{"id":"https://openalex.org/W37476997","doi":"https://doi.org/10.1161/circoutcomes.122.009834","title":"Illness Perception and the Impact of a Definitive Diagnosis on Women With Ischemia and No Obstructive Coronary Artery Disease: A Qualitative Study","display_name":"Illness Perception and the Impact of a Definitive Diagnosis on Women With Ischemia and No Obstructive Coronary Artery Disease: A Qualitative Study","publication_year":2023,"publication_date":"2023-07-21","ids":{"openalex":"https://openalex.org/W37476997","doi":"https://doi.org/10.1161/circoutcomes.122.009834","mag":"37476997","pmid":"https://pubmed.ncbi.nlm.nih.gov/37476997"},"language":"en","primary_location":{"id":"doi:10.1161/circoutcomes.122.009834","doi":"https://doi.org/10.1161/circoutcomes.122.009834","is_oa":false,"landing_page_url":"https://doi.org/10.1161/circoutcomes.122.009834","pdf_url":null,"source":{"id":"https://openalex.org/S52278559","display_name":"Circulation Cardiovascular Quality and Outcomes","issn_l":"1941-7705","issn":["1941-7705","1941-7713"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","norway-1","poland-100","russia-white-list-1"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation: Cardiovascular Quality and Outcomes","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Leslie Yingzhijie Tseng","orcid":"https://orcid.org/0000-0002-5753-2046","observed_orcids":["https://orcid.org/0000-0002-5753-2046"]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Leslie Yingzhijie Tseng","raw_affiliation_strings":["Yale School of Medicine, New Haven, CT (L.Y.T.)"],"raw_orcid":"https://orcid.org/0000-0002-5753-2046","affiliations":[{"raw_affiliation_string":"Yale School of Medicine, New Haven, CT (L.Y.T.)","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":null,"display_name":"N\u00fckte G\u00f6\u00e7","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"N\u00fckte G\u00f6\u00e7","raw_affiliation_strings":["Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Alexandra N. Schwann","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alexandra N. Schwann","raw_affiliation_strings":["Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Emily J. Cherlin","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Emily J. Cherlin","raw_affiliation_strings":["Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Steffne J. Kunnirickal","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Steffne J. Kunnirickal","raw_affiliation_strings":["Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5008044162","display_name":"Natalija R. Odanovic","orcid":"https://orcid.org/0000-0003-0343-6195","observed_orcids":["https://orcid.org/0000-0003-0343-6195"]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]},{"id":"https://openalex.org/I4210107166","display_name":"Institut za kardiovaskularne bolesti Dedinje","ror":"https://ror.org/01k57xn28","country_code":"RS","type":"healthcare","lineage":["https://openalex.org/I4210107166"]}],"countries":["RS","US"],"is_corresponding":false,"raw_author_name":"Natalija Odanovic","raw_affiliation_strings":["Institute for Cardiovascular Diseases \u201cDedinje,\u201d Belgrade, Serbia (N.O.)","Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)"],"raw_orcid":"https://orcid.org/0000-0003-0343-6195","affiliations":[{"raw_affiliation_string":"Institute for Cardiovascular Diseases \u201cDedinje,\u201d Belgrade, Serbia (N.O.)","institution_ids":["https://openalex.org/I4210107166"]},{"raw_affiliation_string":"Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Leslie A. Curry","orcid":"https://orcid.org/0000-0002-3419-4654","observed_orcids":["https://orcid.org/0000-0002-3419-4654"]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Leslie A. Curry","raw_affiliation_strings":["Department of Health Policy and Management, Yale School of Public Health, New Haven, CT (L.A.C.)","Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT"],"raw_orcid":"https://orcid.org/0000-0002-3419-4654","affiliations":[{"raw_affiliation_string":"Department of Health Policy and Management, Yale School of Public Health, New Haven, CT (L.A.C.)","institution_ids":["https://openalex.org/I32971472"]},{"raw_affiliation_string":"Global Health Leadership Initiative (N.G., E.J.C., L.A.C.), Yale School of Public Health, New