{"id":"https://openalex.org/W4224312971","doi":"https://doi.org/10.1093/rheumatology/keac133.091","title":"P092 Patients\u2019 perceptions of glucocorticoid therapy impact on health-related quality of life during treatment for rheumatic diseases: international development of a treatment-specific patient-reported outcome measure (the Steroid PRO)","display_name":"P092 Patients\u2019 perceptions of glucocorticoid therapy impact on health-related quality of life during treatment for rheumatic diseases: international development of a treatment-specific patient-reported outcome measure (the Steroid PRO)","publication_year":2022,"publication_date":"2022-04-23","ids":{"openalex":"https://openalex.org/W4224312971","doi":"https://doi.org/10.1093/rheumatology/keac133.091"},"language":"en","primary_location":{"id":"doi:10.1093/rheumatology/keac133.091","doi":"https://doi.org/10.1093/rheumatology/keac133.091","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rheumatology/keac133.091","pdf_url":"https://academic.oup.com/rheumatology/article-pdf/61/Supplement_1/keac133.091/43436662/keac133.091.pdf","source":{"id":"https://openalex.org/S183989336","display_name":"Rheumatology","issn_l":"1462-0324","issn":["1462-0324","1462-0332"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://academic.oup.com/rheumatology/article-pdf/61/Supplement_1/keac133.091/43436662/keac133.091.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5076926043","display_name":"Susan Bridgewater","orcid":"https://orcid.org/0000-0002-3669-8426","observed_orcids":["https://orcid.org/0000-0002-3669-8426"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Susan Bridgewater","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Michael A Shepherd","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Michael A Shepherd","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043524261","display_name":"Jill Dawson","orcid":"https://orcid.org/0000-0002-2358-1333","observed_orcids":["https://orcid.org/0000-0002-2358-1333"]},"institutions":[{"id":"https://openalex.org/I40120149","display_name":"University of Oxford","ror":"https://ror.org/052gg0110","country_code":"GB","type":"education","lineage":["https://openalex.org/I40120149"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Jill Dawson","raw_affiliation_strings":["Nuffield Department of Population Health, University of Oxford, Oxford, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Nuffield Department of Population Health, University of Oxford, Oxford, UNITED KINGDOM","institution_ids":["https://openalex.org/I40120149"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104286242","display_name":"Pamela Richards","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Pamela Richards","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5012406762","display_name":"Christine A. Silverthorne","orcid":"https://orcid.org/0000-0001-8145-2305","observed_orcids":["https://orcid.org/0000-0001-8145-2305"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Christine Silverthorne","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5061915227","display_name":"Mwidimi E. Ndosi","orcid":"https://orcid.org/0000-0002-7764-3173","observed_orcids":["https://orcid.org/0000-0002-7764-3173"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Mwidimi Ndosi","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5064533463","display_name":"Celia Almeida","orcid":"https://orcid.org/0000-0001-6389-1099","observed_orcids":["https://orcid.org/0000-0001-6389-1099"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Celia Almeida","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010981769","display_name":"Rachel J Black","orcid":"https://orcid.org/0000-0001-6600-7430","observed_orcids":["https://orcid.org/0000-0001-6600-7430"]},"institutions":[{"id":"https://openalex.org/I1320133117","display_name":"Royal Adelaide Hospital","ror":"https://ror.org/00carf720","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I1320133117","https://openalex.org/I4392738059"]},{"id":"https://openalex.org/I5681781","display_name":"The University of Adelaide","ror":"https://ror.org/00892tw58","country_code":"AU","type":"education","lineage":["https://openalex.org/I4405259444","https://openalex.org/I5681781"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Rachel J Black","raw_affiliation_strings":["Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA","Rheumatology