{"id":"https://openalex.org/W4229035802","doi":"https://doi.org/10.1530/ec-22-0025","title":"We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare","display_name":"We mind your step: understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare","publication_year":2022,"publication_date":"2022-05-01","ids":{"openalex":"https://openalex.org/W4229035802","doi":"https://doi.org/10.1530/ec-22-0025","pmid":"https://pubmed.ncbi.nlm.nih.gov/35521816","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/9175586"},"language":"en","primary_location":{"id":"doi:10.1530/ec-22-0025","doi":"https://doi.org/10.1530/ec-22-0025","is_oa":true,"landing_page_url":"https://doi.org/10.1530/ec-22-0025","pdf_url":"https://ec.bioscientifica.com/downloadpdf/journals/ec/11/5/EC-22-0025.pdf","source":{"id":"https://openalex.org/S2764372638","display_name":"Endocrine Connections","issn_l":"2049-3614","issn":["2049-3614"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310319937","host_organization_name":"Bioscientifica","host_organization_lineage":["https://openalex.org/P4310319937"],"host_organization_lineage_names":["Bioscientifica"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Endocrine Connections","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://ec.bioscientifica.com/downloadpdf/journals/ec/11/5/EC-22-0025.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Kirsten Davidse","orcid":"https://orcid.org/0000-0001-6184-6251","observed_orcids":["https://orcid.org/0000-0001-6184-6251"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Kirsten Davidse","raw_affiliation_strings":["Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":"https://orcid.org/0000-0001-6184-6251","affiliations":[{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Anneloes van Staa","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I907135538","display_name":"Rotterdam University of Applied Sciences","ror":"https://ror.org/0481e1q24","country_code":"NL","type":"education","lineage":["https://openalex.org/I907135538"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Anneloes van Staa","raw_affiliation_strings":["Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I907135538"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Wanda Geilvoet","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Wanda Geilvoet","raw_affiliation_strings":["Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Judith P van Eck","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Judith P van Eck","raw_affiliation_strings":["Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Karlijn Pellikaan","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Karlijn Pellikaan","raw_affiliation_strings":["Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Janneke Baan","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Janneke Baan","raw_affiliation_strings":["Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Anita C S Hokken-Koelega","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Anita C S Hokken-Koelega","raw_affiliation_strings":["Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands","Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","Dutch Growth Research Foundation, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Dutch Growth Research Foundation, Rotterdam, the Netherlands","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Erica L T van den Akker","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Erica L T van den Akker","raw_affiliation_strings":["Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Theo Sas","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Theo Sas","raw_affiliation_strings":["Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","Diabeter, National Diabetes Care and Research Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Diabeter, National Diabetes Care and Research Centre, Rotterdam, the Netherlands","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033039461","display_name":"Sabine Elisabeth Hannema","orcid":"https://orcid.org/0000-0002-8996-0993","observed_orcids":["https://orcid.org/0000-0002-8996-0993"]},"institutions":[{"id":"https://openalex.org/I2800006345","display_name":"Leiden University Medical Center","ror":"https://ror.org/05xvt9f17","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2800006345"]},{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Sabine E Hannema","raw_affiliation_strings":["Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","Department of Paediatrics, Leiden University Medical Centre, Leiden, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Department of Paediatrics, Leiden University Medical Centre, Leiden, the Netherlands","institution_ids":["https://openalex.org/I2800006345"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Aart Jan van der