{"id":"https://openalex.org/W3000388987","doi":"https://doi.org/10.12688/wellcomeopenres.15633.2","title":"Study protocol for a single-centre observational study of household wellbeing and poverty status following a diagnosis of advanced cancer in Blantyre, Malawi - \u2018Safeguarding the Family\u2019 study","display_name":"Study protocol for a single-centre observational study of household wellbeing and poverty status following a diagnosis of advanced cancer in Blantyre, Malawi - \u2018Safeguarding the Family\u2019 study","publication_year":2020,"publication_date":"2020-01-07","ids":{"openalex":"https://openalex.org/W3000388987","doi":"https://doi.org/10.12688/wellcomeopenres.15633.2","mag":"3000388987","pmid":"https://pubmed.ncbi.nlm.nih.gov/32161817","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/7047920"},"language":"en","primary_location":{"id":"doi:10.12688/wellcomeopenres.15633.2","doi":"https://doi.org/10.12688/wellcomeopenres.15633.2","is_oa":true,"landing_page_url":"https://doi.org/10.12688/wellcomeopenres.15633.2","pdf_url":null,"source":{"id":"https://openalex.org/S4210218052","display_name":"Wellcome Open Research","issn_l":"2398-502X","issn":["2398-502X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311838","host_organization_name":"Wellcome","host_organization_lineage":["https://openalex.org/P4310311838"],"host_organization_lineage_names":["Wellcome"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome Open Research","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.12688/wellcomeopenres.15633.2","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5087061254","display_name":"Jane Bates","orcid":"https://orcid.org/0000-0002-4459-837X","observed_orcids":["https://orcid.org/0000-0002-4459-837X"]},"institutions":[{"id":"https://openalex.org/I157591606","display_name":"University of Malawi","ror":"https://ror.org/04vtx5s55","country_code":"MW","type":"education","lineage":["https://openalex.org/I157591606"]},{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]}],"countries":["GB","MW"],"is_corresponding":true,"raw_author_name":"Maya Jane Bates","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","University of Malawi College of Medicine, P/Bag 360, Blantyre 3, Malawi"],"raw_orcid":"https://orcid.org/0000-0002-4459-837X","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]},{"raw_affiliation_string":"University of Malawi College of Medicine, P/Bag 360, Blantyre 3, Malawi","institution_ids":["https://openalex.org/I157591606"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5087312470","display_name":"Adamson Sinjani Muula","orcid":"https://orcid.org/0000-0003-4412-9773","observed_orcids":["https://orcid.org/0000-0003-4412-9773"]},"institutions":[{"id":"https://openalex.org/I157591606","display_name":"University of Malawi","ror":"https://ror.org/04vtx5s55","country_code":"MW","type":"education","lineage":["https://openalex.org/I157591606"]}],"countries":["MW"],"is_corresponding":false,"raw_author_name":"Adamson Muula","raw_affiliation_strings":["University of Malawi College of Medicine, P/Bag 360, Blantyre 3, Malawi"],"raw_orcid":"https://orcid.org/0000-0003-4412-9773","affiliations":[{"raw_affiliation_string":"University of Malawi College of Medicine, P/Bag 360, Blantyre 3, Malawi","institution_ids":["https://openalex.org/I157591606"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009207844","display_name":"Stephen B. Gordon","orcid":"https://orcid.org/0000-0001-6576-1116","observed_orcids":["https://orcid.org/0000-0001-6576-1116"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]},{"id":"https://openalex.org/I2799451200","display_name":"Malawi-Liverpool-Wellcome Trust Clinical Research Programme","ror":"https://ror.org/03tebt685","country_code":"MW","type":"facility","lineage":["https://openalex.org/I157591606","https://openalex.org/I2799451200","https://openalex.org/I87048295"]}],"countries":["GB","MW"],"is_corresponding":false,"raw_author_name":"Stephen B. Gordon","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi"],"raw_orcid":"https://orcid.org/0000-0001-6576-1116","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]},{"raw_affiliation_string":"Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi","institution_ids":["https://openalex.org/I2799451200"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015590965","display_name":"Marc