{"id":"https://openalex.org/W4306320146","doi":"https://doi.org/10.1016/j.htct.2022.09.052","title":"IMPACTO DA DOEN\u00c7A FALCIFORME NA QUALIDADE DE VIDA DE PACIENTES BRASILEIROS E SEUS CUIDADORES: ACHADOS DA PESQUISA DE PERCEP\u00c7\u00c3O, PERSPECTIVAS E EXPERI\u00caNCIAS EM SA\u00daDE FALCIFORME","display_name":"IMPACTO DA DOEN\u00c7A FALCIFORME NA QUALIDADE DE VIDA DE PACIENTES BRASILEIROS E SEUS CUIDADORES: ACHADOS DA PESQUISA DE PERCEP\u00c7\u00c3O, PERSPECTIVAS E EXPERI\u00caNCIAS EM SA\u00daDE FALCIFORME","publication_year":2022,"publication_date":"2022-10-01","ids":{"openalex":"https://openalex.org/W4306320146","doi":"https://doi.org/10.1016/j.htct.2022.09.052"},"language":"pt","primary_location":{"id":"doi:10.1016/j.htct.2022.09.052","doi":"https://doi.org/10.1016/j.htct.2022.09.052","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.htct.2022.09.052","pdf_url":null,"source":{"id":"https://openalex.org/S2898598332","display_name":"Hematology Transfusion and Cell Therapy","issn_l":"2531-1379","issn":["2531-1379","2531-1387"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","ki-jl-1","poland-20","russia-white-list-3","scielo"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Hematology, Transfusion and Cell Therapy","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"https://doi.org/10.1016/j.htct.2022.09.052","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5110735915","display_name":"F Ferreira Costa","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I181391015","display_name":"Universidade Estadual de Campinas (UNICAMP)","ror":"https://ror.org/04wffgt70","country_code":"BR","type":"education","lineage":["https://openalex.org/I181391015"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"FF Costa","raw_affiliation_strings":["Centro de Hematologia e Hemoterapia, Faculdade de Medicina, Universidade Estadual de Campinas (UNICAMP), Campinas, SP, Brasil"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centro de Hematologia e Hemoterapia, Faculdade de Medicina, Universidade Estadual de Campinas (UNICAMP), Campinas, SP, Brasil","institution_ids":["https://openalex.org/I181391015"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113788975","display_name":"Isaac Odame","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801317318","display_name":"Hospital for Sick Children","ror":"https://ror.org/057q4rt57","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801317318"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"I Odame","raw_affiliation_strings":["Division of Hematology/Oncology, The Hospital for Sick Children, Toronto, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology/Oncology, The Hospital for Sick Children, Toronto, Canada","institution_ids":["https://openalex.org/I2801317318"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5051708513","display_name":"A Anderson","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1283654650","display_name":"Prisma Health","ror":"https://ror.org/03n7vd314","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1283654650"]},{"id":"https://openalex.org/I155781252","display_name":"University of South Carolina","ror":"https://ror.org/02b6qw903","country_code":"US","type":"education","lineage":["https://openalex.org/I155781252"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"A Anderson","raw_affiliation_strings":["Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine, Columbia, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Pediatric Hematology-Oncology, PRISMA Health Comprehensive SCD Program, University of South Carolina School of Medicine, Columbia, United States","institution_ids":["https://openalex.org/I1283654650","https://openalex.org/I155781252"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009513049","display_name":"Baba P. D. Inusa","orcid":"https://orcid.org/0000-0003-2643-765X","observed_orcids":["https://orcid.org/0000-0003-2643-765X"]},"institutions":[{"id":"https://openalex.org/I125671874","display_name":"National Health Service","ror":"https://ror.org/02wnqcb97","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I125671874","https://openalex.org/I1311074006"]},{"id":"https://openalex.org/I200166805","display_name":"Guy's and St Thomas' NHS Foundation Trust","ror":"https://ror.org/00j161312","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I200166805"]},{"id":"https://openalex.org/I4210144851","display_name":"Evelina London Children's Healthcare","ror":"https://ror.org/058pgtg13","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I200166805","https://openalex.org/I4210144851"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"BPD