{"id":"https://openalex.org/W4387982263","doi":"https://doi.org/10.1183/13993003.congress-2023.pa429","title":"The European ILD Registry algorithm of self assessment (eurILDreg-ASA): pilot study data on prospective, patient-centered capture of symptom burden, quality of life, spirometry, oximetry and exercise capacity","display_name":"The European ILD Registry algorithm of self assessment (eurILDreg-ASA): pilot study data on prospective, patient-centered capture of symptom burden, quality of life, spirometry, oximetry and exercise capacity","publication_year":2023,"publication_date":"2023-09-09","ids":{"openalex":"https://openalex.org/W4387982263","doi":"https://doi.org/10.1183/13993003.congress-2023.pa429"},"language":"en","primary_location":{"id":"doi:10.1183/13993003.congress-2023.pa429","doi":"https://doi.org/10.1183/13993003.congress-2023.pa429","is_oa":false,"landing_page_url":"https://doi.org/10.1183/13993003.congress-2023.pa429","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rare ILD/DPLD","raw_type":"proceedings-article"},"volume":null,"type":"conference-abstract","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5093133711","display_name":"Laurenz H. Claas","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Laurenz H. Claas","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Giessen, Germany","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063518241","display_name":"Karen Moor","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Karen Moor","raw_affiliation_strings":["Centre of Excellence for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre of Excellence for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055981872","display_name":"Mar\u00eda Molina\u2010Molina","orcid":"https://orcid.org/0000-0002-1852-1723","observed_orcids":["https://orcid.org/0000-0002-1852-1723"]},"institutions":[{"id":"https://openalex.org/I2802050225","display_name":"Bellvitge University Hospital","ror":"https://ror.org/00epner96","country_code":"ES","type":"healthcare","lineage":["https://openalex.org/I157913058","https://openalex.org/I2802050225","https://openalex.org/I4210153292"]},{"id":"https://openalex.org/I4210087039","display_name":"Institut d'Investigaci\u00f3 Biom\u00e9dica de Bellvitge","ror":"https://ror.org/0008xqs48","country_code":"ES","type":"facility","lineage":["https://openalex.org/I157913058","https://openalex.org/I2802050225","https://openalex.org/I4210087039","https://openalex.org/I4210096656","https://openalex.org/I4210106543","https://openalex.org/I4210107147","https://openalex.org/I4210153292","https://openalex.org/I4387153040","https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Maria Molina-Molina","raw_affiliation_strings":["ILD Unit, Respiratory Department, University Hospital of Bellvitge-IDIBELL, Barcelona, Spain"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"ILD Unit, Respiratory Department, University Hospital of Bellvitge-IDIBELL, Barcelona, Spain","institution_ids":["https://openalex.org/I2802050225","https://openalex.org/I4210087039"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113032327","display_name":"Keerthana Siebert","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Keerthana Siebert","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Giessen, Germany","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071628869","display_name":"Silke Tello","orcid":"https://orcid.org/0000-0002-1466-7282","observed_orcids":["https://orcid.org/0000-0002-1466-7282"]},"institutions":[{"id":"https://openalex.org/I4210129183","display_name":"German Center for Lung Research","ror":"https://ror.org/03dx11k66","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210129183","https://openalex.org/I4405256427"]},{"id":"https://openalex.org/I4210131615","display_name":"Universities of Giessen and Marburg Lung Center","ror":"https://ror.org/045f0ws19","country_code":"DE","type":"education","lineage":["https://openalex.org/I4210131615"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Silke Tello","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany","institution_ids":["https://openalex.org/I4210129183","https://openalex.org/I4210131615"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063742133","display_name":"Jennifer Naumann","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210129183","display_name":"German Center for Lung Research","ror":"https://ror.org/03dx11k66","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210129183","https://openalex.org/I4405256427"]},{"id":"https://openalex.org/I4210131615","display_name":"Universities