Lely","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Aart Jan van der Lely","raw_affiliation_strings":["Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"last","author":{"id":null,"display_name":"Laura C G de Graaff","orcid":"https://orcid.org/0000-0002-0295-7063","observed_orcids":["https://orcid.org/0000-0002-0295-7063"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":true,"raw_author_name":"Laura C G de Graaff","raw_affiliation_strings":["Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands","Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-0295-7063","affiliations":[{"raw_affiliation_string":"Academic Centre for Growth, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Department of Internal Medicine-Endocrinology, Erasmus University Medical Centre, Rotterdam, the Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I2801952686"],"apc_list":{"value":1750,"currency":"GBP","value_usd":2146},"apc_paid":{"value":1750,"currency":"GBP","value_usd":2146},"fwci":3.072,"has_fulltext":true,"cited_by_count":19,"citation_normalized_percentile":{"value":0.91515078,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"11","issue":"5","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9990000128746033,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13883","display_name":"Child and Adolescent Health","score":0.0003000000142492354,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12174","display_name":"Hospital Admissions and Outcomes","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/2911","display_name":"Leadership and Management"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/care-transitions","display_name":"care transitions","score":0.6790000200271606},{"id":"https://openalex.org/keywords/paediatric-to-adult-care","display_name":"paediatric to adult care","score":0.8640000224113464},{"id":"https://openalex.org/keywords/endocrinology","display_name":"endocrinology","score":0.7879999876022339},{"id":"https://openalex.org/keywords/patient-dropout","display_name":"patient dropout","score":0.5910000205039978},{"id":"https://openalex.org/keywords/loss-to-follow-up","display_name":"loss to follow-up","score":0.9229999780654907},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.843999981880188},{"id":"https://openalex.org/keywords/young-adults","display_name":"young adults","score":0.7879999876022339},{"id":"https://openalex.org/keywords/endocrine-disorders","display_name":"endocrine disorders","score":0.6700000166893005},{"id":"https://openalex.org/keywords/healthcare-logistics","display_name":"healthcare logistics","score":0.36000001430511475}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9706000089645386},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.6504999995231628},{"id":"https://openalex.org/C2991842025","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Tertiary care","level":2,"score":0.6498000025749207},{"id":"https://openalex.org/C46699223","wikidata":"https://www.wikidata.org/wiki/Q11078","display_name":"Endocrine system","level":3,"score":0.6247000098228455},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4577000141143799},{"id":"https://openalex.org/C2909537177","wikidata":"https://www.wikidata.org/wiki/Q4685925","display_name":"Adult care","level":3,"score":0.39480000734329224},{"id":"https://openalex.org/C2776145597","wikidata":"https://www.wikidata.org/wiki/Q25339462","display_name":"Dropout (neural networks)","level":2,"score":0.3686000108718872},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.3610999882221222},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.34790000319480896},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.299699991941452},{"id":"https://openalex.org/C2989236134","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Patient care","level":2,"score":0.2888000011444092}],"mesh":[],"locations_count":9,"locations":[{"id":"doi:10.1530/ec-22-0025","doi":"https://doi.org/10.1530/ec-22-0025","is_oa":true,"landing_page_url":"https://doi.org/10.1530/ec-22-0025","pdf_url":"https://ec.bioscientifica.com/downloadpdf/journals/ec/11/5/EC-22-0025.pdf","source":{"id":"https://openalex.org/S2764372638","display_name":"Endocrine Connections","issn_l":"2049-3614","issn":["2049-3614"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310319937","host_organization_name":"Bioscientifica","host_organization_lineage":["https://openalex.org/P4310319937"],"host_organization_lineage_names":["Bioscientifica"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Endocrine Connections","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:9175586","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/9175586","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Endocr