{"id":"https://openalex.org/W4401918285","doi":"https://doi.org/10.1007/s13300-024-01637-z","title":"Insights into Knowledge and Attitudes About Autoantibody Screening from People Affected by Type 1 Diabetes: A Brief Report","display_name":"Insights into Knowledge and Attitudes About Autoantibody Screening from People Affected by Type 1 Diabetes: A Brief Report","publication_year":2024,"publication_date":"2024-08-27","ids":{"openalex":"https://openalex.org/W4401918285","doi":"https://doi.org/10.1007/s13300-024-01637-z","pmid":"https://pubmed.ncbi.nlm.nih.gov/39190273","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/11410738"},"language":"en","primary_location":{"id":"doi:10.1007/s13300-024-01637-z","doi":"https://doi.org/10.1007/s13300-024-01637-z","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13300-024-01637-z","pdf_url":null,"source":{"id":"https://openalex.org/S16535137","display_name":"Diabetes Therapy","issn_l":"1869-6961","issn":["1869-6961","1869-6953"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320330","host_organization_name":"Adis, Springer Healthcare","host_organization_lineage":["https://openalex.org/P4310320330","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Adis, Springer Healthcare","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Diabetes Therapy","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1007/s13300-024-01637-z","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5089651223","display_name":"Caitlin S. Kelly","orcid":"https://orcid.org/0000-0002-4656-3031","observed_orcids":["https://orcid.org/0000-0002-4656-3031"]},"institutions":[{"id":"https://openalex.org/I4210110905","display_name":"T1D Exchange","ror":"https://ror.org/016jvas21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210110905"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Caitlin S. Kelly","raw_affiliation_strings":["T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA. ckelly@t1dexchange.org","T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA"],"raw_orcid":"https://orcid.org/0000-0002-4656-3031","affiliations":[{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA. ckelly@t1dexchange.org","institution_ids":["https://openalex.org/I4210110905"]},{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA","institution_ids":["https://openalex.org/I4210110905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103911411","display_name":"Wendy A. Wolf","orcid":"https://orcid.org/0009-0004-3885-3356","observed_orcids":["https://orcid.org/0009-0004-3885-3356"]},"institutions":[{"id":"https://openalex.org/I4210110905","display_name":"T1D Exchange","ror":"https://ror.org/016jvas21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210110905"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wendy A. Wolf","raw_affiliation_strings":["T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA","institution_ids":["https://openalex.org/I4210110905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113351399","display_name":"EMILEE M. CORNELIUS","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210110905","display_name":"T1D Exchange","ror":"https://ror.org/016jvas21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210110905"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Emilee M. Cornelius","raw_affiliation_strings":["T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA","institution_ids":["https://openalex.org/I4210110905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072981540","display_name":"Megan E. Peter","orcid":"https://orcid.org/0000-0003-3995-2140","observed_orcids":["https://orcid.org/0000-0003-3995-2140"]},"institutions":[{"id":"https://openalex.org/I4210110905","display_name":"T1D Exchange","ror":"https://ror.org/016jvas21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210110905"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Megan E. Peter","raw_affiliation_strings":["T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA","institution_ids":["https://openalex.org/I4210110905"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022740920","display_name":"KATHERINE S.M. CHAPMAN","orcid":"https://orcid.org/0000-0002-6167-9198","observed_orcids":["https://orcid.org/0000-0002-6167-9198"]},"institutions":[{"id":"https://openalex.org/I4210110905","display_name":"T1D Exchange","ror":"https://ror.org/016jvas21","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210110905"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Katherine S. Chapman","raw_affiliation_strings":["T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"T1D Exchange, 101 Federal St Suite 440, Boston, MA, 02110, USA","institution_ids":["https://openalex.org/I4210110905"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5023395734","display_name":"Jessica L. Dunne","orcid":"https://orcid.org/0000-0002-0134-4177","observed_orcids":["https://orcid.org/0000-0002-0134-4177"]},"institutions":[{"id":"https://openalex.org/I4210111804","display_name":"Sanofi (United States)","ror":"https://ror.org/027vj4x92","country_code":"US","type":"company","lineage":["https://openalex.org/I3018075036","https://openalex.org/I4210111804"]},{"id":"https://openalex.org/I4405282460","display_name":"Janssen