{"id":"https://openalex.org/W3209704549","doi":"https://doi.org/10.1016/j.jtct.2021.10.016","title":"Adding Centralized Electronic Patient-Reported Outcome Data Collection to an Established International Clinical Outcomes Registry","display_name":"Adding Centralized Electronic Patient-Reported Outcome Data Collection to an Established International Clinical Outcomes Registry","publication_year":2021,"publication_date":"2021-10-29","ids":{"openalex":"https://openalex.org/W3209704549","doi":"https://doi.org/10.1016/j.jtct.2021.10.016","mag":"3209704549","pmid":"https://pubmed.ncbi.nlm.nih.gov/34757219"},"language":"en","primary_location":{"id":"doi:10.1016/j.jtct.2021.10.016","doi":"https://doi.org/10.1016/j.jtct.2021.10.016","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jtct.2021.10.016","pdf_url":null,"source":{"id":"https://openalex.org/S59987174","display_name":"Transplantation and Cellular Therapy","issn_l":"1083-8791","issn":["1083-8791","1523-6536","2666-6367"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Transplantation and Cellular Therapy","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.1016/j.jtct.2021.10.016","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008386945","display_name":"Rachel N. Cusatis","orcid":"https://orcid.org/0000-0001-6252-6516","observed_orcids":["https://orcid.org/0000-0001-6252-6516"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Rachel Cusatis","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI. Electronic address: rcusatis@mcw.edu","CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI. Electronic address: rcusatis@mcw.edu","institution_ids":["https://openalex.org/I204308271"]},{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041841214","display_name":"Kathryn E. Flynn","orcid":"https://orcid.org/0000-0002-4427-3583","observed_orcids":["https://orcid.org/0000-0002-4427-3583"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kathryn E. Flynn","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":"https://orcid.org/0000-0002-4427-3583","affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5102862783","display_name":"Sumithira Vasu","orcid":"https://orcid.org/0000-0002-8635-3880","observed_orcids":["https://orcid.org/0000-0002-8635-3880"]},"institutions":[{"id":"https://openalex.org/I2799885155","display_name":"The Ohio State University Comprehensive Cancer Center \u2013 Arthur G. James Cancer Hospital and Richard J. Solove Research Institute","ror":"https://ror.org/028t46f04","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2799885155","https://openalex.org/I2802841970"]},{"id":"https://openalex.org/I2802841970","display_name":"The Ohio State University Wexner Medical Center","ror":"https://ror.org/00c01js51","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2802841970"]},{"id":"https://openalex.org/I52357470","display_name":"The Ohio State University","ror":"https://ror.org/00rs6vg23","country_code":"US","type":"education","lineage":["https://openalex.org/I52357470"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sumithira Vasu","raw_affiliation_strings":["The James Cancer Hospital and Solove Research Institute, The Ohio State University Wexner Medical Center, The Ohio State University, Columbus, OH"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The James Cancer Hospital and Solove Research Institute, The Ohio State University Wexner Medical Center, The Ohio State University, Columbus, OH","institution_ids":["https://openalex.org/I2799885155","https://openalex.org/I2802841970","https://openalex.org/I52357470"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112259825","display_name":"Joseph Pidala","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I3019308854","display_name":"Moffitt Cancer Center","ror":"https://ror.org/01xf75524","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I3019308854"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joseph Pidala","raw_affiliation_strings":["H. Lee Moffitt Cancer Center and Research Institute, Tampa, FL"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"H. Lee Moffitt Cancer Center and Research Institute, Tampa, FL","institution_ids":["https://openalex.org/I3019308854"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003368910","display_name":"Lori S. Muffly","orcid":"https://orcid.org/0000-0002-9887-6136","observed_orcids":["https://orcid.org/0000-0002-9887-6136"]},"institutions":[{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lori