{"id":"https://openalex.org/W2995651293","doi":null,"title":"Rural encounters with cancer: a study of the lived experience of people in the Central West of New South Wales","display_name":"Rural encounters with cancer: a study of the lived experience of people in the Central West of New South Wales","publication_year":2019,"publication_date":"2019-01-01","ids":{"openalex":"https://openalex.org/W2995651293","mag":"2995651293"},"language":"en","primary_location":{"id":"pmh:oai:pure.atira.dk:publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","doi":null,"is_oa":true,"landing_page_url":"https://researchoutput.csu.edu.au/en/publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","pdf_url":null,"source":{"id":"https://openalex.org/S7407055442","display_name":"Charles Sturt University Research Output (CRO)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Jones, R 2019, 'Rural encounters with cancer : a study of the lived experience of people in the Central West of New South Wales', Doctor of Philosophy, Charles Sturt University, Australia.","raw_type":"info:eu-repo/semantics/doctoralThesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://researchoutput.csu.edu.au/en/publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5110390103","display_name":"Ruth Jones","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Ruth Jones","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5110390103"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9434000253677368,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9434000253677368,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10556","display_name":"Global Cancer Incidence and Screening","score":0.00930000003427267,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.008999999612569809,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cancer-diagnosis","display_name":"cancer diagnosis","score":0.824999988079071},{"id":"https://openalex.org/keywords/lived-experience","display_name":"lived experience","score":0.8220000267028809},{"id":"https://openalex.org/keywords/rurality","display_name":"rurality","score":0.7260000109672546},{"id":"https://openalex.org/keywords/health-care-access","display_name":"health care access","score":0.46700000762939453},{"id":"https://openalex.org/keywords/care-coordination","display_name":"care coordination","score":0.6859999895095825},{"id":"https://openalex.org/keywords/nurse-led-care","display_name":"nurse-led care","score":0.6359999775886536},{"id":"https://openalex.org/keywords/multidisciplinary-care","display_name":"multidisciplinary care","score":0.6710000038146973},{"id":"https://openalex.org/keywords/social-isolation","display_name":"social isolation","score":0.4650000035762787},{"id":"https://openalex.org/keywords/existential-crisis","display_name":"existential crisis","score":0.7400000095367432},{"id":"https://openalex.org/keywords/grief","display_name":"grief","score":0.375},{"id":"https://openalex.org/keywords/health-information-needs","display_name":"health information needs","score":0.5849999785423279},{"id":"https://openalex.org/keywords/central-west-new-south-wales","display_name":"Central West New South Wales","score":0.7160000205039978},{"id":"https://openalex.org/keywords/health-worker-support","display_name":"health worker support","score":0.42800000309944153},{"id":"https://openalex.org/keywords/meaning-making","display_name":"meaning-making","score":0.328000009059906},{"id":"https://openalex.org/keywords/cancer-survivorship","display_name":"cancer survivorship","score":0.48100000619888306},{"id":"https://openalex.org/keywords/healthcare-system-navigation","display_name":"health system navigation","score":0.42899999022483826},{"id":"https://openalex.org/keywords/community-health-nurses","display_name":"community nurses","score":0.4309999942779541}],"concepts":[{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.46429428458213806},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.3689866065979004},{"id":"https://openalex.org/C45355965","wikidata":"https://www.wikidata.org/wiki/Q1643441","display_name":"Socioeconomics","level":1,"score":0.3598068952560425},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.2665088176727295}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:pure.atira.dk:publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","doi":null,"is_oa":true,"landing_page_url":"https://researchoutput.csu.edu.au/en/publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","pdf_url":null,"source":{"id":"https://openalex.org/S7407055442","display_name":"Charles