{"id":"https://openalex.org/W4310106150","doi":"https://doi.org/10.1182/blood-2022-162287","title":"Clinical Perspectives Regarding Sexual and Reproductive Health for Adolescents and Young Adults with Sickle Cell Disease","display_name":"Clinical Perspectives Regarding Sexual and Reproductive Health for Adolescents and Young Adults with Sickle Cell Disease","publication_year":2022,"publication_date":"2022-11-15","ids":{"openalex":"https://openalex.org/W4310106150","doi":"https://doi.org/10.1182/blood-2022-162287"},"language":"en","primary_location":{"id":"doi:10.1182/blood-2022-162287","doi":"https://doi.org/10.1182/blood-2022-162287","is_oa":false,"landing_page_url":"https://doi.org/10.1182/blood-2022-162287","pdf_url":null,"source":{"id":"https://openalex.org/S200071133","display_name":"Blood","issn_l":"0006-4971","issn":["0006-4971","1528-0020"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Blood","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5051589010","display_name":"Anjali Rajkumari Oberoi","orcid":"https://orcid.org/0000-0001-9449-7983","observed_orcids":["https://orcid.org/0000-0001-9449-7983","https://orcid.org/0000-0003-3357-1910"]},"institutions":[{"id":"https://openalex.org/I121934306","display_name":"Tufts University","ror":"https://ror.org/05wvpxv85","country_code":"US","type":"education","lineage":["https://openalex.org/I121934306"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Anjali R Oberoi","raw_affiliation_strings":["1Tufts University School of Medicine, Boston, MA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1Tufts University School of Medicine, Boston, MA","institution_ids":["https://openalex.org/I121934306"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057158615","display_name":"Seethal A. Jacob","orcid":"https://orcid.org/0000-0003-2906-6102","observed_orcids":["https://orcid.org/0000-0003-2906-6102"]},"institutions":[{"id":"https://openalex.org/I2802740592","display_name":"Riley Hospital for Children","ror":"https://ror.org/03vzvbw58","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1283055418","https://openalex.org/I2802740592","https://openalex.org/I4388446366","https://openalex.org/I592451"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Seethal A Jacob","raw_affiliation_strings":["2Pediatric Hematology/Oncology, Riley Hospital for Children, Indianapolis, IN"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"2Pediatric Hematology/Oncology, Riley Hospital for Children, Indianapolis, IN","institution_ids":["https://openalex.org/I2802740592"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058619273","display_name":"Traci M. Kazmerski","orcid":"https://orcid.org/0000-0002-3916-8260","observed_orcids":["https://orcid.org/0000-0002-3916-8260"]},"institutions":[{"id":"https://openalex.org/I170201317","display_name":"University of Pittsburgh","ror":"https://ror.org/01an3r305","country_code":"US","type":"education","lineage":["https://openalex.org/I170201317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Traci M Kazmerski","raw_affiliation_strings":["3Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"3Department of Pediatrics, University of Pittsburgh School of Medicine, Pittsburgh, PA","institution_ids":["https://openalex.org/I170201317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039250224","display_name":"Hannah Fassel","orcid":"https://orcid.org/0009-0001-6523-5711","observed_orcids":["https://orcid.org/0009-0001-6523-5711"]},"institutions":[{"id":"https://openalex.org/I4210112379","display_name":"Hasbro Children's Hospital","ror":"https://ror.org/01xq02v66","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2800446032","https://openalex.org/I4210112379","https://openalex.org/I4210151747"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hannah Fassel","raw_affiliation_strings":["4Hasbro Children's Hospital, Providence, RI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"4Hasbro Children's Hospital, Providence, RI","institution_ids":["https://openalex.org/I4210112379"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5078045662","display_name":"Maayan Leroy\u2010Melamed","orcid":"https://orcid.org/0000-0003-2210-5252","observed_orcids":["https://orcid.org/0000-0003-2210-5252"]},"institutions":[{"id":"https://openalex.org/I1290900354","display_name":"Tufts Medical Center","ror":"https://ror.org/002hsbm82","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1290900354"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Maayan Leroy-Melamed","raw_affiliation_strings":["5Tufts Medical Center, Boston, MA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"5Tufts