Muffly","raw_affiliation_strings":["Division of Blood and Marrow Transplantation, Stanford University, Stanford, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Blood and Marrow Transplantation, Stanford University, Stanford, CA","institution_ids":["https://openalex.org/I97018004"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5109542492","display_name":"Joseph P. Uberti","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210090317","display_name":"The Barbara Ann Karmanos Cancer Institute","ror":"https://ror.org/00ee40h97","country_code":"US","type":"facility","lineage":["https://openalex.org/I2800590384","https://openalex.org/I4210090317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joseph Uberti","raw_affiliation_strings":["Karmanos Cancer Institute, Detroit, MI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Karmanos Cancer Institute, Detroit, MI","institution_ids":["https://openalex.org/I4210090317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5085550690","display_name":"Roni Tamari","orcid":"https://orcid.org/0000-0002-2386-0850","observed_orcids":["https://orcid.org/0000-0002-2386-0850"]},"institutions":[{"id":"https://openalex.org/I1334819555","display_name":"Memorial Sloan Kettering Cancer Center","ror":"https://ror.org/02yrq0923","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1334819555"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Roni Tamari","raw_affiliation_strings":["Memorial Sloan Kettering Cancer Center, New York, NY"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Memorial Sloan Kettering Cancer Center, New York, NY","institution_ids":["https://openalex.org/I1334819555"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5040373323","display_name":"Deborah Mattila","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1318116459","display_name":"National Marrow Donor Program","ror":"https://ror.org/016cke005","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1318116459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Deborah Mattila","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN","institution_ids":["https://openalex.org/I1318116459"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038669319","display_name":"Alisha Mussetter","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1318116459","display_name":"National Marrow Donor Program","ror":"https://ror.org/016cke005","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1318116459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alisha Mussetter","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN","institution_ids":["https://openalex.org/I1318116459"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070341690","display_name":"Ruta Bruzauskas","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ruta Bruzauskas","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI; Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI","CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI; Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]},{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]},{"raw_affiliation_string":"Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5100337238","display_name":"Min Chen","orcid":"https://orcid.org/0000-0002-6906-872X","observed_orcids":["https://orcid.org/0000-0002-6906-872X"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Min Chen","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041480329","display_name":"Erin Leckrone","orcid":"https://orcid.org/0000-0003-0125-0581","observed_orcids":["https://orcid.org/0000-0003-0125-0581"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Erin Leckrone","raw_affiliation_strings":["Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112030204","display_name":"Judith Myers","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Judith Myers","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025790743","display_name":"Lih\u2010Wen Mau","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lih-Wen Mau","raw_affiliation_strings":["Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Biostatistics, Institute for Health and Equity, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082589346","display_name":"J. Douglas Rizzo","orcid":"https://orcid.org/0000-0003-1474-1152","observed_orcids":["https://orcid.org/0000-0003-1474-1152"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"J Douglas