{"id":"https://openalex.org/W3014154602","doi":"https://doi.org/10.1201/9781315227795-5","title":"Struggling with Paradox","display_name":"Struggling with Paradox","publication_year":2020,"publication_date":"2020-03-26","ids":{"openalex":"https://openalex.org/W3014154602","doi":"https://doi.org/10.1201/9781315227795-5","mag":"3014154602"},"language":"en","primary_location":{"id":"doi:10.1201/9781315227795-5","doi":"https://doi.org/10.1201/9781315227795-5","is_oa":false,"landing_page_url":"https://doi.org/10.1201/9781315227795-5","pdf_url":null,"source":{"id":"https://openalex.org/S4306463855","display_name":"Routledge eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310319847","host_organization_name":"Routledge","host_organization_lineage":["https://openalex.org/P4310319847","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Routledge","Taylor & Francis"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Fading Away:","raw_type":"book-chapter"},"volume":{"id":"https://openalex.org/W4238421231","display_name":"Fading Away:"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5032812738","display_name":"Betty I. Davies","orcid":"https://orcid.org/0000-0003-0444-6942","observed_orcids":["https://orcid.org/0000-0003-0444-6942"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Betty Davies","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111761827","display_name":"Joanne Chekryn Reimer","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Joanne Chekryn Reimer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":null,"display_name":"Pamela Brown","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Pamela Brown","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5103897648","display_name":"Nola Martens","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nola Martens","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.04668871,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":"27","last_page":"33"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.8593999743461609,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.8593999743461609,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.06930000334978104,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.04780000075697899,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/paradox","display_name":"paradox","score":0.5809999704360962},{"id":"https://openalex.org/keywords/cancer","display_name":"cancer","score":0.531000018119812},{"id":"https://openalex.org/keywords/dying","display_name":"dying","score":0.5950000286102295},{"id":"https://openalex.org/keywords/spouses-of-cancer-patients","display_name":"spouses of cancer patients","score":0.8040000200271606},{"id":"https://openalex.org/keywords/children-of-cancer-patients","display_name":"children of cancer patients","score":0.7850000262260437},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.5199999809265137},{"id":"https://openalex.org/keywords/family-caregiving","display_name":"family caregiving","score":0.5580000281333923},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.5120000243186951},{"id":"https://openalex.org/keywords/prognosis-disclosure","display_name":"prognosis disclosure","score":0.5960000157356262},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.5180000066757202}],"concepts":[{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3405383229255676},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.3253844976425171}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1201/9781315227795-5","doi":"https://doi.org/10.1201/9781315227795-5","is_oa":false,"landing_page_url":"https://doi.org/10.1201/9781315227795-5","pdf_url":null,"source":{"id":"https://openalex.org/S4306463855","display_name":"Routledge eBooks","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/P4310319847","host_organization_name":"Routledge","host_organization_lineage":["https://openalex.org/P4310319847","https://openalex.org/P4310320547"],"host_organization_lineage_names":["Routledge","Taylor & Francis"],"type":"ebook platform"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Fading Away:","raw_type":"book-chapter"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.8371999859809875,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2050100326","https://openalex.org/W3136745063","https://openalex.org/W2070321403","https://openalex.org/W1973335736","https://openalex.org/W2080262616","https://openalex.org/W7022180495","https://openalex.org/W1987196177","https://openalex.org/W2067422894","https://openalex.org/W4405747480","https://openalex.org/W4386910664"],"abstract_inverted_index":{"During":[0],"the":[1,6,10,18,37,44,55,77,87,92,108,126,134,149],"process":[2],"of":[3,12,40,57,79],"fading":[4],"away,":[5],"patient":[7],"struggles":[8],"with":[9,14,28,36,100],"paradox":[11,46,78,135],"living":[13],"cancer":[15],"and":[16,29,69,113,148],"at":[17],"same":[19,88],"time":[20,27],"dying":[21],"from":[22],"cancer.":[23],"Wanting":[24],"to":[25,54,96,120,137],"spend":[26],"care":[30],"for":[31,47,59,65],"their":[32,66,80,118],"spouse":[33],"while":[34,62],"continuing":[35],"on-going":[38],"requirements":[39],"daily":[41],"life":[42],"is":[43,107],"primary":[45],"spouses.":[48],"Children":[49,98],"experience":[50,86],"several":[51],"paradoxes":[52],"related":[53],"complexities":[56],"caring":[58],"ill":[60],"parents":[61],"fulfilling":[63],"responsibilities":[64],"own":[67],"careers":[68],"families.":[70],"Although":[71],"patients":[72],"often":[73],"talk":[74],"spontaneously":[75],"about":[76,146],"situation,":[81],"most":[82,105],"spouses":[83],"do":[84],"not":[85],"dilemma.":[89],"They":[90,116],"find":[91],"struggle":[93,99,109],"more":[94],"relevant":[95],"patients.":[97],"three":[101],"major":[102],"paradoxes.":[103],"The":[104],"important":[106],"between":[110],"hanging":[111],"on":[112],"letting":[114],"go.":[115],"want":[117],"parent":[119,127],"live,":[121],"but":[122],"by":[123],"staying":[124],"alive,":[125],"suffers.":[128],"For":[129],"some":[130],"children,":[131],"particularly":[132,140],"adolescents,":[133],"relates":[136],"sharing":[138],"information,":[139],"in":[141],"families":[142],"that":[143],"limit":[144],"communication":[145],"illness":[147],"prognosis.":[150]},"counts_by_year":[],"updated_date":"2026-10-14T16:39:01.820549","created_date":"2020-04-10T00:00:00"}