Unit, Royal Adelaide Hospital, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I5681781"]},{"raw_affiliation_string":"Rheumatology Unit, Royal Adelaide Hospital, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I1320133117"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5032520560","display_name":"Jonathan T. L. Cheah","orcid":"https://orcid.org/0000-0003-1828-7284","observed_orcids":["https://orcid.org/0000-0003-1828-7284"]},"institutions":[{"id":"https://openalex.org/I166722992","display_name":"University of Massachusetts Chan Medical School","ror":"https://ror.org/0464eyp60","country_code":"US","type":"education","lineage":["https://openalex.org/I166722992"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jonathan T. L Cheah","raw_affiliation_strings":["Department of Medicine, Division of Rheumatology, University of Massachusetts Medical School, Worcester, MA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Division of Rheumatology, University of Massachusetts Medical School, Worcester, MA","institution_ids":["https://openalex.org/I166722992"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041429657","display_name":"Emma K. Dures","orcid":"https://orcid.org/0000-0002-6674-8607","observed_orcids":["https://orcid.org/0000-0002-6674-8607"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Emma Dures","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5054254889","display_name":"Nilasha Ghosh","orcid":"https://orcid.org/0000-0002-8799-9309","observed_orcids":["https://orcid.org/0000-0002-8799-9309"]},"institutions":[{"id":"https://openalex.org/I1281539108","display_name":"Hospital for Special Surgery","ror":"https://ror.org/03zjqec80","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1281539108"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nilasha Ghosh","raw_affiliation_strings":["Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I1281539108","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5001063729","display_name":"Elizabeth A Hoon","orcid":"https://orcid.org/0000-0002-7077-7902","observed_orcids":["https://orcid.org/0000-0002-7077-7902","https://orcid.org/0009-0006-4212-5882"]},"institutions":[{"id":"https://openalex.org/I5681781","display_name":"The University of Adelaide","ror":"https://ror.org/00892tw58","country_code":"AU","type":"education","lineage":["https://openalex.org/I4405259444","https://openalex.org/I5681781"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Elizabeth A Hoon","raw_affiliation_strings":["Discipline of General Practice, The University of Adelaide, Adelaide, AUSTRALIA","School of Public Health, The University of Adelaide, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Discipline of General Practice, The University of Adelaide, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I5681781"]},{"raw_affiliation_string":"School of Public Health, The University of Adelaide, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I5681781"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049958046","display_name":"Suellen Anne Lyne","orcid":"https://orcid.org/0000-0002-9601-142X","observed_orcids":["https://orcid.org/0000-0002-9601-142X"]},"institutions":[{"id":"https://openalex.org/I5681781","display_name":"The University of Adelaide","ror":"https://ror.org/00892tw58","country_code":"AU","type":"education","lineage":["https://openalex.org/I4405259444","https://openalex.org/I5681781"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Suellen Lyne","raw_affiliation_strings":["Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I5681781"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057080481","display_name":"Iris Y. Navarro-Mill\u00e1n","orcid":"https://orcid.org/0000-0002-9540-6614","observed_orcids":["https://orcid.org/0000-0002-9540-6614"]},"institutions":[{"id":"https://openalex.org/I1281539108","display_name":"Hospital for Special Surgery","ror":"https://ror.org/03zjqec80","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1281539108"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Iris Navarro-Millan","raw_affiliation_strings":["Division of General Internal Medicine, Weill Cornell Medicine, New York, NY","Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of General Internal Medicine, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I4387153466"]},{"raw_affiliation_string":"Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I1281539108","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5080055419","display_name":"Diyu