{"id":"https://openalex.org/W4293175945","doi":"https://doi.org/10.3389/fgene.2022.921432","title":"Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative","display_name":"Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative","publication_year":2022,"publication_date":"2022-08-26","ids":{"openalex":"https://openalex.org/W4293175945","doi":"https://doi.org/10.3389/fgene.2022.921432","pmid":"https://pubmed.ncbi.nlm.nih.gov/36092883","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/9461276"},"language":"en","primary_location":{"id":"doi:10.3389/fgene.2022.921432","doi":"https://doi.org/10.3389/fgene.2022.921432","is_oa":true,"landing_page_url":"https://doi.org/10.3389/fgene.2022.921432","pdf_url":"https://www.frontiersin.org/articles/10.3389/fgene.2022.921432/pdf","source":{"id":"https://openalex.org/S2597340651","display_name":"Frontiers in Genetics","issn_l":"1664-8021","issn":["1664-8021"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","jufo-1","ki-jl-1","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320527","host_organization_name":"Frontiers Media","host_organization_lineage":["https://openalex.org/P4310320527"],"host_organization_lineage_names":["Frontiers Media"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Frontiers in Genetics","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.frontiersin.org/articles/10.3389/fgene.2022.921432/pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5079838820","display_name":"Marsha J. Treadwell","orcid":"https://orcid.org/0000-0003-0521-1846","observed_orcids":["https://orcid.org/0000-0003-0521-1846"]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]},{"id":"https://openalex.org/I4210135903","display_name":"UCSF Benioff Children's Hospital","ror":"https://ror.org/03hwe2705","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210135903"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Marsha J. Treadwell","raw_affiliation_strings":["Division of Hematology, Department of Pediatrics, University of California, San Francisco, San Francisco, CA, United States","UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology, Department of Pediatrics, University of California, San Francisco, San Francisco, CA, United States","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States","institution_ids":["https://openalex.org/I4210135903"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036972215","display_name":"Lisa Du","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210135903","display_name":"UCSF Benioff Children's Hospital","ror":"https://ror.org/03hwe2705","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210135903"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lisa Du","raw_affiliation_strings":["UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States","institution_ids":["https://openalex.org/I4210135903"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071057753","display_name":"Neha Bhasin","orcid":"https://orcid.org/0000-0001-9980-0574","observed_orcids":["https://orcid.org/0000-0001-9980-0574","https://orcid.org/0000-0001-8607-7364"]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]},{"id":"https://openalex.org/I4210135903","display_name":"UCSF Benioff Children's Hospital","ror":"https://ror.org/03hwe2705","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210135903"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Neha Bhasin","raw_affiliation_strings":["Division of Hematology, Department of Pediatrics, University of California, San Francisco, San Francisco, CA, United States","UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology, Department of Pediatrics, University of California, San Francisco, San Francisco, CA, United States","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States","institution_ids":["https://openalex.org/I4210135903"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5114190587","display_name":"Anne Marsh","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I135310074","display_name":"University of Wisconsin\u2013Madison","ror":"https://ror.org/01y2jtd41","country_code":"US","type":"education","lineage":["https://openalex.org/I135310074"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Anne M. Marsh","raw_affiliation_strings":["Division of Hematology/Oncology, Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology/Oncology, Department of Pediatrics, University of Wisconsin School of Medicine and Public Health, Madison, WI, United States","institution_ids":["https://openalex.org/I135310074"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112620481","display_name":"Theodore Wun","orcid":"https://orcid.org/0000-0001-6383-7172","observed_orcids":["https://orcid.org/0000-0001-6383-7172"]},"institutions":[{"id":"https://openalex.org/I84218800","display_name":"University of California, Davis","ror":"https://ror.org/05rrcem69","country_code":"US","type":"education","lineage":["https://openalex.org/I84218800"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Theodore Wun","raw_affiliation_strings":["Division of Hematology and