{"id":"https://openalex.org/W3045543686","doi":null,"title":"Linking existing databases to monitor and improve diabetes care","display_name":"Linking existing databases to monitor and improve diabetes care","publication_year":2010,"publication_date":"2010-01-01","ids":{"openalex":"https://openalex.org/W3045543686","mag":"3045543686"},"language":"en","primary_location":{"id":"pmh:oai:researchspace.auckland.ac.nz:2292/5838","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/2292/5838","pdf_url":null,"source":{"id":"https://openalex.org/S7407055463","display_name":"ResearchSpace (University of Auckland)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I154130895","host_organization_name":"University of Auckland","host_organization_lineage":["https://openalex.org/I154130895"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5038232677","display_name":"Grace Joshy","orcid":"https://orcid.org/0000-0002-0718-6368","observed_orcids":["https://orcid.org/0000-0002-0718-6368"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Grace Joshy","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0002-0718-6368","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5038232677"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.8169000148773193,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.8169000148773193,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.0414000004529953,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11719","display_name":"Data Quality and Management","score":0.028599999845027924,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/diabetes-surveillance","display_name":"diabetes surveillance","score":0.8339999914169312},{"id":"https://openalex.org/keywords/data-linkage","display_name":"data linkage","score":0.7519999742507935},{"id":"https://openalex.org/keywords/primary-care-data","display_name":"primary care data","score":0.765999972820282},{"id":"https://openalex.org/keywords/hospital-data-linkage","display_name":"hospital data linkage","score":0.5099999904632568},{"id":"https://openalex.org/keywords/diabetes-prevalence","display_name":"diabetes prevalence","score":0.4749999940395355},{"id":"https://openalex.org/keywords/socioeconomic-deprivation","display_name":"socioeconomic deprivation","score":0.734000027179718},{"id":"https://openalex.org/keywords/retinal-screening","display_name":"retinal screening","score":0.5730000138282776},{"id":"https://openalex.org/keywords/patient-retention","display_name":"patient retention","score":0.5019999742507935},{"id":"https://openalex.org/keywords/barriers-to-diabetes-care","display_name":"barriers to diabetes care","score":0.8980000019073486},{"id":"https://openalex.org/keywords/psychological-barriers","display_name":"psychological barriers","score":0.8169999718666077},{"id":"https://openalex.org/keywords/end-stage-renal-disease","display_name":"end-stage renal disease","score":0.9520000219345093},{"id":"https://openalex.org/keywords/renal-mortality","display_name":"renal mortality","score":0.7059999704360962},{"id":"https://openalex.org/keywords/diabetes-mortality","display_name":"diabetes mortality","score":0.4569999873638153},{"id":"https://openalex.org/keywords/ethnic-disparities","display_name":"ethnic disparities","score":0.46000000834465027},{"id":"https://openalex.org/keywords/waikato","display_name":"Waikato","score":0.5669999718666077},{"id":"https://openalex.org/keywords/new-zealand","display_name":"New Zealand","score":0.8820000290870667}],"concepts":[{"id":"https://openalex.org/C199521495","wikidata":"https://www.wikidata.org/wiki/Q181487","display_name":"Audit","level":2,"score":0.7756243944168091},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6426929235458374},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.6075496673583984},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5233701467514038},{"id":"https://openalex.org/C555293320","wikidata":"https://www.wikidata.org/wiki/Q12206","display_name":"Diabetes mellitus","level":2,"score":0.5116499066352844},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4653416872024536},{"id":"https://openalex.org/C2983685735","wikidata":"https://www.wikidata.org/wiki/Q5227355","display_name":"Data source","level":2,"score":0.4259060323238373},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.4154691696166992},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.38813960552215576},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3101889491081238},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.1712033450603485},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.11539065837860107},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C187736073","wikidata":"https://www.wikidata.org/wiki/Q2920921","display_name":"Management","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C134018914","wikidata":"https://www.wikidata.org/wiki/Q162606","display_name":"Endocrinology","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:researchspace.auckland.ac.nz:2292/5838","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/2292/5838","pdf_url":null,"source":{"id":"https://openalex.org/S7407055463","display_name":"ResearchSpace (University of Auckland)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I154130895","host_organization_name":"University of Auckland","host_organization_lineage":["https://openalex.org/I154130895"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"mag:3045543686","doi":null,"is_oa":false,"landing_page_url":"https://researchspace.auckland.ac.nz/handle/2292/5838","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9763000011444092,"display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":218,"referenced_works":["https://openalex.org/W26886083","https://openalex.org/W85317272","https://openalex.org/W87880111","https://openalex.org/W97756496","https://openalex.org/W122483258","https://openalex.org/W142952704","https://openalex.org/W147193200","https://openalex.org/W148385798","https://openalex.org/W875972849","https://openalex.org/W1278503648","https://openalex.org/W1485743656","https://openalex.org/W1507004422","https://openalex.org/W1520673492","https://openalex.org/W1525697196","https://openalex.org/W1534086540","https://openalex.org/W1537735968","https://openalex.org/W1550111394","https://openalex.org/W1552051186","https://openalex.org/W1590773783","https://openalex.org/W1642688994","https://openalex.org/W1654411376","https://openalex.org/W1919764400","https://openalex.org/W1964350712","https://openalex.org/W1965372694","https://openalex.org/W1965609539","https://openalex.org/W1965661114","https://openalex.org/W1966907372","https://openalex.org/W1968488874","https://openalex.org/W1972207445","https://openalex.org/W1975105240","https://openalex.org/W1975262130","https://openalex.org/W1975464745","https://openalex.org/W1976884386","https://openalex.org/W1977079297","https://openalex.org/W1979999470","https://openalex.org/W1983636035","https://openalex.org/W1983986180","https://openalex.org/W1984718244","https://openalex.org/W1986243077","https://openalex.org/W1987166475","https://openalex.org/W1988977579","https://openalex.org/W1991038249","https://openalex.org/W1992875733","https://openalex.org/W1993092760","https://openalex.org/W1994679111","https://openalex.org/W1996387976","https://openalex.org/W2000208292","https://openalex.org/W2001948598","https://openalex.org/W2006625394","https://openalex.org/W2007860708","https://openalex.org/W2009388958","https://openalex.org/W2010385075","https://openalex.org/W2010631330","https://openalex.org/W2010892520","https://openalex.org/W2010913804","https://openalex.org/W2012666531","https://openalex.org/W2013861903","https://openalex.org/W2016343700","https://openalex.org/W2019192243","https://openalex.org/W2020267609","https://openalex.org/W2020640757","https://openalex.org/W2020773661","https://openalex.org/W2021055445","https://openalex.org/W2021079125","https://openalex.org/W2022968272","https://openalex.org/W2024552816","https://openalex.org/W2027796387","https://openalex.org/W2027947992","https://openalex.org/W2028164567","https://openalex.org/W2029572158","https://openalex.org/W2030434688","https://openalex.org/W2030928973","https://openalex.org/W2031428016","https://openalex.org/W2031484324","https://openalex.org/W2031869057","https://openalex.org/W2035860935","https://openalex.org/W2035925940","https://openalex.org/W2040492681","https://openalex.org/W2043575472","https://openalex.org/W2046299006","https://openalex.org/W2048714565","https://openalex.org/W2049179106","https://openalex.org/W2050543404","https://openalex.org/W2052662112","https://openalex.org/W2052680051","https://openalex.org/W2053416869","https://openalex.org/W2054472527","https://openalex.org/W2054901674","https://openalex.org/W2055281883","https://openalex.org/W2055864845","https://openalex.org/W2057927367","https://openalex.org/W2058717577","https://openalex.org/W2058915626","https://openalex.org/W2060081924","https://openalex.org/W2062042720","https://openalex.org/W2062050623","https://openalex.org/W2062797692","https://openalex.org/W2063373371","https://openalex.org/W2063879842","https://openalex.org/W2063976953","https://openalex.org/W2066468036","https://openalex.org/W2068013959","https://openalex.org/W2068765209","https://openalex.org/W2071173534","https://openalex.org/W2074299404","https://openalex.org/W2075047932","https://openalex.org/W2075271694","https://openalex.org/W2075765391","https://openalex.org/W2077317281","https://openalex.org/W2077890981","https://openalex.org/W2083989773","https://