{"id":"https://openalex.org/W2978093993","doi":null,"title":"Pregnancy Ultrasound Detecting Soft Markers \u2013 the Challenge of Communicating Risk Figures","display_name":"Pregnancy Ultrasound Detecting Soft Markers \u2013 the Challenge of Communicating Risk Figures","publication_year":2014,"publication_date":"2014-01-01","ids":{"openalex":"https://openalex.org/W2978093993","mag":"2978093993"},"language":"en","primary_location":{"id":"pmh:oai:DiVA.org:uu-221142","doi":null,"is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-221142","pdf_url":null,"source":{"id":"https://openalex.org/S4306402042","display_name":"Uppsala University Publications (Uppsala University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I123387679","host_organization_name":"Uppsala University","host_organization_lineage":["https://openalex.org/I123387679"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-221142","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5109383579","display_name":"Annika \u00c5hman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Annika \u00c5hman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5109383579"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10978","display_name":"Prenatal Screening and Diagnostics","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10978","display_name":"Prenatal Screening and Diagnostics","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/down-syndrome","display_name":"Down syndrome","score":0.7210000157356262},{"id":"https://openalex.org/keywords/prenatal-screening","display_name":"prenatal screening","score":0.6959999799728394},{"id":"https://openalex.org/keywords/second-trimester-ultrasound","display_name":"second-trimester ultrasound","score":0.8759999871253967},{"id":"https://openalex.org/keywords/risk-communication","display_name":"risk communication","score":0.7020000219345093},{"id":"https://openalex.org/keywords/patient-decision-aids","display_name":"patient decision aids","score":0.8289999961853027},{"id":"https://openalex.org/keywords/web-based-decision-aid","display_name":"web-based decision aid","score":0.6679999828338623},{"id":"https://openalex.org/keywords/informed-decision-making","display_name":"informed decision-making","score":0.7599999904632568},{"id":"https://openalex.org/keywords/invasive-prenatal-diagnosis","display_name":"invasive prenatal diagnosis","score":0.6349999904632568},{"id":"https://openalex.org/keywords/fetal-aneuploidy","display_name":"fetal aneuploidy","score":0.7300000190734863},{"id":"https://openalex.org/keywords/paternal-anxiety","display_name":"paternal anxiety","score":0.39399999380111694},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.5519999861717224},{"id":"https://openalex.org/keywords/likelihood-ratios","display_name":"likelihood ratios","score":0.4000000059604645},{"id":"https://openalex.org/keywords/low-risk-pregnancy","display_name":"low-risk pregnancy","score":0.38499999046325684}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5574119687080383},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.5212405323982239},{"id":"https://openalex.org/C2775887326","wikidata":"https://www.wikidata.org/wiki/Q3308829","display_name":"Prenatal care","level":3,"score":0.48499318957328796},{"id":"https://openalex.org/C2779234561","wikidata":"https://www.wikidata.org/wiki/Q11995","display_name":"Pregnancy","level":2,"score":0.46813663840293884},{"id":"https://openalex.org/C110875604","wikidata":"https://www.wikidata.org/wiki/Q75","display_name":"The Internet","level":2,"score":0.45091161131858826},{"id":"https://openalex.org/C554936623","wikidata":"https://www.wikidata.org/wiki/Q199657","display_name":"Reading (process)","level":2,"score":0.4299369752407074},{"id":"https://openalex.org/C118643609","wikidata":"https://www.wikidata.org/wiki/Q189210","display_name":"Web