{"id":"https://openalex.org/W3203602706","doi":"https://doi.org/10.1111/scs.13038","title":"Dignity reflections based on experiences of end\u2010of\u2010life care during the first wave of the COVID\u201019 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO\u2010LIVE study)","display_name":"Dignity reflections based on experiences of end\u2010of\u2010life care during the first wave of the COVID\u201019 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO\u2010LIVE study)","publication_year":2021,"publication_date":"2021-10-09","ids":{"openalex":"https://openalex.org/W3203602706","doi":"https://doi.org/10.1111/scs.13038","mag":"3203602706","pmid":"https://pubmed.ncbi.nlm.nih.gov/34625992","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/8661881"},"language":"en","primary_location":{"id":"doi:10.1111/scs.13038","doi":"https://doi.org/10.1111/scs.13038","is_oa":true,"landing_page_url":"https://doi.org/10.1111/scs.13038","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/scs.13038","source":{"id":"https://openalex.org/S46883044","display_name":"Scandinavian Journal of Caring Sciences","issn_l":"0283-9318","issn":["0283-9318","1471-6712"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Caring Sciences","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/scs.13038","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5071673472","display_name":"Yvonne N. Becqu\u00e9","orcid":"https://orcid.org/0000-0002-9188-9911","observed_orcids":["https://orcid.org/0000-0002-9188-9911"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]},{"id":"https://openalex.org/I907135538","display_name":"Rotterdam University of Applied Sciences","ror":"https://ror.org/0481e1q24","country_code":"NL","type":"education","lineage":["https://openalex.org/I907135538"]}],"countries":["NL"],"is_corresponding":true,"raw_author_name":"Yvonne N. Becqu\u00e9","raw_affiliation_strings":["Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-9188-9911","affiliations":[{"raw_affiliation_string":"Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I907135538"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069683155","display_name":"Wendy van der Geugten","orcid":"https://orcid.org/0000-0002-5011-0676","observed_orcids":["https://orcid.org/0000-0002-5011-0676"]},"institutions":[{"id":"https://openalex.org/I122285577","display_name":"University of Humanistic Studies","ror":"https://ror.org/04w5ec154","country_code":"NL","type":"education","lineage":["https://openalex.org/I122285577"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Wendy van der Geugten","raw_affiliation_strings":["University of Humanistic Studies, Utrecht, The Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-5011-0676","affiliations":[{"raw_affiliation_string":"University of Humanistic Studies, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I122285577"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059638236","display_name":"Agnes van der Heide","orcid":"https://orcid.org/0000-0001-5584-4305","observed_orcids":["https://orcid.org/0000-0001-5584-4305"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Agnes van der Heide","raw_affiliation_strings":["Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077865216","display_name":"Ida J. Korfage","orcid":"https://orcid.org/0000-0001-6538-9115","observed_orcids":["https://orcid.org/0000-0001-6538-9115"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Ida J. Korfage","raw_affiliation_strings":["Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I2801952686"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055079451","display_name":"H. Roeline W. Pasman","orcid":"https://orcid.org/0000-0001-6856-2964","observed_orcids":["https://orcid.org/0000-0001-6856-2964"]},"institutions":[{"id":"https://openalex.org/I4210151833","display_name":"Amsterdam University Medical Centers","ror":"https://ror.org/05grdyy37","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833"]},{"id":"https://openalex.org/I865915315","display_name":"Vrije Universiteit Amsterdam","ror":"https://ror.org/008xxew50","country_code":"NL","type":"education","lineage":["https://openalex.org/I865915315"]},{"id":"https://openalex.org/I911458345","display_name":"Amsterdam UMC Location Vrije Universiteit