openalex.org/W2084948717","https://openalex.org/W2085285214","https://openalex.org/W2086287499","https://openalex.org/W2086716561","https://openalex.org/W2087533214","https://openalex.org/W2088698343","https://openalex.org/W2089426160","https://openalex.org/W2089432809","https://openalex.org/W2090207696","https://openalex.org/W2090502438","https://openalex.org/W2091420496","https://openalex.org/W2091583610","https://openalex.org/W2092652418","https://openalex.org/W2096311318","https://openalex.org/W2096854778","https://openalex.org/W2099981954","https://openalex.org/W2100233089","https://openalex.org/W2100869067","https://openalex.org/W2103912152","https://openalex.org/W2104616957","https://openalex.org/W2105366414","https://openalex.org/W2108802954","https://openalex.org/W2109112560","https://openalex.org/W2109912180","https://openalex.org/W2112333953","https://openalex.org/W2113339061","https://openalex.org/W2114349038","https://openalex.org/W2114433827","https://openalex.org/W2115773472","https://openalex.org/W2117087522","https://openalex.org/W2119408095","https://openalex.org/W2123103668","https://openalex.org/W2124455867","https://openalex.org/W2125150514","https://openalex.org/W2127245225","https://openalex.org/W2127276355","https://openalex.org/W2129156444","https://openalex.org/W2131320236","https://openalex.org/W2132046325","https://openalex.org/W2135867574","https://openalex.org/W2136963186","https://openalex.org/W2138721673","https://openalex.org/W2139075760","https://openalex.org/W2141293665","https://openalex.org/W2142234308","https://openalex.org/W2145259564","https://openalex.org/W2145730981","https://openalex.org/W2145912880","https://openalex.org/W2145960140","https://openalex.org/W2148039612","https://openalex.org/W2150974862","https://openalex.org/W2153130274","https://openalex.org/W2158822657","https://openalex.org/W2162911822","https://openalex.org/W2163725844","https://openalex.org/W2164657855","https://openalex.org/W2166280090","https://openalex.org/W2166452986","https://openalex.org/W2167434435","https://openalex.org/W2168324413","https://openalex.org/W2168924428","https://openalex.org/W2206086917","https://openalex.org/W2263458075","https://openalex.org/W2273514460","https://openalex.org/W2273670415","https://openalex.org/W2273884796","https://openalex.org/W2289843283","https://openalex.org/W2322165365","https://openalex.org/W2328266365","https://openalex.org/W2336532770","https://openalex.org/W2337454357","https://openalex.org/W2395044274","https://openalex.org/W2395124347","https://openalex.org/W2398872319","https://openalex.org/W2399859470","https://openalex.org/W2401540593","https://openalex.org/W2403385443","https://openalex.org/W2404075395","https://openalex.org/W2404147624","https://openalex.org/W2407053746","https://openalex.org/W2408134181","https://openalex.org/W2409271190","https://openalex.org/W2411598240","https://openalex.org/W2412582668","https://openalex.org/W2413972800","https://openalex.org/W2414152336","https://openalex.org/W2414601824","https://openalex.org/W2414751085","https://openalex.org/W2414818311","https://openalex.org/W2415745614","https://openalex.org/W2416046640","https://openalex.org/W2417369725","https://openalex.org/W2417638537","https://openalex.org/W2417757619","https://openalex.org/W2417831218","https://openalex.org/W2417951862","https://openalex.org/W2419670448","https://openalex.org/W2424722166","https://openalex.org/W2429338007","https://openalex.org/W2430109215","https://openalex.org/W2464720135","https://openalex.org/W2465802948","https://openalex.org/W2467779998","https://openalex.org/W2468880963","https://openalex.org/W2469469085","https://openalex.org/W2472343564","https://openalex.org/W3122152400"],"related_works":["https://openalex.org/W1552051186","https://openalex.org/W2410093668","https://openalex.org/W2091128318","https://openalex.org/W4408634904","https://openalex.org/W2136381875","https://openalex.org/W2324928005","https://openalex.org/W7163240856","https://openalex.org/W2398070387","https://openalex.org/W2329715440","https://openalex.org/W1972741519"],"abstract_inverted_index":{"Background":[0],"Lack":[1],"of":[2,25,42,156,193,203,208,212,221,235,250,281,335,380,385,408,482,500,520],"population":[3],"based":[4,81,100,123],"data":[5,49,62,75,92,107,136,144,152,177,204,222,293],"is":[6],"a":[7,31,69,127,404,428,501,509],"critical":[8,506],"problem":[9],"in":[10,13,35,68,102,125,158,233,329,352,368],"diabetes":[11,33,239,241,305,345,366,373,386,401,450,493,502,525],"surveillance":[12],"New":[14],"Zealand.":[15],"This":[16,514],"thesis":[17],"looks":[18],"at":[19,189,427],"the":[20,36,55,78,89,116,159,175,251,279,282,353,480,495,505,518],"feasibility,":[21],"strengths":[22],"and":[23,40,45,58,88,145,183,196,219,243,261,296,319