{"id":"https://openalex.org/W3196400967","doi":"https://doi.org/10.5334/ijic.icic20132","title":"Needs assessment for person-centred palliative and end of life care in the Isle of Man","display_name":"Needs assessment for person-centred palliative and end of life care in the Isle of Man","publication_year":2021,"publication_date":"2021-09-01","ids":{"openalex":"https://openalex.org/W3196400967","doi":"https://doi.org/10.5334/ijic.icic20132","mag":"3196400967"},"language":"en","primary_location":{"id":"doi:10.5334/ijic.icic20132","doi":"https://doi.org/10.5334/ijic.icic20132","is_oa":true,"landing_page_url":"https://doi.org/10.5334/ijic.icic20132","pdf_url":"https://storage.googleapis.com/jnl-up-j-ijic-files/journals/1/articles/6105/submission/proof/6105-1-22890-1-10-20210804.pdf","source":{"id":"https://openalex.org/S2488126895","display_name":"International Journal of Integrated Care","issn_l":"1568-4156","issn":["1568-4156"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","jufo-2","ki-jl-1","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International Journal of Integrated Care","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://storage.googleapis.com/jnl-up-j-ijic-files/journals/1/articles/6105/submission/proof/6105-1-22890-1-10-20210804.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Giovanna Cruz","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4405266926","display_name":"Hospice Isle of Man","ror":"https://ror.org/00c6x9s98","country_code":"IM","type":"nonprofit","lineage":["https://openalex.org/I4405266926"]}],"countries":["IM"],"is_corresponding":true,"raw_author_name":"Giovanna Cruz","raw_affiliation_strings":["Hospice Isle Of Man"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hospice Isle Of Man","institution_ids":["https://openalex.org/I4405266926"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I4405266926"],"apc_list":{"value":1500,"currency":"GBP","value_usd":1839},"apc_paid":{"value":1500,"currency":"GBP","value_usd":1839},"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"21","issue":"S1","first_page":"80","last_page":"80"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9940999746322632,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.004800000227987766,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.8980000019073486},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.9950000047683716},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.7260000109672546},{"id":"https://openalex.org/keywords/caregiver-needs","display_name":"caregiver needs","score":0.7509999871253967},{"id":"https://openalex.org/keywords/needs-assessment","display_name":"needs assessment","score":0.8230000138282776},{"id":"https://openalex.org/keywords/integrated-care","display_name":"integrated care","score":0.8450000286102295},{"id":"https://openalex.org/keywords/isle-of-man","display_name":"Isle of Man","score":0.8690000176429749},{"id":"https://openalex.org/keywords/life-limiting-conditions","display_name":"life-limiting illness","score":0.8040000200271606},{"id":"https://openalex.org/keywords/professional-communication","display_name":"professional communication","score":0.4309999942779541},{"id":"https://openalex.org/keywords/patient-and-family-involvement","display_name":"patient and family involvement","score":0.7239999771118164},{"id":"https://openalex.org/keywords/bereavement","display_name":"bereavement","score":0.8289999961853027},{"id":"https://openalex.org/keywords/mental-health","display_name":"mental health","score":0.5350000262260437},{"id":"https://openalex.org/keywords/small-island-communities","display_name":"small island communities","score":0.6050000190734863},{"id":"https://openalex.org/keywords/service-gaps","display_name":"service gaps","score":0.4729999899864197}],"concepts":[{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.8048638701438904},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.6191602945327759},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.5893983840942383},{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.5268750786781311},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.49157604575157166},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.46213310956954956},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45767730474472046},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4259498715400696},{"id":"https://openalex.org/C2780837026","wikidata":"https://www.wikidata.org/wiki/Q1026040","display_name":"Grief","level":2,"score":0.4107840061187744},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.16296330094337463},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.5334/ijic.icic20132","doi":"https://doi.org/10.5334/ijic.icic20132","is_oa":true,"landing_page_url":"https://doi.org/10.5334/ijic.icic20132","pdf_url":"https://storage.googleapis.com/jnl-up-j-ijic-files/journals/1/articles/6105/submission/proof/6105-1-22890-1-10-20210804.pdf","source":{"id":"https://openalex.org/S2488126895","display_name":"International Journal of Integrated Care","issn_l":"1568-4156","issn":["1568-4156"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","jufo-2","ki-jl-1","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International Journal of Integrated Care","raw_type":"journal-article"},{"id":"pmh:oai:ojs.www.ijic.org:article/6105","doi":null,"is_oa":true,"landing_page_url":"https://www.ijic.org/jms/article/view/6105","pdf_url":null,"source":{"id":"https://openalex.org/S4306401588","display_name":"International Journal of Integrated Care (IJIC)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"International Journal of Integrated Care; Vol 