Henrion","orcid":"https://orcid.org/0000-0003-1242-839X","observed_orcids":["https://orcid.org/0000-0003-1242-839X"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]},{"id":"https://openalex.org/I2799451200","display_name":"Malawi-Liverpool-Wellcome Trust Clinical Research Programme","ror":"https://ror.org/03tebt685","country_code":"MW","type":"facility","lineage":["https://openalex.org/I157591606","https://openalex.org/I2799451200","https://openalex.org/I87048295"]}],"countries":["GB","MW"],"is_corresponding":false,"raw_author_name":"Marc Y.R. Henrion","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi"],"raw_orcid":"https://orcid.org/0000-0003-1242-839X","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]},{"raw_affiliation_string":"Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi","institution_ids":["https://openalex.org/I2799451200"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5003048299","display_name":"Ewan Tomeny","orcid":"https://orcid.org/0000-0003-4547-2389","observed_orcids":["https://orcid.org/0000-0003-4547-2389"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Ewan Tomeny","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK"],"raw_orcid":"https://orcid.org/0000-0003-4547-2389","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036267935","display_name":"Peter MacPherson","orcid":"https://orcid.org/0000-0002-0329-9613","observed_orcids":["https://orcid.org/0000-0002-0329-9613"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]},{"id":"https://openalex.org/I2799451200","display_name":"Malawi-Liverpool-Wellcome Trust Clinical Research Programme","ror":"https://ror.org/03tebt685","country_code":"MW","type":"facility","lineage":["https://openalex.org/I157591606","https://openalex.org/I2799451200","https://openalex.org/I87048295"]},{"id":"https://openalex.org/I4210089966","display_name":"London School of Hygiene & Tropical Medicine","ror":"https://ror.org/00a0jsq62","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I4210089966"]}],"countries":["GB","MW"],"is_corresponding":false,"raw_author_name":"Peter MacPherson","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","London School of Hygiene and Tropical Medicine, Keppel Street, London, WC1E 7HT, UK","Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi"],"raw_orcid":"https://orcid.org/0000-0002-0329-9613","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]},{"raw_affiliation_string":"London School of Hygiene and Tropical Medicine, Keppel Street, London, WC1E 7HT, UK","institution_ids":["https://openalex.org/I4210089966"]},{"raw_affiliation_string":"Malawi Liverpool Wellcome Trust, P O Box 30096, Blantyre 3, Malawi","institution_ids":["https://openalex.org/I2799451200"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5023828847","display_name":"S. Bertel Squire","orcid":"https://orcid.org/0000-0001-7173-9038","observed_orcids":["https://orcid.org/0000-0001-7173-9038"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Bertel Squire","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK"],"raw_orcid":"https://orcid.org/0000-0001-7173-9038","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5048876130","display_name":"Louis Wilhelmus Niessen","orcid":"https://orcid.org/0000-0002-8639-5191","observed_orcids":["https://orcid.org/0000-0002-8639-5191"]},"institutions":[{"id":"https://openalex.org/I194839184","display_name":"Liverpool School of Tropical Medicine","ror":"https://ror.org/03svjbs84","country_code":"GB","type":"funder","lineage":["https://openalex.org/I194839184"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Louis Niessen","raw_affiliation_strings":["Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK"],"raw_orcid":"https://orcid.org/0000-0002-8639-5191","affiliations":[{"raw_affiliation_string":"Liverpool School of Tropical Medicine, Pembroke Place, Liverpool, L3 5QA, UK","institution_ids":["https://openalex.org/I194839184"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5087061254"],"corresponding_institution_ids":["https://openalex.org/I157591606","https://openalex.org/I194839184"],"apc_list":{"value":920,"currency":"GBP","value_usd":1128},"apc_paid":{"value":920,"currency":"GBP","value_usd":1128},"fwci":0.4027,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.72865032,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":87,"max":93},"biblio":{"volume":"5","issue":null,"first_page":"2","last_page":"2"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12708","display_name":"Economic and Financial Impacts of Cancer","score":0.9442999958992004,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12708","display_name":"Economic