Medical Center, Boston, MA","institution_ids":["https://openalex.org/I1290900354"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":2500,"currency":"USD","value_usd":2500},"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"140","issue":"Supplement 1","first_page":"10760","last_page":"10760"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.6913999915122986,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.6913999915122986,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.2012999951839447,"subfield":{"id":"https://openalex.org/subfields/3616","display_name":"Speech and Hearing"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10327","display_name":"Adolescent Sexual and Reproductive Health","score":0.08780000358819962,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sickle-cell-disease","display_name":"sickle cell disease","score":1.0},{"id":"https://openalex.org/keywords/adolescents-and-young-adults","display_name":"adolescents and young adults","score":0.8519999980926514},{"id":"https://openalex.org/keywords/sexual-and-reproductive-health","display_name":"sexual and reproductive health","score":0.9959999918937683},{"id":"https://openalex.org/keywords/health-professionals-attitudes","display_name":"clinician attitudes","score":0.6570000052452087},{"id":"https://openalex.org/keywords/reproductive-counseling","display_name":"reproductive counseling","score":0.6759999990463257},{"id":"https://openalex.org/keywords/barriers-to-care","display_name":"barriers to care","score":0.5659999847412109},{"id":"https://openalex.org/keywords/vaso-occlusive-crisis","display_name":"vaso-occlusive crisis","score":0.7229999899864197},{"id":"https://openalex.org/keywords/dysmenorrhea","display_name":"dysmenorrhea","score":0.8820000290870667},{"id":"https://openalex.org/keywords/pregnancy-planning","display_name":"pregnancy planning","score":0.8569999933242798},{"id":"https://openalex.org/keywords/contraceptive-choice","display_name":"contraceptive choice","score":0.8009999990463257},{"id":"https://openalex.org/keywords/hormonal-contraception","display_name":"hormonal contraception","score":0.8820000290870667},{"id":"https://openalex.org/keywords/genetic-counseling","display_name":"genetic counseling","score":0.9729999899864197},{"id":"https://openalex.org/keywords/patient-provider-communication","display_name":"patient-provider communication","score":0.5329999923706055},{"id":"https://openalex.org/keywords/clinician-training","display_name":"clinician training","score":0.40400001406669617},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.335999995470047},{"id":"https://openalex.org/keywords/health-equity","display_name":"health equity","score":0.3019999861717224},{"id":"https://openalex.org/keywords/health-disparities","display_name":"health disparities","score":0.35899999737739563}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.790081262588501},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5753762125968933},{"id":"https://openalex.org/C205545832","wikidata":"https://www.wikidata.org/wiki/Q17156455","display_name":"Young adult","level":2,"score":0.5745894312858582},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5482195615768433},{"id":"https://openalex.org/C121752807","wikidata":"https://www.wikidata.org/wiki/Q1981388","display_name":"Reproductive health","level":3,"score":0.5412852168083191},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.49545586109161377},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.4936858117580414},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.47903433442115784},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.4699834883213043},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.41513362526893616},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.36113131046295166},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.2623707354068756},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.15638071298599243},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.11071708798408508},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1182/blood-2022-162287","doi":"https://doi.org/10.1182/blood-2022-162287","is_oa":false,"landing_page_url":"https://doi.org/10.1182/blood-2022-162287","pdf_url":null,"source":{"id":"https://openalex.org/S200071133","display_name":"Blood","issn_l":"0006-4971","issn":["0006-4971","1528-0020"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Blood","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4410490061","https://openalex.org/W3184350491","https://openalex.org/W3209636017","https://openalex.org/W4389231854