{"id":"https://openalex.org/W3146979235","doi":"https://doi.org/10.1111/jth.15311","title":"\u201cThey don\u2019t really take my bleeds seriously\u201d: Barriers to care for women with inherited bleeding disorders","display_name":"\u201cThey don\u2019t really take my bleeds seriously\u201d: Barriers to care for women with inherited bleeding disorders","publication_year":2021,"publication_date":"2021-03-28","ids":{"openalex":"https://openalex.org/W3146979235","doi":"https://doi.org/10.1111/jth.15311","mag":"3146979235","pmid":"https://pubmed.ncbi.nlm.nih.gov/33774912"},"language":"en","primary_location":{"id":"doi:10.1111/jth.15311","doi":"https://doi.org/10.1111/jth.15311","is_oa":true,"landing_page_url":"https://doi.org/10.1111/jth.15311","pdf_url":null,"source":{"id":"https://openalex.org/S164469042","display_name":"Journal of Thrombosis and Haemostasis","issn_l":"1538-7836","issn":["1538-7836","1538-7933"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Thrombosis and Haemostasis","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://doi.org/10.1111/jth.15311","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5083054448","display_name":"Sumedha Arya","orcid":"https://orcid.org/0000-0002-2063-230X","observed_orcids":["https://orcid.org/0000-0002-2063-230X"]},"institutions":[{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Sumedha Arya","raw_affiliation_strings":["Department of Medicine, University of Toronto, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, University of Toronto, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I185261750"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026142951","display_name":"Pamela Wilton","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2801233168","display_name":"Canadian Hemophilia Society","ror":"https://ror.org/0216whp02","country_code":"CA","type":"nonprofit","lineage":["https://openalex.org/I2801233168"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Pamela Wilton","raw_affiliation_strings":["Canadian Hemophilia Society, Montreal, Quebec, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Canadian Hemophilia Society, Montreal, Quebec, Canada","institution_ids":["https://openalex.org/I2801233168"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5010571274","display_name":"David Page","orcid":"https://orcid.org/0000-0001-5009-260X","observed_orcids":["https://orcid.org/0000-0001-5009-260X"]},"institutions":[{"id":"https://openalex.org/I2801233168","display_name":"Canadian Hemophilia Society","ror":"https://ror.org/0216whp02","country_code":"CA","type":"nonprofit","lineage":["https://openalex.org/I2801233168"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"David Page","raw_affiliation_strings":["Canadian Hemophilia Society, Montreal, Quebec, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Canadian Hemophilia Society, Montreal, Quebec, Canada","institution_ids":["https://openalex.org/I2801233168"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046487795","display_name":"Laurence Boma\u2010Fischer","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1297363086","display_name":"St. Michael's Hospital","ror":"https://ror.org/04skqfp25","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1297363086","https://openalex.org/I4399598460"]},{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Laurence Boma\u2010Fischer","raw_affiliation_strings":["Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada","Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047097338","display_name":"Georgina Floros","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1297363086","display_name":"St. Michael's Hospital","ror":"https://ror.org/04skqfp25","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1297363086","https://openalex.org/I4399598460"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Georgina Floros","raw_affiliation_strings":["Department of Nursing, St. Michael's Hospital, Toronto, Ontario, Canada","Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Nursing, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]},{"raw_affiliation_string":"Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045019197","display_name":"Rochelle Winikoff","orcid":"https://orcid.org/0000-0002-3896-4898","observed_orcids":["https://orcid.org/0000-0002-3896-4898"]},"institutions":[{"id":"https://openalex.org/I2802351361","display_name":"Centre Hospitalier Universitaire Sainte-Justine","ror":"https://ror.org/01gv74p78","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801902503","https://openalex.org/I2802351361","https://openalex.org/I4210139015","https://openalex.org/I4405279980"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Rochelle Winikoff","raw_affiliation_strings":["Division of Hematology-Oncology, CHU Ste-Justine, Montreal, Quebec, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology-Oncology, CHU Ste-Justine, Montreal, Quebec, Canada","institution_ids":["https://openalex.org/I2802351361"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5008052776","display_name":"Jerome M. Teitel","orcid":"https://orcid.org/0000-0001-6455-8167","observed_orcids":["https://orcid.org/0000-0001-6455-8167"]},"institutions":[{"id":"https://openalex.org/I1297363086","display_name":"St. Michael's Hospital","ror":"https://ror.org/04skqfp25","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1297363086","https://openalex.org/I4399598460"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Jerome Teitel","raw_affiliation_strings":["Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Hematology and Oncology, Department of Medicine, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047250540","display_name":"Katie N. Dainty","orcid":"https://orcid.org/0000-0002-2906-8813","observed_orcids":["https://orcid.org/0000-0002-2906-8813"]},"institutions":[{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]},{"id":"https://openalex.org/I2800061829","display_name":"North York General Hospital","ror":"https://ror.org/05b3hqn14","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2800061829"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Katie Dainty","raw_affiliation_strings":["Institute of Health Policy Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada","North York General Hospital, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Institute of Health Policy Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"North York General Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I2800061829"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5085722347","display_name":"Michelle Sholzberg","orcid":"https://orcid.org/0000-0003-1220-0301","observed_orcids":["https://orcid.org/0000-0003-1220-0301"]},"institutions":[{"id":"https://openalex.org/I1297363086","display_name":"St. Michael's Hospital","ror":"https://ror.org/04skqfp25","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I1297363086","https://openalex.org/I4399598460"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Michelle