{"id":"https://openalex.org/W3214050765","doi":"https://doi.org/10.2196/32568","title":"Web-Based Tool (FH Family Share) to Increase Uptake of Cascade Testing for Familial Hypercholesterolemia: Development and Evaluation","display_name":"Web-Based Tool (FH Family Share) to Increase Uptake of Cascade Testing for Familial Hypercholesterolemia: Development and Evaluation","publication_year":2021,"publication_date":"2021-11-07","ids":{"openalex":"https://openalex.org/W3214050765","doi":"https://doi.org/10.2196/32568","mag":"3214050765","pmid":"https://pubmed.ncbi.nlm.nih.gov/35166678","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/8889478"},"language":"en","primary_location":{"id":"doi:10.2196/32568","doi":"https://doi.org/10.2196/32568","is_oa":true,"landing_page_url":"https://doi.org/10.2196/32568","pdf_url":"https://humanfactors.jmir.org/2022/1/e32568/PDF","source":{"id":"https://openalex.org/S4210199510","display_name":"JMIR Human Factors","issn_l":"2292-9495","issn":["2292-9495"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Human Factors","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://humanfactors.jmir.org/2022/1/e32568/PDF","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5075979340","display_name":"Hana Bangash","orcid":"https://orcid.org/0000-0003-2552-9499","observed_orcids":["https://orcid.org/0000-0003-2552-9499"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hana Bangash","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0003-2552-9499","affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, United States","institution_ids":["https://openalex.org/I1330342723"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5079481279","display_name":"Ahmed Makkawy","orcid":"https://orcid.org/0000-0002-1602-0132","observed_orcids":["https://orcid.org/0000-0002-1602-0132"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ahmed Makkawy","raw_affiliation_strings":["Saharafox Creative Agency, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0002-1602-0132","affiliations":[{"raw_affiliation_string":"Saharafox Creative Agency, Rochester, MN, United States","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5078558255","display_name":"Justin H. Gundelach","orcid":"https://orcid.org/0000-0001-7347-0511","observed_orcids":["https://orcid.org/0000-0001-7347-0511"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Justin H Gundelach","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0001-7347-0511","affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, United States","institution_ids":["https://openalex.org/I1330342723"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000057269","display_name":"Alexandra A. Miller","orcid":"https://orcid.org/0000-0002-1159-177X","observed_orcids":["https://orcid.org/0000-0002-1159-177X"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alexandra A Miller","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0002-1159-177X","affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, United States","institution_ids":["https://openalex.org/I1330342723"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015741005","display_name":"Kimberly A Jacobson","orcid":"https://orcid.org/0000-0002-7934-1793","observed_orcids":["https://orcid.org/0000-0002-7934-1793"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kimberly A Jacobson","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0002-7934-1793","affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, United States","institution_ids":["https://openalex.org/I1330342723"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5065025844","display_name":"Iftikhar J. Kullo","orcid":"https://orcid.org/0000-0002-6524-3471","observed_orcids":["https://orcid.org/0000-0002-6524-3471"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Iftikhar J Kullo","raw_affiliation_strings":["Mayo Clinic, Rochester, MN, United States"],"raw_orcid":"https://orcid.org/0000-0002-6524-3471","affiliations":[{"raw_affiliation_string":"Mayo Clinic, Rochester, MN, United