21: ICIC20 Virtual Conference 2020; 80","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.5334/ijic.icic20132","doi":"https://doi.org/10.5334/ijic.icic20132","is_oa":true,"landing_page_url":"https://doi.org/10.5334/ijic.icic20132","pdf_url":"https://storage.googleapis.com/jnl-up-j-ijic-files/journals/1/articles/6105/submission/proof/6105-1-22890-1-10-20210804.pdf","source":{"id":"https://openalex.org/S2488126895","display_name":"International Journal of Integrated Care","issn_l":"1568-4156","issn":["1568-4156"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-c","jufo-2","ki-jl-1","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320511","host_organization_name":"Ubiquity Press","host_organization_lineage":["https://openalex.org/P4310320511"],"host_organization_lineage_names":["Ubiquity Press"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"International Journal of Integrated Care","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9391000270843506}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3196400967.pdf","grobid_xml":"https://content.openalex.org/works/W3196400967.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2990386142","https://openalex.org/W2923402643","https://openalex.org/W2896492179","https://openalex.org/W3198481495","https://openalex.org/W2923795053","https://openalex.org/W2155434905","https://openalex.org/W2592301533","https://openalex.org/W2164298852","https://openalex.org/W7171510494","https://openalex.org/W2912879979"],"abstract_inverted_index":{"IntroductionIsle":[0],"of":[1,25,30,43,133,142,179,242,285,315,322,353,372],"Man":[2,31],"(IOM)":[3],"is":[4,270,273,290,356],"a":[5,34,208,237,263,291,347,392],"British":[6],"crown":[7],"dependency":[8],"with":[9,70,95,101,103,212,228],"83,000":[10],"residents.":[11],"To":[12],"provide":[13,250],"an":[14,366],"evidence-base":[15],"for":[16,55,149,156,221,239,294,395],"the":[17,39,62,81,123,225,260,268,277,282,286,329,370],"Island":[18],"strategy":[19],"on":[20,86,346],"integrated":[21,129,363],"palliative":[22,130],"and":[23,41,47,76,106,120,131,191,198,227,230,244,251,296,300,304,307,310],"end":[24,132,141,321,371],"life":[26,134,143],"care,":[27],"Hospice":[28,215],"Isle":[29],"carried":[32,93],"out":[33,94],"needs":[35,187],"assessment,":[36],"which":[37],"involves":[38],"collection":[40],"analysis":[42],"data":[44,51,387],"describing":[45],"services":[46,75,279],"identifying":[48],"gaps.":[49],"Many":[50,298],"sources":[52],"normally":[53],"used":[54],"this":[56],"purpose":[57],"are":[58,122,164,177,188,256,312,331,340,360,384],"not":[59,117,257,305],"available":[60],"in":[61,73,128,247,328,335,365,377],"IOM":[63,330],"so":[64],"we":[65,88,359],"compensated":[66],"by":[67,259,326],"extensive":[68],"engagement":[69],"those":[71,150,334],"working":[72],"relevant":[74],"organisations":[77],"as":[78,80,234,236,272],"well":[79,217,235],"public.":[82],"This":[83],"paper":[84],"focuses":[85],"what":[87],"learned":[89],"about":[90,276],"carers.MethodsInterviews":[91],"were":[92,216],"over":[96],"60":[97],"professionals":[98,226],"who":[99],"work":[100,118],"people":[102,139],"life-limiting":[104],"illness":[105],"twelve":[107],"patients/carers.":[108],"The":[109,386],"questions":[110],"were:":[111],"\u201cWhat":[112,121],"works":[113],"well?\u201d":[114],"What":[115],"does":[116],"well\u201d":[119],"gaps\u201d":[124],"from":[125,182],"your":[126],"perspective":[127],"care.ResultsWe":[135],"found":[136],"that":[137,151,162,166,171,210],"some":[138,153],"at":[140,313,369],"have":[144],"no":[145],"carers":[146,211,301,311,327],"but,":[147],"even":[148,202],"do,":[152],"don\u2019t":[154,160,173],"ask":[155,174],"help":[157,169,266,380],"because":[158,175],"they":[159,163,167,172,176,255],"recognise":[161],"carers,":[165],"need":[168,220,238],"or":[170,196],"afraid":[178],"being":[180,345],"separated":[181],"their":[183,245],"loved":[184],"one.":[185],"Carers\u2019":[186],"often":[189],"overlooked":[190],"can":[192,199],"be":[193,391],"emotional,":[194],"physical":[195],"financial":[197],"cause":[200],"problems":[201,318,324,355],"long":[203],"after":[204],"bereavement.":[205],"There":[206],"was":[207,232],"perception":[209],"links":[213],"to":[214,265,333,344,361],"supported.":[218],"A":[219],"better":[222,240,274],"communication":[223],"between":[224],"patients":[229,243,295,299,309],"families":[231,246],"highlighted":[233],"involvement":[241],"decisions.":[248],"Carers":[249],"coordinate":[252],"care":[253,289,364],"but":[254,381],"recognised":[258],"system.":[261],"Having":[262],"professional":[264],"navigate":[267],"system":[269],"invaluable":[271],"information":[275],"support":[278],"available.":[280],"In":[281],"particular":[283],"case":[284],"IOM,":[287],"off-Island":[288],"substantial":[292],"burden":[293],"carers.":[297],"feel":[302],"alone":[303],"understood":[306],"both":[308],"risk":[314],"mental":[316],"health":[317],"when":[319],"facing":[320],"life.Discussion/ConclusionsThe":[323],"faced":[325],"similar":[332],"other":[336],"communities.":[337],"However,":[338],"there":[339],"additional":[341],"challenges":[342],"due":[343],"small":[348],"island.":[349],"An":[350],"effective":[351],"resolution":[352],"these":[354],"essential":[357],"if":[358],"achieve":[362],"appropriate":[367],"setting":[368],"life.":[373],"Some":[374],"initiatives":[375],"already":[376,388],"place":[378],"should":[379],"new":[382],"approaches":[383],"needed.":[385],"collected":[389],"will":[390],"useful":[393],"basis":[394],"future":[396],"evaluation.":[397]},"counts_by_year":[{"year":2025,"cited_by_count":1}],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2021-09-13T00:00:00"}