of Giessen and Marburg Lung Center","ror":"https://ror.org/045f0ws19","country_code":"DE","type":"education","lineage":["https://openalex.org/I4210131615"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Jennifer Naumann","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany","institution_ids":["https://openalex.org/I4210129183","https://openalex.org/I4210131615"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034923710","display_name":"Rebecca Borton","orcid":"https://orcid.org/0000-0002-2292-4103","observed_orcids":["https://orcid.org/0000-0002-2292-4103"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Rebecca Borton","raw_affiliation_strings":["Head of Research, patientMpower, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Head of Research, patientMpower, Dublin, Ireland","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070352294","display_name":"Marlies S. Wijsenbeek-Lourens","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Marlies Wijsenbeek-Lourens","raw_affiliation_strings":["Centre of Excellence for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre of Excellence for Interstitial Lung Diseases and Sarcoidosis, Department of Respiratory Medicine, Erasmus University Medical Centre, Rotterdam, Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075038951","display_name":"Bruno Crestani","orcid":"https://orcid.org/0000-0002-2961-3455","observed_orcids":["https://orcid.org/0000-0002-2961-3455","https://orcid.org/0009-0009-4987-0377"]},"institutions":[{"id":"https://openalex.org/I154526488","display_name":"Inserm","ror":"https://ror.org/02vjkv261","country_code":"FR","type":"government","lineage":["https://openalex.org/I154526488"]},{"id":"https://openalex.org/I4210145170","display_name":"H\u00f4pital Bichat-Claude-Bernard","ror":"https://ror.org/03fdnmv92","country_code":"FR","type":"healthcare","lineage":["https://openalex.org/I4210097159","https://openalex.org/I4210145170"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Bruno Crestani","raw_affiliation_strings":["Institute National de la Saint\u00e9 et de la Recherche M\u00e9dicale, Hopital Bichat, Service de Pneumologie, Paris, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute National de la Saint\u00e9 et de la Recherche M\u00e9dicale, Hopital Bichat, Service de Pneumologie, Paris, France","institution_ids":["https://openalex.org/I154526488","https://openalex.org/I4210145170"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110709590","display_name":"Andreas G\u00fcnther","orcid":"https://orcid.org/0000-0002-2187-0975","observed_orcids":["https://orcid.org/0000-0002-2187-0975"]},"institutions":[{"id":"https://openalex.org/I4210129183","display_name":"German Center for Lung Research","ror":"https://ror.org/03dx11k66","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210129183","https://openalex.org/I4405256427"]},{"id":"https://openalex.org/I4210131615","display_name":"Universities of Giessen and Marburg Lung Center","ror":"https://ror.org/045f0ws19","country_code":"DE","type":"education","lineage":["https://openalex.org/I4210131615"]},{"id":"https://openalex.org/I4210154233","display_name":"Cardio-Pulmonary Institute","ror":"https://ror.org/04ckbty56","country_code":"DE","type":"facility","lineage":["https://openalex.org/I114090438","https://openalex.org/I149899117","https://openalex.org/I200763008","https://openalex.org/I4210102801","https://openalex.org/I4210154233"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Andreas Guenther","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Cardio-Pulmonary Institute (CPI), Agaplesion Lung Clinic \u201eEvangelisches Krankenhaus Mittelhessen\u201c, Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Cardio-Pulmonary Institute (CPI), Agaplesion Lung Clinic \u201eEvangelisches Krankenhaus Mittelhessen\u201c, Giessen, Germany","institution_ids":["https://openalex.org/I4210129183","https://openalex.org/I4210131615","https://openalex.org/I4210154233"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033766167","display_name":"Ekaterina Krauss","orcid":"https://orcid.org/0000-0001-8682-4294","observed_orcids":["https://orcid.org/0000-0001-8682-4294"]},"institutions":[{"id":"https://openalex.org/I4210129183","display_name":"German Center for Lung Research","ror":"https://ror.org/03dx11k66","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210129183","https://openalex.org/I4405256427"]},{"id":"https://openalex.org/I4210131615","display_name":"Universities