States","institution_ids":["https://openalex.org/I1330342723"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5065025844"],"corresponding_institution_ids":["https://openalex.org/I1330342723"],"apc_list":{"value":1873,"currency":"USD","value_usd":1873},"apc_paid":{"value":1873,"currency":"USD","value_usd":1873},"fwci":3.9934,"has_fulltext":true,"cited_by_count":23,"citation_normalized_percentile":{"value":0.95005557,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"9","issue":"1","first_page":"e32568","last_page":"e32568"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10394","display_name":"Lipoproteins and Cardiovascular Health","score":0.227400004863739,"subfield":{"id":"https://openalex.org/subfields/2746","display_name":"Surgery"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10394","display_name":"Lipoproteins and Cardiovascular Health","score":0.227400004863739,"subfield":{"id":"https://openalex.org/subfields/2746","display_name":"Surgery"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.1898999959230423,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10470","display_name":"Usability and User Interface Design","score":0.09719999879598618,"subfield":{"id":"https://openalex.org/subfields/1709","display_name":"Human-Computer Interaction"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/familial-hypercholesterolemia","display_name":"familial hypercholesterolemia","score":0.9980000257492065},{"id":"https://openalex.org/keywords/cascade-testing","display_name":"cascade testing","score":0.9900000095367432},{"id":"https://openalex.org/keywords/web-based-tool","display_name":"web-based tool","score":0.7749999761581421},{"id":"https://openalex.org/keywords/family-communication","display_name":"family communication","score":0.7070000171661377},{"id":"https://openalex.org/keywords/genetic-counseling","display_name":"genetic counseling","score":0.7049999833106995},{"id":"https://openalex.org/keywords/family-pedigree","display_name":"family pedigree","score":0.5350000262260437},{"id":"https://openalex.org/keywords/usability-testing","display_name":"usability testing","score":0.5910000205039978},{"id":"https://openalex.org/keywords/cognitive-walkthrough","display_name":"cognitive walkthrough","score":0.8209999799728394},{"id":"https://openalex.org/keywords/user-centered-design","display_name":"user-centered design","score":0.6119999885559082},{"id":"https://openalex.org/keywords/implementation-science","display_name":"implementation science","score":0.47099998593330383},{"id":"https://openalex.org/keywords/email-templates","display_name":"email templates","score":0.4020000100135803},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.5070000290870667},{"id":"https://openalex.org/keywords/underdiagnosis","display_name":"underdiagnosis","score":0.6859999895095825},{"id":"https://openalex.org/keywords/digital-health-tools","display_name":"digital health tools","score":0.4620000123977661},{"id":"https://openalex.org/keywords/user-satisfaction","display_name":"user satisfaction","score":0.4429999887943268},{"id":"https://openalex.org/keywords/think-aloud","display_name":"think-aloud","score":0.578000009059906},{"id":"https://openalex.org/keywords/interface-design","display_name":"interface design","score":0.46700000762939453},{"id":"https://openalex.org/keywords/knowledge-resources","display_name":"knowledge resources","score":0.6169999837875366},{"id":"https://openalex.org/keywords/user-experience","display_name":"user experience","score":0.3059999942779541}],"concepts":[{"id":"https://openalex.org/C2779120738","wikidata":"https://www.wikidata.org/wiki/Q2711291","display_name":"Familial hypercholesterolemia","level":3,"score":0.7304233908653259},{"id":"https://openalex.org/C34146451","wikidata":"https://www.wikidata.org/wiki/Q5048094","display_name":"Cascade","level":2,"score":0.6028121113777161},{"id":"https://openalex.org/C118643609","wikidata":"https://www.wikidata.org/wiki/Q189210","display_name":"Web application","level":2,"score":0.4393860101699829},{"id":"https://openalex.org/C70721500","wikidata":"https://www.wikidata.org/wiki/Q177005","display_name":"Computational biology","level":1,"score":0.4166107475757599},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3708106279373169},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.36705026030540466},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.33657485246658325},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.328696072101593},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.27170416712760925},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.24429026246070862},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.19226494431495667},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.19165825843811035},{"id":"https://openalex.org/C2778163477","wikidata":"https://www.wikidata.org/wiki/Q43656","display_name":"Cholesterol","level":2,"score":0.11375904083251953},{"id":"https://openalex.org/C42360764","wikidata":"https://www.wikidata.org/wiki/Q83588","display_name":"Chemical