Inusa","raw_affiliation_strings":["Department of Paediatric Haematology, Evelina London Children's Hospital, Guy's and St Thomas'NHS Foundation Trust, London, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Haematology, Evelina London Children's Hospital, Guy's and St Thomas'NHS Foundation Trust, London, United Kingdom","institution_ids":["https://openalex.org/I125671874","https://openalex.org/I200166805","https://openalex.org/I4210144851"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072044969","display_name":"Wasil Jastaniah","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2800965796","display_name":"King Faisal Specialist Hospital & Research Centre","ror":"https://ror.org/05n0wgt02","country_code":"SA","type":"healthcare","lineage":["https://openalex.org/I2800965796"]}],"countries":["SA"],"is_corresponding":false,"raw_author_name":"W Jastaniah","raw_affiliation_strings":["King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"King Faisal Specialist Hospital & Research Center, Riyadh, Saudi Arabia","institution_ids":["https://openalex.org/I2800965796"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5085267464","display_name":"JB Kunz","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I223822909","display_name":"Heidelberg University","ror":"https://ror.org/038t36y30","country_code":"DE","type":"education","lineage":["https://openalex.org/I223822909"]},{"id":"https://openalex.org/I4210117394","display_name":"Hopp Children's Cancer Center Heidelberg","ror":"https://ror.org/02cypar22","country_code":"DE","type":"facility","lineage":["https://openalex.org/I1305996414","https://openalex.org/I17937529","https://openalex.org/I223822909","https://openalex.org/I2802164966","https://openalex.org/I4210117394"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"JB Kunz","raw_affiliation_strings":["Department of Pediatric Oncology, Hematology and Immunology, Hopp Children's Cancer Center (KiTZ), University of Heidelberg Heidelberg, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Pediatric Oncology, Hematology and Immunology, Hopp Children's Cancer Center (KiTZ), University of Heidelberg Heidelberg, Germany","institution_ids":["https://openalex.org/I223822909","https://openalex.org/I4210117394"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055700591","display_name":"MZ Soares","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"MZ Soares","raw_affiliation_strings":["Coordinator FENAFAL \u2013 National Federation of the associations of persons with Sickle Cell Anemia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Coordinator FENAFAL \u2013 National Federation of the associations of persons with Sickle Cell Anemia","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5050736838","display_name":"Federico Montealegre-Golcher","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210117853","display_name":"Global Blood Therapeutics (United States)","ror":"https://ror.org/03cr60k70","country_code":"US","type":"company","lineage":["https://openalex.org/I4210117853"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"F Montealegre-Golcher","raw_affiliation_strings":["Global Blood Therapeutics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Global Blood Therapeutics","institution_ids":["https://openalex.org/I4210117853"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030492142","display_name":"B. Lartey","orcid":"https://orcid.org/0009-0006-1874-8449","observed_orcids":["https://orcid.org/0009-0006-1874-8449"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"B Lartey","raw_affiliation_strings":["Ipsos Healthcare, Hong Kong, China"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Ipsos Healthcare, Hong Kong, China","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5007220235","display_name":"Mariane de Montalembert","orcid":"https://orcid.org/0000-0002-4900-4753","observed_orcids":["https://orcid.org/0000-0002-4900-4753"]},"institutions":[{"id":"https://openalex.org/I1288880153","display_name":"H\u00f4pital Necker-Enfants Malades","ror":"https://ror.org/05tr67282","country_code":"FR","type":"healthcare","lineage":["https://openalex.org/I1288880153","https://openalex.org/I4210097159","https://openalex.org/I4210120235"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"M Montalembert","raw_affiliation_strings":["Department of Pediatrics, Necker-Enfants Malades Hospital, Paris, France"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Necker-Enfants Malades