Sturt University Research Output (CRO)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Jones, R 2019, 'Rural encounters with cancer : a study of the lived experience of people in the Central West of New South Wales', Doctor of Philosophy, Charles Sturt University, Australia.","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:2995651293","doi":null,"is_oa":false,"landing_page_url":"https://researchoutput.csu.edu.au/en/publications/rural-encounters-with-cancer-a-study-of-the-lived-experience-of-p","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:pure.atira.dk:publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","doi":null,"is_oa":true,"landing_page_url":"https://researchoutput.csu.edu.au/en/publications/ddf19cf7-e597-4e25-9c39-de623318f5c5","pdf_url":null,"source":{"id":"https://openalex.org/S7407055442","display_name":"Charles Sturt University Research Output (CRO)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Jones, R 2019, 'Rural encounters with cancer : a study of the lived experience of people in the Central West of New South Wales', Doctor of Philosophy, Charles Sturt University, Australia.","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"score":0.98580002784729,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":158,"referenced_works":["https://openalex.org/W6988604","https://openalex.org/W78221725","https://openalex.org/W109893340","https://openalex.org/W121709599","https://openalex.org/W132470944","https://openalex.org/W190580723","https://openalex.org/W335601956","https://openalex.org/W587287789","https://openalex.org/W608669958","https://openalex.org/W652577554","https://openalex.org/W1495198831","https://openalex.org/W1495273524","https://openalex.org/W1505028990","https://openalex.org/W1513466925","https://openalex.org/W1515536068","https://openalex.org/W1517691429","https://openalex.org/W1521578411","https://openalex.org/W1524147099","https://openalex.org/W1530155851","https://openalex.org/W1540405158","https://openalex.org/W1540993910","https://openalex.org/W1550744556","https://openalex.org/W1551419569","https://openalex.org/W1553183615","https://openalex.org/W1556769229","https://openalex.org/W1592706730","https://openalex.org/W1603221395","https://openalex.org/W1607118314","https://openalex.org/W1622527855","https://openalex.org/W1705040485","https://openalex.org/W1720881856","https://openalex.org/W1803044106","https://openalex.org/W1964504008","https://openalex.org/W1966545003","https://openalex.org/W1967904013","https://openalex.org/W1971766803","https://openalex.org/W1974474930","https://openalex.org/W1977412457","https://openalex.org/W1982478788","https://openalex.org/W1982672387","https://openalex.org/W1982860187","https://openalex.org/W1987018580","https://openalex.org/W1987617060","https://openalex.org/W1995535241","https://openalex.org/W1996791213","https://openalex.org/W1997478290","https://openalex.org/W2003452477","https://openalex.org/W2004251458","https://openalex.org/W2006286197","https://openalex.org/W2009201929","https://openalex.org/W2010371855","https://openalex.org/W2011796118","https://openalex.org/W2020472424","https://openalex.org/W2026591710","https://openalex.org/W2029560176","https://openalex.org/W2034382560","https://openalex.org/W2034749054","https://openalex.org/W2036002403","https://openalex.org/W2037379170","https://openalex.org/W2037386919","https://openalex.org/W2037965191","https://openalex.org/W2039579416","https://openalex.org/W2041872286","https://openalex.org/W2043069755","https://openalex.org/W2045403074","https://openalex.org/W2047180608","https://openalex.org/W2049086593","https://openalex.org/W2049787754","https://openalex.org/W2050075786","https://openalex.org/W2050256253","https://openalex.org/W2050835271","https://openalex.org/W2053090385","https://openalex.org/W2054571480","https://openalex.org/W2055627514","https://openalex.org/W2060812454","https://openalex.org/W2061948569","https://openalex.org/W2066356718","https://openalex.org/W2066362955","https://openalex.org/W2068985460","https://openalex.org/W2069749366","https://openalex.org/W2070570792","https://openalex.org/W2074409046","https://openalex.org/W2075705341","https://openalex.org/W2080118882","https://