{"id":"https://openalex.org/W4311273564","doi":"https://doi.org/10.1097/acm.0000000000005095","title":"Family\u2013Educator Partnership in the Development of Entrustable Professional Activities in Complex Care","display_name":"Family\u2013Educator Partnership in the Development of Entrustable Professional Activities in Complex Care","publication_year":2022,"publication_date":"2022-11-15","ids":{"openalex":"https://openalex.org/W4311273564","doi":"https://doi.org/10.1097/acm.0000000000005095","pmid":"https://pubmed.ncbi.nlm.nih.gov/36512821"},"language":"en","primary_location":{"id":"doi:10.1097/acm.0000000000005095","doi":"https://doi.org/10.1097/acm.0000000000005095","is_oa":false,"landing_page_url":"https://doi.org/10.1097/acm.0000000000005095","pdf_url":null,"source":{"id":"https://openalex.org/S19793444","display_name":"Academic Medicine","issn_l":"1040-2446","issn":["1040-2446","1938-808X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Academic Medicine","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073436047","display_name":"Kathleen Huth","orcid":"https://orcid.org/0000-0001-5976-0280","observed_orcids":["https://orcid.org/0000-0001-5976-0280"]},"institutions":[{"id":"https://openalex.org/I1288882113","display_name":"Boston Children's Hospital","ror":"https://ror.org/00dvg7y05","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1288882113"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Kathleen Huth","raw_affiliation_strings":["K. Huth is assistant professor, Department of Pediatrics, Boston Children\u2019s Hospital and Harvard Medical School, Boston, Massachusetts","K. Huth","is assistant professor, Department of Pediatrics, Boston Children\u2019s Hospital and Harvard Medical School, Boston, Massachusetts"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"K. Huth is assistant professor, Department of Pediatrics, Boston Children\u2019s Hospital and Harvard Medical School, Boston, Massachusetts","institution_ids":["https://openalex.org/I1288882113","https://openalex.org/I136199984"]},{"raw_affiliation_string":"K. Huth","institution_ids":[]},{"raw_affiliation_string":"is assistant professor, Department of Pediatrics, Boston Children\u2019s Hospital and Harvard Medical School, Boston, Massachusetts","institution_ids":["https://openalex.org/I1288882113","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108656528","display_name":"Duncan Henry","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Duncan Henry","raw_affiliation_strings":["D. Henry is associate professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","D. Henry","is associate professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"D. Henry is associate professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"D. Henry","institution_ids":[]},{"raw_affiliation_string":"is associate professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","institution_ids":["https://openalex.org/I180670191"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062857405","display_name":"Camila Cribb Fabersunne","orcid":"https://orcid.org/0000-0003-4575-4546","observed_orcids":["https://orcid.org/0000-0003-4575-4546"]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Camila Cribb Fabersunne","raw_affiliation_strings":["C. Cribb Fabersunne is assistant professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","C. Cribb Fabersunne","is assistant professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"C. Cribb Fabersunne is assistant professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"C. Cribb Fabersunne","institution_ids":[]},{"raw_affiliation_string":"is assistant professor, Department of Pediatrics, University of California, San Francisco, San Francisco, California","institution_ids":["https://openalex.org/I180670191"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089222708","display_name":"Cara L. Coleman","orcid":"https://orcid.org/0000-0003-3572-8467","observed_orcids":["https://orcid.org/0000-0003-3572-8467"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Cara L Coleman","raw_affiliation_strings":["C.L. Coleman is director of public policy and advocacy, Family Voices, Lorton, Virginia","C.L. Coleman","is director of public policy and advocacy, Family Voices, Lorton, Virginia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"C.L. Coleman is director of public policy and advocacy, Family Voices, Lorton, Virginia","institution_ids":[]},{"raw_affiliation_string":"C.L. Coleman","institution_ids":[]},{"raw_affiliation_string":"is director of public policy and advocacy, Family Voices, Lorton, Virginia","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036886742","display_name":"Brigit Frank","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Brigit Frank","raw_affiliation_strings":["B. Frank is media and education manager, Family Voices of Wisconsin, Madison, Wisconsin","B. Frank","is media and education manager, Family Voices of Wisconsin, Madison, Wisconsin"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"B. Frank is media and education manager, Family Voices of Wisconsin, Madison, Wisconsin","institution_ids":[]},{"raw_affiliation_string":"B. Frank","institution_ids":[]},{"raw_affiliation_string":"is media and education manager, Family Voices of Wisconsin, Madison, Wisconsin","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090124897","display_name":"Daniel J. Schumacher","orcid":"https://orcid.org/0000-0001-5507-8452","observed_orcids":["https://orcid.org/0000-0001-5507-8452"]},"institutions":[{"id":"https://openalex.org/I1285204247","display_name":"Cincinnati Children's Hospital Medical Center","ror":"https://ror.org/01hcyya48","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1285204247"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel J Schumacher","raw_affiliation_strings":["D.J. Schumacher is tenured professor, Department of Pediatrics, Cincinnati Children\u2019s Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, Ohio","D.J. Schumacher","is tenured professor, Department