Hospital, Paris, France","institution_ids":["https://openalex.org/I1288880153"]}]}],"institutions":[],"countries_distinct_count":7,"institutions_distinct_count":12,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":0,"currency":"USD","value_usd":0},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.21933086,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"44","issue":null,"first_page":"S31","last_page":"S32"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11280","display_name":"Hemophilia Treatment and Research","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sickle-cell-disease","display_name":"sickle cell disease","score":0.9990000128746033},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.9459999799728394},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.5260000228881836},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.4189999997615814},{"id":"https://openalex.org/keywords/symptom-burden","display_name":"symptom burden","score":0.6340000033378601},{"id":"https://openalex.org/keywords/vaso-occlusive-crisis","display_name":"vaso-occlusive crisis","score":0.8709999918937683},{"id":"https://openalex.org/keywords/fatigue","display_name":"fatigue","score":0.7739999890327454},{"id":"https://openalex.org/keywords/jaundice","display_name":"jaundice","score":0.8709999918937683},{"id":"https://openalex.org/keywords/bone-pain","display_name":"bone pain","score":0.8529999852180481},{"id":"https://openalex.org/keywords/school-attendance","display_name":"school attendance","score":0.39500001072883606},{"id":"https://openalex.org/keywords/labor-productivity","display_name":"labor productivity","score":0.3930000066757202},{"id":"https://openalex.org/keywords/patient-and-caregiver-perspectives","display_name":"patient and caregiver perspectives","score":0.3959999978542328},{"id":"https://openalex.org/keywords/health-care-access","display_name":"health care access","score":0.46700000762939453}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7659364938735962},{"id":"https://openalex.org/C29456083","wikidata":"https://www.wikidata.org/wiki/Q1221899","display_name":"Gynecology","level":1,"score":0.46977299451828003}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1016/j.htct.2022.09.052","doi":"https://doi.org/10.1016/j.htct.2022.09.052","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.htct.2022.09.052","pdf_url":null,"source":{"id":"https://openalex.org/S2898598332","display_name":"Hematology Transfusion and Cell Therapy","issn_l":"2531-1379","issn":["2531-1379","2531-1387"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","ki-jl-1","poland-20","russia-white-list-3","scielo"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Hematology, Transfusion and Cell Therapy","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1016/j.htct.2022.09.052","doi":"https://doi.org/10.1016/j.htct.2022.09.052","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.htct.2022.09.052","pdf_url":null,"source":{"id":"https://openalex.org/S2898598332","display_name":"Hematology Transfusion and Cell Therapy","issn_l":"2531-1379","issn":["2531-1379","2531-1387"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","ki-jl-1","poland-20","russia-white-list-3","scielo"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Hematology, Transfusion and Cell Therapy","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4306254671","https://openalex.org/W7223157289","https://openalex.org/W4403554824","https://openalex.org/W3207712516","https://openalex.org/W7223117416","https://openalex.org/W7009713857","https://openalex.org/W2078337888","https://openalex.org/W2002379748","https://openalex.org/W4387747180","https://openalex.org/W2898810452"],"abstract_inverted_index":{"No":[0],"Brasil,":[1],"a":[2,16,25,45,110,205,227,235,428,555],"doen\u00e7a":[3,564],"falciforme":[4],"(DF)":[5],"\u00e9":[6],"uma":[7,17,111,290,333,469,497],"das":[8],"doen\u00e7as":[9],"heredit\u00e1rias":[10],"mais":[11,173,193,203,248,310,449,464],"comuns":[12],"e":[13,29,53,78,82,96,120,130,145,155,166,186,214,230,254,267,278,307,311,366,370,434,440,468,543,553,565,570],"est\u00e1":[14,475],"associada":[15],"alta":[18],"taxa":[19],"de":[20,27,60,67,76,80,98,114,127,142,252,293,296,336,342,353,356,364,368,381,396,411,458,472,480,500,557],"mortalidade,":[21],"o":[22,47,133,461],"que":[23,202,241,246,340,393,408,448,463,526],"ressalta":[24],"necessidade":[26,556],"identificar":[28],"abordar":[30],"as":[31],"necessidades":[32],"n\u00e3o":[33,409,528],"atendidas":[34],"dos":[35,207],"indiv\u00edduos":[36],"afetados.":[37],"A":[38,422],"pesquisa":[39,61,150,423,524,546],"SHAPE":[40,71,424],"tem":[41],"como":[42,460],"objetivo":[43],"ajudar":[44],"compreender":[46],"\u00f4nus":[48,431],"da":[49,436,523,563],"DF":[50,90,101,345,414,437],"em":[51,271,358,403,438,488,507,514,535],"pacientes":[52,77,88,99,144,154,177,208,243,287,306,439,450,473,542],"cuidadores.":[54],"Esta":[55],"an\u00e1lise":[56,135],"examina":[57],"os":[58,171,191,198,219,242,284,305,328,387,492,518,548],"achados":[59],"oriundos":[62],"do":[63,159,430],"Brasil":[64,417,552],"no":[65,260,317,322,331,376,416,420,443,486,560,566],"contexto":[66],"percep\u00e7\u00f5es":[68],"globais.":[69],"O":[70],"compreendeu":[72],"pesquisas":[73],"on-line":[74],"quantitativas":[75],"cuidadores":[79,97,147,157,329,337,390,442,501,519,544],"dez":[81],"nove":[83],"pa\u00edses,":[84],"respectivamente.":[85],"Foram":[86],"inclu\u00eddos":[87],"com":[89,91,100,102,273,326,344,385,405,413,477,490,516],"idade":[92,103],"\u2265":[93,104],"12":[94],"anos":[95],"18":[105],"anos.":[106],"Os":[107,200,239,286],"participantes":[108,330],"responderam":[109,148],"ampla":[112],"variedade":[113],"perguntas":[115],"fechadas":[116],"sobre":[117,132],"suas":[118,466],"circunst\u00e2ncias":[119],"experi\u00eancias,":[121],"tendo":[122],"sido":[123],"constru\u00eddo":[124],"um":[125,223,231,504],"base":[126],"dados":[128],"robusta":[129],"confi\u00e1vel":[131],"qual":[134],"estat\u00edstica":[136],"descritiva":[137],"foi":[138,221,529],"realizada.":[139],"Um":[140],"total":[141],"919":[143],"207":[146],"\u00e0":[149],"globalmente;":[151],"destes,":[152],"151":[153],"50":[156],"eram":[158],"Brasil.":[160,444],"Fadiga/cansa\u00e7o":[161],"(74%),":[162],"olhos/unhas/pele":[163,211,236,453],"amarelados":[164,212,237,454],"(58%)":[165,229],"dores":[167,187,268,279],"\u00f3sseas":[168,188,269,280],"(55%)":[169],"foram":[170,190,210,262],"sintomas":[172,192,201,240],"frequentemente":[174,194],"apresentados":[175,195],"por":[176,196],"brasileiros,":[178],"enquanto":[179],"fadiga/cansa\u00e7o":[180,263,276],"(84%),":[181],"crises":[182],"vaso-oclusivas":[183],"(CVOs;":[184],"71%)":[185],"(69%)":[189],"todos":[197,218,283,304,327,386,491,517],"pacientes.":[199,285],"afetaram":[204],"vida":[206,397],"brasileiros":[209,244,288,338,391,451,474,502],"(35%)":[213],"CVOs":[215,228,265,274],"(33%);":[216],"entre":[217,282,303],"pacientes,":[220],"relatado":[222],"impacto":[224,232,249,505],"maior":[225,335,470,499,558],"devido":[226,234],"menor":[233],"(12%).":[238],"sentiram":[245,392],"tiveram":[247],"na":[250,257,314,373,483],"capacidade":[251,367,479],"comparecer":[253,369],"ter":[255,312,371,481],"sucesso":[256,313,372,482],"escola":[258,297,315,374,484],"ou":[259,298,316,375,400,485,512],"trabalho":[261,299,318,377,487,511],"(18%),":[264],"(14%)":[266],"(11%),":[270],"compara\u00e7\u00e3o":[272,325,384,404,489,515],"(26%),":[275],"(16%)":[277],"(10%)":[281],"perderam":[289],"m\u00e9dia":[291],"mensal":[292],"8,3":[294],"dias":[295,302],"versus":[300,320],"7,5":[301],"se":[308],"preocuparam":[309],"(75%":[319],"59%":[321],"total).":[323,421],"Em":[324,383],"estudo,":[332],"porcentagem":[334,471,498],"sentiu":[339],"cuidar":[341],"algu\u00e9m":[343,412],"afetou":[346],"sua":[347,394,478,508],"sa\u00fade":[348,357],"mental":[349,433],"(68%":[350],"vs.":[351,362,379,418],"52%":[352],"todos),":[354],"perspectivas":[355],"longo":[359],"prazo":[360],"(64%":[361],"55%":[363],"todos)":[365],"(62%":[378],"56%":[380],"todos).":[382],"cuidadores,":[388],"menos":[389],"qualidade":[395],"era":[398],"muito":[399,401],"boa":[402],"seus":[406,441],"amigos":[407],"cuidam":[410],"(14%":[415],"31%":[419],"melhora":[425],"nossa":[426],"compreens\u00e3o":[427],"respeito":[429],"f\u00edsico,":[432],"social":[435],"\u00c9":[445],"importante":[446],"ressaltar":[447],"relataram":[452],"(ou":[455],"seja,":[456],"sinais":[457],"icter\u00edcia)":[459],"sintoma":[462],"afeta":[465],"vidas,":[467],"preocupada":[476],"entrevistados.":[493,520],"Da":[494],"mesma":[495],"forma,":[496],"reconhece":[503],"negativo":[506],"pr\u00f3pria":[509],"sa\u00fade,":[510],"educa\u00e7\u00e3o":[513],"As":[521,538],"limita\u00e7\u00f5es":[522],"incluem":[525],"ela":[527],"validada":[530],"nem":[531],"otimizada":[532],"para":[533],"uso":[534],"v\u00e1rios":[536],"pa\u00edses.":[537],"experi\u00eancias":[539],"relatadas":[540],"pelos":[541],"nesta":[545],"destacam":[547],"desafios":[549],"espec\u00edficos":[550],"ao":[551,568,571],"demonstram":[554],"foco":[559],"melhor":[561],"controle":[562],"apoio":[567],"paciente":[569],"cuidador":[572],"nesse":[573],"cen\u00e1rio.":[574]},"counts_by_year":[],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2022-10-16T00:00:00"}