{"id":"https://openalex.org/W3038812780","doi":"https://doi.org/10.1177/2333393620935098","title":"Patients\u2019 Experiences With Illness, Treatment, and Decision-Making for Esophageal Cancer: A Qualitative Study in a Danish Hospital Setting","display_name":"Patients\u2019 Experiences With Illness, Treatment, and Decision-Making for Esophageal Cancer: A Qualitative Study in a Danish Hospital Setting","publication_year":2020,"publication_date":"2020-01-01","ids":{"openalex":"https://openalex.org/W3038812780","doi":"https://doi.org/10.1177/2333393620935098","mag":"3038812780","pmid":"https://pubmed.ncbi.nlm.nih.gov/32656299"},"language":"en","primary_location":{"id":"doi:10.1177/2333393620935098","doi":"https://doi.org/10.1177/2333393620935098","is_oa":true,"landing_page_url":"https://doi.org/10.1177/2333393620935098","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/2333393620935098","source":{"id":"https://openalex.org/S4210230350","display_name":"Global Qualitative Nursing Research","issn_l":"2333-3936","issn":["2333-3936"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-2","ki-jl-1","norway-1"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Global Qualitative Nursing Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://journals.sagepub.com/doi/pdf/10.1177/2333393620935098","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5063894509","display_name":"Malene Kaas Larsen","orcid":"https://orcid.org/0000-0002-9075-2809","observed_orcids":["https://orcid.org/0000-0002-9075-2809"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I2801498763","display_name":"Odense University Hospital","ror":"https://ror.org/00ey0ed83","country_code":"DK","type":"funder","lineage":["https://openalex.org/I2801498763"]}],"countries":["DK"],"is_corresponding":true,"raw_author_name":"Malene Kaas Larsen","raw_affiliation_strings":["Odense University Hospital, Odense, Denmark","University of Southern Denmark, Odense, Denmark"],"raw_orcid":"https://orcid.org/0000-0002-9075-2809","affiliations":[{"raw_affiliation_string":"Odense University Hospital, Odense, Denmark","institution_ids":["https://openalex.org/I2801498763"]},{"raw_affiliation_string":"University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039225799","display_name":"Helen Schultz","orcid":"https://orcid.org/0000-0003-4815-6349","observed_orcids":["https://orcid.org/0000-0003-4815-6349"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I2801498763","display_name":"Odense University Hospital","ror":"https://ror.org/00ey0ed83","country_code":"DK","type":"funder","lineage":["https://openalex.org/I2801498763"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Helen Schultz","raw_affiliation_strings":["Odense University Hospital, Odense, Denmark","University of Southern Denmark, Odense, Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Odense University Hospital, Odense, Denmark","institution_ids":["https://openalex.org/I2801498763"]},{"raw_affiliation_string":"University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5064447198","display_name":"Michael Bau Mortensen","orcid":"https://orcid.org/0000-0002-7270-5005","observed_orcids":["https://orcid.org/0000-0002-7270-5005"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I2801498763","display_name":"Odense University Hospital","ror":"https://ror.org/00ey0ed83","country_code":"DK","type":"funder","lineage":["https://openalex.org/I2801498763"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Michael Bau Mortensen","raw_affiliation_strings":["Odense University Hospital, Odense, Denmark","University of Southern Denmark, Odense, Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Odense University Hospital, Odense, Denmark","institution_ids":["https://openalex.org/I2801498763"]},{"raw_affiliation_string":"University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044453064","display_name":"Regner Birkelund","orcid":"https://orcid.org/0000-0002-5374-0630","observed_orcids":["https://orcid.org/0000-0002-5374-0630"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I4210142184","display_name":"Lillebaelt Hospital","ror":"https://ror.org/04jewc589","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210142184"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Regner Birkelund","raw_affiliation_strings":["Lillebaelt Hospital, Vejle, Denmark","University of Southern Denmark, Odense, Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lillebaelt Hospital, Vejle, Denmark","institution_ids":["https://openalex.org/I4210142184"]},{"raw_affiliation_string":"University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5063894509"],"corresponding_institution_ids":["https://openalex.org/I177969490","https://openalex.org/I2801498763"],"apc_list":{"value":1000,"currency":"USD","value_usd":1000},"apc_paid":{"value":1000,"currency":"USD","value_usd":1000},"fwci":1.0309,"has_fulltext":true,"cited_by_count":13,"citation_normalized_percentile":{"value":0.75899894,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"7","issue":null,"first_page":"2333393620935098","last_page":"2333393620935098"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10619","display_name":"Esophageal