{"id":"https://openalex.org/W4380091938","doi":"https://doi.org/10.1016/j.jval.2023.03.041","title":"P29 Evaluating the Appropriateness of the EQ-5D-5L Descriptive System and the Derived Health Utility Index Scores in Adults with Transfusion-Dependent Beta-Thalassemia: A Mixed-Methods Study","display_name":"P29 Evaluating the Appropriateness of the EQ-5D-5L Descriptive System and the Derived Health Utility Index Scores in Adults with Transfusion-Dependent Beta-Thalassemia: A Mixed-Methods Study","publication_year":2023,"publication_date":"2023-06-01","ids":{"openalex":"https://openalex.org/W4380091938","doi":"https://doi.org/10.1016/j.jval.2023.03.041"},"language":"en","primary_location":{"id":"doi:10.1016/j.jval.2023.03.041","doi":"https://doi.org/10.1016/j.jval.2023.03.041","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jval.2023.03.041","pdf_url":"http://www.valueinhealthjournal.com/article/S1098301523001419/pdf","source":{"id":"https://openalex.org/S678965","display_name":"Value in Health","issn_l":"1098-3015","issn":["1098-3015","1524-4733"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","jufo-2","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Value in Health","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"http://www.valueinhealthjournal.com/article/S1098301523001419/pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5020288558","display_name":"Adriana Boateng-Kuffour","orcid":"https://orcid.org/0009-0009-7366-6990","observed_orcids":["https://orcid.org/0009-0009-7366-6990"]},"institutions":[{"id":"https://openalex.org/I61970326","display_name":"Vertex Pharmaceuticals (United States)","ror":"https://ror.org/00anb1726","country_code":"US","type":"company","lineage":["https://openalex.org/I61970326"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"A. Boateng-Kuffour","raw_affiliation_strings":["Vertex Pharmaceuticals Incorporated, Boston, MA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vertex Pharmaceuticals Incorporated, Boston, MA, USA","institution_ids":["https://openalex.org/I61970326"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5004725335","display_name":"Jennifer Drahos","orcid":"https://orcid.org/0000-0002-8454-9863","observed_orcids":["https://orcid.org/0000-0002-8454-9863"]},"institutions":[{"id":"https://openalex.org/I61970326","display_name":"Vertex Pharmaceuticals (United States)","ror":"https://ror.org/00anb1726","country_code":"US","type":"company","lineage":["https://openalex.org/I61970326"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"J. Drahos","raw_affiliation_strings":["Vertex Pharmaceuticals Incorporated, Boston, MA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vertex Pharmaceuticals Incorporated, Boston, MA, USA","institution_ids":["https://openalex.org/I61970326"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101789409","display_name":"Puja Kohli","orcid":"https://orcid.org/0000-0002-3967-3136","observed_orcids":["https://orcid.org/0000-0002-3967-3136"]},"institutions":[{"id":"https://openalex.org/I61970326","display_name":"Vertex Pharmaceuticals (United States)","ror":"https://ror.org/00anb1726","country_code":"US","type":"company","lineage":["https://openalex.org/I61970326"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"P. Kohli","raw_affiliation_strings":["Vertex Pharmaceuticals Incorporated, Boston, MA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vertex Pharmaceuticals Incorporated, Boston, MA, USA","institution_ids":["https://openalex.org/I61970326"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011062468","display_name":"Hanna Skrobanski","orcid":"https://orcid.org/0000-0003-0868-8914","observed_orcids":["https://orcid.org/0000-0003-0868-8914"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"H. Skrobanski","raw_affiliation_strings":["Acaster Lloyd Consulting, London, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Acaster Lloyd Consulting, London, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046231954","display_name":"Katie Forster","orcid":"https://orcid.org/0009-0001-6073-1791","observed_orcids":["https://orcid.org/0009-0001-6073-1791"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"K. Forster","raw_affiliation_strings":["Acaster Lloyd Consulting, London, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Acaster Lloyd Consulting, London, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035737485","display_name":"Sarah Acaster","orcid":"https://orcid.org/0000-0003-1025-2546","observed_orcids":["https://orcid.org/0000-0003-1025-2546"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"S. Acaster","raw_affiliation_strings":["Acaster Lloyd Consulting, London, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Acaster Lloyd Consulting, London, UK","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5064321912","display_name":"Zahra Pakbaz","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204250578","display_name":"University of California, Irvine","ror":"https://ror.org/04gyf1771","country_code":"US","type":"education","lineage":["https://openalex.org/I204250578"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Z. Pakbaz","raw_affiliation_strings":["University of California Irvine School of Medicine, Orange, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of California Irvine School of Medicine, Orange, CA, USA","institution_ids":["https://openalex.org/I204250578"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033490431","display_name":"N. Li","orcid":"https://orcid.org/0009-0002-5786-2691","observed_orcids":["https://orcid.org/0009-0002-5786-2691"]},"institutions":[{"id":"https://openalex.org/I61970326","display_name":"Vertex Pharmaceuticals (United