{"id":"https://openalex.org/W2994858372","doi":"https://doi.org/10.1080/10410236.2019.1700440","title":"Who is Asked and Who Gets to Answer the Health-Care Practitioner\u2019s Questions When Patients with Intellectual Disabilities Attend UK General Practice Health Checks with Their Companions?","display_name":"Who is Asked and Who Gets to Answer the Health-Care Practitioner\u2019s Questions When Patients with Intellectual Disabilities Attend UK General Practice Health Checks with Their Companions?","publication_year":2019,"publication_date":"2019-12-16","ids":{"openalex":"https://openalex.org/W2994858372","doi":"https://doi.org/10.1080/10410236.2019.1700440","mag":"2994858372","pmid":"https://pubmed.ncbi.nlm.nih.gov/31842630"},"language":"en","primary_location":{"id":"doi:10.1080/10410236.2019.1700440","doi":"https://doi.org/10.1080/10410236.2019.1700440","is_oa":false,"landing_page_url":"https://doi.org/10.1080/10410236.2019.1700440","pdf_url":null,"source":{"id":"https://openalex.org/S108453729","display_name":"Health Communication","issn_l":"1041-0236","issn":["1041-0236","1532-7027"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-b","anvur-class-a","anvur-scientific","cwts-core","dongbi-d","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Communication","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5027822850","display_name":"Deborah Chinn","orcid":"https://orcid.org/0000-0002-1407-6968","observed_orcids":["https://orcid.org/0000-0002-1407-6968"]},"institutions":[{"id":"https://openalex.org/I183935753","display_name":"King's College London","ror":"https://ror.org/0220mzb33","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I183935753"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Deborah Chinn","raw_affiliation_strings":["Florence Nightingale Faculty of Nursing and Midwifery and Palliative Care, King\u2019s College London"],"raw_orcid":"https://orcid.org/0000-0002-1407-6968","affiliations":[{"raw_affiliation_string":"Florence Nightingale Faculty of Nursing and Midwifery and Palliative Care, King\u2019s College London","institution_ids":["https://openalex.org/I183935753"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5086785570","display_name":"David Rudall","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I183935753","display_name":"King's College London","ror":"https://ror.org/0220mzb33","country_code":"GB","type":"education","lineage":["https://openalex.org/I124357947","https://openalex.org/I183935753"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"David Rudall","raw_affiliation_strings":["Florence Nightingale Faculty of Nursing and Midwifery and Palliative Care, King\u2019s College London"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Florence Nightingale Faculty of Nursing and Midwifery and Palliative Care, King\u2019s College London","institution_ids":["https://openalex.org/I183935753"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5027822850"],"corresponding_institution_ids":["https://openalex.org/I183935753"],"apc_list":null,"apc_paid":null,"fwci":1.072,"has_fulltext":false,"cited_by_count":20,"citation_normalized_percentile":{"value":0.76591928,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":87,"max":99},"biblio":{"volume":"36","issue":"4","first_page":"487","last_page":"496"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.6449999809265137,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.6449999809265137,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":0.3361999988555908,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12151","display_name":"Interpreting and Communication in Healthcare","score":0.003599999938160181,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":0.8899999856948853},{"id":"https://openalex.org/keywords/healthcare-consultations","display_name":"health consultation","score":0.4519999921321869},{"id":"https://openalex.org/keywords/annual-health-checks","display_name":"annual health checks","score":0.6330000162124634},{"id":"https://openalex.org/keywords/general-practice","display_name":"general practice","score":0.6639999747276306},{"id":"https://openalex.org/keywords/patient-companions","display_name":"patient companions","score":0.43799999356269836},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.6539999842643738},{"id":"https://openalex.org/keywords/question-answer-sequences","display_name":"question-answer sequences","score":0.7110000252723694},{"id":"https://openalex.org/keywords/turn-taking","display_name":"turn-taking","score":0.5879999995231628},{"id":"https://openalex.org/keywords/family-members","display_name":"family