Oncology, Department of Internal Medicine, University of California, Davis, Davis, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology and Oncology, Department of Internal Medicine, University of California, Davis, Davis, CA, United States","institution_ids":["https://openalex.org/I84218800"]}]},{"author_position":"middle","author":{"id":null,"display_name":"M. A. Bender","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1295499534","display_name":"Seattle Children's Hospital","ror":"https://ror.org/01njes783","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1295499534"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"M. A. Bender","raw_affiliation_strings":["Odessa Brown Children's Clinic, Seattle Children's Hospital, Seattle, WA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Odessa Brown Children's Clinic, Seattle Children's Hospital, Seattle, WA, United States","institution_ids":["https://openalex.org/I1295499534"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027246053","display_name":"Trisha E. Wong","orcid":"https://orcid.org/0000-0002-5298-6217","observed_orcids":["https://orcid.org/0000-0002-5298-6217"]},"institutions":[{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Trisha E. Wong","raw_affiliation_strings":["Division of Pediatric Hematology and Oncology and Department of Pathology, Oregon Health and Sciences University, Portland, OR, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Pediatric Hematology and Oncology and Department of Pathology, Oregon Health and Sciences University, Portland, OR, United States","institution_ids":["https://openalex.org/I165690674"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5053792217","display_name":"Nicole Crook","orcid":"https://orcid.org/0000-0003-1960-7323","observed_orcids":["https://orcid.org/0000-0003-1960-7323"]},"institutions":[{"id":"https://openalex.org/I4210162060","display_name":"Center for Inherited Blood Disorders","ror":"https://ror.org/054tr5c63","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210162060"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nicole Crook","raw_affiliation_strings":["Center for Inherited Blood Disorders, Orange, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Inherited Blood Disorders, Orange, CA, United States","institution_ids":["https://openalex.org/I4210162060"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091224864","display_name":"Jong Hee Chung","orcid":"https://orcid.org/0000-0001-8489-626X","observed_orcids":["https://orcid.org/0000-0001-8489-626X"]},"institutions":[{"id":"https://openalex.org/I84218800","display_name":"University of California, Davis","ror":"https://ror.org/05rrcem69","country_code":"US","type":"education","lineage":["https://openalex.org/I84218800"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jong H. Chung","raw_affiliation_strings":["Hematology-Oncology, Department of Pediatrics, University of California, Davis, Davis, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hematology-Oncology, Department of Pediatrics, University of California, Davis, Davis, CA, United States","institution_ids":["https://openalex.org/I84218800"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113557345","display_name":"Shannon Norman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Shannon Norman","raw_affiliation_strings":["Alaska Bleeding Disorders Clinic, Anchorage, AK, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Alaska Bleeding Disorders Clinic, Anchorage, AK, United States","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065850433","display_name":"Nicolas Camilo","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nicolas Camilo","raw_affiliation_strings":["St. Luke's Children's Cancer Institute, Boise, ID, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"St. Luke's Children's Cancer Institute, Boise, ID, United States","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Judith Cavazos","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210135903","display_name":"UCSF Benioff Children's Hospital","ror":"https://ror.org/03hwe2705","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210135903"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Judith Cavazos","raw_affiliation_strings":["UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"UCSF Benioff Children's Hospital Oakland, Oakland, CA, United States","institution_ids":["https://openalex.org/I4210135903"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5020726409","display_name":"Diane Jean Nugent","orcid":"https://orcid.org/0000-0002-1109-0879","observed_orcids":["https://orcid.org/0000-0002-1109-0879"]},"institutions":[{"id":"https://openalex.org/I4210162060","display_name":"Center for Inherited Blood Disorders","ror":"https://ror.org/054tr5c63","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210162060"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Diane Nugent","raw_affiliation_strings":["Center for Inherited Blood Disorders, Orange, CA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Inherited Blood Disorders, Orange, CA, United