and Financial Impacts of Cancer","score":0.9442999958992004,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.024399999529123306,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.011099999770522118,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/advanced-cancer","display_name":"advanced cancer","score":0.8450000286102295},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.9710000157356262},{"id":"https://openalex.org/keywords/household-out-of-pocket-expenditure","display_name":"household out-of-pocket expenditure","score":0.8899999856948853},{"id":"https://openalex.org/keywords/household-welfare","display_name":"household welfare","score":0.8029999732971191},{"id":"https://openalex.org/keywords/poverty","display_name":"poverty","score":0.8080000281333923},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.7599999904632568},{"id":"https://openalex.org/keywords/health-care-costs","display_name":"health care costs","score":0.7049999833106995},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.75},{"id":"https://openalex.org/keywords/funeral-expenses","display_name":"funeral expenses","score":0.9559999704360962},{"id":"https://openalex.org/keywords/life-limiting-conditions","display_name":"life-limiting illness","score":0.6850000023841858},{"id":"https://openalex.org/keywords/malawi","display_name":"Malawi","score":0.652999997138977}],"concepts":[{"id":"https://openalex.org/C2778979077","wikidata":"https://www.wikidata.org/wiki/Q330190","display_name":"Receipt","level":2,"score":0.6891732215881348},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6766434907913208},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.6449395418167114},{"id":"https://openalex.org/C73269764","wikidata":"https://www.wikidata.org/wiki/Q954529","display_name":"Poisson regression","level":3,"score":0.4924091100692749},{"id":"https://openalex.org/C39896193","wikidata":"https://www.wikidata.org/wiki/Q380344","display_name":"Descriptive statistics","level":2,"score":0.4616258442401886},{"id":"https://openalex.org/C189326681","wikidata":"https://www.wikidata.org/wiki/Q10294","display_name":"Poverty","level":2,"score":0.4274275302886963},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.39690452814102173},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3323013186454773},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.3117274045944214},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.10911870002746582},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.08997172117233276},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C121955636","wikidata":"https://www.wikidata.org/wiki/Q4116214","display_name":"Accounting","level":1,"score":0.0}],"mesh":[],"locations_count":9,"locations":[{"id":"doi:10.12688/wellcomeopenres.15633.2","doi":"https://doi.org/10.12688/wellcomeopenres.15633.2","is_oa":true,"landing_page_url":"https://doi.org/10.12688/wellcomeopenres.15633.2","pdf_url":null,"source":{"id":"https://openalex.org/S4210218052","display_name":"Wellcome Open Research","issn_l":"2398-502X","issn":["2398-502X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311838","host_organization_name":"Wellcome","host_organization_lineage":["https://openalex.org/P4310311838"],"host_organization_lineage_names":["Wellcome"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome Open Research","raw_type":"journal-article"},{"id":"doi:10.12688/wellcomeopenres.15633.1","doi":"https://doi.org/10.12688/wellcomeopenres.15633.1","is_oa":true,"landing_page_url":"https://doi.org/10.12688/wellcomeopenres.15633.1","pdf_url":null,"source":{"id":"https://openalex.org/S4210218052","display_name":"Wellcome Open Research","issn_l":"2398-502X","issn":["2398-502X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311838","host_organization_name":"Wellcome","host_organization_lineage":["https://openalex.org/P4310311838"],"host_organization_lineage_names":["Wellcome"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome Open Research","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:7047920","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7047920","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome Open Res","raw_type":"Text"},{"id":"pmid:32161817","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/32161817","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome open research","raw_type":"Journal