{"id":"https://openalex.org/W2997285145","doi":"https://doi.org/10.1186/s13063-019-3819-0","title":"Self-care for head and neck cancer survivors with lymphedema and fibrosis: study protocol for a randomized controlled trial","display_name":"Self-care for head and neck cancer survivors with lymphedema and fibrosis: study protocol for a randomized controlled trial","publication_year":2019,"publication_date":"2019-12-01","ids":{"openalex":"https://openalex.org/W2997285145","doi":"https://doi.org/10.1186/s13063-019-3819-0","mag":"2997285145","pmid":"https://pubmed.ncbi.nlm.nih.gov/31882012","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/6935145"},"language":"en","primary_location":{"id":"doi:10.1186/s13063-019-3819-0","doi":"https://doi.org/10.1186/s13063-019-3819-0","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s13063-019-3819-0","pdf_url":"https://trialsjournal.biomedcentral.com/track/pdf/10.1186/s13063-019-3819-0","source":{"id":"https://openalex.org/S109512841","display_name":"Trials","issn_l":"1745-6215","issn":["1745-6215"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doaj","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Trials","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://trialsjournal.biomedcentral.com/track/pdf/10.1186/s13063-019-3819-0","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5077244654","display_name":"Jie Fu Deng","orcid":"https://orcid.org/0000-0002-2553-8822","observed_orcids":["https://orcid.org/0000-0002-2553-8822"]},"institutions":[{"id":"https://openalex.org/I79576946","display_name":"University of Pennsylvania","ror":"https://ror.org/00b30xv10","country_code":"US","type":"education","lineage":["https://openalex.org/I79576946"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Jie Deng","raw_affiliation_strings":["School of Nursing, University of Pennsylvania, 418 Curie Boulevard, Philadelphia, PA, 19104-4217, USA. jiedeng@nursing.upenn.edu","School of Nursing, University of Pennsylvania, 418 Curie Boulevard, Philadelphia, PA, 19104-4217, USA"],"raw_orcid":"https://orcid.org/0000-0002-2553-8822","affiliations":[{"raw_affiliation_string":"School of Nursing, University of Pennsylvania, 418 Curie Boulevard, Philadelphia, PA, 19104-4217, USA. jiedeng@nursing.upenn.edu","institution_ids":["https://openalex.org/I79576946"]},{"raw_affiliation_string":"School of Nursing, University of Pennsylvania, 418 Curie Boulevard, Philadelphia, PA, 19104-4217, USA","institution_ids":["https://openalex.org/I79576946"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020538753","display_name":"Mary S. Dietrich","orcid":"https://orcid.org/0000-0003-4474-0767","observed_orcids":["https://orcid.org/0000-0003-4474-0767"]},"institutions":[{"id":"https://openalex.org/I200719446","display_name":"Vanderbilt University","ror":"https://ror.org/02vm5rt34","country_code":"US","type":"education","lineage":["https://openalex.org/I200719446"]},{"id":"https://openalex.org/I4390039299","display_name":"Vanderbilt-Ingram Cancer Center","ror":"https://ror.org/02rjj2m04","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210162197","https://openalex.org/I4390039299","https://openalex.org/I901861585"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mary S. Dietrich","raw_affiliation_strings":["School of Nursing, Vanderbilt University, Nashville, TN, USA","Vanderbilt-Ingram Cancer Center, Vanderbilt Medical Center, Nashville, TN, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Nursing, Vanderbilt University, Nashville, TN, USA","institution_ids":["https://openalex.org/I200719446"]},{"raw_affiliation_string":"Vanderbilt-Ingram Cancer Center, Vanderbilt Medical Center, Nashville, TN, USA","institution_ids":["https://openalex.org/I4390039299"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5048060803","display_name":"Barbara A. Murphy","orcid":"https://orcid.org/0000-0002-6376-6180","observed_orcids":["https://orcid.org/0000-0002-6376-6180","https://orcid.org/0000-0002-9242-9810","https://orcid.org/0000-0003-2163-7927"]},"institutions":[{"id":"https://openalex.org/I4390039299","display_name":"Vanderbilt-Ingram Cancer Center","ror":"https://ror.org/02rjj2m04","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210162197","https://openalex.org/I4390039299","https://openalex.org/I901861585"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Barbara Murphy","raw_affiliation_strings":["Vanderbilt-Ingram Cancer Center, Vanderbilt Medical Center, Nashville, TN, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vanderbilt-Ingram Cancer Center, Vanderbilt Medical