application","level":2,"score":0.4124259352684021},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4068226218223572},{"id":"https://openalex.org/C131872663","wikidata":"https://www.wikidata.org/wiki/Q5284418","display_name":"Obstetrics","level":1,"score":0.39169541001319885},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.38918033242225647},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.36183106899261475},{"id":"https://openalex.org/C29456083","wikidata":"https://www.wikidata.org/wiki/Q1221899","display_name":"Gynecology","level":1,"score":0.35169845819473267},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3275437355041504},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.1318143606185913},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.11032924056053162},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:DiVA.org:uu-221142","doi":null,"is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-221142","pdf_url":null,"source":{"id":"https://openalex.org/S4306402042","display_name":"Uppsala University Publications (Uppsala University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I123387679","host_organization_name":"Uppsala University","host_organization_lineage":["https://openalex.org/I123387679"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:2978093993","doi":null,"is_oa":false,"landing_page_url":"http://www.diva-portal.org/smash/record.jsf?pid=diva2:707864","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:DiVA.org:uu-221142","doi":null,"is_oa":true,"landing_page_url":"http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-221142","pdf_url":null,"source":{"id":"https://openalex.org/S4306402042","display_name":"Uppsala University Publications (Uppsala University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I123387679","host_organization_name":"Uppsala University","host_organization_lineage":["https://openalex.org/I123387679"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9391000270843506,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":145,"referenced_works":["https://openalex.org/W44966288","https://openalex.org/W71574328","https://openalex.org/W118481142","https://openalex.org/W1505741243","https://openalex.org/W1533574204","https://openalex.org/W1559835846","https://openalex.org/W1871640434","https://openalex.org/W1943745580","https://openalex.org/W1964548766","https://openalex.org/W1968539681","https://openalex.org/W1969359402","https://openalex.org/W1971201508","https://openalex.org/W1971908160","https://openalex.org/W1972920957","https://openalex.org/W1973406493","https://openalex.org/W1974545116","https://openalex.org/W1978358387","https://openalex.org/W1978832413","https://openalex.org/W1981223971","https://openalex.org/W1981751893","https://openalex.org/W1984610940","https://openalex.org/W1984815590","https://openalex.org/W1987284703","https://openalex.org/W1988126113","https://openalex.org/W1989404815","https://openalex.org/W1989774038","https://openalex.org/W1990513740","https://openalex.org/W1990836583","https://openalex.org/W1993335992","https://openalex.org/W1997685556","https://openalex.org/W1999917153","https://openalex.org/W2002077960","https://openalex.org/W2002646184","https://openalex.org/W2004856665","https://openalex.org/W2005925566","https://openalex.org/W2006525577","https://openalex.org/W2007843671","https://openalex.org/W2008070092","https://openalex.org/W2008748390","https://openalex.org/W2011400952","https://openalex.org/W2016351762","https://openalex.org/W2018636521","https://openalex.org/W2020754422","https://openalex.org/W2020990789","https://openalex.org/W2026767873","https://openalex.org/W2028417117","https://openalex.org/W2029956739","https://openalex.org/W2030693174","https://openalex.org/W2030883254","https://openalex.org/W2033953234","https://openalex.org/W2035827189","https://openalex.org/W2036683383","https://openalex.org/W2042157541","https://openalex.org/W2043313412","https://openalex.org/W2043666162","https://openalex.org/W2044750984","https://openalex.org/W2045175397","https://openalex.org/W2045320259","https://