{"id":"https://openalex.org/W2995110367","doi":"https://doi.org/10.1038/s41431-019-0560-9","title":"Dwarna: a blockchain solution for dynamic consent in biobanking","display_name":"Dwarna: a blockchain solution for dynamic consent in biobanking","publication_year":2019,"publication_date":"2019-12-16","ids":{"openalex":"https://openalex.org/W2995110367","doi":"https://doi.org/10.1038/s41431-019-0560-9","mag":"2995110367","pmid":"https://pubmed.ncbi.nlm.nih.gov/31844175","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/7170942"},"language":"en","primary_location":{"id":"doi:10.1038/s41431-019-0560-9","doi":"https://doi.org/10.1038/s41431-019-0560-9","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41431-019-0560-9","pdf_url":"https://www.nature.com/articles/s41431-019-0560-9.pdf","source":{"id":"https://openalex.org/S121703463","display_name":"European Journal of Human Genetics","issn_l":"1018-4813","issn":["1018-4813","1476-5438"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European Journal of Human Genetics","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://www.nature.com/articles/s41431-019-0560-9.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5076016146","display_name":"Nicholas Mamo","orcid":"https://orcid.org/0000-0001-5452-5548","observed_orcids":["https://orcid.org/0000-0001-5452-5548"]},"institutions":[{"id":"https://openalex.org/I197854408","display_name":"University of Malta","ror":"https://ror.org/03a62bv60","country_code":"MT","type":"education","lineage":["https://openalex.org/I197854408"]}],"countries":["MT"],"is_corresponding":false,"raw_author_name":"Nicholas Mamo","raw_affiliation_strings":["Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta"],"raw_orcid":"https://orcid.org/0000-0001-5452-5548","affiliations":[{"raw_affiliation_string":"Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049031257","display_name":"Gillian M. Martin","orcid":"https://orcid.org/0000-0002-5281-8117","observed_orcids":["https://orcid.org/0000-0002-5281-8117"]},"institutions":[{"id":"https://openalex.org/I197854408","display_name":"University of Malta","ror":"https://ror.org/03a62bv60","country_code":"MT","type":"education","lineage":["https://openalex.org/I197854408"]},{"id":"https://openalex.org/I4210094377","display_name":"Biobanking and Biomolecular Resources Research Infrastructure Consortium","ror":"https://ror.org/00pwncn89","country_code":"AT","type":"other","lineage":["https://openalex.org/I4210094377"]}],"countries":["AT","MT"],"is_corresponding":false,"raw_author_name":"Gillian M. Martin","raw_affiliation_strings":["BBMRI-ERIC, Neue Stiftingtalstra\u00dfe 2/B/6, 8010, Graz, Austria","Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta","Department of Sociology, Faculty of Arts, University of Malta, Msida, MSD 2080, Malta"],"raw_orcid":"https://orcid.org/0000-0002-5281-8117","affiliations":[{"raw_affiliation_string":"BBMRI-ERIC, Neue Stiftingtalstra\u00dfe 2/B/6, 8010, Graz, Austria","institution_ids":["https://openalex.org/I4210094377"]},{"raw_affiliation_string":"Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]},{"raw_affiliation_string":"Department of Sociology, Faculty of Arts, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063641577","display_name":"Maria Desira","orcid":"https://orcid.org/0000-0001-8465-4842","observed_orcids":["https://orcid.org/0000-0001-8465-4842"]},"institutions":[{"id":"https://openalex.org/I197854408","display_name":"University of Malta","ror":"https://ror.org/03a62bv60","country_code":"MT","type":"education","lineage":["https://openalex.org/I197854408"]}],"countries":["MT"],"is_corresponding":false,"raw_author_name":"Maria Desira","raw_affiliation_strings":["Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta"],"raw_orcid":"https://orcid.org/0000-0001-8465-4842","affiliations":[{"raw_affiliation_string":"Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5102903312","display_name":"Bridget Ellul","orcid":"https://orcid.org/0000-0003-4146-0663","observed_orcids":["https://orcid.org/0000-0003-4146-0663"]},"institutions":[{"id":"https://openalex.org/I197854408","display_name":"University of Malta","ror":"https://ror.org/03a62bv60","country_code":"MT","type":"education","lineage":["https://openalex.org/I197854408"]}],"countries":["MT"],"is_corresponding":false,"raw_author_name":"Bridget