Pearce-Fisher","orcid":"https://orcid.org/0000-0002-2462-6644","observed_orcids":["https://orcid.org/0000-0002-2462-6644"]},"institutions":[{"id":"https://openalex.org/I1281539108","display_name":"Hospital for Special Surgery","ror":"https://ror.org/03zjqec80","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1281539108"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Diyu Pearce-Fisher","raw_affiliation_strings":["Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I1281539108","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065283550","display_name":"Carlee Deanne Ruediger","orcid":"https://orcid.org/0000-0002-0026-9873","observed_orcids":["https://orcid.org/0000-0002-0026-9873"]},"institutions":[{"id":"https://openalex.org/I4210099777","display_name":"Queen Elizabeth Hospital","ror":"https://ror.org/00x362k69","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I4210099777","https://openalex.org/I4392738059"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Carlee Ruediger","raw_affiliation_strings":["Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I4210099777"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036496209","display_name":"Joanna Tieu","orcid":"https://orcid.org/0000-0002-2975-176X","observed_orcids":["https://orcid.org/0000-0002-2975-176X"]},"institutions":[{"id":"https://openalex.org/I2801786986","display_name":"Lyell McEwin Hospital","ror":"https://ror.org/00pjm1054","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I2801786986"]},{"id":"https://openalex.org/I4210099777","display_name":"Queen Elizabeth Hospital","ror":"https://ror.org/00x362k69","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I4210099777","https://openalex.org/I4392738059"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Joanna Tieu","raw_affiliation_strings":["Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA","Rheumatology Unit, Lyell McEwin Hospital, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I4210099777"]},{"raw_affiliation_string":"Rheumatology Unit, Lyell McEwin Hospital, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I2801786986"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046447343","display_name":"Kevin Hak-Kong Yip","orcid":"https://orcid.org/0000-0003-4011-6238","observed_orcids":["https://orcid.org/0000-0003-4011-6238"]},"institutions":[{"id":"https://openalex.org/I1281539108","display_name":"Hospital for Special Surgery","ror":"https://ror.org/03zjqec80","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1281539108"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kevin Yip","raw_affiliation_strings":["Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I1281539108","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5107303443","display_name":"Sarah Louise Mackie","orcid":"https://orcid.org/0000-0003-2483-5873","observed_orcids":["https://orcid.org/0000-0003-2483-5873"]},"institutions":[{"id":"https://openalex.org/I130828816","display_name":"University of Leeds","ror":"https://ror.org/024mrxd33","country_code":"GB","type":"education","lineage":["https://openalex.org/I130828816"]},{"id":"https://openalex.org/I2799390153","display_name":"Leeds Teaching Hospitals NHS Trust","ror":"https://ror.org/00v4dac24","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2799390153"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Sarah Mackie","raw_affiliation_strings":["Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UNITED KINGDOM","Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UNITED KINGDOM","institution_ids":["https://openalex.org/I130828816"]},{"raw_affiliation_string":"Leeds Biomedical Research Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UNITED KINGDOM","institution_ids":["https://openalex.org/I2799390153"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031670645","display_name":"Susan M. Goodman","orcid":"https://orcid.org/0000-0003-1197-7864","observed_orcids":["https://orcid.org/0000-0003-1197-7864"]},"institutions":[{"id":"https://openalex.org/I1281539108","display_name":"Hospital for Special Surgery","ror":"https://ror.org/03zjqec80","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1281539108"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Susan Goodman","raw_affiliation_strings":["Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Rheumatology, Hospital