{"id":"https://openalex.org/W3045637530","doi":"https://doi.org/10.18356/051ecd9a-en","title":"Exploring Critical Issues in the Ethical Involvement of Children with Disabilities in Evidence Generation and Use","display_name":"Exploring Critical Issues in the Ethical Involvement of Children with Disabilities in Evidence Generation and Use","publication_year":2020,"publication_date":"2020-07-30","ids":{"openalex":"https://openalex.org/W3045637530","doi":"https://doi.org/10.18356/051ecd9a-en","mag":"3045637530"},"language":"en","primary_location":{"id":"doi:10.18356/051ecd9a-en","doi":"https://doi.org/10.18356/051ecd9a-en","is_oa":false,"landing_page_url":"https://doi.org/10.18356/051ecd9a-en","pdf_url":null,"source":{"id":"https://openalex.org/S4210233031","display_name":"Innocenti working papers","issn_l":"2520-6796","issn":["2520-6796"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310320387","host_organization_name":"United Nations Publications","host_organization_lineage":["https://openalex.org/P4310320387"],"host_organization_lineage_names":["United Nations Publications"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Innocenti Working Papers","raw_type":"report-series"},"volume":null,"type":"paratext","is_traditional":false,"indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://figshare.com/articles/report/Exploring_Critical_Issues_in_the_Ethical_Involvement_of_Children_with_Disabilities_in_Evidence_Generation_and_Use/26514370","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Stephen Thompson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Stephen Thompson","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026215908","display_name":"Mariah Cannon","orcid":"https://orcid.org/0000-0002-7072-9791","observed_orcids":["https://orcid.org/0000-0002-7072-9791"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mariah Cannon","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5077092359","display_name":"Mary Wickenden","orcid":"https://orcid.org/0000-0001-6831-3036","observed_orcids":["https://orcid.org/0000-0001-6831-3036"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mary Wickenden","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":13,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":true,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11506","display_name":"Children's Rights and Participation","score":0.8539999723434448,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11506","display_name":"Children's Rights and Participation","score":0.8539999723434448,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.1421000063419342,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.002099999925121665,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/children-with-disabilities","display_name":"children with disabilities","score":0.9990000128746033},{"id":"https://openalex.org/keywords/research-ethics","display_name":"research ethics","score":0.8830000162124634},{"id":"https://openalex.org/keywords/disability-inclusion","display_name":"disability inclusion","score":0.7950000166893005},{"id":"https://openalex.org/keywords/children-s-participation","display_name":"children's participation","score":0.6460000276565552},{"id":"https://openalex.org/keywords/evidence-generation","display_name":"evidence generation","score":0.703000009059906},{"id":"https://openalex.org/keywords/children-s-rights","display_name":"children's rights","score":0.6620000004768372},{"id":"https://openalex.org/keywords/ethical-practice","display_name":"ethical practice","score":0.3499999940395355},{"id":"https://openalex.org/keywords/mitigation-measures","display_name":"mitigation measures","score":0.4320000112056732},{"id":"https://openalex.org/keywords/children-s-perspectives","display_name":"children's perspectives","score":0.45399999618530273}],"concepts":[{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.8083518147468567},{"id":"https://openalex.org/C2986663376","wikidata":"https://www.wikidata.org/wiki/Q9465","display_name":"Ethical issues","level":2,"score":0.5160112380981445},{"id":"https://openalex.org/C184356942","wikidata":"https://www.wikidata.org/wiki/Q830382","display_name":"Best practice","level":2,"score":0.4692437946796417},{"id":"https://openalex.org/C2781089630","wikidata":"https://www.wikidata.org/wiki/Q21856745","display_name":"Realization (probability)","level":2,"score":0.46899154782295227},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45344334840774536},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.41971322894096375},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.39768368005752563},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.1691422164440155},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.11174529790878296},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.08469554781913757},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.18356/051ecd9a-en","doi":"https://doi.org/10.18356/051ecd9a-en","is_oa":false,"landing_page_url":"https://doi.org/10.18356/051ecd9a-en","pdf_url":null,"source":{"id":"https://openalex.org/S4210233031","display_name":"Innocenti working papers","issn_l":"2520-6796","issn":["2520-6796"],"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310320387","host_organization_name":"United Nations Publications","host_organization_lineage":["https://openalex.org/P4310320387"],"host_organization_lineage_names":["United Nations Publications"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Innocenti Working Papers","raw_type":"report-series"},{"id":"pmh:oai:figshare.com:article/26514370","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/report/Exploring_Critical_Issues_in_the_Ethical_Involvement_of_Children_with_Disabilities_in_Evidence_Generation_and_Use/26514370","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Report"},{"id":"pmh:oai:opendocs.ids.ac.uk:20.500.12413/15543","doi":null,"is_oa":false,"landing_page_url":"https://opendocs.ids.ac.uk/opendocs/handle/20.500.12413/15543","pdf_url":null,"source":{"id":"https://openalex.org/S4306401080","display_name":"OpenDocs (Institute of Development Studies)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210120766","host_organization_name":"Institute of Development Studies","host_organization_lineage":["https://openalex.org/I4210120766"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Series paper (non-IDS)"}],"best_oa_location":{"id":"pmh:oai:figshare.com:article/26514370","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/report/Exploring_Critical_Issues_in_the_Ethical_Involvement_of_Children_with_Disabilities_in_Evidence_Generation_and_Use/26514370","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Report"},"sustainable_development_goals":[{"score":0.7365999817848206,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"},{"score":0.46810001134872437,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W6999067473","https://openalex.org/W139371002","https://openalex.org/W2582771241","https://openalex.org/W2966307049","https://openalex.org/W7162878360","https://openalex.org/W7128549900","https://openalex.org/W2914841098","https://openalex.org/W31705002","https://openalex.org/W2394789357","https://openalex.org/W4300641356"],"abstract_inverted_index":{"This":[0,67],"paper":[1],"provides":[2],"an":[3],"overview":[4],"of":[5,42,72,93,111],"the":[6,11,70,89,106],"key":[7],"issues":[8],"drawn":[9],"from":[10],"literature":[12],"reviewed":[13],"and":[14,17,47,53,77,80,84,91],"suggests":[15],"established":[16],"potential":[18],"mitigation":[19],"strategies":[20],"that":[21,51,82],"could":[22],"improve":[23],"ethical":[24,55],"practices":[25,56],"when":[26],"involving":[27],"children":[28,43,59,94,112],"with":[29,39,58,95,113],"disabilities":[30],"in":[31,109],"evidence":[32,36],"generation":[33,37],"activities.":[34],"More":[35],"activities":[38],"this":[40,98],"group":[41],"are":[44,60,86],"urgently":[45],"needed,":[46],"it":[48],"is":[49],"important":[50],"conventional":[52],"existing":[54],"used":[57],"further":[61],"developed":[62],"to":[63,75],"embrace":[64],"disability":[65],"inclusion.":[66],"will":[68],"encourage":[69],"realization":[71],"children\u2019s":[73],"right":[74],"participate":[76],"be":[78],"heard,":[79],"ensure":[81],"policy":[83],"practice":[85],"informed":[87],"by":[88],"perspectives":[90],"concerns":[92],"disabilities.":[96,114],"Importantly,":[97],"approach":[99],"can":[100],"support":[101],"a":[102],"wider":[103],"agenda":[104],"for":[105],"greater":[107],"inclusion":[108],"society":[110]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":8},{"year":2022,"cited_by_count":3}],"updated_date":"2026-09-27T08:07:27.782135","created_date":"2020-08-03T00:00:00"}