Ellul","raw_affiliation_strings":["Department of Pathology, Faculty of Medicine and Surgery, University of Malta, Msida, MSD 2080, Malta"],"raw_orcid":"https://orcid.org/0000-0003-4146-0663","affiliations":[{"raw_affiliation_string":"Department of Pathology, Faculty of Medicine and Surgery, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5067305343","display_name":"Jean-Paul Ebejer","orcid":"https://orcid.org/0000-0003-0888-2637","observed_orcids":["https://orcid.org/0000-0003-0888-2637"]},"institutions":[{"id":"https://openalex.org/I197854408","display_name":"University of Malta","ror":"https://ror.org/03a62bv60","country_code":"MT","type":"education","lineage":["https://openalex.org/I197854408"]}],"countries":["MT"],"is_corresponding":true,"raw_author_name":"Jean-Paul Ebejer","raw_affiliation_strings":["Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta. jean.p.ebejer@um.edu.mt","Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta"],"raw_orcid":"https://orcid.org/0000-0003-0888-2637","affiliations":[{"raw_affiliation_string":"Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta. jean.p.ebejer@um.edu.mt","institution_ids":["https://openalex.org/I197854408"]},{"raw_affiliation_string":"Centre for Molecular Medicine and Biobanking, Biomedical Sciences Building, University of Malta, Msida, MSD 2080, Malta","institution_ids":["https://openalex.org/I197854408"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5067305343"],"corresponding_institution_ids":["https://openalex.org/I197854408"],"apc_list":{"value":3760,"currency":"USD","value_usd":3760},"apc_paid":{"value":3760,"currency":"USD","value_usd":3760},"fwci":8.0248,"has_fulltext":true,"cited_by_count":99,"citation_normalized_percentile":{"value":0.98133913,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":"28","issue":"5","first_page":"609","last_page":"626"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.6987000107765198,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.6987000107765198,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10270","display_name":"Blockchain Technology Applications and Security","score":0.29440000653266907,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.002199999988079071,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/dynamic-consent","display_name":"dynamic consent","score":0.9980000257492065},{"id":"https://openalex.org/keywords/biobanking","display_name":"biobanking","score":0.9869999885559082},{"id":"https://openalex.org/keywords/blockchain","display_name":"blockchain","score":0.996999979019165},{"id":"https://openalex.org/keywords/web-portal","display_name":"web portal","score":0.7960000038146973},{"id":"https://openalex.org/keywords/general-data-protection-regulation","display_name":"General Data Protection Regulation","score":0.8600000143051147},{"id":"https://openalex.org/keywords/right-to-be-forgotten","display_name":"right to be forgotten","score":0.9890000224113464},{"id":"https://openalex.org/keywords/audit-trail","display_name":"audit trail","score":0.6790000200271606},{"id":"https://openalex.org/keywords/withdrawal-of-consent","display_name":"withdrawal of consent","score":0.800000011920929}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.9789806008338928},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.5762476325035095},{"id":"https://openalex.org/C199521495","wikidata":"https://www.wikidata.org/wiki/Q181487","display_name":"Audit","level":2,"score":0.5154114961624146},{"id":"https://openalex.org/C2779687700","wikidata":"https://www.wikidata.org/wiki/Q20514253","display_name":"Blockchain","level":2,"score":0.49422815442085266},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.49129384756088257},{"id":"https://openalex.org/C2910001868","wikidata":"https://www.wikidata.org/wiki/Q458","display_name":"European union","level":2,"score":0.49061504006385803},{"id":"https://openalex.org/C153997805","wikidata":"https://www.wikidata.org/wiki/Q42240","display_name":"Research