for Special Surgery, Weill Cornell Medicine, New York, NY","institution_ids":["https://openalex.org/I1281539108","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026779492","display_name":"Catherine Louise Hill","orcid":"https://orcid.org/0000-0001-8289-4922","observed_orcids":["https://orcid.org/0000-0001-8289-4922","https://orcid.org/0000-0002-0004-0905"]},"institutions":[{"id":"https://openalex.org/I4210099777","display_name":"Queen Elizabeth Hospital","ror":"https://ror.org/00x362k69","country_code":"AU","type":"healthcare","lineage":["https://openalex.org/I4210099777","https://openalex.org/I4392738059"]},{"id":"https://openalex.org/I5681781","display_name":"The University of Adelaide","ror":"https://ror.org/00892tw58","country_code":"AU","type":"education","lineage":["https://openalex.org/I4405259444","https://openalex.org/I5681781"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Catherine Hill","raw_affiliation_strings":["Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA","Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Rheumatology, The Queen Elizabeth Hospital, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I4210099777"]},{"raw_affiliation_string":"Discipline of Medicine, The University of Adelaide, Adelaide, AUSTRALIA","institution_ids":["https://openalex.org/I5681781"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5039111169","display_name":"Joanna C Robson","orcid":"https://orcid.org/0000-0002-7939-5978","observed_orcids":["https://orcid.org/0000-0002-7939-5978"]},"institutions":[{"id":"https://openalex.org/I178535277","display_name":"University of the West of England","ror":"https://ror.org/02nwg5t34","country_code":"GB","type":"education","lineage":["https://openalex.org/I178535277"]},{"id":"https://openalex.org/I4392738148","display_name":"University Hospitals Bristol and Weston NHS Foundation Trust","ror":"https://ror.org/03jzzxg14","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4392738148","https://openalex.org/I4405276282"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Joanna C Robson","raw_affiliation_strings":["Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I4392738148"]},{"raw_affiliation_string":"Faculty of Health and Applied Sciences, University of the West of England - UWE Bristol, Bristol, UNITED KINGDOM","institution_ids":["https://openalex.org/I178535277"]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":12,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3192,"currency":"GBP","value_usd":3949},"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"61","issue":"Supplement_1","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10200","display_name":"Rheumatoid Arthritis Research and Therapies","score":0.9672999978065491,"subfield":{"id":"https://openalex.org/subfields/2745","display_name":"Rheumatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10200","display_name":"Rheumatoid Arthritis Research and Therapies","score":0.9672999978065491,"subfield":{"id":"https://openalex.org/subfields/2745","display_name":"Rheumatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12421","display_name":"Adrenal Hormones and Disorders","score":0.004999999888241291,"subfield":{"id":"https://openalex.org/subfields/2712","display_name":"Endocrinology, Diabetes and Metabolism"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.0044999998062849045,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/glucocorticoid-therapy","display_name":"glucocorticoid therapy","score":0.8849999904632568},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9900000095367432},{"id":"https://openalex.org/keywords/rheumatic-diseases","display_name":"rheumatic diseases","score":0.8579999804496765},{"id":"https://openalex.org/keywords/patient-reported-outcome-measures","display_name":"patient-reported outcome measures","score":0.8980000019073486},{"id":"https://openalex.org/keywords/adverse-effects-of-steroids","display_name":"adverse effects of steroids","score":0.7310000061988831},{"id":"https://openalex.org/keywords/somatic-symptoms","display_name":"somatic symptoms","score":0.847000002861023},{"id":"https://openalex.org/keywords/patient-participation","display_name":"patient participation","score":0.4339999854564667},{"id":"https://openalex.org/keywords/cognitive-interviewing","display_name":"cognitive