]},"institutions":[{"id":"https://openalex.org/I129604602","display_name":"The University of Sydney","ror":"https://ror.org/0384j8v12","country_code":"AU","type":"education","lineage":["https://openalex.org/I129604602"]},{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Anna Schutz","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia","School of Medicine, Faculty of Medicine and Health, University of Sydney, Sydney, NSW 2006, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]},{"raw_affiliation_string":"School of Medicine, Faculty of Medicine and Health, University of Sydney, Sydney, NSW 2006, Australia","institution_ids":["https://openalex.org/I129604602"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090457606","display_name":"Sally Carr","orcid":"https://orcid.org/0000-0001-7036-3497","observed_orcids":["https://orcid.org/0000-0001-7036-3497"]},"institutions":[{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Sally Carr","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia"],"raw_orcid":"https://orcid.org/0000-0001-7036-3497","affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5094162278","display_name":"Sophie Heard","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Sophie Heard","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111172681","display_name":"Molly A Reynolds","orcid":"https://orcid.org/0009-0005-2769-0560","observed_orcids":["https://orcid.org/0009-0005-2769-0560"]},"institutions":[{"id":"https://openalex.org/I2800249840","display_name":"Concord Repatriation General Hospital","ror":"https://ror.org/04b0n4406","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I2800249840"]},{"id":"https://openalex.org/I4210140513","display_name":"Sydney Local Health District","ror":"https://ror.org/04w6y2z35","country_code":"AU","type":"government","lineage":["https://openalex.org/I2801351115","https://openalex.org/I4210140513"]},{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Molly Reynolds","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia","Department of Neurology, Concord Hospital, Sydney Local Health District, Sydney, NSW 2139, Australia"],"raw_orcid":"https://orcid.org/0009-0005-2769-0560","affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]},{"raw_affiliation_string":"Department of Neurology, Concord Hospital, Sydney Local Health District, Sydney, NSW 2139, Australia","institution_ids":["https://openalex.org/I2800249840","https://openalex.org/I4210140513"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066822800","display_name":"Nick Goodwin","orcid":"https://orcid.org/0000-0003-4900-3352","observed_orcids":["https://orcid.org/0000-0003-4900-3352"]},"institutions":[{"id":"https://openalex.org/I4210140905","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1311436738","https://openalex.org/I2801351115","https://openalex.org/I4210140905"]},{"id":"https://openalex.org/I78757542","display_name":"University of Newcastle Australia","ror":"https://ror.org/00eae9z71","country_code":"AU","type":"education","lineage":["https://openalex.org/I78757542"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Nicholas Goodwin","raw_affiliation_strings":["Central Coast Local Health District, Gosford, NSW 2250, Australia","Central Coast Research Institute, University of Newcastle, Gosford, NSW 2250, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Central Coast Local Health District, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I4210140905"]},{"raw_affiliation_string":"Central Coast Research Institute, University of Newcastle, Gosford, NSW 2250, Australia","institution_ids":["https://openalex.org/I78757542"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5028310643","display_name":"Anne Hogden","orcid":"https://orcid.org/0000-0002-4317-7960","observed_orcids":["https://orcid.org/0000-0002-4317-7960"]},"institutions":[{"id":"https://openalex.org/I31746571","display_name":"UNSW Sydney","ror":"https://ror.org/03r8z3t63","country_code":"AU","type":"education","lineage":["https://openalex.org/I31746571"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Anne Hogden","raw_affiliation_strings":["School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, NSW 2052, Australia"],"raw_orcid":"https://orcid.org/0000-0002-4317-7960","affiliations":[{"raw_affiliation_string":"School of Population Health, Faculty of Medicine and Health, University of New South Wales, Sydney, NSW 2052, Australia","institution_ids":["https://openalex.org/I31746571"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5037888564"],"corresponding_institution_ids":["https://openalex.org/I31746571","https://openalex.org/I4210140905","https://openalex.org/I78757542","https://openalex.org/I99043593"],"apc_list":{"value":2700,"currency":"CHF","value_usd":3258},"apc_paid":{"value":2700,"currency":"CHF","value_usd":3258},"fwci":3.5276,"has_fulltext":true,"cited_by_count":3,"citation_normalized_percentile":{"value":0.91140887,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":97},"biblio":{"volume":"13","issue":"7","first_page":"801","last_page":"801"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10629","display_name":"Health Policy Implementation Science","score":0.9164999723434448,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10629","display_name":"Health Policy Implementation