Sholzberg","raw_affiliation_strings":["Department of Medicine and Laboratory Medicine & Pathobiology, St. Michael's Hospital, Toronto, Ontario, Canada","Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine and Laboratory Medicine & Pathobiology, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]},{"raw_affiliation_string":"Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I1297363086"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5085722347"],"corresponding_institution_ids":["https://openalex.org/I1297363086"],"apc_list":{"value":3500,"currency":"USD","value_usd":3500},"apc_paid":null,"fwci":7.7716,"has_fulltext":false,"cited_by_count":69,"citation_normalized_percentile":{"value":0.9818069,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":97,"max":100},"biblio":{"volume":"19","issue":"6","first_page":"1506","last_page":"1514"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11280","display_name":"Hemophilia Treatment and Research","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11280","display_name":"Hemophilia Treatment and Research","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10746","display_name":"Platelet Disorders and Treatments","score":0.0027000000700354576,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13252","display_name":"Sex and Gender in Healthcare","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/inherited-bleeding-disorders","display_name":"inherited bleeding disorders","score":0.9959999918937683},{"id":"https://openalex.org/keywords/hemophilia","display_name":"hemophilia","score":0.8180000185966492},{"id":"https://openalex.org/keywords/barriers-to-care","display_name":"barriers to care","score":0.9789999723434448},{"id":"https://openalex.org/keywords/access-to-specialized-care","display_name":"access to specialist care","score":0.8840000033378601},{"id":"https://openalex.org/keywords/healthcare-provider-awareness","display_name":"healthcare provider awareness","score":0.9599999785423279},{"id":"https://openalex.org/keywords/patient-self-advocacy","display_name":"patient self-advocacy","score":0.7480000257492065},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.8809999823570251},{"id":"https://openalex.org/keywords/telemedicine","display_name":"telemedicine","score":0.8619999885559082},{"id":"https://openalex.org/keywords/referral-guidelines","display_name":"referral guidelines","score":0.6890000104904175},{"id":"https://openalex.org/keywords/medical-curriculum","display_name":"medical curriculum","score":0.5199999809265137}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6817656755447388},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.5549967288970947},{"id":"https://openalex.org/C2776135927","wikidata":"https://www.wikidata.org/wiki/Q5242559","display_name":"Referral","level":2,"score":0.5290020108222961},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.5150270462036133},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.511237382888794},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.48654475808143616},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.4841678738594055},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.36455926299095154},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.24364227056503296},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002170","descriptor_name":"Canada","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006297","descriptor_name":"Health Services Accessibility","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006467","descriptor_name":"Hemophilia A","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D006467","descriptor_name":"Hemophilia A","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D006470","descriptor_name":"Hemorrhage","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":false},{"descriptor_ui":"D006470","descriptor_name":"Hemorrhage","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1111/jth.15311","doi":"https://doi.org/10.1111/jth.15311","is_oa":true,"landing_page_url":"https://doi.org/10.1111/jth.15311","pdf_url":null,"source":{"id":"https://openalex.org/S164469042","display_name":"Journal of Thrombosis and Haemostasis","issn_l":"1538-7836","issn":["1538-7836","1538-7933"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Thrombosis and Haemostasis","raw_type":"journal-article"},{"id":"pmid:33774912","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/33774912","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of thrombosis and haemostasis : JTH","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1111/jth.15311","doi":"https://doi.org/10.1111/jth.15311","is_oa":true,"landing_page_url":"https://doi.org/10.1111/jth.15311","pdf_url":null,"source":{"id":"https://openalex.org/S164469042","display_name":"Journal of Thrombosis and Haemostasis","issn_l":"1538-7836","issn":["1538-7836","1538-7933"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-2","medline","norway-1","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Thrombosis and Haemostasis","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9940000176429749,"display_name":"Good health and well-being"},{"id":"https://metadata.un.org/sdg/10","score":0.7578999996185303,"display_name":"Reduced inequalities"},{"id":"https://metadata.un.org/sdg/5","score":0.6025999784469604,"display_name":"Gender equality"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":25,"referenced_works":["https://openalex.org/W53492312","https://openalex.org/W1420865548","https://openalex.org/W1814876822","https://openalex.org/W1845335116","https://openalex.org/W2055410897","https://openalex.org/W2067749676","https://openalex.org/W2114410175","https://openalex.org/W2114528879","https://openalex.org/W2150488841","https://openalex.org/W2157248691","https://openalex.org/W2164155966","https://openalex.org/W2165895019","https://openalex.org/W2298934010","https://openalex.org/W2419340483","https://openalex.org/W2600698576","https://openalex.org/W2604462721","https://openalex.org/W2615744543","https://openalex.org/W2619156605","https://openalex.org/W2918781774","https://openalex.org/W3006991365","https://openalex.org/W3012290708","https://openalex.org/W3016802478","https://openalex.org/W3088885813","https://openalex.org/W3111799717","https://openalex.org/W6846249626"],"related_works":["https://openalex.org/W2983437497","https://openalex.org/W4212828830","https://openalex.org/W4398173619","https://openalex.org/W4210509054","https://openalex.org/W4413269921","https://openalex.org/W2901646507","https://openalex.org/W2953716871","https://openalex.org/W3110630255","https://openalex.org/W2984169696","https://openalex.org/W7125686131"],"abstract_inverted_index":null,"counts_by_year":[{"year":2026,"cited_by_count":14},{"year":2025,"cited_by_count":7},{"year":2024,"cited_by_count":22},{"year":2023,"cited_by_count":9},{"year":2022,"cited_by_count":12},{"year":2021,"cited_by_count":5}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2021-04-13T00:00:00"}