States)","ror":"https://ror.org/00anb1726","country_code":"US","type":"company","lineage":["https://openalex.org/I61970326"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"N. Li","raw_affiliation_strings":["Vertex Pharmaceuticals Incorporated, Boston, MA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vertex Pharmaceuticals Incorporated, Boston, MA, USA","institution_ids":["https://openalex.org/I61970326"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5085836640","display_name":"Kate Williams","orcid":"https://orcid.org/0000-0003-4874-0334","observed_orcids":["https://orcid.org/0000-0003-4874-0334"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"K. Williams","raw_affiliation_strings":["Acaster Lloyd Consulting, London, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Acaster Lloyd Consulting, London, UK","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3200,"currency":"USD","value_usd":3200},"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"26","issue":"6","first_page":"S7","last_page":"S7"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9976000189781189,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.0019000000320374966,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10841","display_name":"Economic and Environmental Valuation","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/transfusion-dependent-beta-thalassemia","display_name":"transfusion-dependent beta-thalassemia","score":0.949999988079071},{"id":"https://openalex.org/keywords/eq-5d-5l","display_name":"EQ-5D-5L","score":0.9959999918937683},{"id":"https://openalex.org/keywords/health-utility-scores","display_name":"health utility scores","score":0.7400000095367432},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.8240000009536743},{"id":"https://openalex.org/keywords/red-blood-cell-transfusion","display_name":"red blood cell transfusion","score":0.796999990940094},{"id":"https://openalex.org/keywords/iron-chelation-therapy","display_name":"iron chelation therapy","score":0.9710000157356262},{"id":"https://openalex.org/keywords/adults","display_name":"adults","score":0.4790000021457672}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7176554203033447},{"id":"https://openalex.org/C2778464720","wikidata":"https://www.wikidata.org/wiki/Q19843151","display_name":"EQ-5D","level":4,"score":0.6003537774085999},{"id":"https://openalex.org/C2777799968","wikidata":"https://www.wikidata.org/wiki/Q185137","display_name":"Thalassemia","level":2,"score":0.5555355548858643},{"id":"https://openalex.org/C2777940137","wikidata":"https://www.wikidata.org/wiki/Q3616632","display_name":"Beta thalassemia","level":3,"score":0.5100553631782532},{"id":"https://openalex.org/C2777382242","wikidata":"https://www.wikidata.org/wiki/Q6017816","display_name":"Index (typography)","level":2,"score":0.506227433681488},{"id":"https://openalex.org/C2777218474","wikidata":"https://www.wikidata.org/wiki/Q1069061","display_name":"Chelation therapy","level":3,"score":0.46112722158432007},{"id":"https://openalex.org/C142546437","wikidata":"https://www.wikidata.org/wiki/Q2661195","display_name":"Descriptive research","level":2,"score":0.43477416038513184},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.43191665410995483},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.34002986550331116},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3371813893318176},{"id":"https://openalex.org/C3019006561","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Health related quality of life","level":3,"score":0.26959216594696045},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.2414204180240631},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.17493587732315063},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.16530922055244446},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.07529264688491821},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.06870391964912415},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.0},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1016/j.jval.2023.03.041","doi":"https://doi.org/10.1016/j.jval.2023.03.041","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jval.2023.03.041","pdf_url":"http://www.valueinhealthjournal.com/article/S1098301523001419/pdf","source":{"id":"https://openalex.org/S678965","display_name":"Value in Health","issn_l":"1098-3015","issn":["1098-3015","1524-4733"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","jufo-2","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Value in Health","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1016/j.jval.2023.03.041","doi":"https://doi.org/10.1016/j.jval.2023.03.041","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jval.2023.03.041","pdf_url":"http://www.valueinhealthjournal.com/article/S1098301523001419/pdf","source":{"id":"https://openalex.org/S678965","display_name":"Value in Health","issn_l":"1098-3015","issn":["1098-3015","1524-4733"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","anvur-class-a","anvur-scientific","cwts-core","dongbi-a","doyens","jufo-2","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Value in Health","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4380091938.pdf","grobid_xml":"https://content.openalex.org/works/W4380091938.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4400543011","https://openalex.org/W6976714918","https://openalex.org/W6939682938","https://openalex.org/W6958704179","https://openalex.org/W6939594164","https://openalex.org/W6920653676","https://openalex.org/W4380151864","https://openalex.org/W7011294462","https://openalex.org/W6939252541","https://openalex.org/W3125173217"],"abstract_inverted_index":null,"counts_by_year":[{"year":2024,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2023-06-10T00:00:00"}