Science","score":0.9164999723434448,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.027499999850988388,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12918","display_name":"Healthcare Systems and Technology","score":0.0052999998442828655,"subfield":{"id":"https://openalex.org/subfields/1407","display_name":"Organizational Behavior and Human Resource Management"},"field":{"id":"https://openalex.org/fields/14","display_name":"Business, Management and Accounting"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/motor-neuron-disease","display_name":"motor neuron disease","score":0.996999979019165},{"id":"https://openalex.org/keywords/multidisciplinary-clinic","display_name":"multidisciplinary clinic","score":0.8880000114440918},{"id":"https://openalex.org/keywords/person-centred-care","display_name":"person-centred care","score":0.8650000095367432},{"id":"https://openalex.org/keywords/implementation-evaluation","display_name":"implementation evaluation","score":0.6029999852180481},{"id":"https://openalex.org/keywords/regional-health-services","display_name":"regional health services","score":0.7049999833106995},{"id":"https://openalex.org/keywords/care-coordination","display_name":"care coordination","score":0.44699999690055847},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.7540000081062317},{"id":"https://openalex.org/keywords/staff-remuneration","display_name":"staff remuneration","score":0.6729999780654907},{"id":"https://openalex.org/keywords/organizational-boundaries","display_name":"organizational boundaries","score":0.6779999732971191},{"id":"https://openalex.org/keywords/health-service-sustainability","display_name":"health service sustainability","score":0.4690000116825104},{"id":"https://openalex.org/keywords/new-south-wales","display_name":"New South Wales","score":0.5360000133514404}],"concepts":[{"id":"https://openalex.org/C22467394","wikidata":"https://www.wikidata.org/wiki/Q849359","display_name":"Multidisciplinary approach","level":2,"score":0.8125178813934326},{"id":"https://openalex.org/C2778466831","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Motor neurone disease","level":4,"score":0.7989130616188049},{"id":"https://openalex.org/C99508421","wikidata":"https://www.wikidata.org/wiki/Q2678675","display_name":"Physical medicine and rehabilitation","level":1,"score":0.5204477906227112},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5107152462005615},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.5021722316741943},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3461334705352783},{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.21589866280555725},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.10832160711288452},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.10533154010772705},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.3390/healthcare13070801","doi":"https://doi.org/10.3390/healthcare13070801","is_oa":true,"landing_page_url":"https://doi.org/10.3390/healthcare13070801","pdf_url":"https://www.mdpi.com/2227-9032/13/7/801/pdf?version=1743607576","source":{"id":"https://openalex.org/S4210214101","display_name":"Healthcare","issn_l":"2227-9032","issn":["2227-9032"],"is_oa":true,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","poland-40","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Healthcare","raw_type":"journal-article"},{"id":"pmid:40218098","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40218098","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Healthcare (Basel, Switzerland)","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:11988506","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/11988506","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Healthcare (Basel)","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.3390/healthcare13070801","doi":"https://doi.org/10.3390/healthcare13070801","is_oa":true,"landing_page_url":"https://doi.org/10.3390/healthcare13070801","pdf_url":"https://www.mdpi.com/2227-9032/13/7/801/pdf?version=1743607576","source":{"id":"https://openalex.org/S4210214101","display_name":"Healthcare","issn_l":"2227-9032","issn":["2227-9032"],"is_oa":true,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","poland-40","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310310987","host_organization_name":"Multidisciplinary Digital Publishing Institute","host_organization_lineage":["https://openalex.org/P4310310987"],"host_organization_lineage_names":["Multidisciplinary Digital Publishing Institute"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Healthcare","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320314926","display_name":"Central Coast Local Health