Center, Nashville, TN, USA","institution_ids":["https://openalex.org/I4390039299"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5077244654"],"corresponding_institution_ids":["https://openalex.org/I79576946"],"apc_list":{"value":2190,"currency":"USD","value_usd":2190},"apc_paid":{"value":2190,"currency":"USD","value_usd":2190},"fwci":0.5127,"has_fulltext":true,"cited_by_count":12,"citation_normalized_percentile":{"value":0.67339483,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":97},"biblio":{"volume":"20","issue":"1","first_page":"775","last_page":"775"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11469","display_name":"Lymphatic System and Diseases","score":0.5386000275611877,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11469","display_name":"Lymphatic System and Diseases","score":0.5386000275611877,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.4180000126361847,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10307","display_name":"Head and Neck Cancer Studies","score":0.03009999915957451,"subfield":{"id":"https://openalex.org/subfields/2733","display_name":"Otorhinolaryngology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/head-and-neck-cancer-survivors","display_name":"head and neck cancer survivors","score":0.9200000166893005},{"id":"https://openalex.org/keywords/lymphedema","display_name":"lymphedema","score":0.921999990940094},{"id":"https://openalex.org/keywords/fibrosis","display_name":"fibrosis","score":0.972000002861023},{"id":"https://openalex.org/keywords/self-care-program","display_name":"self-care program","score":0.7860000133514404},{"id":"https://openalex.org/keywords/self-efficacy","display_name":"self-efficacy","score":0.8479999899864197},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.5820000171661377},{"id":"https://openalex.org/keywords/symptom-burden","display_name":"symptom burden","score":0.9440000057220459},{"id":"https://openalex.org/keywords/functional-disability","display_name":"functional disability","score":0.8769999742507935},{"id":"https://openalex.org/keywords/cancer-treatment-complications","display_name":"cancer treatment complications","score":0.4429999887943268},{"id":"https://openalex.org/keywords/follow-up-intervention","display_name":"follow-up intervention","score":0.6039999723434448}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9280784130096436},{"id":"https://openalex.org/C2781392513","wikidata":"https://www.wikidata.org/wiki/Q916398","display_name":"Lymphedema","level":4,"score":0.8157553672790527},{"id":"https://openalex.org/C168563851","wikidata":"https://www.wikidata.org/wiki/Q1436668","display_name":"Randomized controlled trial","level":2,"score":0.702470064163208},{"id":"https://openalex.org/C2780385302","wikidata":"https://www.wikidata.org/wiki/Q367158","display_name":"Protocol (science)","level":3,"score":0.6291506290435791},{"id":"https://openalex.org/C2776530083","wikidata":"https://www.wikidata.org/wiki/Q1783924","display_name":"Head and neck cancer","level":3,"score":0.6069615483283997},{"id":"https://openalex.org/C3018411727","wikidata":"https://www.wikidata.org/wiki/Q3867488","display_name":"Head and neck","level":2,"score":0.5394871830940247},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.5216677188873291},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.4194958209991455},{"id":"https://openalex.org/C141071460","wikidata":"https://www.wikidata.org/wiki/Q40821","display_name":"Surgery","level":1,"score":0.3211946487426758},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.258001446723938},{"id":"https://openalex.org/C530470458","wikidata":"https://www.wikidata.org/wiki/Q128581","display_name":"Breast cancer","level":3,"score":0.24681228399276733},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.21912318468093872},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.17262956500053406}],"mesh":[{"descriptor_ui":"D000074822","descriptor_name":"Treatment Adherence and Compliance","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000076604","descriptor_name":"Physical Functional Performance","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005355","descriptor_name":"Fibrosis","qualifier_ui":"Q000209","qualifier_name":"etiology","is_major_topic":false},{"descriptor_ui":"D005355","descriptor_name":"Fibrosis","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005355","descriptor_name":"Fibrosis","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006258","descriptor_name":"Head and Neck Neoplasms","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":true},{"descriptor_ui":"D006258","descriptor_name":"Head and