Rizzo","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058862489","display_name":"Wael Saber","orcid":"https://orcid.org/0000-0002-6544-5815","observed_orcids":["https://orcid.org/0000-0002-6544-5815"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wael Saber","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091433944","display_name":"Mary M. Horowitz","orcid":"https://orcid.org/0000-0002-9502-785X","observed_orcids":["https://orcid.org/0000-0002-9502-785X"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mary Horowitz","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":"https://orcid.org/0000-0002-9502-785X","affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031390636","display_name":"Stephanie J. Lee","orcid":"https://orcid.org/0000-0003-2600-6390","observed_orcids":["https://orcid.org/0000-0003-2600-6390"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]},{"id":"https://openalex.org/I4210089486","display_name":"Fred Hutch Cancer Center","ror":"https://ror.org/007ps6h72","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210089486"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Stephanie J. Lee","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI; Fred Hutchinson Cancer Research Center, Seattle, WA","CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","Fred Hutchinson Cancer Research Center, Seattle, WA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI; Fred Hutchinson Cancer Research Center, Seattle, WA","institution_ids":["https://openalex.org/I204308271","https://openalex.org/I4210089486"]},{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]},{"raw_affiliation_string":"Fred Hutchinson Cancer Research Center, Seattle, WA","institution_ids":["https://openalex.org/I4210089486"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5084230861","display_name":"Linda J. Burns","orcid":"https://orcid.org/0000-0003-1341-4424","observed_orcids":["https://orcid.org/0000-0003-1341-4424"]},"institutions":[{"id":"https://openalex.org/I1318116459","display_name":"National Marrow Donor Program","ror":"https://ror.org/016cke005","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I1318116459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Linda J Burns","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN; Center for International Blood and Marrow Transplant Research, Milwaukee, WI","CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN","Center for International Blood and Marrow Transplant Research, Milwaukee, WI"],"raw_orcid":"https://orcid.org/0000-0003-1341-4424","affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN; Center for International Blood and Marrow Transplant Research, Milwaukee, WI","institution_ids":["https://openalex.org/I1318116459"]},{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), National Marrow Donor Program/Be The Match, Minneapolis, MN","institution_ids":["https://openalex.org/I1318116459"]},{"raw_affiliation_string":"Center for International Blood and Marrow Transplant Research, Milwaukee, WI","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5032478325","display_name":"Bronwen E. Shaw","orcid":"https://orcid.org/0000-0003-3317-1896","observed_orcids":["https://orcid.org/0000-0003-3317-1896"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Bronwen Shaw","raw_affiliation_strings":["CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CIBMTR\u00ae (Center for International Blood and Marrow Transplant Research), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI","institution_ids":["https://openalex.org/I204308271"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":10,"corresponding_author_ids":["https://openalex.org/A5008386945"],"corresponding_institution_ids":["https://openalex.org/I204308271"],"apc_list":{"value":3650,"currency":"USD","value_usd":3650},"apc_paid":{"value":3650,"currency":"USD","value_usd":3650},"fwci":2.4321,"has_fulltext":false,"cited_by_count":12,"citation_normalized_percentile":{"value":0.90574701,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":98},"biblio":{"volume":"28","issue":"2","first_page":"112.e1","last_page":"112.e9"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.454800009727478,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.454800009727478,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.3043999969959259,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10345","display_name":"Hematopoietic Stem Cell