Amsterdam","ror":"https://ror.org/00q6h8f30","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833","https://openalex.org/I911458345"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"H. Roeline W. Pasman","raw_affiliation_strings":["Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands","institution_ids":["https://openalex.org/I4210151833","https://openalex.org/I865915315","https://openalex.org/I911458345"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074433205","display_name":"Bregje Dorien Onwuteaka-Philipsen","orcid":"https://orcid.org/0000-0002-9440-1248","observed_orcids":["https://orcid.org/0000-0002-9440-1248"]},"institutions":[{"id":"https://openalex.org/I4210151833","display_name":"Amsterdam University Medical Centers","ror":"https://ror.org/05grdyy37","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833"]},{"id":"https://openalex.org/I865915315","display_name":"Vrije Universiteit Amsterdam","ror":"https://ror.org/008xxew50","country_code":"NL","type":"education","lineage":["https://openalex.org/I865915315"]},{"id":"https://openalex.org/I911458345","display_name":"Amsterdam UMC Location Vrije Universiteit Amsterdam","ror":"https://ror.org/00q6h8f30","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833","https://openalex.org/I911458345"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Bregje D. Onwuteaka\u2010Philipsen","raw_affiliation_strings":["Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands","institution_ids":["https://openalex.org/I4210151833","https://openalex.org/I865915315","https://openalex.org/I911458345"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043182102","display_name":"Masha S. Zee","orcid":"https://orcid.org/0000-0002-7937-5854","observed_orcids":["https://orcid.org/0000-0002-7937-5854"]},"institutions":[{"id":"https://openalex.org/I4210151833","display_name":"Amsterdam University Medical Centers","ror":"https://ror.org/05grdyy37","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833"]},{"id":"https://openalex.org/I865915315","display_name":"Vrije Universiteit Amsterdam","ror":"https://ror.org/008xxew50","country_code":"NL","type":"education","lineage":["https://openalex.org/I865915315"]},{"id":"https://openalex.org/I911458345","display_name":"Amsterdam UMC Location Vrije Universiteit Amsterdam","ror":"https://ror.org/00q6h8f30","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833","https://openalex.org/I911458345"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Masha Zee","raw_affiliation_strings":["Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public and Occupational Health, Expertise Center for Palliative Care, Amsterdam UMC, VU University, Amsterdam, The Netherlands","institution_ids":["https://openalex.org/I4210151833","https://openalex.org/I865915315","https://openalex.org/I911458345"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052248110","display_name":"Erica Witkamp","orcid":"https://orcid.org/0000-0001-7475-0363","observed_orcids":["https://orcid.org/0000-0001-7475-0363"]},"institutions":[{"id":"https://openalex.org/I2801952686","display_name":"Erasmus MC","ror":"https://ror.org/018906e22","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2801952686"]},{"id":"https://openalex.org/I907135538","display_name":"Rotterdam University of Applied Sciences","ror":"https://ror.org/0481e1q24","country_code":"NL","type":"education","lineage":["https://openalex.org/I907135538"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Erica Witkamp","raw_affiliation_strings":["Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Public Health, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I2801952686"]},{"raw_affiliation_string":"Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands","institution_ids":["https://openalex.org/I907135538"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5011396590","display_name":"Anne Goossensen","orcid":"https://orcid.org/0000-0001-5447-2167","observed_orcids":["https://orcid.org/0000-0001-5447-2167"]},"institutions":[{"id":"https://openalex.org/I122285577","display_name":"University of Humanistic Studies","ror":"https://ror.org/04w5ec154","country_code":"NL","type":"education","lineage":["https://openalex.org/I122285577"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Anne