District","ror":"https://ror.org/0423z3467"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4409102355.pdf","grobid_xml":"https://content.openalex.org/works/W4409102355.grobid-xml"},"referenced_works_count":57,"referenced_works":["https://openalex.org/W1976770755","https://openalex.org/W2010049072","https://openalex.org/W2049809255","https://openalex.org/W2077109464","https://openalex.org/W2081753990","https://openalex.org/W2085028749","https://openalex.org/W2094924948","https://openalex.org/W2119865708","https://openalex.org/W2136608905","https://openalex.org/W2136948471","https://openalex.org/W2151774277","https://openalex.org/W2156815888","https://openalex.org/W2162069712","https://openalex.org/W2162855346","https://openalex.org/W2168520480","https://openalex.org/W2197249527","https://openalex.org/W2305278139","https://openalex.org/W2475524498","https://openalex.org/W2501708181","https://openalex.org/W2517271133","https://openalex.org/W2542145734","https://openalex.org/W2616107724","https://openalex.org/W2674995983","https://openalex.org/W2736656828","https://openalex.org/W2750118169","https://openalex.org/W2751182842","https://openalex.org/W2796714000","https://openalex.org/W2893837458","https://openalex.org/W2920918656","https://openalex.org/W2938948076","https://openalex.org/W2947410237","https://openalex.org/W2950504429","https://openalex.org/W2952706117","https://openalex.org/W2969463163","https://openalex.org/W3022972754","https://openalex.org/W3027973551","https://openalex.org/W3036757896","https://openalex.org/W3037037097","https://openalex.org/W3048025919","https://openalex.org/W3110756706","https://openalex.org/W3119144237","https://openalex.org/W3136809697","https://openalex.org/W3202654119","https://openalex.org/W3213513954","https://openalex.org/W4221085567","https://openalex.org/W4225944184","https://openalex.org/W4239071058","https://openalex.org/W4253218821","https://openalex.org/W4253926147","https://openalex.org/W4313544635","https://openalex.org/W4319301893","https://openalex.org/W4380049478","https://openalex.org/W4387505252","https://openalex.org/W4387984467","https://openalex.org/W4390893867","https://openalex.org/W4390956988","https://openalex.org/W4404207696"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2748952813","https://openalex.org/W1984742664","https://openalex.org/W2421038021","https://openalex.org/W4221085567","https://openalex.org/W1990325545","https://openalex.org/W1966615477","https://openalex.org/W2160701639","https://openalex.org/W2123245016","https://openalex.org/W4286508873"],"abstract_inverted_index":{"The":[0,134,157,245],"optimal":[1],"approach":[2],"to":[3,18,107,139,148,155,194,221,247,251,261,284,294],"managing":[4],"motor":[5],"neurone":[6],"disease":[7],"(MND)":[8],"is":[9,29,259],"through":[10],"integrated,":[11],"person-centred":[12],"care":[13,28,89,151,240,263],"(PCC),":[14],"complemented":[15],"by":[16],"access":[17,147,250],"specialised":[19],"MND":[20,27,45,72,128,135,150,216,253],"multidisciplinary":[21],"clinics":[22],"(MDCs).":[23],"However,":[24,269],"in":[25,47,189,238,255],"Australia,":[26,51],"fragmented":[30],"and":[31,52,87,102,113,142,185,211,235,266,277,289],"uncoordinated.":[32],"Objectives:":[33],"To":[34],"evaluate":[35],"participant":[36,131],"experiences":[37],"of":[38,41,115,126,226,233],"the":[39,98,111,116,124,127,162,198,212,215],"implementation":[40,195,222],"a":[42,171,224,256],"new":[43],"regional":[44,257],"MDC":[46,129,136,217,254],"New":[48],"South":[49],"Wales,":[50],"explore":[53],"factors":[54,109],"influencing":[55,110],"its":[56],"implementation.":[57],"Methods:":[58],"A":[59],"qualitative":[60],"evaluation":[61],"was":[62,105,137,153,170],"conducted.":[63],"We":[64],"used":[65],"semi-structured":[66],"interviews":[67],"with":[68,71,207,241],"people":[69],"living":[70],"(plwMND)":[73],"(n":[74,79,84,91],"=":[75,80,85,92],"4),":[76],"family":[77],"carers":[78],"2),":[81],"healthcare":[82],"providers":[83,90],"6),":[86],"social":[88],"2).":[93],"First,":[94],"deductive":[95,199],"analysis":[96,122,164,200],"using":[97],"Theoretical":[99],"Domains":[100],"Framework":[101],"COM-B":[103],"model":[104],"applied":[106],"identify":[108],"adoption":[112],"sustainability":[114],"MDC.":[117],"Then,":[118],"an":[119,252],"inductive":[120,163],"thematic":[121],"identified":[123,196],"impact":[125],"from":[130,161,197],"perspectives.":[132],"Results:":[133],"found":[138],"be":[140],"appropriate":[141],"acceptable":[143],"for":[144,264],"providing":[145,248],"equitable":[146,249],"PCC":[149],"that":[152,214],"\u2018closer":[154],"home\u2019.":[156],"three":[158],"main":[159],"themes":[160],"indicated":[165],"that:":[166],"1.":[167],"Implementing":[168],"it":[169],"\u2018good":[172],"idea\u2019":[173],"[the":[174],"MND-MDC];":[175],"2.":[176],"It":[177,187],"\u2018flushes":[178],"out\u2019":[179],"local":[180,275,290],"service":[181],"gaps":[182],"and/or":[183],"challenges;":[184],"3.":[186],"results":[188],"positive":[190],"outcomes.":[191],"Key":[192],"facilitators":[193],"were":[201],"staff":[202,227],"expertise,":[203],"strong":[204,279],"trusting":[205],"relationships":[206],"all":[208],"clinic":[209],"participants,":[210],"belief":[213],"optimised":[218],"care.":[219],"Barriers":[220],"included":[223],"lack":[225],"remuneration,":[228],"organisational":[229,272],"boundaries,":[230,273],"limited":[231],"representation":[232],"specialities,":[234],"anticipated":[236],"difficulties":[237],"coordinating":[239],"existing":[242],"services.":[243],"Conclusions:":[244],"commitment":[246],"area":[258],"crucial":[260],"optimise":[262],"plwMND":[265],"their":[267],"families.":[268],"overcoming":[270],"complex":[271],"creating":[274],"solutions,":[276],"building":[278],"partnerships":[280],"are":[281],"key":[282],"challenges":[283],"securing":[285],"ongoing":[286],"financial":[287],"support":[288,295],"health":[291],"district":[292],"\u2018buy-in\u2019":[293],"sustainability.":[296]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":1}],"updated_date":"2026-10-16T09:59:22.235173","created_date":"2025-10-10T00:00:00"}