Research & Development (United States)","ror":"https://ror.org/05wae1a98","country_code":"US","type":"company","lineage":["https://openalex.org/I1330063522","https://openalex.org/I4405282460"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jessica L. Dunne","raw_affiliation_strings":["General Medicine, US Medical Bridgewater, Sanofi, NJ, 08807, USA","Janssen R&D, 1000 U.S. Route 202 South, Raritan, NJ, 08869, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"General Medicine, US Medical Bridgewater, Sanofi, NJ, 08807, USA","institution_ids":["https://openalex.org/I4210111804"]},{"raw_affiliation_string":"Janssen R&D, 1000 U.S. Route 202 South, Raritan, NJ, 08869, USA","institution_ids":["https://openalex.org/I4405282460"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5089651223"],"corresponding_institution_ids":["https://openalex.org/I4210110905"],"apc_list":{"value":6850,"currency":"USD","value_usd":6850},"apc_paid":{"value":6850,"currency":"USD","value_usd":6850},"fwci":1.4086,"has_fulltext":true,"cited_by_count":7,"citation_normalized_percentile":{"value":0.78395096,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":93,"max":98},"biblio":{"volume":"15","issue":"10","first_page":"2249","last_page":"2261"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11171","display_name":"Diabetes and associated disorders","score":1.0,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T11171","display_name":"Diabetes and associated disorders","score":1.0,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10560","display_name":"Diabetes Management and Research","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10793","display_name":"Diabetes Management and Education","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/type-1-diabetes","display_name":"type 1 diabetes","score":0.9739999771118164},{"id":"https://openalex.org/keywords/screening-decisions","display_name":"screening decision-making","score":0.5550000071525574}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8443958759307861},{"id":"https://openalex.org/C163764329","wikidata":"https://www.wikidata.org/wiki/Q785022","display_name":"Autoantibody","level":3,"score":0.7159364819526672},{"id":"https://openalex.org/C555293320","wikidata":"https://www.wikidata.org/wiki/Q12206","display_name":"Diabetes mellitus","level":2,"score":0.6149204969406128},{"id":"https://openalex.org/C2777180221","wikidata":"https://www.wikidata.org/wiki/Q3025883","display_name":"Type 2 diabetes","level":3,"score":0.5726256966590881},{"id":"https://openalex.org/C2781232474","wikidata":"https://www.wikidata.org/wiki/Q124407","display_name":"Type 1 diabetes","level":3,"score":0.5335118770599365},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3260188698768616},{"id":"https://openalex.org/C203014093","wikidata":"https://www.wikidata.org/wiki/Q101929","display_name":"Immunology","level":1,"score":0.24925625324249268},{"id":"https://openalex.org/C134018914","wikidata":"https://www.wikidata.org/wiki/Q162606","display_name":"Endocrinology","level":1,"score":0.2463160753250122},{"id":"https://openalex.org/C159654299","wikidata":"https://www.wikidata.org/wiki/Q79460","display_name":"Antibody","level":2,"score":0.16111209988594055}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1007/s13300-024-01637-z","doi":"https://doi.org/10.1007/s13300-024-01637-z","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13300-024-01637-z","pdf_url":null,"source":{"id":"https://openalex.org/S16535137","display_name":"Diabetes Therapy","issn_l":"1869-6961","issn":["1869-6961","1869-6953"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320330","host_organization_name":"Adis, Springer Healthcare","host_organization_lineage":["https://openalex.org/P4310320330","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Adis, Springer Healthcare","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Diabetes Therapy","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:11410738","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/11410738","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC11410738/pdf/13300_2024_Article_1637.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Diabetes Ther","raw_type":"Text"},{"id":"pmid:39190273","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/39190273","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Diabetes therapy : research, treatment and education of diabetes and related disorders","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1007/s13300-024-01637-z","doi":"https://doi.org/10.1007/s13300-024-01637-z","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13300-024-01637-z","pdf_url":null,"source":{"id":"https://openalex.org/S16535137","display_name":"Diabetes Therapy","issn_l":"1869-6961","issn":["1869-6961","1869-6953"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320330","host_organization_name":"Adis, Springer Healthcare","host_organization_lineage":["https://openalex.org/P4310320330","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Adis, Springer Healthcare","Springer Nature"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Diabetes