Haven, CT","institution_ids":["https://openalex.org/I32971472"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077171865","display_name":"Samit Shah","orcid":"https://orcid.org/0000-0002-3664-4102","observed_orcids":["https://orcid.org/0000-0002-3664-4102"]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]},{"id":"https://openalex.org/I4210086971","display_name":"VA Connecticut Healthcare System","ror":"https://ror.org/000rgm762","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1322918889","https://openalex.org/I2799886695","https://openalex.org/I4210086971","https://openalex.org/I4210095851"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Samit M. Shah","raw_affiliation_strings":["Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","Veterans Affairs Connecticut Healthcare System, West Haven (S.M.S.)"],"raw_orcid":"https://orcid.org/0000-0002-3664-4102","affiliations":[{"raw_affiliation_string":"Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","institution_ids":["https://openalex.org/I32971472"]},{"raw_affiliation_string":"Veterans Affairs Connecticut Healthcare System, West Haven (S.M.S.)","institution_ids":["https://openalex.org/I4210086971"]}]},{"author_position":"last","author":{"id":null,"display_name":"Erica S. Spatz","orcid":"https://orcid.org/0000-0002-1557-7713","observed_orcids":["https://orcid.org/0000-0002-1557-7713"]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]},{"id":"https://openalex.org/I4210117499","display_name":"Yale New Haven Health System","ror":"https://ror.org/01s1hsq14","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210117499"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Erica S. Spatz","raw_affiliation_strings":["Center for Outcomes Research and Evaluation, Yale-New Haven Health System, CT (E.S.S.)","Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)"],"raw_orcid":"https://orcid.org/0000-0002-1557-7713","affiliations":[{"raw_affiliation_string":"Center for Outcomes Research and Evaluation, Yale-New Haven Health System, CT (E.S.S.)","institution_ids":["https://openalex.org/I4210117499"]},{"raw_affiliation_string":"Section of Cardiovascular Medicine, Yale School of Medicine, New Haven, CT (A.N.S., S.J.K., N.O., S.M.S., E.S.S.)","institution_ids":["https://openalex.org/I32971472"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I32971472"],"apc_list":null,"apc_paid":null,"fwci":2.6887,"has_fulltext":true,"cited_by_count":17,"citation_normalized_percentile":{"value":0.89973582,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"16","issue":"8","first_page":"521","last_page":"529"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10372","display_name":"Cardiac Imaging and Diagnostics","score":0.8080999851226807,"subfield":{"id":"https://openalex.org/subfields/2741","display_name":"Radiology, Nuclear Medicine and Imaging"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10372","display_name":"Cardiac Imaging and Diagnostics","score":0.8080999851226807,"subfield":{"id":"https://openalex.org/subfields/2741","display_name":"Radiology, Nuclear Medicine and Imaging"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.05270000174641609,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11334","display_name":"Psychosomatic Disorders and Their Treatments","score":0.04919999837875366,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/inoca","display_name":"INOCA","score":0.777999997138977},{"id":"https://openalex.org/keywords/women","display_name":"women","score":0.7099999785423279},{"id":"https://openalex.org/keywords/illness-perception","display_name":"illness perception","score":0.9610000252723694},{"id":"https://openalex.org/keywords/diagnostic-uncertainty","display_name":"diagnostic uncertainty","score":0.5080000162124634},{"id":"https://openalex.org/keywords/invasive-coronary-angiography","display_name":"invasive coronary angiography","score":0.8389999866485596},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.703000009059906},{"id":"https://openalex.org/keywords/healthcare-interactions","display_name":"healthcare interactions","score":0.43799999356269836},{"id":"https://openalex.org/keywords/therapeutic-relationship","display_name":"therapeutic