Connect","raw_type":"Text"},{"id":"pmid:35521816","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/35521816","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Endocrine connections","raw_type":"Journal Article"},{"id":"pmh:oai:pure.amsterdamumc.nl:openaire/ba8b4660-73a6-4509-88f3-18cc14d0336b","doi":null,"is_oa":true,"landing_page_url":"https://pure.amsterdamumc.nl/en/publications/ba8b4660-73a6-4509-88f3-18cc14d0336b","pdf_url":null,"source":{"id":"https://openalex.org/S7407055222","display_name":"Pure Amsterdam UMC","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Davidse, K, van Staa, A, Geilvoet, W, Eck, J V, Pellikaan, K, Baan, J, Hokken-Koelega, A C S, Van den Akker, E L T, Sas, T C J, Hannema, S E, Van der Lely, A J & de Graaff, L C G 2022, 'We mind your step : understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare', Endocrine connections, vol. 11, no. 5, e220025. https://doi.org/10.1530/EC-22-0025","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:pure.eur.nl:openaire/6a2265d6-24e7-4373-a754-e9dd3de49ca5","doi":null,"is_oa":true,"landing_page_url":"https://pure.eur.nl/en/publications/6a2265d6-24e7-4373-a754-e9dd3de49ca5","pdf_url":null,"source":{"id":"https://openalex.org/S4306401266","display_name":"EUR Research Repository (Erasmus University Rotterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I913958620","host_organization_name":"Erasmus University Rotterdam","host_organization_lineage":["https://openalex.org/I913958620"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Davidse, K, van Staa, A, Geilvoet, W, van Eck, J P, Pellikaan, K, Baan, J, Hokken-Koelega, A C S, van den Akker, E L T, Sas, T, Hannema, S E, van der Lely, A J & de Graaff, L C G 2022, 'We mind your step : understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare', Endocrine Connections, vol. 11, no. 5, e220025. https://doi.org/10.1530/EC-22-0025","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:eur:oai:pure.eur.nl:publications/6a2265d6-24e7-4373-a754-e9dd3de49ca5","doi":null,"is_oa":true,"landing_page_url":"https://pure.eur.nl/en/publications/6a2265d6-24e7-4373-a754-e9dd3de49ca5","pdf_url":null,"source":{"id":"https://openalex.org/S4306401266","display_name":"EUR Research Repository (Erasmus University Rotterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I913958620","host_organization_name":"Erasmus University Rotterdam","host_organization_lineage":["https://openalex.org/I913958620"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Endocrine Connections, 11(5):e220025. Bioscientifica Ltd","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:doaj.org/article:cd9ce8248c13458b9860b13aea53d851","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/cd9ce8248c13458b9860b13aea53d851","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Endocrine Connections, Vol 11, Iss 5, Pp 1-9 (2022)","raw_type":"article"},{"id":"pmh:oai:pure.atira.dk:openaire/ab28edef-15b4-4037-9572-ccdc26c0ec00","doi":null,"is_oa":true,"landing_page_url":"https://www.scopus.com/pages/publications/85131668675","pdf_url":null,"source":{"id":"https://openalex.org/S7407055350","display_name":"Amsterdam UMC (VU Amsterdam) - Institutional Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Davidse, K, van Staa, A, Geilvoet, W, Eck, J V, Pellikaan, K, Baan, J, Hokken-Koelega, A C S, Van den Akker, E L T, Sas, T C J, Hannema, S E, Van der Lely, A J & de Graaff, L C G 2022, 'We mind your step : understanding and preventing drop-out in the transfer from paediatric to adult tertiary endocrine healthcare', Endocrine Connections, vol. 11, no. 5, e220025. https://doi.org/10.1530/EC-22-0025","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:vumc:oai:pure.atira.dk:publications/ab28edef-15b4-4037-9572-ccdc26c0ec00","doi":null,"is_oa":true,"landing_page_url":"https://research.vumc.nl/en/publications/ab28edef-15b4-4037-9572-ccdc26c0ec00","pdf_url":null,"source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Endocrine Connections, 11(5):e220025. BioScientifica Ltd.","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1530/ec-22-0025","doi":"https://doi.org/10.1530/ec-22-0025","is_oa":true,"landing_page_url":"https://doi.org/10.1530/ec-22-0025","pdf_url":"https://ec.bioscientifica.com/downloadpdf/journals/ec/11/5/EC-22-0025.pdf","source":{"id":"https://openalex.org/S2764372638","display_name":"Endocrine Connections","issn_l":"2049-3614","issn":["2049-3614"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","norway-1","oarl","poland-100","russia-white-list-2"],"host_organization":"https://openalex.org/P4310319937","host_organization_name":"Bioscientifica","host_organization_lineage":["https://openalex.org/P4310319937"],"host_organization_lineage_names":["Bioscientifica"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Endocrine Connections","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320320300","display_name":"European