of Pediatrics, Cincinnati Children\u2019s Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, Ohio"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"D.J. Schumacher is tenured professor, Department of Pediatrics, Cincinnati Children\u2019s Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, Ohio","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]},{"raw_affiliation_string":"D.J. Schumacher","institution_ids":[]},{"raw_affiliation_string":"is tenured professor, Department of Pediatrics, Cincinnati Children\u2019s Hospital Medical Center/University of Cincinnati College of Medicine, Cincinnati, Ohio","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5051164226","display_name":"Neha H. Shah","orcid":"https://orcid.org/0000-0003-0348-7443","observed_orcids":["https://orcid.org/0000-0003-0348-7443"]},"institutions":[{"id":"https://openalex.org/I1336742384","display_name":"Children's National","ror":"https://ror.org/03wa2q724","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1336742384"]},{"id":"https://openalex.org/I193531525","display_name":"George Washington University","ror":"https://ror.org/00y4zzh67","country_code":"US","type":"education","lineage":["https://openalex.org/I193531525"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Neha Shah","raw_affiliation_strings":["N. Shah is associate professor, Hospital Medicine Division, Children\u2019s National Hospital and The George Washington University School of Medicine and Health Sciences, Washington, DC","N. Shah","is associate professor, Hospital Medicine Division, Children\u2019s National Hospital and The George Washington University School of Medicine and Health Sciences, Washington, DC"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"N. Shah is associate professor, Hospital Medicine Division, Children\u2019s National Hospital and The George Washington University School of Medicine and Health Sciences, Washington, DC","institution_ids":["https://openalex.org/I1336742384","https://openalex.org/I193531525"]},{"raw_affiliation_string":"N. Shah","institution_ids":[]},{"raw_affiliation_string":"is associate professor, Hospital Medicine Division, Children\u2019s National Hospital and The George Washington University School of Medicine and Health Sciences, Washington, DC","institution_ids":["https://openalex.org/I1336742384","https://openalex.org/I193531525"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5073436047"],"corresponding_institution_ids":["https://openalex.org/I1288882113","https://openalex.org/I136199984"],"apc_list":null,"apc_paid":null,"fwci":2.3978,"has_fulltext":false,"cited_by_count":13,"citation_normalized_percentile":{"value":0.8882095,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"98","issue":"3","first_page":"342","last_page":"347"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10254","display_name":"Innovations in Medical Education","score":0.9883000254631042,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10254","display_name":"Innovations in Medical Education","score":0.9883000254631042,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13117","display_name":"Health Education and Validation","score":0.0013000000035390258,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.0007999999797903001,"subfield":{"id":"https://openalex.org/subfields/3616","display_name":"Speech and Hearing"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/entrustable-professional-activities","display_name":"entrustable professional activities","score":0.996999979019165},{"id":"https://openalex.org/keywords/family-partnership","display_name":"family collaboration","score":0.5720000267028809},{"id":"https://openalex.org/keywords/children-with-medical-complexity","display_name":"children with medical complexity","score":0.9139999747276306},{"id":"https://openalex.org/keywords/competency-framework-development","display_name":"competency framework development","score":0.7699999809265137},{"id":"https://openalex.org/keywords/patient-and-family-centered-care","display_name":"patient- and family-centered care","score":0.8840000033378601},{"id":"https://openalex.org/keywords/scope-of-practice","display_name":"scope of practice","score":0.7170000076293945},{"id":"https://openalex.org/keywords/pediatric-education","display_name":"pediatric education","score":0.31299999356269836}],"concepts":[{"id":"https://openalex.org/C71750763","wikidata":"https://www.wikidata.org/wiki/Q646164","display_name":"General partnership","level":2,"score":0.7312250137329102},{"id":"https://openalex.org/C2778012447","wikidata":"https://www.wikidata.org/wiki/Q1034415","display_name":"Scope (computer science)","level":2,"score":0.4978299140930176},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.49067914485931396},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.47522857785224915},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.45300519466400146},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.4513590931892395},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4270244836807251},{"id":"https://openalex.org/C151719136","wikidata":"https://www.wikidata.org/wiki/Q3972943","display_name":"Publishing","level":2,"score":0.4247834086418152},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.4229552149772644},{"id":"https://openalex.org/C51067260","wikidata":"https://www.wikidata.org/wiki/Q828812","display_name":"Professional development","level":2,"score":0.4128651022911072},{"id":"https://openalex.org/C2780888467","wikidata":"https://www.wikidata.org/wiki/Q2858904","display_name":"Family centered care","level":3,"score":0.41117921471595764},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36670583486557007},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3381164073944092},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.21260902285575867},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.16393527388572693},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.10643723607063293},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.09698185324668884},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.08973771333694458},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002983","descriptor_name":"Clinical