{"id":"https://openalex.org/W4308332200","doi":"https://doi.org/10.35680/2372-0247.1720","title":"The intersection of diversity, equity, and inclusion with pediatric Patient and Family Advisory Councils","display_name":"The intersection of diversity, equity, and inclusion with pediatric Patient and Family Advisory Councils","publication_year":2022,"publication_date":"2022-11-02","ids":{"openalex":"https://openalex.org/W4308332200","doi":"https://doi.org/10.35680/2372-0247.1720"},"language":"en","primary_location":{"id":"doi:10.35680/2372-0247.1720","doi":"https://doi.org/10.35680/2372-0247.1720","is_oa":true,"landing_page_url":"https://doi.org/10.35680/2372-0247.1720","pdf_url":"https://pxjournal.org/cgi/viewcontent.cgi?article=1720&context=journal","source":{"id":"https://openalex.org/S2765046586","display_name":"Patient Experience Journal","issn_l":"2372-0247","issn":["2372-0247"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","vabb-shw"],"host_organization":"https://openalex.org/I4405272245","host_organization_name":"The Beryl Institute","host_organization_lineage":["https://openalex.org/I4405272245"],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patient Experience Journal","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"https://pxjournal.org/cgi/viewcontent.cgi?article=1720&context=journal","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5086522742","display_name":"Ndidi I Unaka","orcid":"https://orcid.org/0000-0003-4558-9931","observed_orcids":["https://orcid.org/0000-0003-4558-9931"]},"institutions":[{"id":"https://openalex.org/I1285204247","display_name":"Cincinnati Children's Hospital Medical Center","ror":"https://ror.org/01hcyya48","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1285204247"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ndidi I Unaka","raw_affiliation_strings":["Cincinnati Children's Hospital Medical Center","Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine, ndidi"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center","institution_ids":["https://openalex.org/I1285204247"]},{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine, ndidi","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5001650011","display_name":"Mindy Hoang","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mindy Hoang","raw_affiliation_strings":["University of Cincinnati College of Medicine"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati College of Medicine","institution_ids":["https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Jesse Hsu","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jesse Hsu","raw_affiliation_strings":["University of Cincinnati College of Medicine"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati College of Medicine","institution_ids":["https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5021023786","display_name":"Pam Dardess","orcid":"https://orcid.org/0000-0001-8473-0323","observed_orcids":["https://orcid.org/0000-0001-8473-0323"]},"institutions":[{"id":"https://openalex.org/I4210124805","display_name":"Institute for Patient- and Family-Centered Care","ror":"https://ror.org/0350na611","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210124805"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Pam Dardess","raw_affiliation_strings":["Institute for Patient and Family Centered Care"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute for Patient and Family Centered Care","institution_ids":["https://openalex.org/I4210124805"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5050036224","display_name":"Carlos T Casillas","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Carlos T Casillas","raw_affiliation_strings":["University of Cincinnati"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Cincinnati","institution_ids":["https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029329578","display_name":"Meghan L. Fanta","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1285204247","display_name":"Cincinnati Children's Hospital Medical Center","ror":"https://ror.org/01hcyya48","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1285204247"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Meghan Fanta","raw_affiliation_strings":["Cincinnati Children's Hospital Medical Center","Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center","institution_ids":["https://openalex.org/I1285204247"]},{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine,","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027590188","display_name":"Deborah L. Dokken","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210124805","display_name":"Institute for Patient- and Family-Centered Care","ror":"https://ror.org/0350na611","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210124805"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Deborah L Dokken","raw_affiliation_strings":["Institute for Patient- and Family-Centered Care"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute for Patient- and Family-Centered Care","institution_ids":["https://openalex.org/I4210124805"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5072022701","display_name":"Andrew