Transplantation","score":0.05739999935030937,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-reported-outcomes","display_name":"patient-reported outcomes","score":0.996999979019165},{"id":"https://openalex.org/keywords/hematopoietic-stem-cell-transplantation","display_name":"hematopoietic stem cell transplantation","score":0.968999981880188},{"id":"https://openalex.org/keywords/electronic-data-collection","display_name":"electronic data collection","score":0.7490000128746033},{"id":"https://openalex.org/keywords/promis","display_name":"PROMIS","score":0.8090000152587891},{"id":"https://openalex.org/keywords/myelodysplastic-syndrome","display_name":"myelodysplastic syndrome","score":0.9599999785423279},{"id":"https://openalex.org/keywords/survey-response-rates","display_name":"survey response rates","score":0.6110000014305115},{"id":"https://openalex.org/keywords/barriers-to-participation","display_name":"barriers to participation","score":0.5400000214576721},{"id":"https://openalex.org/keywords/cibmtr","display_name":"CIBMTR","score":0.7360000014305115}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7945805788040161},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.5600771307945251},{"id":"https://openalex.org/C2993713153","wikidata":"https://www.wikidata.org/wiki/Q211709","display_name":"Hematopoietic cell","level":4,"score":0.48848211765289307},{"id":"https://openalex.org/C2911091166","wikidata":"https://www.wikidata.org/wiki/Q106419912","display_name":"Transplantation","level":2,"score":0.47088202834129333},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.435702919960022},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.24495890736579895},{"id":"https://openalex.org/C28328180","wikidata":"https://www.wikidata.org/wiki/Q48196","display_name":"Stem cell","level":2,"score":0.11735367774963379},{"id":"https://openalex.org/C109159458","wikidata":"https://www.wikidata.org/wiki/Q919283","display_name":"Haematopoiesis","level":3,"score":0.07925671339035034},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004581","descriptor_name":"Electronics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004581","descriptor_name":"Electronics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004581","descriptor_name":"Electronics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007256","descriptor_name":"Information Systems","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012042","descriptor_name":"Registries","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1016/j.jtct.2021.10.016","doi":"https://doi.org/10.1016/j.jtct.2021.10.016","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jtct.2021.10.016","pdf_url":null,"source":{"id":"https://openalex.org/S59987174","display_name":"Transplantation and Cellular Therapy","issn_l":"1083-8791","issn":["1083-8791","1523-6536","2666-6367"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Transplantation and Cellular Therapy","raw_type":"journal-article"},{"id":"pmid:34757219","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34757219","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Transplantation and cellular therapy","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:8915447","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8915447","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Transplant Cell Ther","raw_type":"Text"},{"id":"pmh:oai:tkuir.lib.tku.edu.tw:987654321/125244","doi":null,"is_oa":false,"landing_page_url":"https://tkuir.lib.tku.edu.tw/dspace/handle/987654321/125244","pdf_url":null,"source":{"id":"https://openalex.org/S4406922698","display_name":"Tamkang University Institutional Repository (TKUIR)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"doi:10.1016/j.jtct.2021.10.016","doi":"https://doi.org/10.1016/j.jtct.2021.10.016","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jtct.2021.10.016","pdf_url":null,"source":{"id":"https://openalex.org/S59987174","display_name":"Transplantation and Cellular Therapy","issn_l":"1083-8791","issn":["1083-8791","1523-6536","2666-6367"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Transplantation and Cellular Therapy","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":1.0,"display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/17","score":0.41999998688697815,"display_name":"Partnerships for the goals"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[{"id":"https://openalex.org/G1360182821","display_name":null,"funder_award_id":"N00014-20-1-2832","funder_id":"https://openalex.org/F4320337345","funder_display_name":"Office