openalex.org/W2046411892","https://openalex.org/W2047863207","https://openalex.org/W2052329982","https://openalex.org/W2054043896","https://openalex.org/W2054374196","https://openalex.org/W2055969270","https://openalex.org/W2058012544","https://openalex.org/W2058787935","https://openalex.org/W2059376451","https://openalex.org/W2060133585","https://openalex.org/W2061761869","https://openalex.org/W2062570638","https://openalex.org/W2062970537","https://openalex.org/W2063062323","https://openalex.org/W2063298915","https://openalex.org/W2063887519","https://openalex.org/W2064160766","https://openalex.org/W2064609638","https://openalex.org/W2065154466","https://openalex.org/W2067000182","https://openalex.org/W2069144763","https://openalex.org/W2076554401","https://openalex.org/W2076573319","https://openalex.org/W2076686574","https://openalex.org/W2078904464","https://openalex.org/W2079027332","https://openalex.org/W2079225066","https://openalex.org/W2079892765","https://openalex.org/W2082430649","https://openalex.org/W2083529630","https://openalex.org/W2084125836","https://openalex.org/W2084792158","https://openalex.org/W2085227760","https://openalex.org/W2085361126","https://openalex.org/W2085377319","https://openalex.org/W2091069417","https://openalex.org/W2096533275","https://openalex.org/W2097459580","https://openalex.org/W2097684989","https://openalex.org/W2102162293","https://openalex.org/W2106298766","https://openalex.org/W2112014100","https://openalex.org/W2117383154","https://openalex.org/W2118385937","https://openalex.org/W2118771723","https://openalex.org/W2122328334","https://openalex.org/W2123112774","https://openalex.org/W2126772155","https://openalex.org/W2126824225","https://openalex.org/W2128535161","https://openalex.org/W2129004191","https://openalex.org/W2130368958","https://openalex.org/W2131787239","https://openalex.org/W2133294473","https://openalex.org/W2134661511","https://openalex.org/W2135607010","https://openalex.org/W2135890586","https://openalex.org/W2136255495","https://openalex.org/W2139796626","https://openalex.org/W2141229480","https://openalex.org/W2141756966","https://openalex.org/W2142311657","https://openalex.org/W2143241835","https://openalex.org/W2143567909","https://openalex.org/W2146033279","https://openalex.org/W2146303269","https://openalex.org/W2148267462","https://openalex.org/W2148455781","https://openalex.org/W2151447502","https://openalex.org/W2152614993","https://openalex.org/W2153207369","https://openalex.org/W2153828295","https://openalex.org/W2154359211","https://openalex.org/W2156757623","https://openalex.org/W2156824825","https://openalex.org/W2159366014","https://openalex.org/W2159846010","https://openalex.org/W2160131675","https://openalex.org/W2162637943","https://openalex.org/W2163121952","https://openalex.org/W2170525670","https://openalex.org/W2172234305","https://openalex.org/W2306525971","https://openalex.org/W2398509045","https://openalex.org/W2412438604","https://openalex.org/W3122911055","https://openalex.org/W4365786776"],"related_works":["https://openalex.org/W655916047","https://openalex.org/W2003835140","https://openalex.org/W2000365997","https://openalex.org/W1984610940","https://openalex.org/W6991297557","https://openalex.org/W1973733186","https://openalex.org/W4410874305","https://openalex.org/W4404550803","https://openalex.org/W2042520062","https://openalex.org/W16508609"],"abstract_inverted_index":{"This":[0],"thesis":[1,28,77],"focuses":[2],"on":[3,152],"expectant":[4,165],"parents\u2019":[5,166],"experiences":[6],"and":[7,38,101,138,173,201,312,317,330,357,383,419,421,432],"needs":[8,358],"when":[9,146],"soft":[10,36,73,126,147,238,307],"makers":[11],"are":[12],"detected":[13,224],"at":[14,128,230],"mid-trimester":[15,231],"ultrasound,":[16,232],"resulting":[17],"in":[18,44,67,90,105,225,281,342,376,399],"an":[19],"unexpected":[20],"assessment":[21],"of":[22,33,41,48,55,63,72,83,123,155,227,275,306,321,324,395,405,416,428],"risk":[