,340,387,415,420,467,473,479,486,504,527,536],"weaknesses":[24],"linking":[26,60,73,104,133,174,483,521],"existing":[27],"databases":[28,44,489,522],"to":[29,150,230,238,325,349,365,372,440,448,461,490,498,523],"create":[30],"regional":[32],"register":[34,503],"Waikato.":[37],"Methods":[38],"Completeness":[39],"validity":[41],"key":[43],"agreement":[46],"between":[47],"common":[48],"items":[50],"have":[51,449],"been":[52],"studied":[53],"using":[54,142,165,272],"following":[56],"audits":[57],"studies":[59,173,199],"multiple":[61,74],"sources:":[63],"\u2022":[64,96,119,140,154,170,247,299,317,390],"A":[65,97],"pilot":[66],"study":[67,101,124,302],"rural":[70],"town":[71,128],"(Taumarunui),":[72],"sources":[76],"including":[77,206],"secondary":[79,487],"care":[80,106,135,274,367,374,485,488,526],"Waikato":[82,146,166,179],"Regional":[83],"Diabetes":[84],"Service":[85],"(WRDS)":[86],"database":[87,253],"Get":[90,113,160,354],"Checked":[91,161,355],"from":[93,223,432,463],"primary":[94,105,134,273,484],"care.":[95],"general":[98,121],"practice":[99,122,290],"Hamilton,":[103],"(diagnosis":[108],"codes,":[109],"prescriptions,":[110],"laboratory":[111],"tests,":[112],"Checked)":[114],"with":[115,129,137,178,217,308,342,357,396,398],"WRDS":[117,143,176,252],"database.":[118],"Another":[120],"Rotorua,":[126],"high":[130,255],"Maori":[131,318,336,400,424,442],"population,":[132],"deprivation":[138,310],"scores.":[139],"Audits":[141],"DHB":[147,180],"hospital":[148,181,190,434],"systems":[149,182,275],"assess":[151],"agreement.":[153],"Retention":[155],"patients":[157,218,260,263,321,362,402,425],"programme":[162,285,356],"was":[163,254,276],"examined":[164],"Primary":[167],"Health\u2019s":[168],"data.":[169],"Three":[171],"retrospective":[172],"national":[184],"mortality":[185,453],"data,":[186],"which":[187],"looked":[188],"admissions,":[191],"progression":[192],"renal":[194,410,413,416,438,468],"disease":[195,411,439,469],"mortality.":[197,244],"The":[198,248,300,477],"used":[200,229],"several":[201],"methods":[202],"validation":[205],"comparison":[207,220],"datasets,":[209],"manual":[210],"search":[211],"patient":[213,297],"records,":[214],"direct":[215],"contact":[216],"external":[224],"sources.":[225],"Linked":[226],"datasets":[227],"were":[228,322,346,443,456,458],"identify":[231],"disparities":[232],"prevalence":[234,306],"diabetes,":[236,399],"access":[237,326],"care,":[240],"complications":[242],"Results":[245],"iii":[246],"coverage":[249,280],"(86%-91%),":[256],"but":[257,278,313,529],"newly":[258],"diagnosed":[259,492],"older":[262],"not":[264,314],"needing":[265],"retinal":[266,327],"screening":[267,328],"are":[268,512],"underrepresented.":[269],"Case":[270],"identification":[271],"high,":[277],"\u201cGet":[283],"Checked\u201d":[284],"(62%-80%)":[286],"varied":[287],"depending":[288],"on":[289,452],"IT":[291],"systems,":[292],"handling":[294],"procedures":[295],"characteristics.":[298],"Rotorua":[301],"shows":[303],"that":[304,394],"rises":[307],"increasing":[309],"among":[311,315],"Europeans,":[312],"Maori.":[316],"Asian":[320,338],"less":[323,347],"likely":[324,348,445,460],"Hamilton.":[330],"Patients":[331],"aged<40":[332],"years,":[333],"those":[334,341],"or":[337],"origin,":[339],"Type":[343],"1":[344],"be":[350],"retained":[351],"regular":[358],"checks.":[359],"Almost":[360],"all":[361,378],"had":[363,403],"barriers":[364,371,497],"Taumarunui.":[369],"Psychological":[370],"rank":[375],"highly":[376],"for":[377,436,508],"subgroups":[379],"ethnicity,":[381],"age,":[382],"gender,":[383],"duration":[384],"insulin":[388],"treatment.":[389],"Outcomes":[391],"analyses":[392],"showed":[393],"compared":[395],"Europeans":[397,447],"significantly":[405,429],"higher":[406],"risk":[407],"end-stage":[409],"(ESRD),":[412],"admission":[414,435],"death":[417],"(46-fold,":[418],"seven-fold":[419],"fourfold":[421],"increases,":[422],"respectively).":[423],"progressed":[426],"faster":[430],"rate":[431],"first":[433],"chronic":[437],"ESRD.":[441],"more":[444,459],"than":[446],"reported":[451],"coding.":[454],"They":[455],"also":[457],"die":[462],"cardiovascular":[464],"disease,":[465],"cancer":[466],"[Hazard-ratios":[470],"2.31(1.6-3.3),":[471],"1.83(1.1-3),":[472],"11.74(4.8-29)":[474],"respectively].":[475],"Discussion":[476],"advantages":[478],"difficulties":[481],"identifying":[491],"patients,":[494],"potential":[496,519],"implementation":[499,530],"factors":[507],"successful":[510],"system":[511],"discussed.":[513],"research":[515],"has":[516],"demonstrated":[517],"monitor":[524],"outcomes,":[528],"would":[531],"need":[532],"substantial":[533],"policy":[534],"changes":[535],"financial":[537],"backing.":[538]},"counts_by_year":[],"updated_date":"2026-09-27T08:07:27.782135","created_date":"2020-08-03T00:00:00"}