of Naval Research"},{"id":"https://openalex.org/G5804481516","display_name":null,"funder_award_id":"N00014\u201020\u20101\u20102705","funder_id":"https://openalex.org/F4320337345","funder_display_name":"Office of Naval Research"},{"id":"https://openalex.org/G6793234220","display_name":null,"funder_award_id":"N00014-17-1-2850","funder_id":"https://openalex.org/F4320337345","funder_display_name":"Office of Naval Research"},{"id":"https://openalex.org/G6979277618","display_name":null,"funder_award_id":"HHSH250201700006\u00a0C","funder_id":"https://openalex.org/F4320332175","funder_display_name":"Health Resources and Services Administration"},{"id":"https://openalex.org/G8871973681","display_name":null,"funder_award_id":"HHSH250201700006C","funder_id":"https://openalex.org/F4320337355","funder_display_name":"National Institute of Allergy and Infectious Diseases"},{"id":"https://openalex.org/G9000856728","display_name":"Cancer Center Support Grant","funder_award_id":"P30CA008748","funder_id":"https://openalex.org/F4320337351","funder_display_name":"National Cancer Institute"},{"id":"https://openalex.org/G9000891828","display_name":"A Data Resource for Blood and Marrow Transplants and Adoptive Cellular Therapy Research","funder_award_id":"U24CA076518","funder_id":"https://openalex.org/F4320337351","funder_display_name":"National Cancer Institute"},{"id":"https://openalex.org/G9000920800","display_name":"BMT Core- The Ohio State University blood and marrow transplant research consortium","funder_award_id":"UG1HL109322","funder_id":"https://openalex.org/F4320337338","funder_display_name":"National Heart, Lung, and Blood Institute"}],"funders":[{"id":"https://openalex.org/F4320307102","display_name":"Intel Corporation","ror":"https://ror.org/01ek73717"},{"id":"https://openalex.org/F4320307115","display_name":"Bristol-Myers Squibb","ror":"https://ror.org/00gtmwv55"},{"id":"https://openalex.org/F4320307773","display_name":"GlaxoSmithKline","ror":"https://ror.org/01xsqw823"},{"id":"https://openalex.org/F4320307776","display_name":"Merck","ror":"https://ror.org/02891sr49"},{"id":"https://openalex.org/F4320308507","display_name":"Stanford University","ror":"https://ror.org/00f54p054"},{"id":"https://openalex.org/F4320308573","display_name":"Gilead Sciences","ror":"https://ror.org/056546b03"},{"id":"https://openalex.org/F4320309374","display_name":"Ohio State University","ror":"https://ror.org/00rs6vg23"},{"id":"https://openalex.org/F4320310914","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244"},{"id":"https://openalex.org/F4320316541","display_name":"Kyowa Kirin Pharmaceutical Development","ror":"https://ror.org/024264v67"},{"id":"https://openalex.org/F4320316633","display_name":"CareDx","ror":"https://ror.org/035bmh889"},{"id":"https://openalex.org/F4320321625","display_name":"Daiichi-Sankyo","ror":"https://ror.org/027y26122"},{"id":"https://openalex.org/F4320332175","display_name":"Health Resources and Services Administration","ror":"https://ror.org/033jnv181"},{"id":"https://openalex.org/F4320332505","display_name":"U.S. Public Health Service","ror":"https://ror.org/05xf94514"},{"id":"https://openalex.org/F4320334104","display_name":"Medical College of Wisconsin Cancer Center","ror":"https://ror.org/0115fxs14"},{"id":"https://openalex.org/F4320337338","display_name":"National Heart, Lung, and Blood Institute","ror":"https://ror.org/012pb6c26"},{"id":"https://openalex.org/F4320337345","display_name":"Office of Naval Research","ror":"https://ror.org/00rk2pe57"},{"id":"https://openalex.org/F4320337351","display_name":"National Cancer Institute","ror":"https://ror.org/040gcmg81"},{"id":"https://openalex.org/F4320337355","display_name":"National Institute of Allergy and Infectious