Article"},{"id":"pmh:oai:archive.lstmed.ac.uk:13623","doi":null,"is_oa":false,"landing_page_url":"https://archive.lstmed.ac.uk/13623/1/study%20protocol%20for%20a%20single%20centre%20observational%20study%20of%20household%20wellbeing.pdf","pdf_url":"https://archive.lstmed.ac.uk/13623/1/study%20protocol%20for%20a%20single%20centre%20observational%20study%20of%20household%20wellbeing.pdf","source":{"id":"https://openalex.org/S4306400185","display_name":"LSTM Online Archive (Liverpool School of Tropical Medicine)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I194839184","host_organization_name":"Liverpool School of Tropical Medicine","host_organization_lineage":["https://openalex.org/I194839184"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Article"},{"id":"pmh:oai:eprints.gla.ac.uk:300531","doi":null,"is_oa":true,"landing_page_url":"https://eprints.gla.ac.uk/300531/1/300531.pdf","pdf_url":"https://eprints.gla.ac.uk/300531/1/300531.pdf","source":{"id":"https://openalex.org/S4210235606","display_name":"ENLIGHTEN (Jurnal Bimbingan dan Konseling Islam)","issn_l":"2622-8912","issn":["2622-8912","2622-8920"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj"],"host_organization":"https://openalex.org/I4405259220","host_organization_name":"Institut Agama Islam Negeri Langsa","host_organization_lineage":["https://openalex.org/I4405259220"],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Articles"},{"id":"pmh:oai:doaj.org/article:a4969e0825f1454bb60a59051d008487","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/a4969e0825f1454bb60a59051d008487","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Wellcome Open Research, Vol 5 (2020)","raw_type":"article"},{"id":"pmh:oai:doaj.org/article:db1bb29d1bab4cd086cd64c2a562d9a3","doi":null,"is_oa":true,"landing_page_url":"https://doaj.org/article/db1bb29d1bab4cd086cd64c2a562d9a3","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Wellcome Open Research, Vol 5 (2020)","raw_type":"article"},{"id":"pmh:oai:pure.ed.ac.uk:openaire/d64e73de-47b3-45ac-a6c8-c888e35e3af0","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/20.500.11820/d64e73de-47b3-45ac-a6c8-c888e35e3af0","pdf_url":null,"source":{"id":"https://openalex.org/S4306400321","display_name":"Edinburgh Research Explorer (University of Edinburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I98677209","host_organization_name":"University of Edinburgh","host_organization_lineage":["https://openalex.org/I98677209"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Bates, M J, Muula, A, Gordon, S, Henrion, M Y R, Tomeny, E, MacPherson, P, Squire, B & Niessen, L 2020, 'Study protocol for a single-centre observational study of household wellbeing and poverty status following a diagnosis of advanced cancer in Blantyre, Malawi - \u2018Safeguarding the Family\u2019 study', Wellcome Open Research, vol. 5, 2. https://doi.org/10.12688/wellcomeopenres.15633.2","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.12688/wellcomeopenres.15633.2","doi":"https://doi.org/10.12688/wellcomeopenres.15633.2","is_oa":true,"landing_page_url":"https://doi.org/10.12688/wellcomeopenres.15633.2","pdf_url":null,"source":{"id":"https://openalex.org/S4210218052","display_name":"Wellcome Open Research","issn_l":"2398-502X","issn":["2398-502X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311838","host_organization_name":"Wellcome","host_organization_lineage":["https://openalex.org/P4310311838"],"host_organization_lineage_names":["Wellcome"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Wellcome Open Research","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":1.0,"display_name":"Good health and well-being"},{"id":"https://metadata.un.org/sdg/1","score":0.8928999900817871,"display_name":"No poverty"}],"study_designs":[{"id":"https://openalex.org/study-designs/study-protocol","display_name":"Study Protocol"}],"awards":[{"id":"https://openalex.org/G3094798693","display_name":"Malawi Liverpool Wellcome Trust Programme - Core Award","funder_award_id":"206545","funder_id":"https://openalex.org/F4320311904","funder_display_name":"Wellcome Trust"}],"funders":[{"id":"https://openalex.org/F4320311904","display_name":"Wellcome