{"id":"https://openalex.org/W4386629632","doi":"https://doi.org/10.1111/1467-9566.13709","title":"Race in clinical trials in Sweden: How regulatory and medical standards in clinical research trump the post\u2010racial discourse","display_name":"Race in clinical trials in Sweden: How regulatory and medical standards in clinical research trump the post\u2010racial discourse","publication_year":2023,"publication_date":"2023-09-12","ids":{"openalex":"https://openalex.org/W4386629632","doi":"https://doi.org/10.1111/1467-9566.13709","pmid":"https://pubmed.ncbi.nlm.nih.gov/37699725"},"language":"en","primary_location":{"id":"doi:10.1111/1467-9566.13709","doi":"https://doi.org/10.1111/1467-9566.13709","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.13709","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/1467-9566.13709","source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},"volume":null,"type":"review","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/1467-9566.13709","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5035642792","display_name":"Shai Mulinari","orcid":"https://orcid.org/0000-0001-8773-9796","observed_orcids":["https://orcid.org/0000-0001-8773-9796"]},"institutions":[{"id":"https://openalex.org/I187531555","display_name":"Lund University","ror":"https://ror.org/012a77v79","country_code":"SE","type":"education","lineage":["https://openalex.org/I187531555"]}],"countries":["SE"],"is_corresponding":true,"raw_author_name":"Shai Mulinari","raw_affiliation_strings":["Department of Sociology, Lund University, Lund, Sweden"],"raw_orcid":"https://orcid.org/0000-0001-8773-9796","affiliations":[{"raw_affiliation_string":"Department of Sociology, Lund University, Lund, Sweden","institution_ids":["https://openalex.org/I187531555"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5076564913","display_name":"Anna Bredstr\u00f6m","orcid":"https://orcid.org/0000-0001-5451-8540","observed_orcids":["https://orcid.org/0000-0001-5451-8540"]},"institutions":[{"id":"https://openalex.org/I102134673","display_name":"Link\u00f6ping University","ror":"https://ror.org/05ynxx418","country_code":"SE","type":"education","lineage":["https://openalex.org/I102134673"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Anna Bredstr\u00f6m","raw_affiliation_strings":["Institute for Research on Migration, Ethnicity and Society (REMESO) Link\u00f6ping University  Norrk\u00f6ping Sweden"],"raw_orcid":"https://orcid.org/0000-0001-5451-8540","affiliations":[{"raw_affiliation_string":"Institute for Research on Migration, Ethnicity and Society (REMESO) Link\u00f6ping University  Norrk\u00f6ping Sweden","institution_ids":["https://openalex.org/I102134673"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5035642792"],"corresponding_institution_ids":["https://openalex.org/I187531555"],"apc_list":{"value":4330,"currency":"USD","value_usd":4330},"apc_paid":{"value":4330,"currency":"USD","value_usd":4330},"fwci":0.6645,"has_fulltext":true,"cited_by_count":11,"citation_normalized_percentile":{"value":0.53623188,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":96,"max":97},"biblio":{"volume":"46","issue":"2","first_page":"315","last_page":"332"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12749","display_name":"Race, Genetics, and Society","score":0.9945999979972839,"subfield":{"id":"https://openalex.org/subfields/3314","display_name":"Anthropology"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12749","display_name":"Race, Genetics, and Society","score":0.9945999979972839,"subfield":{"id":"https://openalex.org/subfields/3314","display_name":"Anthropology"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.004399999976158142,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12575","display_name":"Medical History and Research","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/1202","display_name":"History"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/racial-classification","display_name":"racial classification","score":0.6819999814033508},{"id":"https://openalex.org/keywords/clinical-trial-regulation","display_name":"clinical trial regulation","score":0.6370000243186951},{"id":"https://openalex.org/keywords/distributed-ontologies","display_name":"distributed ontologies","score":0.3970000147819519},{"id":"https://openalex.org/keywords/racialization","display_name":"racialization","score":0.7979999780654907},{"id":"https://openalex.org/keywords/sweden","display_name":"Sweden","score":0.8980000019073486},{"id":"https://openalex.org/keywords/medical-standards","display_name":"medical standards","score":0.3179999887943268}],"concepts":[{"id":"https://openalex.org/C76509639","wikidata":"https://www.wikidata.org/wiki/Q918036","display_name":"Race (biology)","level":2,"score":0.7935172319412231},{"id":"https://openalex.org/C176856949","wikidata":"https://www.wikidata.org/wiki/Q2001676","display_name":"Offensive","level":2,"score":0.6378185153007507},{"id":"https://openalex.org/C535046627","wikidata":"https://www.wikidata.org/wiki/Q30612","display_name":"Clinical trial","level":2,"score":0.6237305402755737},{"id":"https://openalex.org/C158016649","wikidata":"https://www.wikidata.org/wiki/Q161726","display_name":"Multinational corporation","level":2,"score":0.46941742300987244},{"id":"https://openalex.org/C107993555","wikidata":"https://www.wikidata.org/wiki/Q1662673","display_name":"Gender studies","level":1,"score":0.4306217432022095},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.4266558587551117},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.3657084107398987},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.32765382528305054},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.26621419191360474},{"id":"https://openalex.org/C42475967","wikidata":"https://www.wikidata.org/wiki/Q194292","display_name":"Operations research","level":1,"score":0.11058035492897034},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.09897089004516602},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D002986","descriptor_name":"Clinical Trials as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005006","descriptor_name":"Ethnicity","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013548","descriptor_name":"Sweden","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D044469","descriptor_name":"Racial Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1111/1467-9566.13709","doi":"https://doi.org/10.1111/1467-9566.13709","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.13709","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/1467-9566.13709","source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},{"id":"pmid:37699725","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/37699725","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of health & illness","raw_type":"Review"},{"id":"pmh:oai:lup.lub.lu.se:d4bd8f4b-0935-419f-b793-9bf0115d8bb2","doi":null,"is_oa":true,"landing_page_url":"https://lup.lub.lu.se/record/d4bd8f4b-0935-419f-b793-9bf0115d8bb2","pdf_url":"https://lup.lub.lu.se/search/files/158388952/Sociology_Health_Illness_2023_Mulinari.pdf","source":{"id":"https://openalex.org/S4306400536","display_name":"Lund University Publications (Lund University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187531555","host_organization_name":"Lund University","host_organization_lineage":["https://openalex.org/I187531555"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ISSN: 1467-9566","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:DiVA.org:liu-198236","doi":null,"is_oa":true,"landing_page_url":"https://liu.diva-portal.org/smash/get/diva2:1801717/FULLTEXT01","pdf_url":null,"source":{"id":"https://openalex.org/S4306401559","display_name":"KTH Publication Database DiVA (KTH Royal Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I86987016","host_organization_name":"KTH Royal Institute of Technology","host_organization_lineage":["https://openalex.org/I86987016"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1111/1467-9566.13709","doi":"https://doi.org/10.1111/1467-9566.13709","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.13709","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/1467-9566.13709","source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Reduced inequalities","score":0.7578999996185303,"id":"https://metadata.un.org/sdg/10"},{"display_name":"Good health and well-being","score":0.6240000128746033,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G4324872256","display_name":"A New Biologism? How Medical Research, Policy and Clinical Practice Approach Ethnic Differences in Health","funder_award_id":"2019-03310","funder_id":"https://openalex.org/F4320322581","funder_display_name":"Vetenskapsr\u00e5det"}],"funders":[{"id":"https://openalex.org/F4320322581","display_name":"Vetenskapsr\u00e5det","ror":"https://ror.org/03zttf063"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4386629632.pdf","grobid_xml":"https://content.openalex.org/works/W4386629632.grobid-xml"},"referenced_works_count":71,"referenced_works":["https://openalex.org/W216342353","https://openalex.org/W568741874","https://openalex.org/W1533897093","https://openalex.org/W1541416234","https://openalex.org/W1578807507","https://openalex.org/W1973962628","https://openalex.org/W2012752750","https://openalex.org/W2017527474","https://openalex.org/W2047150424","https://openalex.org/W2049320250","https://openalex.org/W2060860605","https://openalex.org/W2080792530","https://openalex.org/W2081907081","https://openalex.org/W2085880779","https://openalex.org