F. Beck","orcid":"https://orcid.org/0000-0002-4262-663X","observed_orcids":["https://orcid.org/0000-0002-4262-663X"]},"institutions":[{"id":"https://openalex.org/I1285204247","display_name":"Cincinnati Children's Hospital Medical Center","ror":"https://ror.org/01hcyya48","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1285204247"]},{"id":"https://openalex.org/I63135867","display_name":"University of Cincinnati","ror":"https://ror.org/01e3m7079","country_code":"US","type":"education","lineage":["https://openalex.org/I63135867"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew F Beck","raw_affiliation_strings":["Cincinnati Children's Hospital Medical Center","Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center","institution_ids":["https://openalex.org/I1285204247"]},{"raw_affiliation_string":"Cincinnati Children's Hospital Medical Center; Department of Pediatrics, University of Cincinnati College of Medicine,","institution_ids":["https://openalex.org/I1285204247","https://openalex.org/I63135867"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.4533,"has_fulltext":true,"cited_by_count":12,"citation_normalized_percentile":{"value":0.88508965,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":93,"max":98},"biblio":{"volume":"9","issue":"3","first_page":"39","last_page":"54"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9746000170707703,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9746000170707703,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12194","display_name":"Cultural Competency in Health Care","score":0.011599999852478504,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11722","display_name":"Patient Satisfaction in Healthcare","score":0.002199999988079071,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-and-family-advisory-councils","display_name":"patient and family advisory councils","score":0.9860000014305115},{"id":"https://openalex.org/keywords/diversity-equity-and-inclusion","display_name":"diversity, equity, and inclusion","score":0.9589999914169312},{"id":"https://openalex.org/keywords/children-s-hospitals","display_name":"children's hospitals","score":0.9399999976158142},{"id":"https://openalex.org/keywords/recruitment-and-retention","display_name":"recruitment and retention","score":0.6880000233650208},{"id":"https://openalex.org/keywords/racial-and-ethnic-diversity","display_name":"racial and ethnic diversity","score":0.7419999837875366},{"id":"https://openalex.org/keywords/patient-and-family-centered-care","display_name":"patient- and family-centered care","score":0.7229999899864197},{"id":"https://openalex.org/keywords/community-representation","display_name":"community representation","score":0.5910000205039978}],"concepts":[{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.7238588333129883},{"id":"https://openalex.org/C199728807","wikidata":"https://www.wikidata.org/wiki/Q2578557","display_name":"Equity (law)","level":2,"score":0.6581330299377441},{"id":"https://openalex.org/C2781316041","wikidata":"https://www.wikidata.org/wiki/Q1230584","display_name":"Diversity (politics)","level":2,"score":0.6251853704452515},{"id":"https://openalex.org/C137403100","wikidata":"https://www.wikidata.org/wiki/Q41710","display_name":"Ethnic group","level":2,"score":0.5517777800559998},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.47436365485191345},{"id":"https://openalex.org/C125209646","wikidata":"https://www.wikidata.org/wiki/Q1338878","display_name":"Cultural diversity","level":2,"score":0.46071135997772217},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4307063817977905},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.38913023471832275},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.33065566420555115},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.17788729071617126},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.16805925965309143},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.35680/2372-0247.1720","doi":"https://doi.org/10.35680/2372-0247.1720","is_oa":true,"landing_page_url":"https://doi.org/10.35680/2372-0247.1720","pdf_url":"https://pxjournal.org/cgi/viewcontent.cgi?article=1720&context=journal","source":{"id":"https://openalex.org/S2765046586","display_name":"Patient Experience Journal","issn_l":"2372-0247","issn":["2372-0247"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","vabb-shw"],"host_organization":"https://openalex.org/I4405272245","host_organization_name":"The Beryl Institute","host_organization_lineage":["https://openalex.org/I4405272245"],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patient Experience Journal","raw_type":"journal-article"},{"id":"pmh:oai:doaj.org/article:485ebc37734f45bea82a9ded3ba323a0","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/485ebc37734f45bea82a9ded3ba323a0","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Patient Experience Journal, Vol 9, Iss 3 (2022)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.35680/2372-0247.1720","doi":"https://doi.org/10.35680/2372-0247.1720","is_oa":true,"landing_page_url":"https://doi.org/10.35680/2372-0247.1720","pdf_url":"https://pxjournal.org/cgi/viewcontent.cgi?article=1720&context=journal","source":{"id":"https://openalex.org/S2765046586","display_name":"Patient Experience