{"id":"https://openalex.org/W4200464475","doi":"https://doi.org/10.1177/14034948211059974","title":"Validity of chronic disease diagnoses in Icelandic healthcare registries","display_name":"Validity of chronic disease diagnoses in Icelandic healthcare registries","publication_year":2021,"publication_date":"2021-12-13","ids":{"openalex":"https://openalex.org/W4200464475","doi":"https://doi.org/10.1177/14034948211059974","pmid":"https://pubmed.ncbi.nlm.nih.gov/34903105"},"language":"en","primary_location":{"id":"doi:10.1177/14034948211059974","doi":"https://doi.org/10.1177/14034948211059974","is_oa":false,"landing_page_url":"https://doi.org/10.1177/14034948211059974","pdf_url":null,"source":{"id":"https://openalex.org/S163542868","display_name":"Scandinavian Journal of Public Health","issn_l":"1403-4948","issn":["1403-4948","1651-1905"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Public Health","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5070336544","display_name":"S\u00e6mundur R\u00f6gnvaldsson","orcid":"https://orcid.org/0000-0003-2162-8414","observed_orcids":["https://orcid.org/0000-0003-2162-8414"]},"institutions":[{"id":"https://openalex.org/I165368041","display_name":"University of Iceland","ror":"https://ror.org/01db6h964","country_code":"IS","type":"education","lineage":["https://openalex.org/I165368041"]}],"countries":["IS"],"is_corresponding":true,"raw_author_name":"S\u00e6mundur R\u00f6gnvaldsson","raw_affiliation_strings":["Faculty of Medicine, University of Iceland, Iceland"],"raw_orcid":"https://orcid.org/0000-0003-2162-8414","affiliations":[{"raw_affiliation_string":"Faculty of Medicine, University of Iceland, Iceland","institution_ids":["https://openalex.org/I165368041"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027791266","display_name":"Thorir Einarsson Long","orcid":"https://orcid.org/0000-0003-2377-7886","observed_orcids":["https://orcid.org/0000-0003-2377-7886"]},"institutions":[{"id":"https://openalex.org/I165368041","display_name":"University of Iceland","ror":"https://ror.org/01db6h964","country_code":"IS","type":"education","lineage":["https://openalex.org/I165368041"]},{"id":"https://openalex.org/I4210137844","display_name":"Sk\u00e5ne University Hospital","ror":"https://ror.org/02z31g829","country_code":"SE","type":"healthcare","lineage":["https://openalex.org/I4210137844"]}],"countries":["IS","SE"],"is_corresponding":false,"raw_author_name":"Thorir Einarsson Long","raw_affiliation_strings":["Department of Nephrology, Lund University Hospital, Sweden","Faculty of Medicine, University of Iceland, Iceland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Nephrology, Lund University Hospital, Sweden","institution_ids":["https://openalex.org/I4210137844"]},{"raw_affiliation_string":"Faculty of Medicine, University of Iceland, Iceland","institution_ids":["https://openalex.org/I165368041"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066124507","display_name":"Sigr\u00fan \u00deorsteinsd\u00f3ttir","orcid":"https://orcid.org/0000-0001-5017-3530","observed_orcids":["https://orcid.org/0000-0001-5017-3530","https://orcid.org/0000-0001-8412-7049"]},"institutions":[{"id":"https://openalex.org/I165368041","display_name":"University of Iceland","ror":"https://ror.org/01db6h964","country_code":"IS","type":"education","lineage":["https://openalex.org/I165368041"]},{"id":"https://openalex.org/I2802709434","display_name":"Rigshospitalet","ror":"https://ror.org/03mchdq19","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I2802567020","https://openalex.org/I2802709434","https://openalex.org/I4210145385"]}],"countries":["DK","IS"],"is_corresponding":false,"raw_author_name":"Sigrun Thorsteinsdottir","raw_affiliation_strings":["Department of Haematology, Rigshospitalet, Denmark","Faculty of Medicine, University of Iceland, Iceland"],"raw_orcid":"https://orcid.org/0000-0001-5017-3530","affiliations":[{"raw_affiliation_string":"Department of Haematology, Rigshospitalet, Denmark","institution_ids":["https://openalex.org/I2802709434"]},{"raw_affiliation_string":"Faculty of Medicine, University of Iceland, Iceland","institution_ids":["https://openalex.org/I165368041"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5078223163","display_name":"\u00deorvar\u00f0ur J\u00f3n L\u00f6ve","orcid":"https://orcid.org/0000-0002-2680-6120","observed_orcids":["https://orcid.org/0000-0002-2680-6120"]},"institutions":[{"id":"https://openalex.org/I165368041","display_name":"University of Iceland","ror":"https://ror.org/01db6h964","country_code":"IS","type":"education","lineage":["https://openalex.org/I165368041"]},{"id":"https://openalex.org/I4210106610","display_name":"National University Hospital of Iceland","ror":"https://ror.org/011k7k191","country_code":"IS","type":"funder","lineage":["https://openalex.org/I4210106610"]}],"countries":["IS"],"is_corresponding":false,"raw_author_name":"Thorvardur