ethics","level":2,"score":0.4662890136241913},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.4503617584705353},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4204557538032532},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.33137285709381104},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3243313431739807},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2996518909931183},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.253126859664917},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.23675879836082458},{"id":"https://openalex.org/C38652104","wikidata":"https://www.wikidata.org/wiki/Q3510521","display_name":"Computer security","level":1,"score":0.2356167733669281},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.20434004068374634},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.1775355339050293},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.14006826281547546},{"id":"https://openalex.org/C121955636","wikidata":"https://www.wikidata.org/wiki/Q4116214","display_name":"Accounting","level":1,"score":0.13305947184562683},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.09878930449485779},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.09168046712875366},{"id":"https://openalex.org/C105639569","wikidata":"https://www.wikidata.org/wiki/Q582577","display_name":"Economic policy","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000073597","descriptor_name":"Stakeholder Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000081186","descriptor_name":"Blockchain","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005826","descriptor_name":"Genetics, Medical","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D012984","descriptor_name":"Software","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D030661","descriptor_name":"Genetic Privacy","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1038/s41431-019-0560-9","doi":"https://doi.org/10.1038/s41431-019-0560-9","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41431-019-0560-9","pdf_url":"https://www.nature.com/articles/s41431-019-0560-9.pdf","source":{"id":"https://openalex.org/S121703463","display_name":"European Journal of Human Genetics","issn_l":"1018-4813","issn":["1018-4813","1476-5438"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European Journal of Human Genetics","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:7170942","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7170942","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Eur J Hum Genet","raw_type":"Text"},{"id":"pmid:31844175","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31844175","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European journal of human genetics : EJHG","raw_type":"Journal Article"},{"id":"pmh:oai:www.um.edu.mt:123456789/51116","doi":null,"is_oa":true,"landing_page_url":"https://www.um.edu.mt/library/oar/handle/123456789/51116","pdf_url":null,"source":{"id":"https://openalex.org/S4306400782","display_name":"OAR@UM (University of Malta)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I197854408","host_organization_name":"University of Malta","host_organization_lineage":["https://openalex.org/I197854408"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1038/s41431-019-0560-9","doi":"https://doi.org/10.1038/s41431-019-0560-9","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41431-019-0560-9","pdf_url":"https://www.nature.com/articles/s41431-019-0560-9.pdf","source":{"id":"https://openalex.org/S121703463","display_name":"European Journal of Human Genetics","issn_l":"1018-4813","issn":["1018-4813","1476-5438"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319965","host_organization_name":"Springer Nature","host_organization_lineage":["https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European Journal of Human Genetics","raw_type":"journal-article"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2995110367.pdf","grobid_xml":"https://content.openalex.org/works/W2995110367.grobid-xml"},"referenced_works_count":65,"referenced_works":["https://openalex.org/W838372325","https://openalex.org/W1555162231","https://openalex.org/W1644316429","https://openalex.org/W1966542460","https://openalex.org/W1966566618","https://openalex.org/W1967803105","https://openalex.org/W1983062003","https://openalex.org/W2017749101","https://openalex.org/W2027139930","https://openalex.org/W2047875653","https://openalex.org/W2062838529","https://openalex.org/W2094897441","https://openalex.org/W2095513017","https://openalex.org/W2114908695","https://openalex.org/W2116330685","https://openalex.org/W2120423748","https://openalex.org/W2120879896","https://openalex.org/W2129713986","https://openalex.org/W2134973954","https://openalex.org/W2144779548","https://openalex.org/W2154438221","https://openalex.org/W2199261925","https://openalex.org/W2295337088","https://openalex.org/W2295344864","https://openalex.org/W2398882227","https://openalex.org/W2514994441","https://openalex.org/W2515801733","https://openalex.org/W2521755897","https://openalex.org/W2524095874","https://openalex.org/W2549211163","https://openalex.org/W2555782333","https://openalex.org/W2582566416","https://openalex.org/W2606002995","https://openalex.org/W2625117623","https://openalex.org/W2736904962","https://openalex.org/W2739275733","https://openalex.org/W2751179194","https://openalex.org/W2756138490","https://openalex.org/W2763965253","https://openalex.org/W2765675142","https://openalex.org/W2767307339","https://openalex.org/W2769439512","https://openalex.org/W2770197361","https://openalex.org/W2771396150","https://openalex.org/W2771665408","https://openalex.org/W2786151040","https://openalex.org/W2790950219","https://openalex.org/W2791616896","https://openalex.org/W2792809817","https://openalex.org/W2805383889","https://openalex.org/W2809092276","https://openalex.org/W2811112224","https://openalex.org/W2886332328","https://openalex.org/W2888687026","https://openalex.org/W2889586301","https://openalex.org/W2896799729","https://openalex.org/W2900659066","https://openalex.org/W2901922760","https://openalex.org/W2904663406","https://openalex.org/W2908294040","https://openalex.org/W2914351716","https://openalex.org/W2963993810","https://openalex.org/W3140535313","https://openalex.org/W4236390347","https://openalex.org/W4292528167"],"related_works":["https://openalex.org/W4390421983","https://openalex.org/W4409218541","https://openalex.org/W4409231470","https://openalex.org/W4409231655","https://openalex.org/W7140086546","https://openalex.org/W3162045167","https://openalex.org/W4404070753","https://openalex.org/W4390240309","https://openalex.org/W3152507220","https://openalex.org/W1983062003"],"abstract_inverted_index":{"Dynamic":[0],"consent":[1,76,89,144],"aims":[2],"to":[3,25,29,80,97,106,150],"empower":[4],"research":[5,13,65,74,87,128,134],"partners":[6,129],"and":[7,27,32,36,67,145,155],"facilitate":[8],"active":[9],"participation":[10],"in":[11,77,122],"the":[12,17,55,59,68,98,114,123,141,153],"process.":[14],"Used":[15],"within":[16],"context":[18],"of":[19,58,86,143],"biobanking,":[20],"it":[21,148],"gives":[22],"individuals":[23],"access":[24],"information":[26],"control":[28,131],"determine":[30],"how":[31],"where":[33],"their":[34],"biospecimens":[35],"data":[37,157],"should":[38],"be":[39],"used.":[40],"We":[41],"present":[42],"Dwarna-a":[43],"web":[44],"portal":[45,72],"for":[46],"'dynamic":[47],"consent'":[48],"that":[49,109,152],"acts":[50],"as":[51],"a":[52,78,95],"hub":[53],"connecting":[54],"different":[56],"stakeholders":[57],"Malta":[60],"Biobank:":[61],"biobank":[62],"managers,":[63],"researchers,":[64],"partners,":[66],"general":[69],"public.":[70],"The":[71],"stores":[73],"partners'":[75,88],"blockchain":[79,115],"create":[81],"an":[82],"immutable":[83],"audit":[84],"trail":[85],"changes.":[90],"Dwarna's":[91,117],"structure":[92,119],"also":[93],"presents":[94],"solution":[96],"European":[99],"Union's":[100],"General":[101],"Data":[102],"Protection":[103],"Regulation's":[104],"right":[105,108],"erasure-a":[107],"is":[110],"seemingly":[111],"incompatible":[112],"with":[113],"model.":[116],"transparent":[118],"increases":[120],"trustworthiness":[121],"biobanking":[124],"process":[125],"by":[126,139,146],"giving":[127],"more":[130],"over":[132],"which":[133],"studies":[135],"they":[136],"participate":[137],"in,":[138],"facilitating":[140],"withdrawal":[142],"making":[147],"possible":[149],"request":[151],"biospecimen":[154],"associated":[156],"are":[158],"destroyed.":[159]},"counts_by_year":[{"year":2026,"cited_by_count":5},{"year":2025,"cited_by_count":20},{"year":2024,"cited_by_count":17},{"year":2023,"cited_by_count":22},{"year":2022,"cited_by_count":17},{"year":2021,"cited_by_count":11},{"year":2020,"cited_by_count":7}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2019-12-26T00:00:00"}