Neck Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008209","descriptor_name":"Lymphedema","qualifier_ui":"Q000209","qualifier_name":"etiology","is_major_topic":true},{"descriptor_ui":"D008209","descriptor_name":"Lymphedema","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008209","descriptor_name":"Lymphedema","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009042","descriptor_name":"Motivation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D012107","descriptor_name":"Research Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012648","descriptor_name":"Self Care","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D012648","descriptor_name":"Self Care","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D016032","descriptor_name":"Randomized Controlled Trials as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017063","descriptor_name":"Outcome Assessment, Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":6,"locations":[{"id":"doi:10.1186/s13063-019-3819-0","doi":"https://doi.org/10.1186/s13063-019-3819-0","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s13063-019-3819-0","pdf_url":"https://trialsjournal.biomedcentral.com/track/pdf/10.1186/s13063-019-3819-0","source":{"id":"https://openalex.org/S109512841","display_name":"Trials","issn_l":"1745-6215","issn":["1745-6215"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doaj","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Trials","raw_type":"journal-article"},{"id":"doi:10.21203/rs.2.12485/v1","doi":"https://doi.org/10.21203/rs.2.12485/v1","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.2.12485/v1","pdf_url":"https://www.researchsquare.com/article/rs-3244/v1.pdf?c=1631840683000","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"},{"id":"doi:10.21203/rs.2.12485/v2","doi":"https://doi.org/10.21203/rs.2.12485/v2","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.2.12485/v2","pdf_url":"https://www.researchsquare.com/article/rs-3244/latest.pdf","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"},{"id":"pmh:oai:pubmedcentral.nih.gov:6935145","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6935145","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Trials","raw_type":"Text"},{"id":"pmid:31882012","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31882012","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Trials","raw_type":"Clinical Trial Protocol"},{"id":"pmh:oai:doaj.org/article:2cc5bd8c73c2498dbf36f89149c094ab","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/2cc5bd8c73c2498dbf36f89149c094ab","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Trials, Vol 20, Iss 1, Pp 1-8 (2019)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1186/s13063-019-3819-0","doi":"https://doi.org/10.1186/s13063-019-3819-0","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s13063-019-3819-0","pdf_url":"https://trialsjournal.biomedcentral.com/track/pdf/10.1186/s13063-019-3819-0","source":{"id":"https://openalex.org/S109512841","display_name":"Trials","issn_l":"1745-6215","issn":["1745-6215"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","doaj","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Trials","raw_type":"journal-article"},"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/study-protocol","display_name":"Study Protocol"}],"awards":[{"id":"https://openalex.org/G7755239013","display_name":"Self-Care for Head and Neck Cancer Survivors with Lymphedema and Fibrosis","funder_award_id":"RSG-16-207-01-PCSM","funder_id":"https://openalex.org/F4320306095","funder_display_name":"American Cancer Society"}],"funders":[{"id":"https://openalex.org/F4320306095","display_name":"American Cancer Society","ror":"https://ror.org/02e463172"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2997285145.pdf","grobid_xml":"https://content.openalex.org/works/W2997285145.grobid-xml"},"referenced_works_count":36,"referenced_works":["https://openalex.org/W1159944823","https://openalex.org/W1521423359","https://openalex.org/W1569181238","https://openalex.org/W1573808323","https://openalex.org/W1728733662","https://openalex.org/W1858398661","https://openalex.org/W1968211750","https://openalex.org/W1972928138","https://openalex.org/W2025970759","https://openalex.org/W2034070476","https://openalex.org/W2040982907","https://openalex.org/W2044407438","https://openalex.org/W2052163977","https://openalex.org/W2053019589","https://openalex.org/W2061327482","https://openalex.org/W2079300534","https://openalex.org/W2080618919","https://openalex.org/W2081186630","https://openalex.org/W2083737027","https://openalex.org/W2084053696","https://openalex.org/W2085017