of Giessen and Marburg Lung Center","ror":"https://ror.org/045f0ws19","country_code":"DE","type":"education","lineage":["https://openalex.org/I4210131615"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Ekaterina Krauss","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany","institution_ids":["https://openalex.org/I4210129183","https://openalex.org/I4210131615"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5033766167","display_name":"Ekaterina Krauss","orcid":"https://orcid.org/0000-0001-8682-4294","observed_orcids":["https://orcid.org/0000-0001-8682-4294"]},"institutions":[{"id":"https://openalex.org/I4210129183","display_name":"German Center for Lung Research","ror":"https://ror.org/03dx11k66","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210129183","https://openalex.org/I4405256427"]},{"id":"https://openalex.org/I4210131615","display_name":"Universities of Giessen and Marburg Lung Center","ror":"https://ror.org/045f0ws19","country_code":"DE","type":"education","lineage":["https://openalex.org/I4210131615"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Ekaterina Krauss","raw_affiliation_strings":["European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European ILD Registry & Biobank (eurILDreg/bank), Center for Interstitial and Rare Lung Diseases, Universities of Giessen and Marburg Lung Center (UGMLC), Member of the German Center for Lung Research (DZL), Giessen, Germany","institution_ids":["https://openalex.org/I4210129183","https://openalex.org/I4210131615"]}]}],"institutions":[],"countries_distinct_count":4,"institutions_distinct_count":8,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":"PA429","last_page":"PA429"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10870","display_name":"Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis","score":0.6054999828338623,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10870","display_name":"Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis","score":0.6054999828338623,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.295199990272522,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10143","display_name":"Chronic Obstructive Pulmonary Disease (COPD) Research","score":0.04529999941587448,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/interstitial-lung-disease","display_name":"interstitial lung disease","score":0.9599999785423279},{"id":"https://openalex.org/keywords/mobile-application","display_name":"mobile application","score":0.6269999742507935},{"id":"https://openalex.org/keywords/symptom-burden","display_name":"symptom burden","score":0.7760000228881836},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.8740000128746033},{"id":"https://openalex.org/keywords/home-spirometry","display_name":"home spirometry","score":0.9829999804496765},{"id":"https://openalex.org/keywords/pulse-oximetry","display_name":"pulse oximetry","score":0.9739999771118164},{"id":"https://openalex.org/keywords/exercise-capacity","display_name":"exercise capacity","score":0.9589999914169312},{"id":"https://openalex.org/keywords/patient-adherence","display_name":"patient adherence","score":0.6179999709129333},{"id":"https://openalex.org/keywords/outdoor-air-pollution","display_name":"outdoor air pollution","score":0.6129999756813049},{"id":"https://openalex.org/keywords/disease-progression-monitoring","display_name":"disease progression monitoring","score":0.6140000224113464}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.839127242565155},{"id":"https://openalex.org/C2780333948","wikidata":"https://www.wikidata.org/wiki/Q653305","display_name":"Spirometry","level":3,"score":0.6707169413566589},{"id":"https://openalex.org/C188816634","wikidata":"https://www.wikidata.org/wiki/Q2113324","display_name":"Prospective cohort study","level":2,"score":0.5921459197998047},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.5826350450515747},{"id":"https://openalex.org/C61943457","wikidata":"https://www.wikidata.org/wiki/Q6046661","display_name":"Interim analysis","level":3,"score":0.56829833984375},{"id":"https://openalex.org/C2780124106","wikidata":"https://www.wikidata.org/wiki/Q1140495","display_name":"Pulse