Competence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002983","descriptor_name":"Clinical Competence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002983","descriptor_name":"Clinical Competence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003162","descriptor_name":"Competency-Based Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003162","descriptor_name":"Competency-Based Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003162","descriptor_name":"Competency-Based Education","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007396","descriptor_name":"Internship and Residency","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007396","descriptor_name":"Internship and Residency","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007396","descriptor_name":"Internship and Residency","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D008511","descriptor_name":"Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D008511","descriptor_name":"Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D008511","descriptor_name":"Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1097/acm.0000000000005095","doi":"https://doi.org/10.1097/acm.0000000000005095","is_oa":false,"landing_page_url":"https://doi.org/10.1097/acm.0000000000005095","pdf_url":null,"source":{"id":"https://openalex.org/S19793444","display_name":"Academic Medicine","issn_l":"1040-2446","issn":["1040-2446","1938-808X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Academic Medicine","raw_type":"journal-article"},{"id":"pmid:36512821","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/36512821","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Academic medicine : journal of the Association of American Medical Colleges","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9391000270843506}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/17","display_name":"Partnerships for the goals","score":0.6000000238418579}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":10,"referenced_works":["https://openalex.org/W2166123574","https://openalex.org/W2170681306","https://openalex.org/W2277370197","https://openalex.org/W2589189943","https://openalex.org/W2600576663","https://openalex.org/W2902783684","https://openalex.org/W3100790405","https://openalex.org/W3177100064","https://openalex.org/W3204712093","https://openalex.org/W6694731177"],"related_works":["https://openalex.org/W2739852106","https://openalex.org/W1986755814","https://openalex.org/W585428044","https://openalex.org/W2578322776","https://openalex.org/W2378276451","https://openalex.org/W2507403529","https://openalex.org/W2094995007","https://openalex.org/W2004491036","https://openalex.org/W3092603343","https://openalex.org/W2197287683"],"abstract_inverted_index":{"PROBLEM:":[0],"Incorporating":[1],"patient":[2,263],"and":[3,35,52,72,96,146,148,161,168,190,205,229,254,264],"family":[4,33,79,88,215,265],"voices":[5,266],"in":[6,42,48,171,267,278],"the":[7,56,75,82,105,125,178,240],"development":[8,44,113,238,253,277],"of":[9,19,28,37,78,87,94,98,174,180,208,214,236,242],"entrustable":[10],"professional":[11],"activities":[12],"(EPAs)":[13],"is":[14,25],"not":[15],"standard":[16],"practice.":[17,209],"Care":[18],"children":[20,99],"with":[21,55,67,100,142],"medical":[22],"complexity":[23],"(CMC)":[24],"an":[26],"area":[27],"pediatrics":[29],"that":[30,223],"relies":[31],"on":[32,74],"partnership,":[34],"families":[36,68,95,246],"CMC":[38,243],"are":[39,227],"ideal":[40],"partners":[41],"EPA":[43,112,129,163,225,237,268,276],"given":[45],"their":[46,49,63,256],"expertise":[47],"child's":[50],"care":[51,58,103,179,241],"experience":[53],"interacting":[54],"health":[57,102],"system.":[59],"The":[60,151,233],"authors":[61,106,152],"describe":[62],"model":[64],"for":[65,111,159,177,239,261,275],"partnering":[66],"to":[69,81,117,156,197,221],"develop":[70],"EPAs":[71,137,176],"reflect":[73],"unique":[76],"contributions":[77],"leaders":[80,89,121,167,193],"process.":[83],"APPROACH:":[84],"After":[85],"recruitment":[86],"from":[90,114],"a":[91,108,273],"national":[92],"organization":[93],"friends":[97],"special":[101],"needs,":[104],"used":[107,153],"multistage":[109],"process":[110,235],"June":[115],"2019":[116],"February":[118],"2021.":[119],"Family":[120,166,192,258],"were":[122],"integrated":[123,249],"throughout":[124],"process,":[126],"including":[127,182,200],"creating":[128],"descriptions,":[130],"revising":[131,201],"content":[132,154,184,212],"across":[133],"all":[134,198],"EPAs,":[135,199],"appraising":[136],"through":[138],"virtual":[139],"focus":[140,187],"groups":[141],"other":[143,279],"key":[144],"stakeholders,":[145],"finalizing":[147],"publishing":[149],"EPAs.":[150],"analysis":[155,213],"identify":[157],"recommendations":[158,220,260],"patient-":[160,228],"family-integrated":[162],"development.":[164],"OUTCOMES:":[165],"educators":[169],"partnered":[170],"every":[172],"phase":[173],"developing":[175],"CMC,":[181],"as":[183,272],"experts,":[185],"editors,":[186],"group":[188],"facilitators,":[189],"coauthors.":[191],"recommended":[194],"substantive":[195],"changes":[196],"language,":[202],"augmenting":[203],"content,":[204],"modifying":[206],"scope":[207],"In":[210],"addition,":[211],"leaders'":[216],"revisions":[217],"yielded":[218],"10":[219],"ensure":[222],"written":[224],"descriptions":[226,269],"family-centered.":[230],"NEXT":[231],"STEPS:":[232],"described":[234],"models":[244],"how":[245],"can":[247,270],"be":[248],"into":[250],"competency":[251],"framework":[252],"highlights":[255],"contributions.":[257],"leader":[259],"embedding":[262],"serve":[271],"guide":[274],"specialties.":[280]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":4},{"year":2023,"cited_by_count":2}],"updated_date":"2026-10-11T09:32:39.932853","created_date":"2025-10-10T00:00:00"}