Commission","ror":"https://ror.org/00k4n6c32"},{"id":"https://openalex.org/F4320337764","display_name":"Third Health Programme","ror":null}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4229035802.pdf","grobid_xml":"https://content.openalex.org/works/W4229035802.grobid-xml"},"referenced_works_count":45,"referenced_works":["https://openalex.org/W1537917412","https://openalex.org/W1750723157","https://openalex.org/W1834656833","https://openalex.org/W1931110653","https://openalex.org/W1962894711","https://openalex.org/W1965359191","https://openalex.org/W2000606801","https://openalex.org/W2021306928","https://openalex.org/W2034178732","https://openalex.org/W2045715726","https://openalex.org/W2057530495","https://openalex.org/W2071488831","https://openalex.org/W2072748044","https://openalex.org/W2079086448","https://openalex.org/W2085252463","https://openalex.org/W2107712057","https://openalex.org/W2108183811","https://openalex.org/W2108454239","https://openalex.org/W2110083800","https://openalex.org/W2116028346","https://openalex.org/W2118308858","https://openalex.org/W2121649468","https://openalex.org/W2124520267","https://openalex.org/W2129325294","https://openalex.org/W2135214680","https://openalex.org/W2137165425","https://openalex.org/W2146535708","https://openalex.org/W2147629356","https://openalex.org/W2147671724","https://openalex.org/W2150995354","https://openalex.org/W2154097820","https://openalex.org/W2156782953","https://openalex.org/W2386170543","https://openalex.org/W2460519224","https://openalex.org/W2507886807","https://openalex.org/W2511041976","https://openalex.org/W2550673660","https://openalex.org/W2789835003","https://openalex.org/W2811253497","https://openalex.org/W2937210077","https://openalex.org/W2942745420","https://openalex.org/W2946295299","https://openalex.org/W2998418934","https://openalex.org/W3006180793","https://openalex.org/W4243714145"],"related_works":["https://openalex.org/W3021441631","https://openalex.org/W2146535708","https://openalex.org/W4310596464","https://openalex.org/W4406479544","https://openalex.org/W4407910499","https://openalex.org/W7118982420","https://openalex.org/W3108173855","https://openalex.org/W1966717604","https://openalex.org/W3175059160","https://openalex.org/W7042687776"],"abstract_inverted_index":{"Introduction:":[0],"Transition":[1],"from":[2,174],"paediatric":[3,39,90,175,207],"to":[4,23,33,52,64,106,134,161,176,188,196],"adult":[5,107,124,145,177,209],"endocrinology":[6],"can":[7,50],"be":[8,186],"challenging":[9],"for":[10,46,123,143,204],"adolescents,":[11,118],"their":[12],"families":[13],"and":[14,54,58,66,100,206,208],"healthcare":[15],"professionals.":[16],"Previous":[17],"studies":[18],"have":[19,102],"shown":[20],"that":[21,158],"up":[22],"25%":[24,170],"of":[25,38,74,95,112,138,191],"young":[26,47],"adults":[27],"with":[28,76],"endocrine":[29,77,91,179],"disorders":[30],"are":[31],"lost":[32,133],"follow-up":[34,125],"after":[35],"moving":[36],"out":[37],"care.":[40,180],"This":[41],"poses":[42],"a":[43,169],"health":[44],"risk":[45],"adults,":[48],"which":[49],"lead":[51],"serious":[53],"expensive":[55],"medical":[56,72],"acute":[57],"long-term":[59],"complications.":[60],"Methods:":[61],"In":[62,136,194],"order":[63,195],"understand":[65],"prevent":[67,197],"dropout,":[68],"we":[69,200],"studied":[70],"electronic":[71],"records":[73],"patients":[75,80,205],"disorders.":[78],"These":[79],"were":[81,132],"over":[82],"15":[83],"years":[84],"old":[85],"when":[86],"they":[87],"attended":[88],"the":[89,104,110,113,141,144,153,189],"outpatient":[92],"clinic":[93],"(OPC)":[94],"our":[96,127],"hospital":[97],"in":[98,155,163],"2013-2014":[99],"should":[101],"made":[103],"transfer":[105,173],"care":[108],"at":[109],"time":[111],"study.":[114],"Results:":[115],"Of":[116,181],"387":[117],"131":[119],"had":[120,147],"an":[121],"indication":[122],"within":[126],"university":[128],"hospital.":[129],"Thirty-three":[130],"(25%)":[131],"follow-up.":[135],"24":[137],"them":[139],"(73%),":[140],"invitation":[142],"OPC":[146],"never":[148],"been":[149],"sent.":[150],"We":[151,167],"describe":[152],"failures":[154],"logistic":[156,192],"processes":[157],"eventually":[159],"led":[160],"dropout":[162,171],"these":[164,198],"patients.":[165],"Conclusion:":[166],"found":[168],"during":[172],"tertiary":[178],"all":[182],"dropouts,":[183,199],"73%":[184],"could":[185],"attributed":[187],"failure":[190],"steps.":[193],"provide":[201],"practical":[202],"recommendations":[203],"endocrinologists.":[210]},"counts_by_year":[{"year":2026,"cited_by_count":6},{"year":2025,"cited_by_count":5},{"year":2024,"cited_by_count":6},{"year":2022,"cited_by_count":2}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2022-05-08T00:00:00"}