oximetry","level":2,"score":0.540450930595398},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.5110941529273987},{"id":"https://openalex.org/C160798450","wikidata":"https://www.wikidata.org/wiki/Q4230870","display_name":"Concordance","level":2,"score":0.47238588333129883},{"id":"https://openalex.org/C2776957806","wikidata":"https://www.wikidata.org/wiki/Q4895105","display_name":"Interim","level":2,"score":0.4341018795967102},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.3573165237903595},{"id":"https://openalex.org/C194828623","wikidata":"https://www.wikidata.org/wiki/Q2861470","display_name":"Emergency medicine","level":1,"score":0.32681167125701904},{"id":"https://openalex.org/C535046627","wikidata":"https://www.wikidata.org/wiki/Q30612","display_name":"Clinical trial","level":2,"score":0.26310837268829346},{"id":"https://openalex.org/C2776042228","wikidata":"https://www.wikidata.org/wiki/Q35869","display_name":"Asthma","level":2,"score":0.0874846875667572},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C42219234","wikidata":"https://www.wikidata.org/wiki/Q131130","display_name":"Anesthesia","level":1,"score":0.0},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.0},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1183/13993003.congress-2023.pa429","doi":"https://doi.org/10.1183/13993003.congress-2023.pa429","is_oa":false,"landing_page_url":"https://doi.org/10.1183/13993003.congress-2023.pa429","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rare ILD/DPLD","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4406950312","https://openalex.org/W4416637762","https://openalex.org/W7161940112","https://openalex.org/W4394822249","https://openalex.org/W4312608458","https://openalex.org/W4311697949","https://openalex.org/W4311697579","https://openalex.org/W4409879579","https://openalex.org/W3104851424","https://openalex.org/W4311699061"],"abstract_inverted_index":{"Background:":[0],"In":[1],"Interstitial":[2],"Lung":[3],"Diseases":[4],"(ILD),":[5],"accurate":[6],"prediction":[7],"of":[8,22,40,45,90,150],"progression":[9,24],"rate":[10,187],"and":[11,25,30,43,50,55,62,107,116,220],"prognosis":[12],"remains":[13],"difficult.":[14],"Patient":[15],"centered":[16],"measurements":[17,152,179],"may":[18],"improve":[19],"early":[20],"detection":[21],"disease":[23],"enable":[26],"personalized":[27],"treatment.":[28],"Aims":[29],"objectives:":[31],"To":[32],"develop":[33],"a":[34,65,83,226],"novel":[35],"algorithm":[36,205],"for":[37],"self-assessment":[38],"(ASA)":[39],"symptom":[41,86],"burden":[42],"quality":[44],"life":[46],"(QoL),":[47],"home":[48],"spirometry,":[49],"O2":[51],"saturation":[52],"at":[53,105],"rest":[54,106],"during":[56,108],"exercise;":[57],"to":[58,113,132,142,206],"assess":[59],"patient":[60],"satisfaction":[61],"adherence":[63,141,186],"in":[64,155,188,199,225],"prospective,":[66],"open-label,":[67],"pilot":[68],"trial.":[69],"Methods:":[70],"The":[71,137,185],"smartphone":[72],"app-based":[73],"\u201ceurILDreg":[74],"ASA\u201d":[75],"was":[76,140,193,197],"developed":[77],"together":[78],"with":[79],"patientMpower.":[80],"It":[81],"allows":[82],"once":[84],"daily":[85],"check":[87],"including":[88],"signs":[89],"respiratory":[91],"infection,":[92],"QoL":[93],"assessment":[94],"(EQ5D5L,":[95],"K-BILD,":[96],"LCQ),":[97],"spirometry":[98],"(MIR":[99],"spirobank),":[100],"pulse":[101],"oximetry":[102],"(Nonin":[103],"3230)":[104],"exercise":[109],"(one":[110],"minute":[111],"sit":[112],"stand":[114],"test),":[115],"data":[117,129,135,213],"from":[118],"the":[119,133,143,148,156,160,170,189,204],"nearest":[120],"weather":[121],"station":[122],"indicating":[123],"outdoor":[124],"pollution":[125],"level.":[126],"All":[127],"pseudonymized":[128],"were":[130],"transferred":[131],"eurILDreg":[134,216],"warehouse.":[136],"primary":[138],"endpoint":[139],"algorithm,":[144],"as":[145],"given":[146],"by":[147],"number":[149],"completed":[151,169],"/":[153],"days":[154],"study.":[157],"Results:":[158],"Of":[159,174],"19":[161],"patients":[162,167,177,182,202],"enrolled":[163],"until":[164],"now,":[165],"17":[166],"have":[168],"first":[171,190],"4":[172,191],"weeks.":[173],"them,":[175],"15":[176],"performed":[178],"daily;":[180],"2":[181],"unexpectedly":[183],"died.":[184],"weeks":[192],"91%.":[194],"Although":[195],"eurILDreg-ASA":[196],"accepted":[198],"general,":[200],"6":[201],"reported":[203],"be":[207],"rather":[208],"lengthy.":[209],"Conclusions:":[210],"Our":[211],"interim":[212],"indicate":[214],"that":[215],"ASA":[217],"is":[218],"feasible":[219],"acceptable.":[221],"However,":[222],"further":[223],"exploration":[224],"larger":[227],"prospective":[228],"study":[229],"appears":[230],"necessary.":[231]},"counts_by_year":[],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2023-10-28T00:00:00"}