/W2090906173","https://openalex.org/W2095794730","https://openalex.org/W2099449365","https://openalex.org/W2111137159","https://openalex.org/W2124970285","https://openalex.org/W2136236608","https://openalex.org/W2142650094","https://openalex.org/W2155965977","https://openalex.org/W2250510202","https://openalex.org/W2288880911","https://openalex.org/W2312426184","https://openalex.org/W2316051140","https://openalex.org/W2386380413","https://openalex.org/W2484275477","https://openalex.org/W2582184140","https://openalex.org/W2582854754","https://openalex.org/W2620350679","https://openalex.org/W2621343529","https://openalex.org/W2743898990","https://openalex.org/W2777462694","https://openalex.org/W2783602325","https://openalex.org/W2884392745","https://openalex.org/W2941616128","https://openalex.org/W2943295610","https://openalex.org/W2948370538","https://openalex.org/W2962758326","https://openalex.org/W2995397301","https://openalex.org/W3006221655","https://openalex.org/W3009424118","https://openalex.org/W3010878862","https://openalex.org/W3011373647","https://openalex.org/W3035885149","https://openalex.org/W3043492355","https://openalex.org/W3122524342","https://openalex.org/W3125576460","https://openalex.org/W3161849676","https://openalex.org/W3162224011","https://openalex.org/W3166925090","https://openalex.org/W3201595862","https://openalex.org/W4200578151","https://openalex.org/W4231942106","https://openalex.org/W4237816653","https://openalex.org/W4239287321","https://openalex.org/W4243209521","https://openalex.org/W4244021162","https://openalex.org/W4249985185","https://openalex.org/W4251969259","https://openalex.org/W4255589920","https://openalex.org/W4255720972","https://openalex.org/W4311445137","https://openalex.org/W4322009627","https://openalex.org/W4398314608","https://openalex.org/W6815132360","https://openalex.org/W7064777702","https://openalex.org/W7071759937","https://openalex.org/W7073986929","https://openalex.org/W7074594998"],"related_works":["https://openalex.org/W7084398466","https://openalex.org/W7119887057","https://openalex.org/W7120185595","https://openalex.org/W6996915291","https://openalex.org/W7220667773","https://openalex.org/W4324358622","https://openalex.org/W7084408477","https://openalex.org/W4367174455","https://openalex.org/W2984547097","https://openalex.org/W2054549756"],"abstract_inverted_index":{"The":[0,42,160,174],"post-racial":[1,31,49,122],"discourse":[2,50],"that":[3,55,100],"permeates":[4],"many":[5],"Western":[6],"European":[7],"countries":[8],"depicts":[9],"society":[10],"as":[11,201],"having":[12],"moved":[13],"beyond":[14],"race":[15,34,75,106,112,155,190],"concepts":[16],"and":[17,39,88,94,97,124,141,188],"classifications.":[18],"This":[19],"article":[20,43],"focuses":[21],"on":[22,64,186],"Sweden,":[23,87],"a":[24,89],"country":[25],"that,":[26],"in":[27,76,86,107,117,139,164,196,199],"line":[28],"with":[29,80,121],"the":[30,60,71,92,102,131,150,181],"thinking,":[32],"declares":[33],"to":[35,137,205],"be":[36,193],"an":[37,68],"offensive":[38],"unscientific":[40],"concept.":[41],"investigates":[44],"what":[45],"happens":[46],"when":[47],"this":[48,146,202],"meets":[51],"clinical":[52,197],"research":[53],"standards":[54,96],"encourage,":[56],"if":[57],"not":[58],"demand,":[59],"collection":[61,103],"of":[62,70,73,91,104,154,183],"data":[63],"patient":[65,74,105],"race.":[66],"Through":[67],"analysis":[69],"reporting":[72],"76":[77],"multinational":[78],"trials":[79,118,198],"at":[81],"least":[82],"one":[83],"study":[84],"site":[85],"review":[90],"regulatory":[93],"medical":[95,165],"trial":[98],"documents":[99],"direct":[101],"trials,":[108],"we":[109,176],"show":[110],"how":[111,189],"classification":[113,191],"is":[114,134,147,178],"kept":[115],"intact":[116],"despite":[119],"conflicting":[120],"norms":[123],"conventions.":[125],"Notably,":[126],"our":[127],"findings":[128],"diverge":[129],"from":[130],"way":[132],"racialisation":[133],"typically":[135],"assumed":[136],"work":[138],"Sweden":[140],"related":[142],"countries.":[143],"We":[144],"argue":[145],"possible":[148],"because":[149],"two":[151],"incompatible":[152],"understandings":[153],"are":[156],"'distributed'":[157],"(Mol,":[158],"2002,":[159],"body":[161],"multiple:":[162],"Ontology":[163],"practice,":[166],"Duke":[167],"University":[168],"Press)":[169],"among":[170],"different":[171],"social":[172],"worlds.":[173],"distribution,":[175],"propose,":[177],"upheld":[179],"through":[180],"paucity":[182],"major":[184],"debate":[185],"why":[187],"should":[192],"carried":[194],"out":[195],"Europe":[200],"allows":[203],"contradictions":[204],"remain":[206],"unspoken.":[207]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":4}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2023-09-13T00:00:00"}