{"id":"https://openalex.org/W4404042010","doi":"https://doi.org/10.1097/01.pcc.0001085552.13967.31","title":"PP301 Topic: AS05\u2013End of Life: Palliative Care/Organ Donation/Ethics/Spirituality & Wellness/Other: FOCUS GROUP FOR END-OF-LIFE SYMPTOM MANAGEMENT IN CHRONICALLY ILL CHILDREN","display_name":"PP301 Topic: AS05\u2013End of Life: Palliative Care/Organ Donation/Ethics/Spirituality & Wellness/Other: FOCUS GROUP FOR END-OF-LIFE SYMPTOM MANAGEMENT IN CHRONICALLY ILL CHILDREN","publication_year":2024,"publication_date":"2024-11-01","ids":{"openalex":"https://openalex.org/W4404042010","doi":"https://doi.org/10.1097/01.pcc.0001085552.13967.31"},"language":"en","primary_location":{"id":"doi:10.1097/01.pcc.0001085552.13967.31","doi":"https://doi.org/10.1097/01.pcc.0001085552.13967.31","is_oa":false,"landing_page_url":"https://doi.org/10.1097/01.pcc.0001085552.13967.31","pdf_url":null,"source":{"id":"https://openalex.org/S180821644","display_name":"Pediatric Critical Care Medicine","issn_l":"1529-7535","issn":["1529-7535","1947-3893"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Critical Care Medicine","raw_type":"journal-article"},"parent_works":[],"lineage":["https://openalex.org/W4404042010"],"child_works_count":0,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Thiago Machado","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140247","display_name":"Hospital Infantil Albert Sabin","ror":"https://ror.org/03trtgn80","country_code":"BR","type":"healthcare","lineage":["https://openalex.org/I4210140247"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Thiago Machado","raw_affiliation_strings":["Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":["https://openalex.org/I4210140247"]}]},{"author_position":"middle","author":{"id":null,"display_name":"C. Neves","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140247","display_name":"Hospital Infantil Albert Sabin","ror":"https://ror.org/03trtgn80","country_code":"BR","type":"healthcare","lineage":["https://openalex.org/I4210140247"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"C. Neves","raw_affiliation_strings":["Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":["https://openalex.org/I4210140247"]}]},{"author_position":"middle","author":{"id":null,"display_name":"B. Matos","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210114510","display_name":"Hospital Haroldo Jua\u00e7aba","ror":"https://ror.org/01pg9bv14","country_code":"BR","type":"healthcare","lineage":["https://openalex.org/I4210114510"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"B. Matos","raw_affiliation_strings":["Centro Pedi\u00e1trico do C\u00e2ncer- CPC, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centro Pedi\u00e1trico do C\u00e2ncer- CPC, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":["https://openalex.org/I4210114510"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033636435","display_name":"Ces\u00e1r Augusto Ferreira Gomes de Andrade","orcid":"https://orcid.org/0000-0002-0776-9424","observed_orcids":["https://orcid.org/0000-0002-0776-9424"]},"institutions":[{"id":"https://openalex.org/I4210140247","display_name":"Hospital Infantil Albert Sabin","ror":"https://ror.org/03trtgn80","country_code":"BR","type":"healthcare","lineage":["https://openalex.org/I4210140247"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"C. Andrade","raw_affiliation_strings":["Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":["https://openalex.org/I4210140247"]}]},{"author_position":"middle","author":{"id":null,"display_name":"A.K. Pedrosa","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140247","display_name":"Hospital Infantil Albert Sabin","ror":"https://ror.org/03trtgn80","country_code":"BR","type":"healthcare","lineage":["https://openalex.org/I4210140247"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"A.K. Pedrosa","raw_affiliation_strings":["Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospital Infantil Albert Sabin -HIAS, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":["https://openalex.org/I4210140247"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5058355731","display_name":"Maria Luciana Teles F\u00ed\u00faza","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"M. Fiuza","raw_affiliation_strings":["Hospital Waldemar de Alc\u00e2ntara-HGWA, Cuidados Paliativos, Fortaleza, Brazil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospital Waldemar de Alc\u00e2ntara-HGWA, Cuidados Paliativos, Fortaleza, Brazil","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"25","issue":"11S","first_page":"e96","last_page":"e96"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8295999765396118,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8295999765396118,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.16529999673366547,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11292","display_name":"Pediatric Pain Management Techniques","score":0.0015999999595806003,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.871999979019165},{"id":"https://openalex.org/keywords/pediatric-palliative-care","display_name":"pediatric palliative care","score":0.9980000257492065},{"id":"https://openalex.org/keywords/symptom-management","display_name":"symptom management","score":0.6909999847412109},{"id":"https://openalex.org/keywords/pain-management","display_name":"pain management","score":0.8259999752044678},{"id":"https://openalex.org/keywords/dyspnea","display_name":"dyspnea","score":0.8769999742507935},{"id":"https://openalex.org/keywords/children-with-chronic-illness","display_name":"children with chronic illness","score":0.7929999828338623},{"id":"https://openalex.org/keywords/opioids","display_name":"opioids","score":0.7850000262260437},{"id":"https://openalex.org/keywords/symptom-assessment-scale","display_name":"symptom assessment scale","score":0.7730000019073486},{"id":"https://openalex.org/keywords/non-pharmacological-treatment","display_name":"non-pharmacological