{"id":"https://openalex.org/W4385967178","doi":"https://doi.org/10.1016/j.jcf.2023.08.005","title":"A qualitative exploration of parenthood experiences and needs among people with cystic fibrosis","display_name":"A qualitative exploration of parenthood experiences and needs among people with cystic fibrosis","publication_year":2023,"publication_date":"2023-08-17","ids":{"openalex":"https://openalex.org/W4385967178","doi":"https://doi.org/10.1016/j.jcf.2023.08.005","pmid":"https://pubmed.ncbi.nlm.nih.gov/37596197"},"language":"en","primary_location":{"id":"doi:10.1016/j.jcf.2023.08.005","doi":"https://doi.org/10.1016/j.jcf.2023.08.005","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jcf.2023.08.005","pdf_url":null,"source":{"id":"https://openalex.org/S147774598","display_name":"Journal of Cystic Fibrosis","issn_l":"1569-1993","issn":["1569-1993","1873-5010"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cystic Fibrosis","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://doi.org/10.1016/j.jcf.2023.08.005","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5055108176","display_name":"Olivia M. Stransky","orcid":"https://orcid.org/0000-0002-2274-0005","observed_orcids":["https://orcid.org/0000-0002-2274-0005"]},"institutions":[{"id":"https://openalex.org/I170201317","display_name":"University of Pittsburgh","ror":"https://ror.org/01an3r305","country_code":"US","type":"education","lineage":["https://openalex.org/I170201317"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Stransky OM","raw_affiliation_strings":["Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA. Electronic address: stranskyom@upmc.edu","Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA"],"raw_orcid":"https://orcid.org/0000-0002-2274-0005","affiliations":[{"raw_affiliation_string":"Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA. Electronic address: stranskyom@upmc.edu","institution_ids":["https://openalex.org/I170201317"]},{"raw_affiliation_string":"Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA","institution_ids":["https://openalex.org/I170201317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022778836","display_name":"Molly Pam","orcid":"https://orcid.org/0000-0003-2864-234X","observed_orcids":["https://orcid.org/0000-0003-2864-234X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Pam M","raw_affiliation_strings":["Cystic Fibrosis Reproductive and Sexual Health Collaborative, Seattle, Washington, USA"],"raw_orcid":"https://orcid.org/0000-0003-2864-234X","affiliations":[{"raw_affiliation_string":"Cystic Fibrosis Reproductive and Sexual Health Collaborative, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Bernard M","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I170201317","display_name":"University of Pittsburgh","ror":"https://ror.org/01an3r305","country_code":"US","type":"education","lineage":["https://openalex.org/I170201317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Bernard M","raw_affiliation_strings":["School of Nursing, University of Pittsburgh, 3500 Victoria Street, Pittsburgh, Pennsylvania 15261, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Nursing, University of Pittsburgh, 3500 Victoria Street, Pittsburgh, Pennsylvania 15261, USA","institution_ids":["https://openalex.org/I170201317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010924080","display_name":"Jennifer L. Taylor\u2010Cousar","orcid":"https://orcid.org/0000-0002-5436-9722","observed_orcids":["https://orcid.org/0000-0002-5436-9722"]},"institutions":[{"id":"https://openalex.org/I3019586173","display_name":"National Jewish Health","ror":"https://ror.org/016z2bp30","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I3019586173"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Taylor-Cousar JL","raw_affiliation_strings":["Division of Pulmonary, Critical Care and Sleep Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA; Division of Pediatric Pulmonary Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA","Division of Pediatric Pulmonary Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA","Division of Pulmonary, Critical Care and Sleep Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA"],"raw_orcid":"https://orcid.org/0000-0002-5436-9722","affiliations":[{"raw_affiliation_string":"Division of Pulmonary, Critical Care and Sleep Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA; Division of Pediatric Pulmonary Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA","institution_ids":["https://openalex.org/I3019586173"]},{"raw_affiliation_string":"Division of Pediatric Pulmonary Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA","institution_ids":["https://openalex.org/I3019586173"]},{"raw_affiliation_string":"Division of Pulmonary, Critical Care and Sleep Medicine, National Jewish Health, 1400 Jackson Street, Denver, Colorado 80206, USA","institution_ids":["https://openalex.org/I3019586173"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5058619273","display_name":"Traci M. Kazmerski","orcid":"https://orcid.org/0000-0002-3916-8260","observed_orcids":["https://orcid.org/0000-0002-3916-8260"]},"institutions":[{"id":"https://openalex.org/I170201317","display_name":"University of Pittsburgh","ror":"https://ror.org/01an3r305","country_code":"US","type":"education","lineage":["https://openalex.org/I170201317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kazmerski TM","raw_affiliation_strings":["Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA; Department of Pediatrics, University of Pittsburgh School of Medicine, 4401 Penn Avenue, Pittsburgh, Pennsylvania 15224, USA","Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA","Department of Pediatrics, University of Pittsburgh School of Medicine, 4401 Penn Avenue, Pittsburgh, Pennsylvania 