{"id":"https://openalex.org/W4401014239","doi":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1","title":"Parents' and children's needs in the drug development process","display_name":"Parents' and children's needs in the drug development process","publication_year":2024,"publication_date":"2024-01-01","ids":{"openalex":"https://openalex.org/W4401014239","doi":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1"},"language":"en","primary_location":{"id":"doi:10.1016/b978-0-323-88459-4.00003-1","doi":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1","is_oa":false,"landing_page_url":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1","pdf_url":null,"source":{"id":"https://openalex.org/S4306463230","display_name":"Elsevier eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Essentials of Translational Pediatric Drug Development","raw_type":"book-chapter"},"volume":{"id":"https://openalex.org/W4401026718","display_name":"Essentials of Translational Pediatric Drug Development"},"type":"book-chapter","is_traditional":true,"indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5025784505","display_name":"Maria Cavaller-Bellaubi","orcid":"https://orcid.org/0000-0002-6658-6863","observed_orcids":["https://orcid.org/0000-0002-6658-6863"]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Maria Cavaller-Bellaubi","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113894911","display_name":"Ariane Weinman","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Ariane Weinman","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046624336","display_name":"Eric Vermeulen","orcid":"https://orcid.org/0000-0002-1032-5330","observed_orcids":["https://orcid.org/0000-0002-1032-5330"]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]},{"id":"https://openalex.org/I4210160077","display_name":"Vereniging Samenwerkende Ouder- en Pati\u00ebntenorganisaties","ror":"https://ror.org/05gt72306","country_code":"NL","type":"other","lineage":["https://openalex.org/I4210160077"]}],"countries":["FR","NL"],"is_corresponding":false,"raw_author_name":"Eric Vermeulen","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France","VSOP - Patient Alliance for Rare and Genetic Diseases, Utrecht, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]},{"raw_affiliation_string":"VSOP - Patient Alliance for Rare and Genetic Diseases, Utrecht, the Netherlands","institution_ids":["https://openalex.org/I4210160077"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5105099407","display_name":"Dimitris Athanassiou","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Dimitris Athanassiou","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France","RDG, Rare Diseases Greece, Athens, Greece","World Duchenne Organization, Veenendaal, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]},{"raw_affiliation_string":"RDG, Rare Diseases Greece, Athens, Greece","institution_ids":[]},{"raw_affiliation_string":"World Duchenne Organization, Veenendaal, the Netherlands","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003775399","display_name":"Mariette H E Driessens","orcid":"https://orcid.org/0000-0001-7423-8538","observed_orcids":["https://orcid.org/0000-0001-7423-8538"]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]},{"id":"https://openalex.org/I4210160077","display_name":"Vereniging Samenwerkende Ouder- en Pati\u00ebntenorganisaties","ror":"https://ror.org/05gt72306","country_code":"NL","type":"other","lineage":["https://openalex.org/I4210160077"]}],"countries":["FR","NL"],"is_corresponding":false,"raw_author_name":"Mariette Driessens","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France","VSOP - Patient Alliance for Rare and Genetic Diseases, Utrecht, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]},{"raw_affiliation_string":"VSOP - Patient Alliance for Rare and Genetic Diseases, Utrecht, the Netherlands","institution_ids":["https://openalex.org/I4210160077"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111101969","display_name":"Anita Kienesberger","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]},{"id":"https://openalex.org/I4387155026","display_name":"Institut de Recerca Sant Pau","ror":"https://ror.org/005teat46","country_code":"ES","type":"healthcare","lineage":["https://openalex.org/I4387153040","https://openalex.org/I4387155026"]}],"countries":["ES","FR"],"is_corresponding":false,"raw_author_name":"Anita Kienesberger","raw_affiliation_strings":["Childhood Cancer International/Europe, Nieuwegein, the Netherlands","EURORDIS - Rare Diseases Europe, Paris, France","Sant Pau Institute for Biomedical Research (IIB-Sant Pau), Barcelona, Spain"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Childhood Cancer International/Europe, Nieuwegein, the Netherlands","institution_ids":[]},{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]},{"raw_affiliation_string":"Sant Pau Institute for Biomedical Research (IIB-Sant Pau), Barcelona, Spain","institution_ids":["https://openalex.org/I4387155026"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5030000303","display_name":"Mar\u00eda Borrell-Pag\u00e9s","orcid":"https://orcid.org/0000-0002-1759-9756","observed_orcids":["https://orcid.org/0000-0002-1759-9756"]},"institutions":[{"id":"https://openalex.org/I1285072804","display_name":"European Organisation for Rare Diseases","ror":"https://ror.org/019w4mg02","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I1285072804"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Maria Borrell-Pages","raw_affiliation_strings":["EURORDIS - Rare Diseases Europe, Paris, France","Fundaci\u00f3n Noelia -Collagen VI Defficiency Congenital Muscular Disease, Barcelona, Spain","RDG, Rare Diseases Greece, Athens, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"EURORDIS - Rare Diseases Europe, Paris, France","institution_ids":["https://openalex.org/I1285072804"]},{"raw_affiliation_string":"Fundaci\u00f3n Noelia -Collagen VI Defficiency Congenital Muscular Disease, Barcelona, Spain","institution_ids":[]},{"raw_affiliation_string":"RDG, Rare Diseases