Trust","ror":"https://ror.org/029chgv08"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":29,"referenced_works":["https://openalex.org/W1760327871","https://openalex.org/W1903277992","https://openalex.org/W1968160150","https://openalex.org/W1976187674","https://openalex.org/W2058287327","https://openalex.org/W2106133858","https://openalex.org/W2120917239","https://openalex.org/W2128213053","https://openalex.org/W2139710170","https://openalex.org/W2140732276","https://openalex.org/W2165448206","https://openalex.org/W2230832354","https://openalex.org/W2240047961","https://openalex.org/W2434037679","https://openalex.org/W2592825510","https://openalex.org/W2606722886","https://openalex.org/W2612732665","https://openalex.org/W2761242421","https://openalex.org/W2762057266","https://openalex.org/W2795529945","https://openalex.org/W2795609817","https://openalex.org/W2795707819","https://openalex.org/W2888366874","https://openalex.org/W2895223549","https://openalex.org/W2898964469","https://openalex.org/W2977351706","https://openalex.org/W2986119973","https://openalex.org/W3033913887","https://openalex.org/W4256673189"],"related_works":["https://openalex.org/W3210971375","https://openalex.org/W7023628881","https://openalex.org/W2977351706","https://openalex.org/W2888366874","https://openalex.org/W3015947084","https://openalex.org/W4220767845","https://openalex.org/W4414395055","https://openalex.org/W4310333075","https://openalex.org/W4205980546","https://openalex.org/W4241267552"],"abstract_inverted_index":{"Background":[0],":":[1,72,232,260],"Many":[2],"households":[3,188,271],"in":[4,68,192,211,217,275,290],"low-and-middle":[5],"income":[6],"countries":[7],"face":[8],"the":[9,41,83,113,132,135,156,167],"additional":[10],"burden":[11],"of":[12,21,29,45,60,85,134,158,186,206,208,225,282],"crippling":[13],"out-of-pocket":[14,50,220,291],"expenditure":[15,51,177,221,267,292],"when":[16],"faced":[17],"with":[18,287],"a":[19,57,138,196,212,223,255,288],"diagnosis":[20,59],"life-limiting":[22],"illness.":[23],"Available":[24],"evidence":[25],"suggests":[26],"that":[27],"receipt":[28,44,207,281],"palliative":[30,46,172,209,283],"care":[31,173,210,284],"supports":[32],"cost-savings":[33],"for":[34,215,268],"cancer-affected":[35],"households.":[36],"This":[37,261],"study":[38,234,262],"will":[39,79,98,120,145,165,240,263],"explore":[40,279],"relationship":[42,168],"between":[43,169],"care,":[47],"total":[48,175,218],"household":[49,176,219,227,294],"on":[52,89,142,266],"health":[53],"and":[54,74,96,103,112,126,161,174,230,246,254],"wellbeing":[55,97],"following":[56,155],"first-time":[58],"advanced":[61],"cancer":[62,86,274],"at":[63,82,123,293],"Queen":[64],"Elizabeth":[65],"Central":[66],"Hospital":[67],"Blantyre,":[69],"Malawi.":[70,276],"Protocol":[71],"Patients":[73],"their":[75],"primary":[76],"family":[77],"caregivers":[78,149],"be":[80,99,121,146,241],"recruited":[81],"time":[84],"diagnosis.":[87,130],"Data":[88],"healthcare":[90,269],"utilisation,":[91],"related":[92],"costs,":[93],"coping":[94],"strategies":[95],"gathered":[100],"using":[101,243],"new":[102],"existing":[104],"questionnaires":[105],"(the":[106],"Patient-and-Carer":[107],"Cancer":[108],"Cost":[109],"Survey,":[110],"EQ-5D-3L":[111],"Integrated":[114],"Palliative":[115],"Care":[116],"Outcome":[117],"Score).":[118],"Surveys":[119],"repeated":[122],"one,":[124],"three":[125],"six":[127,181],"months":[128],"after":[129],"In":[131],"event":[133],"patient\u2019s":[136],"death,":[137],"brief":[139],"five-item":[140],"questionnaire":[141],"funeral":[143],"costs":[144],"administered":[147],"to":[148,171,180,194],"not":[150],"less":[151],"than":[152],"two":[153],"weeks":[154],"date":[157],"death.":[159],"Descriptive":[160],"Poisson":[162],"regression":[163,213],"analyses":[164],"assess":[166],"exposure":[170],"from":[178],"baseline":[179],"months.":[182],"A":[183],"sample":[184],"size":[185],"138":[187],"has":[189,235],"been":[190],"calculated":[191],"order":[193],"detect":[195],"medium":[197],"effect":[198],"(as":[199],"determined":[200],"by":[201,270,273],"Cohen\u2019s":[202],"f":[203],"2":[204],"=0.15)":[205],"model":[214],"change":[216],"as":[222],"proportion":[224],"annual":[226],"income.":[228],"Ethics":[229],"dissemination":[231],"The":[233],"received":[236],"ethical":[237],"approval.":[238],"Results":[239],"reported":[242],"STROBE":[244],"guidelines":[245],"disseminated":[247],"through":[248],"scientific":[249],"meetings,":[250],"open":[251],"access":[252],"publications":[253],"national":[256],"stakeholder":[257],"meeting.":[258],"Conclusions":[259],"provide":[264],"data":[265],"affected":[272],"We":[277],"also":[278],"whether":[280],"is":[285],"associated":[286],"reduction":[289],"level.":[295]},"counts_by_year":[{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2020-01-23T00:00:00"}