interviewing","score":0.6150000095367432},{"id":"https://openalex.org/keywords/questionnaire-development","display_name":"questionnaire development","score":0.6589999794960022},{"id":"https://openalex.org/keywords/patient-research-partners","display_name":"patient research partners","score":0.781000018119812},{"id":"https://openalex.org/keywords/international-development","display_name":"international development","score":0.35100001096725464},{"id":"https://openalex.org/keywords/language-assessment","display_name":"language assessment","score":0.36500000953674316},{"id":"https://openalex.org/keywords/translatability","display_name":"translatability","score":0.6420000195503235},{"id":"https://openalex.org/keywords/conceptual-framework","display_name":"conceptual framework","score":0.5400000214576721},{"id":"https://openalex.org/keywords/inflammatory-rheumatic-diseases","display_name":"inflammatory rheumatic diseases","score":0.6140000224113464}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7859631776809692},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.658155083656311},{"id":"https://openalex.org/C2777364248","wikidata":"https://www.wikidata.org/wiki/Q1150737","display_name":"Prom","level":2,"score":0.5802721381187439},{"id":"https://openalex.org/C100363876","wikidata":"https://www.wikidata.org/wiki/Q690661","display_name":"Nonprobability sampling","level":3,"score":0.5174984931945801},{"id":"https://openalex.org/C75969862","wikidata":"https://www.wikidata.org/wiki/Q5141215","display_name":"Cognitive interview","level":3,"score":0.505424976348877},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5014386177062988},{"id":"https://openalex.org/C24845683","wikidata":"https://www.wikidata.org/wiki/Q178651","display_name":"Interview","level":2,"score":0.49641257524490356},{"id":"https://openalex.org/C2779517570","wikidata":"https://www.wikidata.org/wiki/Q7144954","display_name":"Patient-reported outcome","level":3,"score":0.45300260186195374},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.45284923911094666},{"id":"https://openalex.org/C535046627","wikidata":"https://www.wikidata.org/wiki/Q30612","display_name":"Clinical trial","level":2,"score":0.41151219606399536},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.35271045565605164},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3481920063495636},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.3135615885257721},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.2607865333557129},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.17059218883514404},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.1423274278640747},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.12480783462524414},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C131872663","wikidata":"https://www.wikidata.org/wiki/Q5284418","display_name":"Obstetrics","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1093/rheumatology/keac133.091","doi":"https://doi.org/10.1093/rheumatology/keac133.091","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rheumatology/keac133.091","pdf_url":"https://academic.oup.com/rheumatology/article-pdf/61/Supplement_1/keac133.091/43436662/keac133.091.pdf","source":{"id":"https://openalex.org/S183989336","display_name":"Rheumatology","issn_l":"1462-0324","issn":["1462-0324","1462-0332"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1093/rheumatology/keac133.091","doi":"https://doi.org/10.1093/rheumatology/keac133.091","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rheumatology/keac133.091","pdf_url":"https://academic.oup.com/rheumatology/article-pdf/61/Supplement_1/keac133.091/43436662/keac133.091.pdf","source":{"id":"https://openalex.org/S183989336","display_name":"Rheumatology","issn_l":"1462-0324","issn":["1462-0324","1462-0332"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4224312971.pdf","grobid_xml":"https://content.openalex.org/works/W4224312971.