States","institution_ids":["https://openalex.org/I4210162060"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5079838820"],"corresponding_institution_ids":["https://openalex.org/I180670191","https://openalex.org/I4210135903"],"apc_list":{"value":2950,"currency":"USD","value_usd":2950},"apc_paid":{"value":2950,"currency":"USD","value_usd":2950},"fwci":8.7756,"has_fulltext":true,"cited_by_count":55,"citation_normalized_percentile":{"value":0.98760843,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":"13","issue":null,"first_page":"921432","last_page":"921432"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10554","display_name":"Hemoglobinopathies and Related Disorders","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11620","display_name":"Medication Adherence and Compliance","score":0.0003000000142492354,"subfield":{"id":"https://openalex.org/subfields/2714","display_name":"Family Practice"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sickle-cell-disease","display_name":"sickle cell disease","score":0.9929999709129333},{"id":"https://openalex.org/keywords/hydroxyurea","display_name":"hydroxyurea","score":0.9980000257492065},{"id":"https://openalex.org/keywords/barriers-to-medication-use","display_name":"barriers to medication use","score":0.7699999809265137},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.9900000095367432},{"id":"https://openalex.org/keywords/patient-and-family-perspectives","display_name":"patient and family perspectives","score":0.7770000100135803},{"id":"https://openalex.org/keywords/pain-episodes","display_name":"pain episodes","score":0.5640000104904175},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.7540000081062317},{"id":"https://openalex.org/keywords/disease-modifying-therapy","display_name":"disease-modifying therapy","score":0.6809999942779541}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7347623109817505},{"id":"https://openalex.org/C2779978724","wikidata":"https://www.wikidata.org/wiki/Q1436482","display_name":"Worry","level":3,"score":0.6150000095367432},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.6012670993804932},{"id":"https://openalex.org/C2779316324","wikidata":"https://www.wikidata.org/wiki/Q212272","display_name":"Hydroxycarbamide","level":3,"score":0.5543036460876465},{"id":"https://openalex.org/C2780084366","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demographics","level":2,"score":0.43260544538497925},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.41870713233947754},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.32784146070480347},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.2759506106376648},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.19315972924232483},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.17820802330970764},{"id":"https://openalex.org/C149923435","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demography","level":1,"score":0.1070813238620758},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.3389/fgene.2022.921432","doi":"https://doi.org/10.3389/fgene.2022.921432","is_oa":true,"landing_page_url":"https://doi.org/10.3389/fgene.2022.921432","pdf_url":"https://www.frontiersin.org/articles/10.3389/fgene.2022.921432/pdf","source":{"id":"https://openalex.org/S2597340651","display_name":"Frontiers in Genetics","issn_l":"1664-8021","issn":["1664-8021"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","jufo-1","ki-jl-1","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320527","host_organization_name":"Frontiers Media","host_organization_lineage":["https://openalex.org/P4310320527"],"host_organization_lineage_names":["Frontiers Media"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Frontiers in Genetics","raw_type":"journal-article"},{"id":"pmid:36092883","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/36092883","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Frontiers in genetics","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:9461276","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC9461276/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Front Genet","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:40e72789908342a29a0d3ac23510c3f0","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/40e72789908342a29a0d3ac23510c3f0","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Frontiers in Genetics, Vol 13 (2022)","raw_type":"article"},{"id":"pmh:oai:escholarship.org:ark:/13030/qt6304v75d","doi":null,"is_oa":true,"landing_page_url":"https://escholarship.org/uc/item/6304v75d","pdf_url":null,"source":{"id":"https://openalex.org/S4306400115","display_name":"eScholarship (California Digital Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2801248553","host_organization_name":"California Digital Library","host_organization_lineage":["https://openalex.org/I2801248553"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Frontiers in Genetics, vol 