Therapy","raw_type":"journal-article"},"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320309446","display_name":"Leona M. and Harry B. Helmsley Charitable Trust","ror":"https://ror.org/011x6n313"},{"id":"https://openalex.org/F4320337415","display_name":"Janssen Research and Development","ror":"https://ror.org/03qd7mz70"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4401918285.pdf","grobid_xml":"https://content.openalex.org/works/W4401918285.grobid-xml"},"referenced_works_count":27,"referenced_works":["https://openalex.org/W1942296996","https://openalex.org/W1992564715","https://openalex.org/W2307373354","https://openalex.org/W2407801685","https://openalex.org/W2438883383","https://openalex.org/W2939526051","https://openalex.org/W2967427280","https://openalex.org/W3014961299","https://openalex.org/W3157403404","https://openalex.org/W3194973798","https://openalex.org/W3204080639","https://openalex.org/W3205932037","https://openalex.org/W4220917002","https://openalex.org/W4303426752","https://openalex.org/W4303432659","https://openalex.org/W4313621272","https://openalex.org/W4317356385","https://openalex.org/W4377693222","https://openalex.org/W4381053264","https://openalex.org/W4381377658","https://openalex.org/W4384819788","https://openalex.org/W4385335854","https://openalex.org/W4386877710","https://openalex.org/W4387710374","https://openalex.org/W4389560718","https://openalex.org/W4391951197","https://openalex.org/W4392717693"],"related_works":["https://openalex.org/W4381377658","https://openalex.org/W4381376478","https://openalex.org/W4381378456","https://openalex.org/W4381377861","https://openalex.org/W4387568307","https://openalex.org/W4393866237","https://openalex.org/W4411292136","https://openalex.org/W7165939742","https://openalex.org/W7213008607","https://openalex.org/W3175581207"],"abstract_inverted_index":{"INTRODUCTION:":[0],"Screening":[1],"for":[2,10,17,107,232,274],"islet-specific":[3],"autoantibodies":[4],"can":[5],"identify":[6],"individuals":[7,28,60],"at":[8],"risk":[9],"type":[11],"1":[12],"diabetes":[13],"(T1D).":[14],"Despite":[15],"calls":[16],"increased":[18],"nationwide":[19],"autoantibody":[20,45,82,174,180,222],"screening":[21,32,46,175,181,223,267],"efforts,":[22],"it":[23],"is":[24],"unclear":[25],"how":[26],"many":[27,217],"have":[29,286],"participated":[30],"in":[31,47,160,182],"among":[33],"people":[34],"who":[35,97,114,203,213,285],"may":[36],"benefit":[37],"from":[38,65,283],"it.":[39],"Moreover,":[40],"knowledge":[41],"and":[42,85,121,130,176,248,259],"perceptions":[43,178],"of":[44,59,75,91,156,179],"real-world":[48],"samples":[49],"are":[50,148],"not":[51,215,237,264],"well":[52],"understood.":[53],"METHODS:":[54],"We":[55],"surveyed":[56],"a":[57,70,99,108,116,137,168],"sample":[58],"(aged":[61],"18+":[62],"years":[63],"old)":[64],"T1D":[66,76,81,96,103,113,120,128,140,192],"Exchange":[67],"Registry":[68],"with":[69,95,119,139],"personal":[71],"or":[72,104,123,134,197,239],"family":[73],"history":[74],"to":[77,89,136,170,235],"assess":[78],"their":[79,189,240],"self-reported":[80],"knowledge,":[83],"experiences,":[84],"attitudes.":[86],"Participants":[87],"belonged":[88],"one":[90,122],"three":[92],"groups:":[93],"adults":[94],"had":[98,115,187,204,214,263],"biological":[100,117,125],"child":[101,109,118,190],"without":[102,112,127,191],"future":[105],"plans":[106],"(PWD);":[110],"parents":[111],"more":[124,275],"children":[126,133],"(Caregivers);":[129],"first-degree":[131],"adult":[132],"siblings":[135],"person":[138],"(Relatives).":[141],"Descriptive":[142],"analyses":[143],"(means,":[144],"standard":[145],"deviations,":[146],"frequencies)":[147],"presented":[149],"by":[150,244],"participant":[151],"groups.":[152],"RESULTS:":[153],"A":[154],"total":[155],"510":[157],"participants":[158,165,186,206,218],"enrolled":[159],"the":[161,272],"study.":[162],"Across":[163],"groups,":[164],"reported":[166,207,231,253,261],"feeling":[167],"little":[169],"somewhat":[171],"knowledgeable":[172],"about":[173,221,278],"positive":[177,209],"general.":[183],"However,":[184],"few":[185],"screened":[188],"(PWDs,":[193],"21.94%;":[194],"Caregivers,":[195,226],"46.30%)":[196],"themselves":[198],"(Relatives,":[199],"19.23%).":[200],"Among":[201,211],"those":[202,212,284],"screened,":[205,216],"generally":[208],"experiences.":[210],"were":[219],"\"undecided\"":[220],"(PWD,":[224],"38.46%;":[225],"40.52%;":[227],"Relatives,":[228],"44.44%).":[229],"Influences":[230],"participants'":[233],"decisions":[234],"screen,":[236,238],"current":[241],"indecision":[242],"differed":[243],"group:":[245],"PWDs":[246],"(21.70%)":[247],"Caregivers":[249],"(26.87%)":[250],"most":[251],"often":[252],"self-initiated":[254],"research":[255],"as":[256],"an":[257],"influence":[258],"Relatives":[260],"they":[262],"previously":[265],"considered":[266],"(48.28%).":[268],"CONCLUSION:":[269],"Results":[270],"highlight":[271],"need":[273],"accessible":[276],"information":[277],"screening,":[279],"including":[280],"real":[281],"experiences":[282],"screened.":[287]},"counts_by_year":[{"year":2026,"cited_by_count":5},{"year":2025,"cited_by_count":2}],"updated_date":"2026-11-12T12:28:57.059296","created_date":"2024-08-28T00:00:00"}