members","score":0.5070000290870667},{"id":"https://openalex.org/keywords/health-information-exchange","display_name":"health information exchange","score":0.6990000009536743},{"id":"https://openalex.org/keywords/health-decision-making","display_name":"health decision-making","score":0.8019999861717224},{"id":"https://openalex.org/keywords/primary-care","display_name":"primary care","score":0.5519999861717224}],"concepts":[{"id":"https://openalex.org/C2777200299","wikidata":"https://www.wikidata.org/wiki/Q52943","display_name":"Conversation","level":2,"score":0.6321362257003784},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5372040271759033},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5151630640029907},{"id":"https://openalex.org/C2780829048","wikidata":"https://www.wikidata.org/wiki/Q1624720","display_name":"Conversation analysis","level":3,"score":0.5063029527664185},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.45232588052749634},{"id":"https://openalex.org/C2778080475","wikidata":"https://www.wikidata.org/wiki/Q4353774","display_name":"Health communication","level":2,"score":0.4259820282459259},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.40689167380332947},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3986419141292572},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.3583561182022095},{"id":"https://openalex.org/C46312422","wikidata":"https://www.wikidata.org/wiki/Q11024","display_name":"Communication","level":1,"score":0.11653706431388855},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008607","descriptor_name":"Intellectual Disability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033062","descriptor_name":"Friends","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D058006","descriptor_name":"General Practice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1080/10410236.2019.1700440","doi":"https://doi.org/10.1080/10410236.2019.1700440","is_oa":false,"landing_page_url":"https://doi.org/10.1080/10410236.2019.1700440","pdf_url":null,"source":{"id":"https://openalex.org/S108453729","display_name":"Health Communication","issn_l":"1041-0236","issn":["1041-0236","1532-7027"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-b","anvur-class-a","anvur-scientific","cwts-core","dongbi-d","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Communication","raw_type":"journal-article"},{"id":"pmid:31842630","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31842630","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health communication","raw_type":"Journal Article"},{"id":"pmh:oai:kclpure.kcl.ac.uk:publications/038b736c-3e00-4523-b357-d83a9c83f1e2","doi":null,"is_oa":false,"landing_page_url":"https://kclpure.kcl.ac.uk/portal/en/publications/038b736c-3e00-4523-b357-d83a9c83f1e2","pdf_url":null,"source":{"id":"https://openalex.org/S4306400216","display_name":"Research Portal (King's College London)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I183935753","host_organization_name":"King's College London","host_organization_lineage":["https://openalex.org/I183935753"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Chinn, D & Rudall, D 2019, 'Who is Asked and Who Gets to Answer the Health-Care Practitioner\u2019s Questions When Patients with Intellectual Disabilities Attend UK General Practice Health Checks with Their Companions?', HEALTH COMMUNICATION. https://doi.org/10.1080/10410236.2019.1700440","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.8560000061988831,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G1697639511","display_name":"Promoting the health literacy, participation and decision-making of adults with learning disabilities in healthcare: an investigation into the use of Easy Read health information in health consultations.","funder_award_id":"PDF-2013-06-060","funder_id":"https://openalex.org/F4320319990","funder_display_name":"National Institute for Health and Care Research"}],"funders":[{"id":"https://openalex.org/F4320319990","display_name":"National Institute for Health and Care