23,62,290],"for":[24,99,246,255,268,291,414,436],"fetal":[25,35,97,125,169,379,441],"anomalies.":[26],"The":[27,298,332,385,411],"also":[29,334,352,366],"describes":[30],"the":[31,39,61,70,76,81,102,121,153,191,199,228,249,256,304,322,325,337,409,426,429],"prevalence":[32,122],"ultrasonographic":[34,124],"markers":[37,127,148,222,239,308],"incidence":[40],"Down":[42],"syndrome":[43],"a":[45,53,84,158,174,241,287,393,403,434],"low-risk":[46],"population":[47],"10,535":[49],"pregnant":[50,400],"women":[51,137,186,316,369],"with":[52,69,184,265,286,408],"total":[54],"10,710":[56],"fetuses,":[57],"as":[58,60,402],"well":[59],"invasive":[64,276],"prenatal":[65,109],"diagnostics":[66,380],"conjunction":[68],"detection":[71],"markers.":[74,270],"Finally,":[75],"aims":[78],"to":[79,119,163,177,190,197,373,391,424],"explore":[80],"value":[82],"web-based":[85,159,386],"patient":[86,387],"decision":[87,93,106,160,343,397],"aid":[88,161],"(DA)":[89,162],"facilitating":[91],"informed":[92,438],"making":[94,107,344,398,437],"regarding":[95,108,359,378,440],"routine":[96],"screening":[98,170,430,442],"anomalies":[100],"fathers\u2019":[103],"role":[104],"screening.":[110,131],"A":[111],"prospective":[112],"observational":[113],"study":[114],"was":[115,171,251,279,365,389],"conducted":[116,183],"between":[117],"2008\u20132011":[118],"investigate":[120],"second":[129],"trimester":[130],"During":[132],"this":[133],"time":[134],"period,":[135],"12":[136],"17":[139,185],"men":[140,318,338],"were":[141,149,182,211,223,235,339],"interviewed":[142],"about":[143],"their":[144,349,354,371,406],"experience":[145],"detected.":[150],"Based":[151],"results":[154,299,333],"these":[156,360],"interviews,":[157],"enhance":[164],"decision-making":[167],"concerning":[168],"developed":[172,218],"trial":[175],"initiated":[176],"test":[178],"its":[179],"utility.":[180],"Interviews":[181],"who":[187,194,203],"received":[188],"access":[189],"DA,":[192],"11":[193],"had":[195,204],"chosen":[196],"use":[198],"DA":[200,388,412],"six":[202],"not":[205,267,345],"used":[206],"it.":[207],"All":[208,237],"interview":[209],"studies":[210],"analysed":[212],"using":[213],"systematic":[214],"text":[215],"condensation":[216],"(STC)":[217],"by":[219,347],"Malterud.":[220],"Soft":[221],"5.9%":[226],"fetuses":[229],"whereof":[233],"5.1%":[234],"isolated.":[236],"showed":[240,302,335],"positive":[242],"likelihood":[243],"ratio":[244],"(LR+)":[245],"DS;":[247],"however,":[248],"association":[250],"only":[252,346],"statistically":[253],"significant":[254],"collapsed":[257],"category":[258],"\u2018any":[259],"marker\u2019":[260],"(isolated,":[261],"multiple":[262],"or":[263],"combined":[264],"anomaly),":[266],"isolated":[269],"An":[271],"almost":[272],"24-fold":[273],"increase":[274],"diagnostic":[277],"testing":[278],"shown":[280],"all":[282],"women,":[283,401],"including":[284],"those":[285],"low":[288],"estimated":[289],"aneuploidy,":[292],"i.e.":[293],"<":[294],"1/200":[295],"(paper":[296,362,443],"III).":[297],"from":[300],"interviews":[301],"that":[303,314,336,368],"finding":[305],"created":[309],"much":[310],"anxiety":[311],"indicated":[313],"both":[315],"lacked":[319],"awareness":[320],"potential":[323],"ultrasound":[326],"examination":[327],"(papers":[328,381],"I":[329,382],"II).":[331,363],"actively":[340],"engaged":[341,375],"supporting":[348],"partners,":[350],"but":[351],"considered":[353],"own":[355],"values":[356],"issues":[361],"It":[364],"evident":[367],"wanted":[370],"partners":[372],"be":[374],"decisions":[377,439],"IV).":[384,444],"able":[390],"initiate":[392],"process":[394],"conscious":[396],"result":[404,431],"interaction":[407],"tool.":[410],"allowed":[413],"clarification":[415],"women\u2019s":[417],"thoughts":[418],"priorities":[420],"helped":[422],"them":[423],"understand":[425],"significance":[427],"providing":[433],"basis":[435]},"counts_by_year":[{"year":2014,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2019-10-10T00:00:00"}