openalex.org/W2080178827","https://openalex.org/W2080506472","https://openalex.org/W2082560137","https://openalex.org/W2089168113","https://openalex.org/W2090973644","https://openalex.org/W2091237597","https://openalex.org/W2092089195","https://openalex.org/W2094011540","https://openalex.org/W2097116556","https://openalex.org/W2099569392","https://openalex.org/W2099814623","https://openalex.org/W2100248176","https://openalex.org/W2109175507","https://openalex.org/W2122615311","https://openalex.org/W2123050652","https://openalex.org/W2126801988","https://openalex.org/W2131854704","https://openalex.org/W2131891539","https://openalex.org/W2135803690","https://openalex.org/W2142602159","https://openalex.org/W2144722936","https://openalex.org/W2145430163","https://openalex.org/W2145715405","https://openalex.org/W2146203034","https://openalex.org/W2148287035","https://openalex.org/W2155662067","https://openalex.org/W2157660000","https://openalex.org/W2162004492","https://openalex.org/W2165078174","https://openalex.org/W2169697253","https://openalex.org/W2229573829","https://openalex.org/W2273408868","https://openalex.org/W2273826813","https://openalex.org/W2321469972","https://openalex.org/W2326835640","https://openalex.org/W2329720239","https://openalex.org/W2398168005","https://openalex.org/W2399533062","https://openalex.org/W2405007865","https://openalex.org/W2409587702","https://openalex.org/W2411907876","https://openalex.org/W2427240639","https://openalex.org/W2433227836","https://openalex.org/W2463377562","https://openalex.org/W2467290940","https://openalex.org/W2497589191","https://openalex.org/W2568356833","https://openalex.org/W2571408951","https://openalex.org/W2595551385","https://openalex.org/W2613667011","https://openalex.org/W2625900585","https://openalex.org/W2735924097","https://openalex.org/W2737554481","https://openalex.org/W2742905941","https://openalex.org/W2761021920","https://openalex.org/W2786568920","https://openalex.org/W2790841064","https://openalex.org/W2795418641","https://openalex.org/W2797139864","https://openalex.org/W2809239031","https://openalex.org/W2811235748","https://openalex.org/W2884346889","https://openalex.org/W2904708873","https://openalex.org/W2907291828","https://openalex.org/W2911328303","https://openalex.org/W2922431993","https://openalex.org/W2931478782","https://openalex.org/W2940981700","https://openalex.org/W2944274835","https://openalex.org/W2955902601","https://openalex.org/W2955977007","https://openalex.org/W3046339547","https://openalex.org/W3172172077","https://openalex.org/W4299558142"],"related_works":["https://openalex.org/W1987390695","https://openalex.org/W2031057661","https://openalex.org/W7163588989","https://openalex.org/W7120562790","https://openalex.org/W7014821471","https://openalex.org/W2959969069","https://openalex.org/W4213079121","https://openalex.org/W7034696572","https://openalex.org/W2955729455","https://openalex.org/W7061899097"],"abstract_inverted_index":{"This":[0,415,442],"qualitative":[1],"phenomenological":[2,177],"study":[3,85,129,416],"aims":[4,82],"to":[5,7,70,145,154,351,359,383,476,478,506,556],"contribute":[6],"a":[8,16,31,102,166,183,190,228,281,293,336,393,421,435,491,553,566,579],"deeper":[9],"understanding":[10],"of":[11,38,73,83,96,104,121,135,141,165,182,186,189,192,227,236,272,280,290,314,347,370,420,428,460,481,487,501,530,533,578],"the":[12,24,35,46,49,71,84,97,109,119,128,133,138,163,170,180,187,195,206,209,217,220,234,239,252,256,270,278,299,303,368,398,410,413,418,450,458,463,482,516,538,575],"cancer":[13,32,59,77,117,167,193,229,237,273,282,323,332,390,488,522,551,580],"journey":[14,235,381,391],"in":[15,34,43,60,100,118,137,143,169,198,309,343,523],"rural":[17,61,122,464,524],"context":[18,120],"by":[19,28,216,306,432,519,542],"exploring,":[20],"articulating":[21],"and":[22,62,91,106,194,205,213,222,238,264,276,286,318,325,363,374,401,405,423,438,446,468,474,489,496,512,526,546,573],"analysing":[23],"unique":[25,394],"challenges":[26],"faced":[27,305],"people":[29,57,115,136,520,549,570],"following":[30,387],"diagnosis":[33,103,168,191,283,324],"Central":[36,139,171],"West":[37,140,172],"NSW.":[39,123],"Cancer":[40],"survival":[41],"rates":[42],"Australia":[44],"rival":[45],"best":[47,76],"across":[48,298,457],"world,":[50],"yet":[51],"there":[52],"is":[53,392],"clear":[54],"evidence":[55],"that":[56,199,356,548,563],"with":[58,116,148