13","raw_type":"article"}],"best_oa_location":{"id":"doi:10.3389/fgene.2022.921432","doi":"https://doi.org/10.3389/fgene.2022.921432","is_oa":true,"landing_page_url":"https://doi.org/10.3389/fgene.2022.921432","pdf_url":"https://www.frontiersin.org/articles/10.3389/fgene.2022.921432/pdf","source":{"id":"https://openalex.org/S2597340651","display_name":"Frontiers in Genetics","issn_l":"1664-8021","issn":["1664-8021"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","jufo-1","ki-jl-1","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320527","host_organization_name":"Frontiers Media","host_organization_lineage":["https://openalex.org/P4310320527"],"host_organization_lineage_names":["Frontiers Media"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Frontiers in Genetics","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"},{"display_name":"Reduced inequalities","score":0.5676000118255615,"id":"https://metadata.un.org/sdg/10"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[{"id":"https://openalex.org/G1902376241","display_name":null,"funder_award_id":"UCSF-CTSI Grant Number UL1 TR000004","funder_id":"https://openalex.org/F4320337472","funder_display_name":"National Center for Advancing Translational Sciences"},{"id":"https://openalex.org/G5080906202","display_name":null,"funder_award_id":"U1EMC27862","funder_id":"https://openalex.org/F4320332175","funder_display_name":"Health Resources and Services Administration"},{"id":"https://openalex.org/G5883306605","display_name":"Clinical and Translational Science Institute","funder_award_id":"UL1TR000004","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"},{"id":"https://openalex.org/G609435965","display_name":null,"funder_award_id":"UL1TR000004","funder_id":"https://openalex.org/F4320306085","funder_display_name":"U.S. Department of Health and Human Services"},{"id":"https://openalex.org/G6990385686","display_name":null,"funder_award_id":"TR000004","funder_id":"https://openalex.org/F4320332622","funder_display_name":"University of California, San Francisco"},{"id":"https://openalex.org/G7140729675","display_name":null,"funder_award_id":"TR000004","funder_id":"https://openalex.org/F4320337472","funder_display_name":"National Center for Advancing Translational Sciences"},{"id":"https://openalex.org/G775892330","display_name":null,"funder_award_id":"UL1-TR000004","funder_id":"https://openalex.org/F4320332622","funder_display_name":"University of California, San Francisco"},{"id":"https://openalex.org/G9000080293","display_name":null,"funder_award_id":"TR000004","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"}],"funders":[{"id":"https://openalex.org/F4320306085","display_name":"U.S. Department of Health and Human Services","ror":"https://ror.org/033jnv181"},{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320332175","display_name":"Health Resources and Services Administration","ror":"https://ror.org/033jnv181"},{"id":"https://openalex.org/F4320332622","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54"},{"id":"https://openalex.org/F4320337472","display_name":"National Center for Advancing Translational Sciences","ror":"https://ror.org/04pw6fb54"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4293175945.pdf","grobid_xml":"https://content.openalex.org/works/W4293175945.grobid-xml"},"referenced_works_count":67,"referenced_works":["https://openalex.org/W789208081","https://openalex.org/W1506899620","https://openalex.org/W1550497737","https://openalex.org/W1771805953","https://openalex.org/W1938476165","https://openalex.org/W1968655387","https://openalex.org/W1971887544","https://openalex.org/W1979436962","https://openalex.org/W1995325755","https://openalex.org/W2009779571","https://openalex.org/W2027210738","https://openalex.org/W2040983608","https://openalex.org/W2054539054","https://openalex.org/W2059897563","https://openalex.org/W2063277586","https://openalex.org/W2063998893","https://openalex.org/W2089501021","https://openalex.org/W2095095757","https://openalex.org/W2130880789","https://openalex.org/W2137008040","https://openalex.org/W2137367581","https://openalex.org/W2145909170","https://openalex.org/W2153170459","https://openalex.org/W2170086069","https://openalex.org/W2222289503","https://openalex.org/W2275652412","https://openalex.org/W2286722642","https://openalex.org/W2313541759","https://openalex.org/W2407346041","https://openalex.org/W2538525824","https://openalex.org/W2558243690","https://openalex.org/W2559643145","https://openalex.org/W2571916952","https://openalex.org/W2584418414","https://openalex.org/W2596033148","https://openalex.org/W2599692870","https://openalex.org/W2605886976","https://openalex.org/W2617713624","https://openalex.org/W2641299467","https://openalex.org/W2749848699","https://openalex.org/W2751645476","https://openalex.org/W2762031047","https://openalex.org/W2772825694","https://openalex.org/W2807735089","https://openalex.org/W2810224687","https://openalex.org/W2811165539","https://openalex.org/W2883229004","https://openalex.org/W2883955692","https://openalex.org/W2885152910","https://openalex.org/W2892305705","https://openalex.org/W2897495778","https://openalex.org/W2902147263","https://openalex.org/W2909482306","https://openalex.org/W2909750132","https://openalex.org/W2928228912","https://openalex.org/W2935850173","https://openalex.org/W2942959381","https://openalex.org/W2943748065","https://openalex.org/W2951288545","https://openalex.org/W2962733167","https://openalex.org/W2977383596","https://openalex.org/W3012885056","https://openalex.org/W3024563204","https://openalex.org/W3048387117","https://openalex.org/W3087528730","https://openalex.org/W4226312266","https://openalex.org/W4251903243"],"related_works":["https://openalex.org/W7126331290","https://openalex.org/W2979556187","https://openalex.org/W2794026908","https://openalex.org/W2533266749","https://openalex.org/W2983624227","https://openalex.org/W4386593535","https://openalex.org/W4399038430","https://openalex.org/W3087528730","https://openalex.org/W2593289599","https://openalex.org/W4310096788"],"abstract_inverted_index":{"Sickle":[0],"cell":[1,156],"disease":[2],"(SCD)":[3],"is":[4,42],"an":[5],"inherited":[6],"blood":[7],"disorder":[8],"that":[9,69,132],"affects":[10],"about":[11,94,166,237],"100,000":[12],"people":[13],"in":[14,137,148,283,300,335],"the":[15,60,63,149,187,200,218,221,289,336],"U.S.,":[16,150],"primarily":[17],"Blacks/African-Americans.":[18],"A":[19],"multitude":[20],"of":[21,26,48,59,84,103,140,154,189,269,291,305,338],"complications":[22],"negatively":[23],"impacts":[24],"quality":[25],"life.":[27],"Hydroxyurea":[28],"has":[29],"been":[30],"FDA":[31],"approved":[32],"since":[33],"1998":[34],"as":[35,235],"a":[36,152],"disease-modifying":[37],"therapy":[38],"for":[39,73,100,121,211,250,343],"SCD,":[40,78,88],"but":[41],"underutilized.":[43],"Negative":[44],"and":[45,50,57,75,81,89,97,113,126,160,163,177,186,202,224,240,242,253,281,288,303,314,340],"uninformed":[46],"perceptions":[47],"hydroxyurea":[49,71,133,167,192,312,326],"barriers":[51,114,229,233,249,324,334],"to":[52,67,115,182,216,230,320,325,331],"its":[53],"use":[54,72,134,168,327,337],"hinder":[55],"adherence":[56],"promotion":[58],"medication.":[61],"As":[62],"largest":[64],"real-world":[65],"study":[66],"date":[68],"assessed":[70],"children":[74],"adults":[76,174,252],"with":[77,87,108,171,194,266,272,316],"we":[79,207],"gathered":[80],"analyzed":[82],"perspectives":[83],"providers,":[85,256],"individuals":[86],"families.":[90],"Participants":[91],"provided":[92],"information":[93],"socio-demographics,":[95],"hospital":[96],"emergency":[98],"admissions":[99],"pain,":[101],"number":[102],"severe":[104],"pain":[105],"episodes":[106],"interfering":[107],"daily":[109],"activities,":[110],"medication":[111,204],"adherence,":[112],"hydroxyurea.":[116],"Providers":[117],"reported":[118,136],"on":[119,184,191,213],"indications":[120],"hydroxyurea,":[122,214],"reasons":[123],"not":[124,245],"prescribed,":[125],"current":[127],"laboratory":[128],"values.":[129],"We":[130],"found":[131,208],"was":[135],"over":[138],"half":[139],"eligible":[141],"patients":[142,212],"from":[143],"this":[144],"large":[145],"geographic":[146],"region":[147],"representing":[151],"range":[153],"sickle":[155],"specialty":[157],"clinical":[158,309],"settings":[159],"practices.":[161],"Provider":[162],"patient/caregiver":[164],"reports":[165],"were":[169,179,226,247,264],"consistent":[170,271],"one":[172,195],"another;":[173],"26":[175],"years":[176],"older":[178],"least":[180],"likely":[181],"be":[183],"hydroxyurea;":[185],"likelihood":[188],"being":[190],"decreased":[193],"or":[196,261],"more":[197],"barriers.":[198,322],"Using":[199],"intentional":[201],"unintentional":[203,228],"nonadherence":[205],"framework,":[206],"that,":[209],"even":[210],"challenges":[215],"taking":[217],"medicine":[219],"at":[220],"right":[222],"time":[223],"forgetting":[225],"crucial":[227],"adherence.":[231],"Intentional":[232],"such":[234],"worry":[236],"side":[238],"effects":[239],"\"tried":[241],"it":[243],"did":[244],"work\"":[246],"important":[248],"young":[251],"adults.":[254],"For":[255],"diagnoses":[257],"other":[258],"than":[259],"HgbSS":[260],"HgbS-\u03b20":[262],"thalassemia":[263],"associated":[265],"lower":[267],"odds":[268],"prescribing,":[270],"evidence-based":[273],"guidelines.":[274],"Our":[275,295],"results":[276],"support":[277],"strengthening":[278],"provider":[279],"understanding":[280,301],"confidence":[282],"implementing":[284],"existing":[285],"SCD":[286],"guidelines,":[287],"importance":[290],"shared":[292],"decision":[293],"making.":[294],"findings":[296],"can":[297,328],"assist":[298],"providers":[299],"choices":[302],"decisions":[304],"families;":[306],"guide":[307],"individualized":[308],"discussions":[310],"regarding":[311],"therapy;":[313],"help":[315],"developing":[317],"tailored":[318],"interventions":[319],"address":[321],"Addressing":[323],"inform":[329],"strategies":[330],"minimize":[332],"similar":[333],"emerging":[339],"combination":[341],"therapies":[342],"SCD.":[344]},"counts_by_year":[{"year":2026,"cited_by_count":17},{"year":2025,"cited_by_count":15},{"year":2024,"cited_by_count":16},{"year":2023,"cited_by_count":7}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2022-08-27T00:00:00"}