Cancer Research and Treatment","score":0.9535999894142151,"subfield":{"id":"https://openalex.org/subfields/2746","display_name":"Surgery"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10619","display_name":"Esophageal Cancer Research and Treatment","score":0.9535999894142151,"subfield":{"id":"https://openalex.org/subfields/2746","display_name":"Surgery"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.020899999886751175,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.007199999876320362,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/esophageal-cancer","display_name":"esophageal cancer","score":1.0},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.7580000162124634},{"id":"https://openalex.org/keywords/treatment-decision-making","display_name":"treatment decision-making","score":0.7009999752044678},{"id":"https://openalex.org/keywords/illness-experience","display_name":"illness experience","score":0.7329999804496765},{"id":"https://openalex.org/keywords/treatment-side-effects","display_name":"treatment side effects","score":0.6420000195503235},{"id":"https://openalex.org/keywords/prognostic-uncertainty","display_name":"prognostic uncertainty","score":0.5759999752044678},{"id":"https://openalex.org/keywords/patient-autonomy","display_name":"patient autonomy","score":0.9039999842643738},{"id":"https://openalex.org/keywords/patient-provider-communication","display_name":"patient-provider communication","score":0.6489999890327454},{"id":"https://openalex.org/keywords/phenomenological-hermeneutic-approach","display_name":"phenomenological-hermeneutic approach","score":0.6819999814033508}],"concepts":[{"id":"https://openalex.org/C164622146","wikidata":"https://www.wikidata.org/wiki/Q9035","display_name":"Danish","level":2,"score":0.9453554153442383},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.7230579853057861},{"id":"https://openalex.org/C2779742542","wikidata":"https://www.wikidata.org/wiki/Q372701","display_name":"Esophageal cancer","level":3,"score":0.5769661068916321},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5118553042411804},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3456136882305145},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.33296287059783936},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.2647344768047333},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.15611308813095093},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.1267964243888855},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0}],"mesh":[],"locations_count":5,"locations":[{"id":"doi:10.1177/2333393620935098","doi":"https://doi.org/10.1177/2333393620935098","is_oa":true,"landing_page_url":"https://doi.org/10.1177/2333393620935098","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/2333393620935098","source":{"id":"https://openalex.org/S4210230350","display_name":"Global Qualitative Nursing Research","issn_l":"2333-3936","issn":["2333-3936"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-2","ki-jl-1","norway-1"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Global Qualitative Nursing Research","raw_type":"journal-article"},{"id":"pmid:32656299","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/32656299","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Global qualitative nursing research","raw_type":"Journal Article"},{"id":"pmh:oai:sdu.dk:openaire/6aaab1ab-6bf1-40dc-ac8b-21c4cba15622","doi":null,"is_oa":true,"landing_page_url":"https://portal.findresearcher.sdu.dk/da/publications/6aaab1ab-6bf1-40dc-ac8b-21c4cba15622","pdf_url":"https://findresearcher.sdu.dk/ws/files/171662325/2333393620935098.pdf","source":{"id":"https://openalex.org/S4306400423","display_name":"University of Southern Denmark Research Portal (University of Southern Denmark)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I177969490","host_organization_name":"University of Southern Denmark","host_organization_lineage":["https://openalex.org/I177969490"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Kaas Larsen, M, Schultz, H, Mortensen, M B & Birkelund, R 2020, 'Patients' experiences with Illness, Treatment and Decision making for Esophageal Cancer: A Qualitative Study in a Danish Hospital Setting', Global Qualitative Nursing Research, vol. 7, 1177/2333393620935098. https://doi.org/10.1177/2333393620935098","raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:pubmedcentral.nih.gov:7328478","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7328478","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Glob Qual Nurs Res","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:5a58c2e1261c407ea88d2de77d4bb569","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/5a58c2e1261c407ea88d2de77d4bb569","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Global Qualitative Nursing Research, Vol 7 (2020)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1177/2333393620935098","doi":"https://doi.org/10.1177/2333393620935098","is_oa":true,"landing_page_url":"https://doi.org/10.1177/2333393620935098","pdf_url":"https://journals.sagepub.com/doi/pdf/10.1177/2333393620935098","source":{"id":"https://openalex.org/S4210230350","display_name":"Global Qualitative Nursing Research","issn_l":"2333-3936","issn":["2333-3936"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-2","ki-jl-1","norway-1"],"host_organization":"https://openalex.org/P4310320017","host_organization_name":"SAGE Publishing","host_organization_lineage":["https://openalex.org/P4310320017"],"host_organization_lineage_names":["SAGE Publishing"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Global Qualitative Nursing Research","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"display_name":"Peace, justice, and strong institutions","score":0.6600000262260437,"id":"https://metadata.un.org/sdg/16"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G3573079062","display_name":null,"funder_award_id":"591/2015-16","funder_id":"https://openalex.org/F4320326364","funder_display_name":"Aage og Johanne Louis-Hansens Fond"}],"funders":[{"id":"https://openalex.org/F4320322441","display_name":"Odense Universitetshospital","ror":"https://ror.org/00ey0ed83"},{"id":"https://openalex.org/F4320326364","display_name":"Aage og Johanne Louis-Hansens Fond","ror":"https://ror.org/04gww2j56"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W3038812780.pdf","grobid_xml":"https://content.openalex.org/works/W3038812780.grobid-xml"},"referenced_works_count":44,"referenced_works":["https://openalex.org/W1495403436","https://openalex.org/W1923062767","https://openalex.org/W1964547369","https://openalex.org/W1969684591","https://openalex.org/W1981640621","https://openalex.org/W1986139365","https://openalex.org/W1989217069","https://openalex.org/W2018498938","https://openalex.org/W2025301863","https://openalex.org/W2047187796","https://openalex.org/W2067652191","https://openalex.org/W2081702927","https://openalex.org/W2094094601","https://openalex.org/W2099356119","https://openalex.org/W2101204382","https://openalex.org/W2101532245","https://openalex.org/W2103666798","https://openalex.org/W2111674123","https://openalex.org/W2124347490","https://openalex.org/W2128081122","https://openalex.org/W2135615449","https://openalex.org/W2167102185","https://openalex.org/W2167304081","https://openalex.org/W2171577239","https://openalex.org/W2305278139","https://openalex.org/W2315154775","https://openalex.org/W2319833016","https://openalex.org/W2332509804","https://openalex.org/W2472731729","https://openalex.org/W2496896894","https://openalex.org/W2497721881","https://openalex.org/W2520810670","https://openalex.org/W2589000162","https://openalex.org/W2618303047","https://openalex.org/W2750862324","https://openalex.org/W2898921006","https://openalex.org/W2913602900","https://openalex.org/W2928107301","https://openalex.org/W2966474891","https://openalex.org/W2970619637","https://openalex.org/W3021240172","https://openalex.org/W4211125721","https://openalex.org/W4247984541","https://openalex.org/W4292528167"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2748952813","https://openalex.org/W2800223847","https://openalex.org/W4408752871","https://openalex.org/W3023624299","https://openalex.org/W2085994570","https://openalex.org/W150632568","https://openalex.org/W2085170716","https://openalex.org/W2153682567","https://openalex.org/W1973351605"],"abstract_inverted_index":{"Patients":[0,107],"with":[1,47,88,131],"curable":[2],"esophageal":[3,9,56,89],"cancer":[4,6,90],"or":[5],"in":[7,26,52],"the":[8,15,22,35,53,75,100,120,134],"junction":[10],"face":[11],"several":[12],"challenges":[13],"during":[14,105],"course":[16,135],"of":[17,21,24,34,39,55,68,81,136],"their":[18,27,93],"treatment":[19],"because":[20],"burden":[23],"uncertainty":[25],"prognoses":[28],"and":[29,31,50,71,98,114],"complexity":[30],"side":[32],"effects":[33],"treatment.":[36,106,137],"The":[37,83,117],"aim":[38],"this":[40],"study":[41],"is":[42],"to":[43,109,126],"explore":[44],"patient":[45],"experiences":[46],"illness,":[48],"treatment,":[49],"decision-making":[51],"context":[54],"cancer.":[57],"A":[58],"qualitative":[59],"approach":[60,125],"using":[61],"phenomenological-hermeneutical":[62],"methodology":[63],"was":[64],"used.":[65],"Data":[66],"consisted":[67],"participant":[69],"observations":[70],"interviews.":[72],"We":[73],"analyzed":[74],"data":[76],"based":[77],"on":[78,96],"Ricoeur's":[79],"theory":[80],"interpretation.":[82],"results":[84,118],"show":[85],"that":[86],"patients":[87,132],"are":[91],"putting":[92],"ordinary":[94],"lives":[95],"hold":[97],"experiencing":[99],"meal":[101],"as":[102],"a":[103,123],"battleground":[104],"strive":[108],"maintain":[110],"autonomy,":[111],"gain":[112],"control,":[113],"take":[115],"ownership.":[116],"emphasize":[119],"need":[121],"for":[122],"systematic":[124],"establish":[127],"an":[128],"ongoing":[129],"dialogue":[130],"throughout":[133]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-10-07T09:51:55.459714","created_date":"2025-10-10T00:00:00"}