Jon Love","raw_affiliation_strings":["Department of Science and Research, Landspitali University Hospital, Iceland","Faculty of Medicine, University of Iceland, Iceland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Science and Research, Landspitali University Hospital, Iceland","institution_ids":["https://openalex.org/I4210106610"]},{"raw_affiliation_string":"Faculty of Medicine, University of Iceland, Iceland","institution_ids":["https://openalex.org/I165368041"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5001522697","display_name":"Sigurdur Yngvi Kristinsson","orcid":"https://orcid.org/0000-0002-4964-7476","observed_orcids":["https://orcid.org/0000-0002-4964-7476"]},"institutions":[{"id":"https://openalex.org/I165368041","display_name":"University of Iceland","ror":"https://ror.org/01db6h964","country_code":"IS","type":"education","lineage":["https://openalex.org/I165368041"]},{"id":"https://openalex.org/I4210106610","display_name":"National University Hospital of Iceland","ror":"https://ror.org/011k7k191","country_code":"IS","type":"funder","lineage":["https://openalex.org/I4210106610"]}],"countries":["IS"],"is_corresponding":false,"raw_author_name":"Sigur\u00f0ur Yngvi Kristinsson","raw_affiliation_strings":["Department of Haematology, Landsp\u00edtali University Hospital, Iceland","Faculty of Medicine, University of Iceland, Iceland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Haematology, Landsp\u00edtali University Hospital, Iceland","institution_ids":["https://openalex.org/I4210106610"]},{"raw_affiliation_string":"Faculty of Medicine, University of Iceland, Iceland","institution_ids":["https://openalex.org/I165368041"]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5070336544"],"corresponding_institution_ids":["https://openalex.org/I165368041"],"apc_list":{"value":3000,"currency":"USD","value_usd":3000},"apc_paid":null,"fwci":1.4598,"has_fulltext":false,"cited_by_count":12,"citation_normalized_percentile":{"value":0.83833133,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":97},"biblio":{"volume":"51","issue":"2","first_page":"173","last_page":"178"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.9926999807357788,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.9926999807357788,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.00570000009611249,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/registry-validity","display_name":"registry validity","score":0.5839999914169312},{"id":"https://openalex.org/keywords/diagnostic-accuracy","display_name":"diagnostic accuracy","score":0.6150000095367432},{"id":"https://openalex.org/keywords/positive-predictive-value","display_name":"positive predictive value","score":0.9390000104904175},{"id":"https://openalex.org/keywords/negative-predictive-value","display_name":"negative predictive value","score":0.9990000128746033},{"id":"https://openalex.org/keywords/multiple-sclerosis","display_name":"multiple sclerosis","score":0.7770000100135803},{"id":"https://openalex.org/keywords/hypertension","display_name":"hypertension","score":0.9900000095367432},{"id":"https://openalex.org/keywords/heart-failure","display_name":"heart failure","score":0.9990000128746033},{"id":"https://openalex.org/keywords/medical-record-review","display_name":"medical records review","score":0.5320000052452087}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8251262903213501},{"id":"https://openalex.org/C534262118","wikidata":"https://www.wikidata.org/wiki/Q177719","display_name":"Medical diagnosis","level":2,"score":0.7514008283615112},{"id":"https://openalex.org/C2776957530","wikidata":"https://www.wikidata.org/wiki/Q294","display_name":"Icelandic","level":2,"score":0.6611812710762024},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.5295677781105042},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5257219672203064},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.4441310465335846},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.40541815757751465},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.17047551274299622},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007055","descriptor_name":"Iceland","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011237","descriptor_name":"Predictive Value of Tests","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D038801","descriptor_name":"International Classification of Diseases","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1177/14034948211059974","doi":"https://doi.org/10.1177/14034948211059974","is_oa":false,"landing_page_url":"https://doi.org/10.1177/14034948211059974","pdf_url":null,"source":{"id":"https://openalex.org/S163542868","display_name":"Scandinavian Journal of Public Health","issn_l":"1403-4948","issn":["1403-4948","1651-1905"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Public