{"id":"https://openalex.org/W4390664494","doi":"https://doi.org/10.37506/b1atb268","title":"Family Caregivers\u2019 Dilemma while Providing Palliative Care to Elderly Patients","display_name":"Family Caregivers\u2019 Dilemma while Providing Palliative Care to Elderly Patients","publication_year":2024,"publication_date":"2024-01-05","ids":{"openalex":"https://openalex.org/W4390664494","doi":"https://doi.org/10.37506/b1atb268"},"language":"en","primary_location":{"id":"doi:10.37506/b1atb268","doi":"https://doi.org/10.37506/b1atb268","is_oa":true,"landing_page_url":"http://dx.doi.org/10.37506/b1atb268","pdf_url":"https://www.hjuoz.uoz.edu.krd/index.php/ijphrd/article/download/20393/17140","source":{"id":"https://openalex.org/S2764603850","display_name":"Indian Journal of Public Health Research & Development","issn_l":"0976-0245","issn":["0976-0245","0976-5506"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":["poland-20"],"host_organization":"https://openalex.org/P4322632784","host_organization_name":"Institute of Medico-legal Publications Private Limited","host_organization_lineage":["https://openalex.org/P4322632784"],"host_organization_lineage_names":["Institute of Medico-legal Publications Private Limited"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Indian Journal of Public Health Research & Development","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://www.hjuoz.uoz.edu.krd/index.php/ijphrd/article/download/20393/17140","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5059108905","display_name":"Ushvinder Kaur Popli","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I59475050","display_name":"Jamia Millia Islamia","ror":"https://ror.org/00pnhhv55","country_code":"IN","type":"education","lineage":["https://openalex.org/I59475050"]}],"countries":["IN"],"is_corresponding":false,"raw_author_name":"Ushvinder Kaur Popli","raw_affiliation_strings":["Research Scholar , Department of Social Work , JMI , New Delhi"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Research Scholar , Department of Social Work , JMI , New Delhi","institution_ids":["https://openalex.org/I59475050"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5113090897","display_name":"Tuba Naqvi","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I59475050","display_name":"Jamia Millia Islamia","ror":"https://ror.org/00pnhhv55","country_code":"IN","type":"education","lineage":["https://openalex.org/I59475050"]}],"countries":["IN"],"is_corresponding":true,"raw_author_name":"Tuba Naqvi","raw_affiliation_strings":["Research Scholar, Department of Social Work, JMI, New Delhi","of Social Work, JMI, New Delhi"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Research Scholar, Department of Social Work, JMI, New Delhi","institution_ids":["https://openalex.org/I59475050"]},{"raw_affiliation_string":"of Social Work, JMI, New Delhi","institution_ids":["https://openalex.org/I59475050"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5113090897"],"corresponding_institution_ids":["https://openalex.org/I59475050"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.003511,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"15","issue":"1","first_page":"366","last_page":"371"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9560999870300293,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9560999870300293,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.01679999940097332,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.013199999928474426,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.996999979019165},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.9850000143051147},{"id":"https://openalex.org/keywords/elderly-patients","display_name":"elderly patients","score":0.9660000205039978},{"id":"https://openalex.org/keywords/home-based-palliative-care","display_name":"home-based palliative care","score":0.9020000100135803},{"id":"https://openalex.org/keywords/hospital-based-palliative-care","display_name":"hospital palliative care","score":0.9959999918937683},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.8740000128746033},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.48899999260902405}],"concepts":[{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.8843366503715515},{"id":"https://openalex.org/C2778496695","wikidata":"https://www.wikidata.org/wiki/Q254128","display_name":"Dilemma","level":2,"score":0.7004143595695496},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.6033205389976501},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6004883050918579},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.5996422171592712},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3918547034263611},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.37506/b1atb268","doi":"https://doi.org/10.37506/b1atb268","is_oa":true,"landing_page_url":"http://dx.doi.org/10.37506/b1atb268","pdf_url":"https://www.hjuoz.uoz.edu.krd/index.php/ijphrd/article/download/20393/17140","source":{"id":"https://openalex.org/S2764603850","display_name":"Indian Journal of Public Health Research & Development","issn_l":"0976-0245","issn":["0976-0245","0976-5506"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":["poland-20"],"host_organization":"https://openalex.org/P4322632784","host_organization_name":"Institute of Medico-legal Publications Private Limited","host_organization_lineage":["https://openalex.org/P4322632784"],"host_organization_lineage_names":["Institute of Medico-legal Publications Private Limited"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Indian Journal of Public Health Research & Development","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.37506/b1atb268","doi":"https://doi.org/10.37506/b1atb268","is_oa":true,"landing_page_url":"http://dx.doi.org/10.37506/b1atb268","pdf_url":"https://www.hjuoz.uoz.edu.krd/index.php/ijphrd/article/download/20393/17140","source":{"id":"https://openalex.org/S2764603850","display_name":"Indian Journal of Public Health Research & Development","issn_l":"0976-0245","issn":["0976-0245","0976-5506"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":["poland-20"],"host_organization":"https://openalex.org/P4322632784","host_organization_name":"Institute of Medico-legal Publications Private Limited","host_organization_lineage":["https://openalex.org/P4322632784"],"host_organization_lineage_names":["Institute of Medico-legal Publications Private Limited"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Indian Journal of Public Health Research & Development","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9391000270843506,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4390664494.pdf","grobid_xml":"https://content.openalex.org/works/W4390664494.grobid-xml"},"referenced_works_count":22,"referenced_works":["https://openalex.org/W1984768353","https://openalex.org/W2000391517","https://openalex.org/W2027039937","https://openalex.org/W2075059267","https://openalex.org/W2080134673","https://openalex.org/W2145143028","https://openalex.org/W2754937330","https://openalex.org/W2764253386","https://openalex.org/W2767991404","https://openalex.org/W2885401878","https://openalex.org/W2894389566","https://openalex.org/W2997582259","https://openalex.org/W3039406172","https://openalex.org/W3102422597","https://openalex.org/W3102940261","https://openalex.org/W3120120881","https://openalex.org/W4200368053","https://openalex.org/W4206360288","https://openalex.org/W4226248085","https://openalex.org/W4231172041","https://openalex.org/W4320507717","https://openalex.org/W6670946675"],"related_works":["https://openalex.org/W7220152831","https://openalex.org/W4321765448","https://openalex.org/W4405976642","https://openalex.org/W4416285072","https://openalex.org/W3122114056","https://openalex.org/W7160650667","https://openalex.org/W3157444400","https://openalex.org/W7132230357","https://openalex.org/W4412785062","https://openalex.org/W7065471997"],"abstract_inverted_index":{"Elderly":[0],"patients":[1],"receiving":[2,90],"palliative":[3,44,66,71,91,112,150,178,202],"care":[4,45,67,113,134,179,203],"are":[5],"terminally":[6],"ill,":[7],"thereby":[8],"requiring":[9],"an":[10,156],"increasing":[11],"amount":[12],"of":[13,29,75,88],"caregivers\u2019time":[14],"and":[15,22,69,81,105,163,198],"attention.":[16],"Caregivers":[17],"often":[18],"face":[19],"diverse":[20],"issues":[21],"challenges":[23,37,171],"while":[24,121],"performing":[25],"caregiving":[26,154],"tasks.":[27],"Thepurpose":[28],"this":[30,76],"paper":[31,140],"is":[32,159],"to":[33,46,102,118,131,180,185],"systematically":[34],"investigate":[35],"the":[36,62,79,86,110,116,122,125,133,143,192],"that":[38],"trigger":[39],"family":[40],"caregivers\u2019":[41],"dilemmas":[42,83,188],"whileproviding":[43],"their":[47,187],"elderly":[48,99,137,157],"patients.":[49,138,182],"The":[50,73,93,107,139],"sample":[51],"size":[52],"was":[53],"10":[54],"respondents":[55],"(family":[56],"caregivers)":[57],"who":[58],"werepurposively":[59],"selected":[60],"by":[61,85,189],"researchers":[63],"from":[64],"hospital-based":[65,111],"settings":[68,97],"home-based":[70],"caresettings.":[72,151],"finding":[74],"study":[77],"presents":[78],"existing":[80],"emerging":[82],"confronted":[84],"caregivers":[87,94,108,123],"theelderly":[89],"care.":[92],"in":[95,109,124,149,175],"both":[96],"reported":[98],"patients\u2019":[100],"reluctance":[101],"performdaily":[103],"exercises":[104],"medication.":[106],"setting":[114,127],"mentioned":[115],"patient\u2019sdesire":[117],"go":[119],"home,":[120],"home":[126],"needed":[128],"extra":[129],"assistance":[130],"manage":[132],"needs":[135],"ofthe":[136],"also":[141],"highlights":[142],"implications":[144],"for":[145,155],"social":[146],"workers":[147],"functioning":[148],"In":[152],"conclusion,":[153],"patient":[158],"a":[160,195],"very":[161],"arduous":[162],"demanding":[164],"task.":[165],"Family":[166],"caregiversgrapple":[167],"with":[168],"many":[169],"day-to-day":[170],"which":[172],"creates":[173],"dilemma":[174],"providing":[176],"quality":[177],"theirelderly":[181],"They":[183],"try":[184],"fix":[186],"looking":[190],"at":[191],"issue":[193],"through":[194],"medical":[196],"lens":[197],"discussing":[199],"itwith":[200],"professional":[201],"providers.":[204]},"counts_by_year":[],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2024-01-13T00:00:00"}