Diseases","ror":"https://ror.org/043z4tv69"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":29,"referenced_works":["https://openalex.org/W640949316","https://openalex.org/W1489777816","https://openalex.org/W1964280204","https://openalex.org/W1965986657","https://openalex.org/W1982811083","https://openalex.org/W1985564128","https://openalex.org/W1987551916","https://openalex.org/W1988046643","https://openalex.org/W2031153532","https://openalex.org/W2033789285","https://openalex.org/W2049863008","https://openalex.org/W2055021709","https://openalex.org/W2055049416","https://openalex.org/W2075006538","https://openalex.org/W2093615494","https://openalex.org/W2098872863","https://openalex.org/W2126021331","https://openalex.org/W2159516675","https://openalex.org/W2160666689","https://openalex.org/W2346452752","https://openalex.org/W2417837154","https://openalex.org/W2750516355","https://openalex.org/W2765276254","https://openalex.org/W2773505783","https://openalex.org/W2889474794","https://openalex.org/W2927812291","https://openalex.org/W2969181911","https://openalex.org/W2994929704","https://openalex.org/W2999672774"],"related_works":["https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W2586801360","https://openalex.org/W3108674512","https://openalex.org/W1506200166","https://openalex.org/W1489783725"],"abstract_inverted_index":{"The":[0,47,139,205],"importance":[1],"of":[2,21,49,57,85,152,183,193,260,264],"patient-reported":[3],"outcomes":[4,66],"(PROs)":[5],"in":[6,16,23,225],"cellular":[7],"therapies,":[8],"including":[9],"hematopoietic":[10],"cell":[11],"transplantation":[12],"(HCT)":[13],"is":[14,26],"highlighted":[15],"this":[17,50],"study.":[18],"Longitudinal":[19],"collection":[20,61,84,107,312],"PROs":[22,34,86],"a":[24,63,81],"registry":[25,45],"recommended":[27],"for":[28,111,124,209,266,297],"several":[29],"reasons,":[30],"yet":[31],"to":[32,42,53,164,175,191,214,223],"date,":[33],"are":[35],"not":[36,76,169,278],"routinely":[37],"collected":[38],"from":[39,87,95,158],"HCT":[40,88,123],"patients":[41,120,185,216,286],"augment":[43],"clinical":[44,65],"data.":[46],"aim":[48],"study":[51,227],"was":[52,142,212,303],"determine":[54],"the":[55,96,109,179,202,226,242,261,288,294,314],"feasibility":[56],"electronic":[58,153],"PRO":[59,203,243,310],"data":[60,106,311],"by":[62,68,178,221],"national":[64],"registry,":[67],"assessing":[69],"differences":[70,148,237],"between":[71,238],"who":[72,121,240],"does":[73,75],"and":[74,114,134,146,188,198,248,269,275,291],"report":[77],"PROs.":[78,154],"We":[79,103],"conducted":[80],"cross-sectional":[82],"pilot":[83],"recipients":[89],"after":[90],"treatment":[91],"using":[92],"computer-adapted":[93],"tests":[94],"Patient-Reported":[97],"Outcome":[98],"Measurement":[99],"Information":[100],"System":[101],"(PROMIS).":[102],"implemented":[104],"centralized":[105,309],"through":[108,313],"Center":[110],"International":[112],"Blood":[113],"Marrow":[115],"Transplant":[116],"Research":[117],"(CIBMTR)":[118],"among":[119],"underwent":[122],"myelodysplastic":[125],"syndromes":[126],"(MDS),":[127],"were":[128,156,162,186,232,256],"at":[129],"least":[130],"6":[131],"months":[132],"post-HCT,":[133],"spoke":[135],"English":[136,171],"or":[137,172,235],"Spanish.":[138],"main":[140],"objective":[141],"identifying":[143],"patient,":[144],"disease,":[145],"transplant-related":[147],"associated":[149],"with":[150],"completion":[151,302],"Patients":[155],"excluded":[157],"analysis":[159],"if":[160],"they":[161],"determined":[163],"be":[165,176],"ineligible":[166],"(deceased,":[167],"did":[168,277],"speak":[170],"Spanish,":[173],"refused":[174],"contacted":[177,187],"CIBMTR).":[180],"A":[181],"total":[182],"163":[184],"potentially":[189],"eligible":[190,249],"participate;":[192],"these,":[194],"92":[195],"(56%)":[196],"enrolled":[197],"89":[199],"(55%)":[200],"completed":[201,241],"assessment.":[204],"most":[206],"frequent":[207],"reason":[208],"incomplete":[210],"surveys":[211],"inability":[213],"contact":[215],"(n":[217,228,245,251],"=":[218,229,246,252],"88),":[219],"followed":[220],"declining":[222],"participate":[224],"37).":[230],"There":[231],"no":[233],"sociodemographic":[234,282],"age":[236],"those":[239],"survey":[244,301],"89)":[247],"nonresponders":[250,276],"155).":[253],"Patient":[254],"scores":[255],"within":[257],"3":[258],"points":[259],"US":[262],"average":[263],"50":[265],"all":[267],"symptoms":[268],"functioning":[270],"except":[271],"physical":[272],"functioning.":[273],"Responders":[274],"exhibit":[279],"meaningfully":[280],"different":[281],"characteristics.":[283],"Difficulty":[284],"contacting":[285],"posed":[287],"greatest":[289,295],"barrier":[290],"also":[292],"provided":[293],"opportunity":[296],"improvement.":[298],"Once":[299],"enrolled,":[300],"high.":[304],"These":[305],"results":[306],"support":[307],"standardizing":[308],"CIBMTR":[315],"registry.":[316]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":5}],"updated_date":"2026-10-15T10:00:46.086208","created_date":"2025-10-10T00:00:00"}