treatment","score":0.9480000138282776},{"id":"https://openalex.org/keywords/non-invasive-ventilation","display_name":"non-invasive ventilation","score":0.902999997138977},{"id":"https://openalex.org/keywords/interprofessional-collaboration","display_name":"interprofessional collaboration","score":0.5899999737739563},{"id":"https://openalex.org/keywords/pediatric-oncology","display_name":"pediatric oncology","score":0.6499999761581421},{"id":"https://openalex.org/keywords/neonatology","display_name":"neonatology","score":0.6830000281333923}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9262911677360535},{"id":"https://openalex.org/C514793146","wikidata":"https://www.wikidata.org/wiki/Q168796","display_name":"Spirituality","level":3,"score":0.8018221855163574},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.7424740791320801},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.6430401802062988},{"id":"https://openalex.org/C2994510829","wikidata":"https://www.wikidata.org/wiki/Q849032","display_name":"Organ donation","level":3,"score":0.6277689337730408},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.602921724319458},{"id":"https://openalex.org/C3018228033","wikidata":"https://www.wikidata.org/wiki/Q1364787","display_name":"Terminally ill","level":3,"score":0.4642319083213806},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.438424289226532},{"id":"https://openalex.org/C2908524427","wikidata":"https://www.wikidata.org/wiki/Q608152","display_name":"Terminal care","level":3,"score":0.41652151942253113},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.368366003036499},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.1690998673439026},{"id":"https://openalex.org/C2911091166","wikidata":"https://www.wikidata.org/wiki/Q106419912","display_name":"Transplantation","level":2,"score":0.16167455911636353},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.13265231251716614},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.08857420086860657},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1097/01.pcc.0001085552.13967.31","doi":"https://doi.org/10.1097/01.pcc.0001085552.13967.31","is_oa":false,"landing_page_url":"https://doi.org/10.1097/01.pcc.0001085552.13967.31","pdf_url":null,"source":{"id":"https://openalex.org/S180821644","display_name":"Pediatric Critical Care Medicine","issn_l":"1529-7535","issn":["1529-7535","1947-3893"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Critical Care Medicine","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2115812791","https://openalex.org/W2016527792","https://openalex.org/W2102376817","https://openalex.org/W2912199296","https://openalex.org/W4388183327","https://openalex.org/W3176296235","https://openalex.org/W7212010709","https://openalex.org/W2888908498","https://openalex.org/W2918110818","https://openalex.org/W3184485888"],"abstract_inverted_index":{"Aims":[0],"&":[1],"Objectives:":[2],"Children":[3],"with":[4,126],"complex":[5],"chronic":[6],"conditions":[7],"who":[8],"require":[9],"limited":[10],"interventions":[11],"should":[12],"receive":[13],"effective":[14],"end-of-life":[15],"symptom":[16],"management,":[17],"one":[18],"of":[19,22,38,56,84,89,124,144,166,195,212,228,236],"the":[20,36,39,54,82,112,122,173,177,193,209,218,234],"pillars":[21],"pediatric":[23,43,66,101,203],"palliative":[24,44,204],"care.":[25],"Pain":[26],"and":[27,33,79,99,131,138,161,184,189,224,233],"dyspnea":[28,80],"are":[29],"poorly":[30],"managed":[31],"symptoms":[32,186],"can":[34,197],"compromise":[35],"quality":[37],"last":[40],"days.":[41],"Integrating":[42],"care":[45,205],"(PPC)":[46],"services":[47],"to":[48,76,111,135,172,208],"discuss":[49,77],"protocols":[50,114],"is":[51],"essential":[52],"given":[53],"difficulty":[55,150],"producing":[57],"scientific":[58],"evidence.":[59],"Methods:":[60],"A":[61],"focus":[62],"group":[63,87],"selected":[64],"by":[65,221],"specialists":[67,229],"working":[68],"in":[69,71,115,121,129,151,158,187],"PPC":[70],"different":[72],"specialties":[73],"was":[74,146],"created":[75],"pain":[78,246],"at":[81],"end":[83,194],"life.":[85],"The":[86,142,164,226],"consisted":[88],"a":[90,93,97,149],"general":[91],"pediatrician,":[92],"neonatologist,":[94],"an":[95],"oncologist,":[96],"cardiologist":[98],"two":[100],"intensivists.":[102],"Results:":[103],"Each":[104],"specialist":[105],"contributed":[106],"important":[107],"recommendations,":[108],"relating":[109],"them":[110],"main":[113],"their":[116],"services.":[117],"There":[118],"were":[119,156],"similarities":[120],"use":[123,143,165],"opioids,":[125],"some":[127],"divergences":[128],"neonatology":[130],"cardiology,":[132],"mainly":[133],"due":[134,207],"side":[136],"effects":[137],"few":[139],"safe":[140],"studies.":[141],"scales":[145],"cited":[147],"as":[148,215,217],"assessing":[152],"symptoms.":[153],"Non-pharmacological":[154],"measures":[155],"used":[157],"newborns,":[159],"oncology":[160],"cardiorespiratory":[162],"patients.":[163],"non-invasive":[167],"ventilatory":[168],"support":[169],"varied":[170],"according":[171],"underlying":[174],"disease.":[175],"All":[176],"experts":[178],"included":[179],"multi-professional":[180],"participation.":[181],"Conclusions:":[182],"Recognizing":[183],"managing":[185],"children":[188],"young":[190],"people":[191],"approaching":[192],"life":[196],"be":[198],"difficult,":[199],"even":[200],"for":[201],"experienced":[202],"professionals,":[206],"wide":[210],"variety":[211],"clinical":[213,231],"presentations,":[214],"well":[216],"restrictions":[219],"imposed":[220],"age,":[222],"pathologies":[223],"chronicity.":[225],"contribution":[227],"stimulates":[230],"research":[232],"production":[235],"protocols.":[237],"Keywords:":[238],"Focus":[239],"group,":[240],"dyspnea,":[241],"Pediatric":[242],"Palliative":[243],"Care,":[244],"End-of-life,":[245]},"counts_by_year":[],"updated_date":"2026-10-14T16:39:01.820549","created_date":"2024-11-05T00:00:00"}