,162,412,448,521,550,571],"regional":[63],"areas":[64],"have":[65,552],"not":[66],"had":[67,160],"equitable":[68],"access":[69,557],"range":[72],"services":[74],"considered":[75],"care.":[78,461],"The":[79,124,231,288,499],"two":[80],"main":[81],"are":[86,132,470],"to:":[87],"(i)":[88],"identify,":[89],"explore":[90],"fully":[92],"describe":[93],"people\u2019s":[94],"experiences":[95,134],"processes":[98],"involved":[99],"receiving":[101],"cancer;":[105],"(ii)":[107],"interpret":[108],"meaning":[110,196,340],"this":[111,310,406],"phenomenon":[112],"holds":[113],"for":[114,127,255,262,339,396,494,540],"research":[125,221],"question":[126],"was:":[130],"What":[131],"NSW":[142],"relation":[144],"being":[146],"diagnosed":[147],"cancer?":[149],"Criterion":[150],"sampling":[151],"was":[152,274,284,292,407],"used":[153],"recruit":[155],"eight":[156],"participants":[157,218,232],"ensuring":[158],"each":[159,224,307,329],"experience":[161,188,226,395],"phenomena":[164],"region.":[173],"Using":[174],"Moustakas\u2019":[175],"(1994)":[176],"approach":[178],"enabled":[179],"development":[181,467,500],"rich":[184],"description":[185],"embedded":[197],"experience.":[200],"Semi-structured":[201],"interviews":[202,411],"generated":[203],"data":[204],"language":[207],"used;":[208],"words,":[210],"phrases,":[211],"images":[212],"metaphors":[214],"chosen":[215],"shaped":[219],"illuminated":[223],"individual":[225],"diagnosis.":[230,388,581],"described":[233],"impact":[240,271],"on":[241],"his":[242],"or":[243],"her":[244],"life.":[245,267],"Four":[246],"primary":[247,300,422],"themes":[248,301],"emerged:":[249],"Shock":[250],"at":[251],"diagnosis,":[253],"Grief":[254],"life":[257,484],"that\u2019s":[258],"lost,":[259],"A":[260,265],"thirst":[261],"information":[263,445,511,572],"new":[266],"For":[268,328],"many":[269],"dramatic":[275],"all-encompassing;":[277],"chaos":[279],"profound":[285,576],"individual.":[287],"Impact":[289],"Rurality":[291],"theme":[294],"which":[295,341,503],"cut":[296],"powerfully":[297],"revealing":[302],"burden":[304],"participant":[308],"context.":[311],"Participants":[312,366],"spoke":[313],"feeling":[315],"isolated,":[316],"uncertain,":[317],"lacking":[319],"support":[320,375,447],"during":[321],"their":[322,331,345,380,384,402],"treatment":[326,561],"period.":[327],"participant,":[330],"\u2018life":[333],"world\u2019":[334],"became":[335],"long-term":[337],"search":[338],"resulted":[342],"changing":[344,485],"concept":[346],"\u2018who":[348,352],"I":[349,353],"was\u2019":[350],"am":[354],"now\u2019;":[355],"is,":[357],"how":[358],"live":[360],"with,":[361],"through":[362],"beyond":[364],"cancer.":[365],"felt":[367,518],"absence":[369],"care":[371,429,452],"coordination,":[372,430],"education":[373,469,513],"from":[376,409],"health":[377,451],"professionals":[378],"throughout":[379],"contributed":[382],"existential":[385],"crisis":[386],"Each":[389],"both":[397,472],"person":[399],"affected":[400],"loved":[403],"ones,":[404],"evident":[408],"participants.":[414],"revealed":[417],"importance":[419],"community":[424],"health,":[425],"nurse-led":[426],"model":[427],"supported":[431],"medical":[433],"specialists,":[434],"multidisciplinary":[436],"team":[437],"clinical":[439],"practice":[440],"guidelines.":[441],"would":[443,454,514],"ensure":[444],"navigating":[449],"system":[453],"be":[455],"provided":[456],"continuum":[459],"In":[462],"context,":[465],"staff":[466],"imperative,":[471],"online":[473],"face":[475],"face,":[477],"increase":[479],"awareness":[480],"inherently":[483],"nature":[486],"provide":[490,507,569],"knowledge":[492],"base":[493],"nurses":[495],"other":[497],"clinicians.":[498],"eSupport,":[502],"utilises":[504],"technology":[505],"virtual":[508],"psychological":[509],"support,":[510],"reduce":[515],"isolation":[517],"communities":[525],"enable":[527],"efficient":[528],"use":[529],"resources,":[531],"regardless":[532],"location.":[534],"Other":[535],"recommendations":[536],"include":[537],"need":[539],"recognition":[541],"general":[543],"practitioners,":[544],"surgeons":[545],"specialists":[547],"fundamental":[554],"right":[555],"patient-held,":[558],"person-centred,":[559],"customised":[560],"plans":[562],"function":[564],"as":[565],"living":[567],"document,":[568],"diminish":[574],"impacts":[577]},"counts_by_year":[],"updated_date":"2026-10-16T09:59:22.235173","created_date":"2019-12-26T00:00:00"}