Goossensen","raw_affiliation_strings":["University of Humanistic Studies, Utrecht, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Humanistic Studies, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I122285577"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5071673472"],"corresponding_institution_ids":["https://openalex.org/I2801952686","https://openalex.org/I907135538"],"apc_list":{"value":2500,"currency":"USD","value_usd":2500},"apc_paid":{"value":2500,"currency":"USD","value_usd":2500},"fwci":8.0572,"has_fulltext":true,"cited_by_count":47,"citation_normalized_percentile":{"value":0.98324263,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":99,"max":100},"biblio":{"volume":"36","issue":"3","first_page":"769","last_page":"781"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.6797000169754028,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.6797000169754028,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.2921999990940094,"subfield":{"id":"https://openalex.org/subfields/2910","display_name":"Issues, ethics and legal aspects"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.007499999832361937,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/human-dignity","display_name":"human dignity","score":0.6119999885559082},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.9990000128746033},{"id":"https://openalex.org/keywords/covid-19","display_name":"COVID-19 pandemic","score":0.984000027179718},{"id":"https://openalex.org/keywords/bereaved-families","display_name":"bereaved families","score":0.9940000176429749},{"id":"https://openalex.org/keywords/isolation","display_name":"isolation","score":0.3790000081062317},{"id":"https://openalex.org/keywords/compassionate-communication","display_name":"compassionate communication","score":0.39399999380111694},{"id":"https://openalex.org/keywords/healthcare-workers","display_name":"healthcare workers","score":0.7329999804496765},{"id":"https://openalex.org/keywords/relational-dignity","display_name":"relational dignity","score":0.8730000257492065}],"concepts":[{"id":"https://openalex.org/C2778745096","wikidata":"https://www.wikidata.org/wiki/Q274782","display_name":"Dignity","level":2,"score":0.9828163385391235},{"id":"https://openalex.org/C89623803","wikidata":"https://www.wikidata.org/wiki/Q12184","display_name":"Pandemic","level":5,"score":0.6503768563270569},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5416756868362427},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.5131333470344543},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.4430772364139557},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.44275227189064026},{"id":"https://openalex.org/C3008058167","wikidata":"https://www.wikidata.org/wiki/Q84263196","display_name":"Coronavirus disease 2019 (COVID-19)","level":4,"score":0.42642515897750854},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4002794921398163},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.3287663459777832},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.23456108570098877},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.2274978756904602},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.1274069845676422},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.08314210176467896},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C524204448","wikidata":"https://www.wikidata.org/wiki/Q788926","display_name":"Infectious disease (medical specialty)","level":3,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000086382","descriptor_name":"COVID-19","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009426","descriptor_name":"Netherlands","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D058873","descriptor_name":"Pandemics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":11,"locations":[{"id":"doi:10.1111/scs.13038","doi":"https://doi.org/10.1111/scs.13038","is_oa":true,"landing_page_url":"https://doi.org/10.1111/scs.13038","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/scs.13038","source":{"id":"https://openalex.org/S46883044","display_name":"Scandinavian Journal of Caring Sciences","issn_l":"0283-9318","issn":["0283-9318","1471-6712"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Caring