Health","raw_type":"journal-article"},{"id":"pmid:34903105","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34903105","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian journal of public health","raw_type":"Journal Article"},{"id":"pmh:oai:www.hirsla.lsh.is:2336/622070","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/2336/622070","pdf_url":null,"source":{"id":"https://openalex.org/S4306401083","display_name":"Hirsla (Landsp\u00edtali University Hospital)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210106610","host_organization_name":"National University Hospital of Iceland","host_organization_lineage":["https://openalex.org/I4210106610"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Scandinavian journal of public health","raw_type":"Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320307607","display_name":"International Myeloma Foundation","ror":"https://ror.org/05qmfyw56"},{"id":"https://openalex.org/F4320334678","display_name":"European Research Council","ror":"https://ror.org/0472cxd90"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":19,"referenced_works":["https://openalex.org/W134923470","https://openalex.org/W1852995168","https://openalex.org/W1969606544","https://openalex.org/W1991016920","https://openalex.org/W2010001501","https://openalex.org/W2070692648","https://openalex.org/W2093274439","https://openalex.org/W2122231459","https://openalex.org/W2166018731","https://openalex.org/W2219591537","https://openalex.org/W2325040893","https://openalex.org/W2582743722","https://openalex.org/W2750674138","https://openalex.org/W2889017266","https://openalex.org/W2944434778","https://openalex.org/W2990427812","https://openalex.org/W3002677359","https://openalex.org/W3126689484","https://openalex.org/W3160548038"],"related_works":["https://openalex.org/W2142058988","https://openalex.org/W1970352170","https://openalex.org/W4307385597","https://openalex.org/W4408922357","https://openalex.org/W2551469077","https://openalex.org/W2128810561","https://openalex.org/W2145320470","https://openalex.org/W2062937568","https://openalex.org/W2076560980","https://openalex.org/W3031805645"],"abstract_inverted_index":{"Aims:":[0],"To":[1],"evaluate":[2],"the":[3,47,57,64,87,109,132,154,189,205,213,243,251],"validity":[4],"of":[5,22,63,86,122,168,196,200,207,245],"recorded":[6,41],"chronic":[7,17,88,123,191,208],"disease":[8,89,107,124,192,197],"diagnoses":[9,90,226],"in":[10,56,147,198],"Icelandic":[11,65,214,252],"healthcare":[12,215,253],"registries.":[13,254],"Methods:":[14],"Eight":[15],"different":[16],"diseases":[18],"from":[19,53,97,212,250],"multiple":[20,151],"sub-specialties":[21],"medicine":[23],"were":[24,50,144],"validated":[25,73],"with":[26,39],"respect":[27],"to":[28,32,99,113],"accuracy,":[29],"but":[30],"not":[31],"timeliness.":[33],"For":[34],"each":[35],"disease,":[36,209],"30":[37,44],"patients":[38,45],"a":[40,218],"diagnosis":[42,49,125,210],"and":[43,131,164,176,183,222],"without":[46],"same":[48],"randomly":[51],"selected":[52],">80,000":[54],"participants":[55],"iStopMM":[58],"trial,":[59],"which":[60],"includes":[61],"54%":[62],"population":[66],"born":[67],"before":[68],"1976.":[69],"Each":[70],"case":[71],"was":[72,91,111,126,138,156,171,181],"by":[74,77,230],"chart":[75],"review":[76],"physicians":[78],"using":[79,247],"predefined":[80],"criteria.":[81],"Results:":[82],"The":[83,116,166],"overall":[84,117,133],"accuracy":[85,110],"96%":[92,199],"(95%":[93,128,140],"CI":[94,129,141],"94\u201397%),":[95],"ranging":[96],"92":[98],"98%":[100],"for":[101,106,174],"individual":[102],"diseases.":[103],"After":[104],"weighting":[105],"prevalence,":[108],"estimated":[112],"be":[114,228],"98.5%.":[115],"positive":[118],"predictive":[119,135],"value":[120,136],"(PPV)":[121],"93%":[127],"89\u201396%)":[130],"negative":[134],"(NPV)":[137],"99%":[139],"96\u2013100%).":[142],"There":[143],"disease-specific":[145],"differences":[146],"validity,":[148],"most":[149,169,225],"notably":[150],"sclerosis,":[152],"where":[153,179],"PPV":[155],"83%.":[157],"Other":[158],"disorders":[159,170],"had":[160,188,193],"PPVs":[161],"between":[162],"93":[163],"97%.":[165],"NPV":[167,221],"100%,":[172],"except":[173],"hypertension":[175],"heart":[177],"failure,":[178],"it":[180],"97":[182],"93%,":[184],"respectively.":[185],"Those":[186],"who":[187],"registered":[190],"objective":[194,231],"findings":[195,232,240],"cases.":[201],"Conclusions:":[202],"When":[203],"determining":[204],"presence":[206],"data":[211,249],"registries":[216],"has":[217],"high":[219],"PPV,":[220],"accuracy.":[223],"Furthermore,":[224],"can":[227,241],"confirmed":[229],"such":[233],"as":[234],"imaging":[235],"or":[236],"blood":[237],"testing.":[238],"These":[239],"inform":[242],"interpretation":[244],"studies":[246],"diagnostic":[248]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":3}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2021-12-31T00:00:00"}