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4318156468","https://openalex.org/W4321851555","https://openalex.org/W4290994049","https://openalex.org/W3165271678","https://openalex.org/W4379522377","https://openalex.org/W4407150469","https://openalex.org/W4366832319","https://openalex.org/W3041781660","https://openalex.org/W4388563716","https://openalex.org/W4399483108"],"abstract_inverted_index":{"Abstract":[0],"Background/Aims":[1],"Glucocorticoids":[2],"(GCs)":[3],"are":[4],"widely":[5],"used":[6,62,140],"to":[7,21,31,60,92,133,141,229,234,307,345],"treat":[8],"inflammatory":[9],"rheumatic":[10,47,88,294,330],"diseases.":[11,331],"GCs":[12,80,237],"carry":[13],"a":[14,50,55,87,143,291,303,309,324],"range":[15,144,292],"of":[16,19,27,35,41,54,102,129,145,244,252,255,285,293,320],"adverse":[17],"effects":[18],"concern":[20],"patients":[22,289,328],"and":[23,66,74,107,118,123,126,147,157,163,170,177,214,238,259,275,300,302,354],"clinicians.":[24],"The":[25,150,223,332],"objective":[26],"this":[28],"study":[29,316],"was":[30,139,205],"explore":[32],"the":[33,71,82,269,297,318,347],"impact":[34,240,251,254],"GC":[36,215],"therapy":[37],"on":[38,241,257,260],"health-related":[39],"quality":[40],"life":[42],"(HRQoL)":[43],"during":[44],"treatment":[45,134,235],"for":[46,52,86,323,327,338],"diseases,":[48],"as":[49],"basis":[51],"development":[53,319],"patient-reported":[56],"outcome":[57],"measure":[58],"(PROM)":[59],"be":[61],"in":[63,81,95,131,220,340],"clinical":[64],"trials":[65],"practice.":[67],"Methods":[68],"Patients":[69],"from":[70,179,268,296],"UK,":[72,298],"USA":[73,194,299],"Australia":[75,198],"who":[76],"were":[77,90,153,168,188,210,227,266,273],"treated":[78],"with":[79,135,279,288,290,329],"last":[83],"two":[84],"years":[85],"condition":[89],"invited":[91],"take":[93],"part":[94],"semi-structured":[96,185],"qualitative":[97,186,315],"interviews.":[98],"A":[99],"steering":[100],"committee":[101],"patient":[103,180,280],"research":[104,181,281],"partners,":[105,282],"clinicians":[106],"methodologists":[108],"devised":[109],"an":[110,341],"initial":[111,161,225],"conceptual":[112],"framework,":[113],"which":[114],"informed":[115],"interview":[116,151],"prompts":[117],"cues.":[119],"Interviews":[120],"identified":[121,160],"physical":[122,246],"psychological":[124,248,250],"symptoms":[125],"salient":[127],"aspects":[128],"HRQoL":[130],"relation":[132],"GCs.":[136],"Purposive":[137],"sampling":[138],"include":[142],"demographic":[146,213],"disease":[148],"features.":[149],"data":[152],"organised":[154],"using":[155,172,236],"NVivo,":[156],"inductive":[158],"analysis":[159],"themes":[162,232],"domains.":[164],"Candidate":[165],"questionnaire":[166,264,334],"items":[167,265,322],"developed":[169,228,267],"refined":[171,276],"cognitive":[173,286],"interviewing,":[174],"linguistic":[175,304],"assessment,":[176,306],"input":[178],"partners.":[182],"Results":[183],"Sixty":[184],"interviews":[187,287],"conducted":[189],"(UK":[190],"n":[191,195,199],"=":[192,196,200],"34,":[193],"10,":[197],"16).":[201],"Mean":[202],"participant":[203],"age":[204],"58":[206],"years;":[207],"39":[208],"(66.1%)":[209],"female.":[211],"Detailed":[212],"use":[216],"information":[217],"is":[218,335],"provided":[219],"Table":[221],"1.":[222],"following":[224],"domains":[226],"identify":[230],"key":[231],"relating":[233],"their":[239],"HRQoL:":[242],"benefits":[243],"steroids;":[245,253],"symptoms;":[247,249],"steroids":[256],"participation":[258],"relationships.":[261],"Forty-one":[262],"candidate":[263,321],"individual":[270],"themes.":[271],"These":[272],"tested":[274],"by":[277],"piloting":[278],"iterative":[283],"rounds":[284],"conditions":[295],"Australia,":[301],"translatability":[305],"define":[308],"draft":[310,333],"questionnaire.":[311],"Conclusion":[312],"This":[313],"international":[314],"underpins":[317],"treatment-specific":[325],"PROM":[326],"now":[336],"ready":[337],"testing":[339],"online":[342],"large-scale":[343],"survey":[344],"determine":[346],"final":[348],"scale":[349],"structure,":[350],"possible":[351],"item":[352],"reduction,":[353],"measurement":[355],"properties.":[356],"Disclosure":[357],"S.":[358,394,412,415],"Bridgewater:":[359],"None.":[360,363,366,369,372,375,378,381,384,387,390,393,396,399,402,405,408,411,414,417,420,423],"M.A.":[361],"Shepherd:":[362],"J.":[364,406],"Dawson:":[365],"P.":[367],"Richards:":[368],"C.":[370,376,403,418],"Silverthorne:":[371],"M.":[373],"Ndosi:":[374],"Almeida:":[377],"R.J.":[379],"Black:":[380],"J.T.L.":[382],"Cheah:":[383],"E.":[385],"Dures:":[386],"N.":[388],"Ghosh:":[389],"E.A.":[391],"Hoon:":[392],"Lyne:":[395],"I.":[397],"Navarro-Millan:":[398],"D.":[400],"Pearce-Fisher:":[401],"Ruediger:":[404],"Tieu:":[407],"K.":[409],"Yip:":[410],"Mackie:":[413],"Goodman:":[416],"Hill:":[419],"J.C.":[421],"Robson:":[422]},"counts_by_year":[],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2022-04-26T00:00:00"}