Sciences","raw_type":"journal-article"},{"id":"pmid:34625992","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34625992","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian journal of caring sciences","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:8661881","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC8661881/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scand J Caring Sci","raw_type":"Text"},{"id":"pmh:oai:pure.atira.dk:openaire/f8d24356-6206-4be3-9b96-f9377fb5f944","doi":null,"is_oa":true,"landing_page_url":"https://research.vumc.nl/en/publications/f8d24356-6206-4be3-9b96-f9377fb5f944","pdf_url":null,"source":{"id":"https://openalex.org/S7407055350","display_name":"Amsterdam UMC (VU Amsterdam) - Institutional Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Becqu\u00e9, Y N, van der Geugten, W, van der Heide, A, Korfage, I J, Pasman, H R W, Onwuteaka-Philipsen, B D, Zee, M, Witkamp, E & Goossensen, A 2021, 'Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic : A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)', Scandinavian Journal of Caring Sciences. https://doi.org/10.1111/scs.13038","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:pure.eur.nl:openaire/efca73c4-061d-43ec-9232-5b6eaae32478","doi":null,"is_oa":true,"landing_page_url":"https://pure.eur.nl/en/publications/efca73c4-061d-43ec-9232-5b6eaae32478","pdf_url":null,"source":{"id":"https://openalex.org/S4306401266","display_name":"EUR Research Repository (Erasmus University Rotterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I913958620","host_organization_name":"Erasmus University Rotterdam","host_organization_lineage":["https://openalex.org/I913958620"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Becqu\u00e9, Y N, van der Geugten, W, van der Heide, A, Korfage, I J, Pasman, H R W, Onwuteaka-Philipsen, B D, Zee, M, Witkamp, E & Goossensen, A 2022, 'Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic : A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)', Scandinavian Journal of Caring Sciences, vol. 36, no. 3, pp. 769-781. https://doi.org/10.1111/scs.13038","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:pure.amsterdamumc.nl:openaire/7c1ea9eb-3aee-450e-9cb8-fba9237dfbd0","doi":null,"is_oa":true,"landing_page_url":"https://pure.amsterdamumc.nl/files/137560014/Dignity-reflections-based-on-experiences-of-end-of-life-care-during-the-first-wave-of-the-covid-19-pandemic.pdf","pdf_url":"https://pure.amsterdamumc.nl/ws/files/137560014/Dignity-reflections-based-on-experiences-of-end-of-life-care-during-the-first-wave-of-the-covid-19-pandemic.pdf","source":{"id":"https://openalex.org/S7407055222","display_name":"Pure Amsterdam UMC","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Becqu\u00e9, Y N, van der Geugten, W, van der Heide, A, Korfage, I J, Pasman, H R W, Onwuteaka-Philipsen, B D, Zee, M, Witkamp, E & Goossensen, A 2021, 'Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic : A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)', Scandinavian journal of caring sciences. https://doi.org/10.1111/scs.13038","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:eur:oai:pure.eur.nl:publications/efca73c4-061d-43ec-9232-5b6eaae32478","doi":null,"is_oa":true,"landing_page_url":"https://pure.eur.nl/en/publications/efca73c4-061d-43ec-9232-5b6eaae32478","pdf_url":null,"source":{"id":"https://openalex.org/S4306401266","display_name":"EUR Research Repository (Erasmus University Rotterdam)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I913958620","host_organization_name":"Erasmus University Rotterdam","host_organization_lineage":["https://openalex.org/I913958620"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Scandinavian Journal of Caring Sciences, 36(3), 769 - 781. Wiley-Blackwell Publishing Ltd","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:https://research.uvh.nl/ws/oai:openaire/8b2214b4-0028-4e41-a9d2-137851116c7b","doi":null,"is_oa":true,"landing_page_url":"https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=elsevierpure_uvhutrecht&SrcAuth=WosAPI&KeyUT=WOS:000705545800001&DestLinkType=FullRecord&DestApp=WOS","pdf_url":null,"source":{"id":"https://openalex.org/S7407064150","display_name":"University of Humanistic Studies