15224, USA"],"raw_orcid":"https://orcid.org/0000-0002-3916-8260","affiliations":[{"raw_affiliation_string":"Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA; Department of Pediatrics, University of Pittsburgh School of Medicine, 4401 Penn Avenue, Pittsburgh, Pennsylvania 15224, USA","institution_ids":["https://openalex.org/I170201317"]},{"raw_affiliation_string":"Center for Innovative Research on Gender Health Equity (CONVERGE), University of Pittsburgh, 230 McKee Place, Pittsburgh, Pennsylvania 15213 USA","institution_ids":["https://openalex.org/I170201317"]},{"raw_affiliation_string":"Department of Pediatrics, University of Pittsburgh School of Medicine, 4401 Penn Avenue, Pittsburgh, Pennsylvania 15224, USA","institution_ids":["https://openalex.org/I170201317"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5055108176"],"corresponding_institution_ids":["https://openalex.org/I170201317"],"apc_list":{"value":4070,"currency":"USD","value_usd":4070},"apc_paid":null,"fwci":2.3832,"has_fulltext":false,"cited_by_count":13,"citation_normalized_percentile":{"value":0.89988293,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"23","issue":"3","first_page":"424","last_page":"428"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9613999724388123,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10665","display_name":"Cystic Fibrosis Research Advances","score":0.9613999724388123,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.01269999984651804,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.00860000029206276,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/parenthood","display_name":"parenthood","score":0.9589999914169312},{"id":"https://openalex.org/keywords/parental-experiences","display_name":"parental experiences","score":0.6420000195503235},{"id":"https://openalex.org/keywords/modulator-therapy","display_name":"modulator therapy","score":0.7570000290870667},{"id":"https://openalex.org/keywords/parental-decision-making","display_name":"parental decision-making","score":0.4650000035762787},{"id":"https://openalex.org/keywords/family-responsibilities","display_name":"family responsibilities","score":0.4269999861717224},{"id":"https://openalex.org/keywords/task-delegation","display_name":"task delegation","score":0.6230000257492065},{"id":"https://openalex.org/keywords/emotional-support","display_name":"emotional support","score":0.578000009059906},{"id":"https://openalex.org/keywords/peer-support","display_name":"peer support","score":0.4830000102519989}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6077863574028015},{"id":"https://openalex.org/C2776938444","wikidata":"https://www.wikidata.org/wiki/Q178194","display_name":"Cystic fibrosis","level":2,"score":0.5260191559791565},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5030485987663269},{"id":"https://openalex.org/C107418235","wikidata":"https://www.wikidata.org/wiki/Q1520565","display_name":"Human multitasking","level":2,"score":0.4584280252456665},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4183829128742218},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.412199467420578},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3518630862236023},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.33936434984207153},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C180747234","wikidata":"https://www.wikidata.org/wiki/Q23373","display_name":"Cognitive psychology","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003550","descriptor_name":"Cystic Fibrosis","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D003550","descriptor_name":"Cystic Fibrosis","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D016487","descriptor_name":"Parenting","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1016/j.jcf.2023.08.005","doi":"https://doi.org/10.1016/j.jcf.2023.08.005","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jcf.2023.08.005","pdf_url":null,"source":{"id":"https://openalex.org/S147774598","display_name":"Journal of Cystic Fibrosis","issn_l":"1569-1993","issn":["1569-1993","1873-5010"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cystic Fibrosis","raw_type":"journal-article"},{"id":"pmid:37596197","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/37596197","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1016/j.jcf.2023.08.005","doi":"https://doi.org/10.1016/j.jcf.2023.08.005","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jcf.2023.08.005","pdf_url":null,"source":{"id":"https://openalex.org/S147774598","display_name":"Journal of Cystic Fibrosis","issn_l":"1569-1993","issn":["1569-1993","1873-5010"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Cystic Fibrosis","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.9940000176429749,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G4412037582","display_name":null,"funder_award_id":"KAZMER20A0","funder_id":"https://openalex.org/F4320306168","funder_display_name":"Cystic Fibrosis Foundation"}],"funders":[{"id":"https://openalex.org/F4320306168","display_name":"Cystic Fibrosis Foundation","ror":"https://ror.org/00ax59295"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":6,"referenced_works":["https://openalex.org/W2944668337","https://openalex.org/W3020345543","https://openalex.org/W3026844769","https://openalex.org/W4213009007","https://openalex.org/W4308349064","https://openalex.org/W4321327491"],"related_works":["https://openalex.org/W4406151167","https://openalex.org/W3026844769","https://openalex.org/W2781001748","https://openalex.org/W2329836032","https://openalex.org/W2063826383","https://openalex.org/W2034429659","https://openalex.org/W4300772356","https://openalex.org/W4300772350","https://openalex.org/W2944668337","https://openalex.org/W1533774073"],"abstract_inverted_index":null,"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2023-08-19T00:00:00"}