827","https://openalex.org/W2085759723","https://openalex.org/W2092651385","https://openalex.org/W2119808401","https://openalex.org/W2124287870","https://openalex.org/W2126792434","https://openalex.org/W2140298866","https://openalex.org/W2171811563","https://openalex.org/W2289229121","https://openalex.org/W2305033403","https://openalex.org/W2889242437","https://openalex.org/W2977150288","https://openalex.org/W3148855543","https://openalex.org/W4231443799","https://openalex.org/W4248912803","https://openalex.org/W6637928972"],"related_works":["https://openalex.org/W4293074163","https://openalex.org/W4413009340","https://openalex.org/W4415113415","https://openalex.org/W4413384579","https://openalex.org/W4414533393","https://openalex.org/W6902025373","https://openalex.org/W4413423707","https://openalex.org/W4414905162","https://openalex.org/W2506392091","https://openalex.org/W1483030391"],"abstract_inverted_index":{"BACKGROUND:":[0],"Head":[1],"and":[2,14,35,40,65,81,86,113,138,174,188,196,200,208,233,238,252,288,290],"neck":[3],"cancer":[4,18],"(HNC)":[5],"patients":[6,22],"are":[7],"at":[8,165],"high":[9],"risk":[10],"for":[11,159],"developing":[12],"lymphedema":[13],"fibrosis":[15],"(LEF)":[16],"following":[17],"treatment.":[19],"Once":[20],"HNC":[21,126,231],"develop":[23],"LEF,":[24],"they":[25],"need":[26],"to":[27,31,61,77,99,185,198,222,254],"conduct":[28],"life-long":[29],"self-care":[30,48,74,256,272],"slow":[32],"LEF":[33,47,79,271],"progression":[34],"reduce":[36,82],"associated":[37],"symptom":[38,84,206],"burden":[39,85],"functional":[41,87,209],"deficits.":[42],"Data":[43],"demonstrate":[44],"that":[45,260,278],"inadequate":[46],"may":[49],"be":[50,125,151,218],"a":[51,92,227,270,297],"potentially":[52],"remediable":[53],"issue.":[54],"The":[55,156],"objective":[56],"of":[57,68,132,144,190,211,226,247,269,299,304],"this":[58],"study":[59,157,168,221],"is":[60,91,147],"explore":[62],"the":[63,191,212,219,224,230,244,255,261,267,300],"feasibility":[64,183,225,268],"preliminary":[66,202,279],"efficacy":[67,203],"an":[69],"Information-Motivation-Behavioral":[70],"(IMB)":[71],"Skills":[72],"model-driven":[73],"program":[75],"(SCP)":[76],"improve":[78],"management":[80],"LEF-related":[83],"impairments.":[88],"METHODS/DESIGN:":[89],"This":[90,216],"three-arm,":[93],"prospective,":[94],"randomized":[95],"controlled":[96],"clinical":[97],"trial":[98,262],"compare:":[100],"Group":[101,106,114],"1":[102],"-":[103,108,116],"Usual":[104,109,117],"Care,":[105],"2":[107],"Care":[110,118],"Plus":[111,119,121],"LEF-SCP,":[112],"3":[115],"LEF-SCP":[120,228],"Follow-Up.":[122],"Participants":[123],"will":[124,150,162,217,242,263,281],"survivors":[127],"aged":[128],">":[129],"18":[130],"years":[131],"age,":[133],"who":[134],"meet":[135],"predefined":[136],"inclusion":[137],"exclusion":[139],"criteria.":[140],"A":[141],"sample":[142],"size":[143],"75":[145],"participants":[146],"targeted.":[148],"Interventions":[149],"provided":[152],"by":[153],"trained":[154],"staff.":[155],"assessments":[158],"all":[160],"groups":[161],"take":[163],"place":[164],"five":[166],"points:":[167],"entry":[169],"then":[170],"3,":[171],"6,":[172],"9,":[173],"12":[175],"months":[176],"post":[177],"enrollment.":[178],"Outcome":[179],"measures":[180],"include:":[181],"(1)":[182],"(barriers":[184],"implementation,":[186],"safety,":[187],"satisfaction)":[189],"proposed":[192,213],"intervention;":[193],"(2)":[194],"self-efficacy":[195,237],"adherence":[197,251,287],"self-care;":[199],"(3)":[201],"(LEF":[204],"progression,":[205],"burden,":[207],"status)":[210],"intervention.":[214],"DISCUSSION:":[215],"first":[220],"evaluate":[223,243],"in":[229],"population":[232],"its":[234],"impact":[235],"on":[236,250,308],"adherence.":[239],"Furthermore,":[240],"it":[241],"potential":[245],"benefit":[246],"routine":[248],"follow-up":[249],"fidelity":[253],"protocol.":[257],"We":[258],"expect":[259],"provide":[264],"evidence":[265],"supporting":[266],"program.":[273],"In":[274],"addition,":[275],"we":[276],"anticipate":[277],"data":[280],"support":[282],"improved":[283],"outcomes":[284],"including":[285],"increased":[286],"fidelity,":[289],"decreased":[291],"LEF-associated":[292],"symptoms.":[293],"TRIAL":[294],"REGISTRATION:":[295],"ClinicalTrials.gov,":[296],"service":[298],"US":[301],"National":[302],"Institute":[303],"Health":[305],"(NCT03030859).":[306],"Registered":[307],"22":[309],"January":[310],"2017.":[311]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":3},{"year":2020,"cited_by_count":2}],"updated_date":"2026-11-03T10:50:19.383937","created_date":"2020-01-10T00:00:00"}