relationship","score":0.8629999756813049},{"id":"https://openalex.org/keywords/self-advocacy","display_name":"self-advocacy","score":0.753000020980835},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.7820000052452087},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.6309999823570251}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.27305352687835693}],"mesh":[{"descriptor_ui":"D003324","descriptor_name":"Coronary Artery Disease","qualifier_ui":"Q000000981","qualifier_name":"diagnostic imaging","is_major_topic":true},{"descriptor_ui":"D003324","descriptor_name":"Coronary Artery Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007511","descriptor_name":"Ischemia","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010465","descriptor_name":"Perception","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017202","descriptor_name":"Myocardial Ischemia","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1161/circoutcomes.122.009834","doi":"https://doi.org/10.1161/circoutcomes.122.009834","is_oa":false,"landing_page_url":"https://doi.org/10.1161/circoutcomes.122.009834","pdf_url":null,"source":{"id":"https://openalex.org/S52278559","display_name":"Circulation Cardiovascular Quality and Outcomes","issn_l":"1941-7705","issn":["1941-7705","1941-7713"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","norway-1","poland-100","russia-white-list-1"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation: Cardiovascular Quality and Outcomes","raw_type":"journal-article"},{"id":"pmid:37476997","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/37476997","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Circulation. Cardiovascular quality and outcomes","raw_type":"Journal Article"},{"id":"mag:37476997","doi":null,"is_oa":false,"landing_page_url":"http://ci.nii.ac.jp/naid/110006209390","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9940000176429749},{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.5676000118255615}],"study_designs":[],"awards":[{"id":"https://openalex.org/G1109338193","display_name":"An Unobtrusive Continuous Cuff-less Blood Pressure Monitor for Nocturnal Hypertension","funder_award_id":"R01HL151240","funder_id":"https://openalex.org/F4320337338","funder_display_name":"National Heart, Lung, and Blood Institute"},{"id":"https://openalex.org/G1526948238","display_name":"SCH: INT: A Context-aware Cuff-less Wearable Ambulatory Blood Pressure Monitor using a Bio-Impedance Sensor Array","funder_award_id":"R01EB028106","funder_id":"https://openalex.org/F4320337363","funder_display_name":"National Institute of Biomedical Imaging and Bioengineering"},{"id":"https://openalex.org/G6018314941","display_name":"Yale Transdisciplinary Collaborative Center for Health Disparities Research (YALE-TCC)","funder_award_id":"U54MD010711","funder_id":"https://openalex.org/F4320337534","funder_display_name":"National Institute on Minority Health and Health Disparities"}],"funders":[{"id":"https://openalex.org/F4320308380","display_name":"Yale University","ror":"https://ror.org/03v76x132"},{"id":"https://openalex.org/F4320337338","display_name":"National Heart, Lung, and Blood Institute","ror":"https://ror.org/012pb6c26"},{"id":"https://openalex.org/F4320337363","display_name":"National Institute of Biomedical Imaging and Bioengineering","ror":"https://ror.org/00372qc85"},{"id":"https://openalex.org/F4320337534","display_name":"National Institute on Minority Health and Health Disparities","ror":"https://ror.org/0493hgw16"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":28,"referenced_works":["https://openalex.org/W1515587369","https://openalex.org/W1556808170","https://openalex.org/W1572092804","https://openalex.org/W1970402870","https://openalex.org/W1996423294","https://openalex.org/W2063736169","https://openalex.org/W2085023781","https://openalex.org/W2104000083","https://openalex.org/W2149755434","https://openalex.org/W2173204108","https://openalex.org/W2500387364","https://openalex.org/W2597079162","https://openalex.org/W2612840908","https://openalex.org/W2891330349","https://openalex.org/W2893412710","https://openalex.org/W2900705378","https://openalex.org/W2914296051","https://openalex.org/W2986942529","https://openalex.org/W3091856803","https://openalex.org/W3159984962","https://openalex.org/W3164263546","https://openalex.org/W3165233287","https://openalex.org/W3210853063","https://openalex.org/W3213900515","https://openalex.org/W4200441034","https://openalex.org/W4295066026","https://openalex.org/W4296817558","https://openalex.org/W6654733360"],"related_works":["https://openalex.org/W3216675136","https://openalex.org/W4389944324","https://openalex.org/W4417290715","https://openalex.org/W4389956970","https://openalex.org/W4380681634","https://openalex.org/W7220837275","https://openalex.org/W4388973428","https://openalex.org/W4296817558","https://openalex.org/W7147426948","https://openalex.org/W4225417096"],"abstract_inverted_index":{"BACKGROUND:":[0],"Ischemia":[1],"and":[2,26,51,61,117,149,151,156,166,200,213,221,237,240,246,253,270,275,299],"no":[3],"obstructive":[4],"coronary":[5,39,92,106,125,287],"artery":[6],"disease":[7,174],"(INOCA)":[8],"disproportionately":[9],"impacts":[10],"women,":[11],"yet":[12],"the":[13,35,62,118,134,266,276,293],"underlying":[14],"pathologies":[15],"are":[16],"often":[17],"not":[18,123],"distinguished,":[19],"contributing":[20],"to":[21,54,75,177,198,207,243],"adverse":[22],"health":[23],"care":[24],"experiences":[25],"poor":[27],"quality":[28,296],"of":[29,37,49,64,85,110,187,226,251,268,297,302],"life.":[30],"Coronary":[31],"function":[32,107,126,288],"testing":[33,108,127],"at":[34,95],"time":[36],"invasive":[38,91],"angiography":[40,93],"allows":[41],"for":[42,193,257,282],"improved":[43],"diagnostic":[44],"accuracy.":[45],"Despite":[46],"increased":[47],"recognition":[48,250],"INOCA":[50,88,269],"expanding":[52],"access":[53],"testing,":[55],"data":[56],"lack":[57],"on":[58],"first-person":[59],"perspectives":[60],"impact":[63],"receiving":[65],"a":[66,114,139,204,209,230,233],"diagnosis":[67,231,290],"in":[68,180],"women":[69,86,264,303],"with":[70,82,87,273,304],"INOCA.":[71,305],"METHODS:":[72],"From":[73],"2020":[74],"2021,":[76],"we":[77],"conducted":[78],"structured":[79],"telephone":[80],"interviews":[81,130],"2":[83],"groups":[84],"who":[89,121],"underwent":[90,105],"(n=29)":[94],"Yale":[96],"New":[97,100],"Haven":[98],"Hospital,":[99],"Haven,":[101],"CT:":[102],"1":[103],"group":[104,120],"(n=20,":[109],"whom":[111],"18":[112],"received":[113],"mechanism-based":[115],"diagnosis)":[116],"other":[119,248,258],"did":[122],"undergo":[124],"(n=9).":[128],"The":[129,143],"were":[131,153,167],"analyzed":[132],"using":[133],"constant":[135],"comparison":[136],"method":[137],"by":[138],"multidisciplinary":[140],"team.":[141],"RESULTS:":[142],"mean":[144],"age":[145],"was":[146],"59.7":[147],"years,":[148],"79%":[150],"3%":[152],"non-Hispanic":[154,157],"White":[155],"Black,":[158],"respectively.":[159],"Through":[160],"iterative":[161],"coding,":[162],"4":[163],"themes":[164],"emerged":[165],"further":[168,219],"separated":[169],"into":[170],"subthemes":[171],"that":[172],"highlight":[173],"experience":[175,265],"aspects":[176],"be":[178],"addressed":[179],"patient":[181],"care:":[182],"(1)":[183],"distress":[184],"from":[185],"symptoms":[186,267],"uncertain":[188],"cause:":[189],"symptom":[190],"constellation,":[191],"struggle":[192],"sensemaking,":[194],"emotional":[195,300],"toll,":[196],"threat":[197],"personal":[199],"professional":[201],"identity;":[202],"(2)":[203],"long":[205],"journey":[206],"reach":[208],"definitive":[210],"diagnosis:":[211],"self-advocacy":[212],"fortitude,":[214],"healthcare":[215,277,294],"interactions":[216,272],"brought":[217],"about":[218,262],"uncertainty":[220],"trauma,":[222],"therapeutic":[223],"alliance,":[224],"sources":[225],"information;":[227],"(3)":[228],"establishing":[229],"enabled":[232],"path":[234],"forward:":[235],"relief":[236],"validation,":[238],"empowerment;":[239],"(4)":[241],"commitment":[242],"promoting":[244],"awareness":[245],"supporting":[247],"women:":[249],"sex":[252],"racial/ethnic":[254],"disparities,":[255],"support":[256],"women.":[259],"CONCLUSIONS:":[260],"Insights":[261],"how":[263],"their":[271],"clinicians":[274],"system":[278],"hold":[279],"powerful":[280],"lessons":[281],"more":[283],"patient-centered":[284],"care.":[285],"A":[286],"testing-informed":[289],"greatly":[291],"influences":[292],"experiences,":[295],"life,":[298],"states":[301]},"counts_by_year":[{"year":2026,"cited_by_count":6},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}