Greece, Athens, Greece","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":7.7886,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.95043103,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":95},"biblio":{"volume":null,"issue":null,"first_page":"33","last_page":"60"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12547","display_name":"Pharmaceutical studies and practices","score":0.989300012588501,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12547","display_name":"Pharmaceutical studies and practices","score":0.989300012588501,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11506","display_name":"Children's Rights and Participation","score":0.004999999888241291,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.00279999990016222,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/pediatric-drug-development","display_name":"pediatric drug development","score":0.9800000190734863},{"id":"https://openalex.org/keywords/parental-involvement","display_name":"parental involvement","score":0.8029999732971191},{"id":"https://openalex.org/keywords/children-s-needs","display_name":"children's needs","score":0.5730000138282776},{"id":"https://openalex.org/keywords/unmet-medical-needs","display_name":"unmet medical needs","score":0.7200000286102295},{"id":"https://openalex.org/keywords/barriers-to-collaboration","display_name":"barriers to collaboration","score":0.7570000290870667},{"id":"https://openalex.org/keywords/access-to-medicines","display_name":"access to medicines","score":0.8650000095367432},{"id":"https://openalex.org/keywords/treatment-affordability","display_name":"treatment affordability","score":0.7720000147819519},{"id":"https://openalex.org/keywords/good-practice-framework","display_name":"good practice framework","score":0.6290000081062317}],"concepts":[{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.5017960071563721},{"id":"https://openalex.org/C2780035454","wikidata":"https://www.wikidata.org/wiki/Q8386","display_name":"Drug","level":2,"score":0.4633975327014923},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.41974085569381714},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4001668691635132},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.36382919549942017},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2411845326423645},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.22264817357063293},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.12761235237121582},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.04592633247375488}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1016/b978-0-323-88459-4.00003-1","doi":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1","is_oa":false,"landing_page_url":"https://doi.org/10.1016/b978-0-323-88459-4.00003-1","pdf_url":null,"source":{"id":"https://openalex.org/S4306463230","display_name":"Elsevier eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Essentials of Translational Pediatric Drug Development","raw_type":"book-chapter"},{"id":"pmh:oai:archive.ugent.be:01JS46GE9C2X3F02HHCJDMABCB","doi":null,"is_oa":false,"landing_page_url":"https://biblio.ugent.be/publication/01JS46GE9C2X3F02HHCJDMABCB","pdf_url":null,"source":{"id":"https://openalex.org/S4306400478","display_name":"Ghent University Academic Bibliography (Ghent University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I32597200","host_organization_name":"Ghent University","host_organization_lineage":["https://openalex.org/I32597200"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ISBN: 9780323884594","raw_type":"info:eu-repo/semantics/bookPart"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.8048999905586243,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":53,"referenced_works":["https://openalex.org/W46441505","https://openalex.org/W1572984780","https://openalex.org/W1836204718","https://openalex.org/W1986985095","https://openalex.org/W1989165950","https://openalex.org/W2002325729","https://openalex.org/W2014305353","https://openalex.org/W2032279445","https://openalex.org/W2047703934","https://openalex.org/W2062929005","https://openalex.org/W2091238361","https://openalex.org/W2099101249","https://openalex.org/W2117089529","https://openalex.org/W2123246083","https://openalex.org/W2171467988","https://openalex.org/W2173514600","https://openalex.org/W2259603958","https://openalex.org/W2319584370","https://openalex.org/W2336533748","https://openalex.org/W2398134517","https://openalex.org/W2433108043","https://openalex.org/W2490038287","https://openalex.org/W2617205868","https://openalex.org/W2737262888","https://openalex.org/W2758606946","https://openalex.org/W2890598093","https://openalex.org/W2902219846","https://openalex.org/W2911038251","https://openalex.org/W2912539682","https://openalex.org/W2943189056","https://openalex.org/W2949736170","https://openalex.org/W2961792602","https://openalex.org/W3030936584","https://openalex.org/W3039777865","https://openalex.org/W3094511318","https://openalex.org/W3095448533","https://openalex.org/W3111143870","https://openalex.org/W3112859835","https://openalex.org/W3114053601","https://openalex.org/W3116535472","https://openalex.org/W3158318636","https://openalex.org/W3160491123","https://openalex.org/W3185944714","https://openalex.org/W3186748106","https://openalex.org/W3190423294","https://openalex.org/W3190880225","https://openalex.org/W4214482265","https://openalex.org/W4221040528","https://openalex.org/W4225361459","https://openalex.org/W4281251486","https://openalex.org/W4281570458","https://openalex.org/W4297877805","https://openalex.org/W6787762210"],"related_works":["https://openalex.org/W4401014510","https://openalex.org/W4401014306","https://openalex.org/W2012129125","https://openalex.org/W4401026718","https://openalex.org/W2912539682","https://openalex.org/W2758265883","https://openalex.org/W1981627820","https://openalex.org/W4233545704","https://openalex.org/W3083138075","https://openalex.org/W4396828555"],"abstract_inverted_index":null,"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2024,"cited_by_count":1}],"updated_date":"2026-10-25T09:29:13.331239","created_date":"2024-07-27T00:00:00"}