OAI Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I122285577","host_organization_name":"University of Humanistic Studies","host_organization_lineage":["https://openalex.org/I122285577"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-sa","license_id":"https://openalex.org/licenses/cc-by-nc-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Becqu\u00e9, YN, van der Geugten, W, van der Heide, A, Korfage, IJ, Pasman, HRW, Onwuteaka-Philipsen, BD, Zee, M, Witkamp, E & Goossensen, A 2021, 'Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic : A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study)', Scandinavian Journal of Caring Sciences, vol. 36, no. 3, pp. 769-781. https://doi.org/10.1111/scs.13038","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:https://research.uvh.nl/ws/oai:openaire_cris_publications/f9339bc3-7737-4b52-8c0c-c30e4f31bb87","doi":null,"is_oa":true,"landing_page_url":"https://research.uvh.nl/en/publications/f9339bc3-7737-4b52-8c0c-c30e4f31bb87","pdf_url":null,"source":{"id":"https://openalex.org/S7407064150","display_name":"University of Humanistic Studies OAI Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I122285577","host_organization_name":"University of Humanistic Studies","host_organization_lineage":["https://openalex.org/I122285577"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Becqu\u00e9 , YN , van der Geugten , W , van der Heide , A , Korfage , IJ , Pasman , HRW , Onwuteaka-Philipsen , BD , Zee , M , Witkamp , E & Goossensen , A 2021 , ' Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic : A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study) ' , Scandinavian Journal of Caring Sciences , vol. 36 , no. 3 , pp. 769-781 . https://doi.org/10.1111/scs.13038","raw_type":"article"},{"id":"pmh:uvh:oai:https://research.uvh.nl/ws/oai:publications/8b2214b4-0028-4e41-a9d2-137851116c7b","doi":null,"is_oa":false,"landing_page_url":"https://research.uvh.nl/en/publications/8b2214b4-0028-4e41-a9d2-137851116c7b","pdf_url":null,"source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Scandinavian Journal of Caring Sciences, October(Online ahead of print). Wiley-Blackwell Publishing Ltd","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:vumc:oai:pure.atira.dk:publications/f8d24356-6206-4be3-9b96-f9377fb5f944","doi":null,"is_oa":true,"landing_page_url":"https://research.vumc.nl/en/publications/f8d24356-6206-4be3-9b96-f9377fb5f944","pdf_url":null,"source":{"id":"https://openalex.org/S4306401843","display_name":"Data Archiving and Networked Services (DANS)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1322597698","host_organization_name":"Royal Netherlands Academy of Arts and Sciences","host_organization_lineage":["https://openalex.org/I1322597698"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Scandinavian Journal of Caring Sciences. Wiley-Blackwell","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1111/scs.13038","doi":"https://doi.org/10.1111/scs.13038","is_oa":true,"landing_page_url":"https://doi.org/10.1111/scs.13038","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/scs.13038","source":{"id":"https://openalex.org/S46883044","display_name":"Scandinavian Journal of Caring Sciences","issn_l":"0283-9318","issn":["0283-9318","1471-6712"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Caring Sciences","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9537000060081482}],"study_designs":[],"awards":[{"id":"https://openalex.org/G5509830712","display_name":null,"funder_award_id":"844001803","funder_id":"https://openalex.org/F4320321007","funder_display_name":"ZonMw"}],"funders":[{"id":"https://openalex.org/F4320321007","display_name":"ZonMw","ror":"https://ror.org/01yaj9a77"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3203602706.pdf","grobid_xml":"https://content.openalex.org/works/W3203602706.grobid-xml"},"referenced_works_count":33,"referenced_works":["https://openalex.org/W1973536519","https://openalex.org/W1974294929","https://openalex.org/W1976770755","https://openalex.org/W2009699389","https://openalex.org/W2011677164","https://openalex.org/W2015893364","https://openalex.org/W2029616266","https://openalex.org/W2030144487","https://openalex.org/W2038164804","https://openalex.org/W2045099514","https://openalex.