Research","ror":"https://ror.org/0187kwz08"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":43,"referenced_works":["https://openalex.org/W589536710","https://openalex.org/W611916975","https://openalex.org/W1542007054","https://openalex.org/W1548505556","https://openalex.org/W1600023314","https://openalex.org/W1976406066","https://openalex.org/W1988436396","https://openalex.org/W1989792849","https://openalex.org/W1993964237","https://openalex.org/W1996888052","https://openalex.org/W2020483430","https://openalex.org/W2024371461","https://openalex.org/W2025238407","https://openalex.org/W2047432813","https://openalex.org/W2052529812","https://openalex.org/W2084163515","https://openalex.org/W2085004534","https://openalex.org/W2105114337","https://openalex.org/W2114228086","https://openalex.org/W2120572672","https://openalex.org/W2129285801","https://openalex.org/W2135034724","https://openalex.org/W2143201918","https://openalex.org/W2147743504","https://openalex.org/W2153190547","https://openalex.org/W2167657075","https://openalex.org/W2170592314","https://openalex.org/W2171330997","https://openalex.org/W2312882581","https://openalex.org/W2463388565","https://openalex.org/W2491176990","https://openalex.org/W2517353981","https://openalex.org/W2624833734","https://openalex.org/W2761289309","https://openalex.org/W2791634986","https://openalex.org/W2946585754","https://openalex.org/W4229849715","https://openalex.org/W4233193775","https://openalex.org/W4236038556","https://openalex.org/W4246750819","https://openalex.org/W4247116013","https://openalex.org/W4251571114","https://openalex.org/W4256117059"],"related_works":["https://openalex.org/W2946585754","https://openalex.org/W4223955370","https://openalex.org/W2506282429","https://openalex.org/W2031320239","https://openalex.org/W2463388565","https://openalex.org/W1990912406","https://openalex.org/W2791291601","https://openalex.org/W7028151919","https://openalex.org/W6997105051","https://openalex.org/W2979622821"],"abstract_inverted_index":{"When":[0],"patients":[1,48,100,122,150,158,231,274],"with":[2,37,49,101,123,151,230,232,249,275],"intellectual":[3],"disabilities":[4],"(ID)":[5],"attend":[6],"a":[7,254],"General":[8],"Practice":[9],"annual":[10,118],"health":[11,42,87,97,119,228,247,280,284],"check,":[12,248],"current":[13],"guidance":[14],"directs":[15],"health-care":[16],"practitioners":[17],"(HCPs)":[18],"to":[19,68,82,92,153,180,195,205,213,215,269],"involve":[20,273],"them":[21],"as":[22,24,26,198],"much":[23],"possible":[25],"informants":[27],"on":[28,35,263],"their":[29,44,94,104,126,155],"health.":[30],"However,":[31],"previous":[32],"research":[33,266],"based":[34],"interviews":[36],"participants":[38],"suggests":[39],"that":[40,146,218,227],"during":[41,96],"consultations":[43],"communicative":[45,261],"contributions":[46],"of":[47,56,63,73,78,115,141,174,184,201,245],"ID":[50,102,124,152,233,276],"may":[51,257],"be":[52,196],"sidelined":[53],"in":[54,166,182,277],"favor":[55],"information":[57,281],"provided":[58],"by":[59],"caregivers":[60],"perhaps":[61],"because":[62],"HCPs'":[64],"uncertainties":[65],"about":[66],"how":[67,271],"address":[69],"the":[70,167,175,185,199,223,243,246,260],"communication":[71,229],"needs":[72],"these":[74],"patients.":[75,264],"The":[76],"aim":[77],"this":[79],"study":[80],"was":[81,131],"establish,":[83],"within":[84],"naturally":[85],"occurring":[86],"consultations,":[88],"who":[89,108],"HCPs":[90,147],"select":[91],"answer":[93,154,216],"questions":[95,156,217,251],"checks":[98,120,134],"-":[99,106],"or":[103,164,283],"companions":[105,127],"and":[107,125,137,157],"actually":[109],"answers.":[110],"A":[111],"nonconsecutive":[112],"case":[113],"series":[114],"primary":[116],"care":[117],"involving":[121],"(n":[128],"=":[129],"24)":[130],"conducted.":[132],"Health":[133],"were":[135,178,192,209],"video-recorded":[136],"analyzed":[138],"using":[139],"tools":[140],"Conversation":[142],"Analysis.":[143],"We":[144,225],"found":[145],"consistently":[148],"selected":[149,179],"then":[159],"responded":[160],"without":[161],"significant":[162],"gaps":[163],"dyfluencies":[165],"immediate":[168],"next":[169],"turn":[170],"at":[171,222],"talk":[172],"70.1%":[173],"instances.":[176],"Companions":[177],"respond":[181],"9.3%":[183],"total":[186],"question-answer":[187],"sequences":[188],"recorded.":[189],"Family":[190],"members":[191],"more":[193,211,278],"likely":[194,212],"chosen":[197],"addressee":[200],"HCP":[202,272],"questions,":[203],"compared":[204],"staff":[206],"companions.":[207],"They":[208],"also":[210],"intervene":[214],"had":[219],"been":[220],"directed":[221],"patient.":[224],"conclude":[226],"need":[234],"not":[235],"necessarily":[236],"pose":[237],"insurmountable":[238],"challenges":[239],"for":[240],"HCPs,":[241],"though":[242],"structure":[244],"many":[250],"requiring":[252],"only":[253],"yes/no":[255],"response":[256],"have":[258],"reduced":[259],"demand":[262],"More":[265],"is":[267],"needed":[268],"investigate":[270],"extensive":[279],"exchange":[282],"decision-making.":[285]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":8},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-09T13:22:03.289127","created_date":"2019-12-26T00:00:00"}