engineering","level":1,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.2196/32568","doi":"https://doi.org/10.2196/32568","is_oa":true,"landing_page_url":"https://doi.org/10.2196/32568","pdf_url":"https://humanfactors.jmir.org/2022/1/e32568/PDF","source":{"id":"https://openalex.org/S4210199510","display_name":"JMIR Human Factors","issn_l":"2292-9495","issn":["2292-9495"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Human Factors","raw_type":"journal-article"},{"id":"doi:10.2196/preprints.32568","doi":"https://doi.org/10.2196/preprints.32568","is_oa":true,"landing_page_url":"https://doi.org/10.2196/preprints.32568","pdf_url":null,"source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"posted-content"},{"id":"pmh:oai:pubmedcentral.nih.gov:8889478","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8889478","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Hum Factors","raw_type":"Text"},{"id":"pmid:35166678","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/35166678","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR human factors","raw_type":"Journal Article"},{"id":"pmh:oai:doaj.org/article:ef14d3e7bab5445a8046e7eb0826cd20","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/ef14d3e7bab5445a8046e7eb0826cd20","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"JMIR Human Factors, Vol 9, Iss 1, p e32568 (2022)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.2196/32568","doi":"https://doi.org/10.2196/32568","is_oa":true,"landing_page_url":"https://doi.org/10.2196/32568","pdf_url":"https://humanfactors.jmir.org/2022/1/e32568/PDF","source":{"id":"https://openalex.org/S4210199510","display_name":"JMIR Human Factors","issn_l":"2292-9495","issn":["2292-9495"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Human Factors","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.9537000060081482,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3214050765.pdf","grobid_xml":"https://content.openalex.org/works/W3214050765.grobid-xml"},"referenced_works_count":43,"referenced_works":["https://openalex.org/W197534703","https://openalex.org/W1596953637","https://openalex.org/W1974942555","https://openalex.org/W1988123993","https://openalex.org/W1989949458","https://openalex.org/W2011088256","https://openalex.org/W2030060743","https://openalex.org/W2074472861","https://openalex.org/W2077262321","https://openalex.org/W2077622300","https://openalex.org/W2112083652","https://openalex.org/W2113335326","https://openalex.org/W2133030338","https://openalex.org/W2137041566","https://openalex.org/W2150443072","https://openalex.org/W2155871714","https://openalex.org/W2160271672","https://openalex.org/W2165624352","https://openalex.org/W2177887065","https://openalex.org/W2334201740","https://openalex.org/W2516351633","https://openalex.org/W2575600667","https://openalex.org/W2613345204","https://openalex.org/W2736457837","https://openalex.org/W2760333988","https://openalex.org/W2782412406","https://openalex.org/W2799930623","https://openalex.org/W2883245948","https://openalex.org/W2887209977","https://openalex.org/W2888206193","https://openalex.org/W2943032204","https://openalex.org/W2960913341","https://openalex.org/W2982075015","https://openalex.org/W3037821955","https://openalex.org/W3045265987","https://openalex.org/W3107543129","https://openalex.org/W3119604147","https://openalex.org/W3135379986","https://openalex.org/W3164790822","https://openalex.org/W4237883802","https://openalex.org/W4244620111","https://openalex.org/W4248680598","https://openalex.org/W4248718416"],"related_works":["https://openalex.org/W4401560603","https://openalex.org/W7154118216","https://openalex.org/W7154485926","https://openalex.org/W3123691613","https://openalex.org/W4288076330","https://openalex.org/W4401600752","https://openalex.org/W4223971629","https://openalex.org/W4403822349","https://openalex.org/W4386241404","https://openalex.org/W6939682556"],"abstract_inverted_index":{"BACKGROUND:":[0],"Familial":[1],"hypercholesterolemia,":[2,34],"a":[3,73,97,134,170,234,298,378],"prevalent":[4],"genetic":[5,183,249,316,333,368],"disorder,":[6],"remains":[7],"significantly":[8],"underdiagnosed":[9],"in":[10,38,233,293],"the":[11,39,130,159,164,192,195,207,215,229,237,274,290,294,353,400],"United":[12,40],"States.":[13,41],"Cascade":[14],"testing,":[15],"wherein":[16],"individuals":[17],"diagnosed":[18],"with":[19,123,179,187,243,248,253,284],"familial":[20,33,50,62,79,86,112,120,141,188,254,285,408],"hypercholesterolemia-":[21],"probands-contact":[22],"their":[23,30,54,119,199,392],"family":[24,55,135,397],"members":[25,56,398],"to":[26,46,58,69,77,103,115,132,203,240,272,326,339,350,365,402],"inform":[27],"them":[28],"of":[29,61,163,206,236,276,289,313,330,342,357],"risk":[31,64],"for":[32,85,407],"has":[35],"low":[36],"uptake":[37],"Digital":[42],"tools":[43],"are":[44],"needed":[45],"facilitate":[47],"communication":[48,80,388],"between":[49,389],"hypercholesterolemia":[51,113,121,142,255,286],"probands":[52,114,390],"and":[53,57,71,81,96,137,146,152,161,185,198,224,251,262,265,282,305,328,355,370,391,405],"promote":[59,82],"sharing":[60],"hypercholesterolemia-related":[63],"information.":[65],"OBJECTIVE:":[66],"We":[67],"aimed":[68],"create":[70],"evaluate":[72],"web-based":[74,107,238,295],"tool":[75,131,239],"designed":[76],"enhance":[78],"cascade":[83],"testing":[84,178,247,404],"hypercholesterolemia.":[87,189,409],"METHODS:":[88],"A":[89],"hybrid":[90],"type":[91],"1":[92],"implementation":[93],"science":[94],"framework":[95],"user-centered":[98],"design":[99,160,264],"process":[100],"were":[101,154,218,270],"used":[102,202],"develop":[104],"an":[105],"interactive":[106],"tool-FH":[108],"Family":[109,278,322,375,385],"Share-that":[110],"enables":[111],"communicate":[116],"information":[117,319,336,347,362],"about":[118,140],"diagnosis":[122],"at-risk":[124,396],"relatives.":[125,393],"Probands":[126],"can":[127],"also":[128],"use":[129],"draw":[133],"pedigree":[136],"learn":[138],"more":[139],"through":[143],"education":[144,303],"modules":[145],"curated":[147],"knowledge":[148,307],"resources.":[149,308],"Usability":[150,246],"guidelines":[151],"standards":[153],"taken":[155],"into":[156],"account":[157],"during":[158],"development":[162],"tool.":[165,208],"The":[166],"initial":[167],"prototype":[168,193],"underwent":[169],"cognitive":[171,216,230],"walkthrough,":[172],"which":[173],"was":[174,201,377],"followed":[175],"by":[176],"usability":[177],"key":[180],"stakeholders":[181],"including":[182],"counselors":[184,250,281,317,334,369],"patients":[186,252,283,345,360,371],"Participants":[190],"navigated":[191],"using":[194],"think-aloud":[196],"technique,":[197],"feedback":[200,227],"refine":[204,273],"features":[205,275,292],"RESULTS:":[209],"Key":[210],"themes":[211],"that":[212,269,311,373],"emerged":[213],"from":[214,228],"walkthrough":[217,231],"design,":[219],"format,":[220],"navigation,":[221],"terminology,":[222],"instructions,":[223],"learnability.":[225],"Expert":[226],"resulted":[232],"rebuild":[235],"align":[241],"it":[242],"institutional":[244],"standards.":[245],"provided":[256],"insights":[257],"on":[258],"user":[259],"experience,":[260],"satisfaction":[261],"interface":[263],"highlighted":[266],"specific":[267],"modifications":[268],"made":[271],"FH":[277,321,374,384],"Share.":[279],"Genetic":[280],"suggested":[287],"inclusion":[288],"following":[291],"tool:":[296],"(1)":[297],"letter-to-family-member":[299],"email":[300],"template,":[301],"(2)":[302],"modules,":[304],"(3)":[306],"Surveys":[309],"revealed":[310],"6":[312],"9":[314,331,343,358],"(67%)":[315],"found":[318,335,346,361],"within":[320,352],"Share":[323,376,386],"very":[324,337,348,363],"easy":[325,338,349,364],"find,":[327],"5":[329,341],"(56%)":[332,344],"understand;":[340],"find":[351],"website,":[354],"7":[356],"(78%)":[359],"understand.":[366],"All":[367],"indicated":[372],"resource":[379],"worth":[380],"returning":[381],"to.":[382],"CONCLUSIONS:":[383],"facilitates":[387],"Once":[394],"informed,":[395],"have":[399],"option":[401],"seek":[403],"treatment":[406]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":13},{"year":2022,"cited_by_count":2}],"updated_date":"2026-10-28T10:33:24.094632","created_date":"2021-11-22T00:00:00"}