","https://openalex.org/W3097872556","https://openalex.org/W4401435552","https://openalex.org/W4307239540","https://openalex.org/W4327719387","https://openalex.org/W4307393411","https://openalex.org/W7128707363"],"abstract_inverted_index":{"Background:":[0],"Sickle":[1],"cell":[2],"disease":[3],"(SCD)":[4],"is":[5,361,400],"a":[6,115,131,245],"genetic":[7,273],"hematologic":[8],"condition":[9],"affecting":[10],"more":[11],"than":[12],"300,000":[13],"individuals":[14,57,384],"worldwide.":[15],"In":[16],"the":[17,121,146,149,248,327,391],"past":[18],"decade,":[19],"advances":[20],"in":[21,62,130,171],"therapy":[22],"and":[23,28,43,49,68,72,94,127,148,186,199,238,272,293,366,375],"management":[24],"have":[25,218],"enabled":[26],"adolescents":[27],"young":[29],"adults":[30],"(AYA)":[31],"with":[32,58,102,112,156,195,212,236,318,326,335,354,385],"SCD":[33,59,113,157,237,256,319,355,386],"to":[34,88,96,177,182,203,207,280,298,312,316,321,340,402],"live":[35],"longer.":[36],"However,":[37,275],"this":[38,396],"population":[39],"has":[40],"increased":[41],"morbidity":[42],"mortality":[44],"as":[45,168],"they":[46],"reach":[47],"adulthood":[48],"their":[50,66,159,322,364],"reproductive":[51,69],"years.":[52],"Clinicians":[53,349],"who":[54,382],"care":[55,99,109,161,192,209,305,315,342,351,360,408],"for":[56,78,100,110,154,189,193,210,234,255,268,344,352,363,373],"face":[60],"challenges":[61],"advising":[63],"patients":[64,257,365],"about":[65,145],"sexual":[67],"health":[70,160],"(SRH),":[71],"there":[73],"are":[74,232],"no":[75],"standard":[76,249],"guidelines":[77,372],"clinicians":[79,107,221,302],"on":[80],"SRH":[81,98,173,179,184,191,208,230,241,253,283,299,314,336,359,378,393,407],"interventions":[82],"or":[83,295,324],"counseling.":[84,274],"This":[85],"study":[86,399],"aims":[87],"characterize":[89],"clinicians\u2019":[90],"current":[91],"attitudes,":[92],"practices,":[93],"barriers/facilitators":[95],"providing":[97,172,178,183,281,313],"AYA":[101,111,155,194,211,235,317,353],"SCD.":[103,196,213],"Methods:":[104],"We":[105,197],"recruited":[106],"that":[108,229,240,307,350,357],"from":[114,369],"national":[116],"sample":[117],"of":[118,120,124,151,247,250,377,390,395],"members":[119],"American":[122],"Society":[123],"Pediatric":[125],"Hematology":[126],"Oncology":[128],"(ASPHO)":[129],"cross-sectional":[132],"qualitative":[133,139],"study.":[134],"Participants":[135],"completed":[136],"in-depth":[137],"semi-structured":[138],"interviews.":[140],"Interviews":[141,163],"collected":[142],"background":[143],"information":[144],"clinician":[147,169,187],"nature":[150],"services":[152],"offered":[153],"at":[158],"center.":[162],"also":[164],"probed":[165],"themes":[166,205],"such":[167,285],"role":[170],"care,":[174,180,185,284],"perceived":[175],"barriers":[176,279],"facilitators":[181],"recommendations":[188],"ideal":[190,282],"transcribed":[198],"systematically":[200],"coded":[201],"interviews":[202],"identify":[204,403],"related":[206],"Results:":[214],"Thus":[215],"far,":[216],"we":[217],"interviewed":[219],"12":[220],"(75%":[222],"female;":[223],"17%":[224],"fellows).":[225],"All":[226],"participants":[227,277],"stated":[228],"discussions":[231],"important":[233],"agreed":[239],"counseling":[242,374],"should":[243,387],"be":[244,309,388],"part":[246],"care.":[251,379],"Key":[252],"topics":[254],"included":[258],"managing":[259],"vaso-occlusive":[260],"events":[261],"including":[262],"pain":[263],"crises":[264],"during":[265],"menstruation,":[266],"planning":[267],"pregnancy,":[269],"contraceptive":[270],"choice,":[271],"many":[276],"identified":[278,303],"as,":[286],"training":[287],"limitations,":[288],"time":[289],"constraints,":[290],"staff":[291],"availability":[292],"patient":[294,404],"family":[296],"receptiveness":[297],"discussions.":[300],"Some":[301],"other":[304],"providers":[306,381],"may":[308],"better":[310],"suited":[311],"due":[320],"expertise":[323],"familiarity":[325],"patient.":[328],"For":[329],"example,":[330],"pediatric":[331],"hematologists":[332],"feel":[333],"comfortable":[334],"counseling,":[337],"but":[338],"defer":[339],"primary":[341],"physicians":[343],"prescribing":[345],"hormonal":[346],"contraception.":[347],"Conclusion:":[348],"agree":[356],"comprehensive":[358],"essential":[362],"would":[367],"benefit":[368],"clearly":[370],"outlined":[371],"provision":[376],"Healthcare":[380],"treat":[383],"aware":[389],"unique":[392],"needs":[394],"population.":[397],"Further":[398],"needed":[401],"attitudes":[405],"regarding":[406],"needs.":[409]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2022-11-30T00:00:00"}