org/W2057936917","https://openalex.org/W2114153469","https://openalex.org/W2125234640","https://openalex.org/W2141850993","https://openalex.org/W2160645326","https://openalex.org/W2267426610","https://openalex.org/W2582514223","https://openalex.org/W2615156523","https://openalex.org/W2687960929","https://openalex.org/W2991581113","https://openalex.org/W3013171296","https://openalex.org/W3020886392","https://openalex.org/W3021921688","https://openalex.org/W3023343931","https://openalex.org/W3023806942","https://openalex.org/W3024585030","https://openalex.org/W3033008889","https://openalex.org/W3034351411","https://openalex.org/W3128669464","https://openalex.org/W3140100363","https://openalex.org/W3149250821","https://openalex.org/W3165724119","https://openalex.org/W4205684118"],"related_works":["https://openalex.org/W7065487227","https://openalex.org/W4310675615","https://openalex.org/W4385816494","https://openalex.org/W3149250821","https://openalex.org/W4323347940","https://openalex.org/W4221126581","https://openalex.org/W4400957154","https://openalex.org/W7073840487","https://openalex.org/W4407284990","https://openalex.org/W4221137138"],"abstract_inverted_index":{"BACKGROUND:":[0],"The":[1,175],"COVID-19":[2,15,69,93],"pandemic":[3,70,94],"affects":[4],"care":[5,46,147,203,259],"practices":[6,47,148,204],"for":[7,25,108],"critically":[8],"ill":[9],"patients,":[10],"with":[11,82,161,217,226],"or":[12,52,158,207],"without":[13],"a":[14,105],"infection,":[16],"and":[17,27,35,59,97,110,118,131,135,169,173,182,192,223,247],"may":[18],"have":[19,50],"affected":[20],"the":[21,31,54,57,64,68,72,92,101,112,132,154,188,218,221,237],"experience":[22],"of":[23,44,56,67,87,114,138,145,156,171,190,201,212,220,240],"dying":[24],"patients":[26,58,88,157,191],"their":[28,60,193],"relatives":[29,86,214,241],"in":[30,71,100,244],"physical,":[32],"psychological,":[33],"social":[34],"spiritual":[36],"domains.":[37],"AIM:":[38],"To":[39],"give":[40],"insight":[41],"into":[42],"aspects":[43,130,144,200,231],"end-of-life":[45,146,180,202],"that":[48,178,205,232,251],"might":[49],"jeopardised":[51,206],"supported":[53,208],"dignity":[55,155,189,211,238],"family":[61],"members":[62],"during":[63,91],"first":[65],"wave":[66],"Netherlands.":[73,102],"METHODOLOGY:":[74],"A":[75],"qualitative":[76],"study":[77,197],"involving":[78],"25":[79],"in-depth":[80],"interviews":[81],"purposively":[83],"sampled":[84],"bereaved":[85,213],"who":[89],"died":[90],"between":[95],"March":[96],"July":[98],"2020":[99],"We":[103],"created":[104],"dignity-inspired":[106],"framework":[107],"analysis,":[109],"used":[111],"models":[113],"Chochinov":[115],"et":[116,121],"al.":[117,122],"Van":[119],"Gennip":[120],"as":[123,151],"sensitising":[124],"concepts.":[125],"These":[126],"focus":[127],"on":[128,236],"illness-related":[129],"individual,":[133],"relational":[134],"societal/organisational":[136],"level":[137],"dignity.":[139,209],"RESULTS:":[140],"Four":[141],"themes":[142],"concerning":[143],"were":[149,242],"identified":[150],"possibly":[152],"jeopardising":[153],"relatives:":[159],"'Dealing":[160],"an":[162,234],"unknown":[163],"illness',":[164],"'Being":[165],"isolated',":[166],"'Restricted":[167],"farewells'":[168],"'Lack":[170],"attentiveness":[172],"communication'.":[174],"analysis":[176],"showed":[177],"'Meaningful":[179],"moments'":[181],"'Compassionate":[183],"professional":[184],"support'":[185],"contributed":[186],"to":[187,261],"relatives.":[194],"CONCLUSION:":[195],"This":[196],"illuminates":[198],"possible":[199],"Experienced":[210],"was":[215],"associated":[216,225],"unfamiliarity":[219],"virus":[222],"issues":[224],"preventive":[227,252],"measures.":[228],"However,":[229],"most":[230],"had":[233],"impact":[235],"experiences":[239],"based":[243],"human":[245],"action":[246],"relationships.":[248],"Relatives":[249],"experienced":[250],"measures":[253],"could":[254],"be":[255],"mitigated":[256],"by":[257],"health":[258],"professionals":[260],"make":[262],"them":[263],"less":[264],"devastating.":[265]},"counts_by_year":[{"year":2025,"cited_by_count":8},{"year":2024,"cited_by_count":13},{"year":2023,"cited_by_count":17},{"year":2022,"cited_by_count":9}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2021-10-11T00:00:00"}