Journal","issn_l":"2372-0247","issn":["2372-0247"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","vabb-shw"],"host_organization":"https://openalex.org/I4405272245","host_organization_name":"The Beryl Institute","host_organization_lineage":["https://openalex.org/I4405272245"],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patient Experience Journal","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9763000011444092},{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.9629999995231628}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4308332200.pdf","grobid_xml":"https://content.openalex.org/works/W4308332200.grobid-xml"},"referenced_works_count":20,"referenced_works":["https://openalex.org/W115394847","https://openalex.org/W220703321","https://openalex.org/W1904056004","https://openalex.org/W1984636635","https://openalex.org/W2107459555","https://openalex.org/W2351241829","https://openalex.org/W2507355057","https://openalex.org/W2550111341","https://openalex.org/W2804288862","https://openalex.org/W2946091984","https://openalex.org/W2962616303","https://openalex.org/W3004621482","https://openalex.org/W3004771893","https://openalex.org/W3042933600","https://openalex.org/W3147460709","https://openalex.org/W3194036746","https://openalex.org/W3214182077","https://openalex.org/W4225008467","https://openalex.org/W4226016478","https://openalex.org/W4281767924"],"related_works":["https://openalex.org/W4392234279","https://openalex.org/W4402240503","https://openalex.org/W3214182077","https://openalex.org/W4414341615","https://openalex.org/W2946091984","https://openalex.org/W2971448368","https://openalex.org/W4320483755","https://openalex.org/W3004621482","https://openalex.org/W4413900812","https://openalex.org/W3184655640"],"abstract_inverted_index":{"Patient":[0],"and":[1,8,34,38,43,47,54,67,108,148,179,203,206,224,240],"family":[2,48],"advisory":[3],"councils":[4],"(PFACs)":[5],"advance":[6],"patient-":[7],"family-centered":[9],"care":[10],"within":[11,214,242],"children\u2019s":[12,32,71,159],"hospitals":[13,33,104,160],"but":[14,226],"may":[15,233],"not":[16],"reflect":[17],"the":[18,21,146,152,254],"diversity":[19,30,150],"of":[20,40,45,70,79,101,122,151,170,187,261],"communities":[22],"they":[23],"serve.":[24],"We":[25,56,115],"sought":[26],"to":[27,62,76,94,196,220,228,236,273,280],"assess":[28],"PFAC":[29,173],"among":[31],"explore":[35],"barriers,":[36],"drivers,":[37],"enablers":[39],"recruitment,":[41,66],"retention,":[42],"engagement":[44,68],"patient":[46],"advisors":[49],"(PFAs)":[50],"with":[51,253],"diverse":[52],"perspectives":[53],"backgrounds.":[55],"performed":[57],"a":[58],"mixed":[59],"methods":[60],"study":[61],"evaluate":[63],"structure,":[64],"composition,":[65],"strategies":[69,235],"hospital":[72,91,245],"PFACs.":[73,215],"Individuals":[74],"likely":[75],"have":[77],"knowledge":[78],"or":[80],"responsibility":[81],"for":[82,212],"PFACs":[83,144,217,243],"at":[84,131],"each":[85],"Children\u2019s":[86],"Hospital":[87],"Association":[88],"(CHA)":[89],"member":[90,125],"were":[92],"asked":[93,141],"complete":[95],"an":[96],"electronic":[97],"questionnaire.":[98],"A":[99],"subset":[100],"respondents":[102,156],"from":[103,119,157,190],"varying":[105],"in":[106,111,162,172,199],"size":[107],"region":[109],"participated":[110,161],"1-hour":[112],"virtual":[113],"interviews.":[114,164],"received":[116],"valid":[117],"responses":[118],"166":[120],"(73%)":[121],"228":[123],"CHA":[124],"hospitals.":[126],"Eighty-eight":[127],"percent":[128],"reported":[129],"having":[130],"least":[132],"one":[133],"PFAC.":[134],"Only":[135],"21%":[136],"selected":[137],"\u201cdefinitely":[138],"true\u201d":[139],"when":[140],"if":[142],"their":[143],"reflected":[145],"racial":[147],"ethnic":[149],"community":[153],"served.":[154],"Twelve":[155],"various":[158],"qualitative":[163],"Five":[165],"themes":[166],"emerged:":[167],"1)":[168],"Importance":[169,186],"Diversity":[171],"Membership;":[174],"2)":[175],"Targeted,":[176],"Personalized":[177],"Recruitment":[178],"Engagement":[180,259],"Strategies":[181],"Facilitate":[182],"Diverse":[183,191],"PFACs;":[184],"3)":[185],"Supporting":[188],"PFAs":[189,198],"Backgrounds;":[192],"4)":[193],"Ample":[194],"Opportunities":[195],"Engage":[197],"Institutional":[200],"Diversity,":[201],"Equity,":[202],"Inclusion":[204],"Efforts;":[205],"5)":[207],"External":[208],"Factors":[209],"as":[210],"Drivers":[211],"Change":[213],"Many":[216],"are":[218],"working":[219],"increase":[221],"diversity,":[222,238],"equity,":[223,239],"inclusion,":[225],"opportunities":[227],"close":[229],"gaps":[230],"remain.":[231],"Findings":[232],"inform":[234],"promote":[237],"inclusion":[241],"across":[244],"systems.":[246],"Experience":[247,265],"Framework":[248,266],"This":[249],"article":[250],"is":[251],"associated":[252],"Patient,":[255],"Family":[256],"&":[257],"Community":[258],"lens":[260],"The":[262],"Beryl":[263],"Institute":[264],"(https://www.theberylinstitute.org/ExperienceFramework).":[267],"Access":[268,276],"other":[269,277],"PXJ":[270],"articles":[271],"related":[272,279],"this":[274,281],"lens.":[275,282],"resources":[278]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2022-11-11T00:00:00"}