{"id":"https://openalex.org/W2966006993","doi":"https://doi.org/10.1017/s147895151900052x","title":"Patterns of, and barriers to supportive care needs assessment and provision for Australian women with gynecological cancer and their caregivers: a mixed-methods study of clinical practice","display_name":"Patterns of, and barriers to supportive care needs assessment and provision for Australian women with gynecological cancer and their caregivers: a mixed-methods study of clinical practice","publication_year":2019,"publication_date":"2019-08-06","ids":{"openalex":"https://openalex.org/W2966006993","doi":"https://doi.org/10.1017/s147895151900052x","mag":"2966006993","pmid":"https://pubmed.ncbi.nlm.nih.gov/31383044"},"language":"en","primary_location":{"id":"doi:10.1017/s147895151900052x","doi":"https://doi.org/10.1017/s147895151900052x","is_oa":true,"landing_page_url":"https://doi.org/10.1017/s147895151900052x","pdf_url":"https://www.cambridge.org/core/services/aop-cambridge-core/content/view/C29FBBE27DE073BB1336AED0BFE740A8/S147895151900052Xa.pdf/div-class-title-patterns-of-and-barriers-to-supportive-care-needs-assessment-and-provision-for-australian-women-with-gynecological-cancer-and-their-caregivers-a-mixed-methods-study-of-clinical-practice-div.pdf","source":{"id":"https://openalex.org/S204840698","display_name":"Palliative & Supportive Care","issn_l":"1478-9515","issn":["1478-9515","1478-9523"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative and Supportive Care","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://www.cambridge.org/core/services/aop-cambridge-core/content/view/C29FBBE27DE073BB1336AED0BFE740A8/S147895151900052Xa.pdf/div-class-title-patterns-of-and-barriers-to-supportive-care-needs-assessment-and-provision-for-australian-women-with-gynecological-cancer-and-their-caregivers-a-mixed-methods-study-of-clinical-practice-div.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5018444630","display_name":"Vanessa L. Beesley","orcid":"https://orcid.org/0000-0002-5081-1800","observed_orcids":["https://orcid.org/0000-0002-5081-1800"]},"institutions":[{"id":"https://openalex.org/I217937681","display_name":"QIMR Berghofer Medical Research Institute","ror":"https://ror.org/004y8wk30","country_code":"AU","type":"facility","lineage":["https://openalex.org/I217937681"]}],"countries":["AU"],"is_corresponding":true,"raw_author_name":"Vanessa L Beesley","raw_affiliation_strings":["Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia"],"raw_orcid":"https://orcid.org/0000-0002-5081-1800","affiliations":[{"raw_affiliation_string":"Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia","institution_ids":["https://openalex.org/I217937681"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5019195797","display_name":"Aleksandra Staneva","orcid":"https://orcid.org/0000-0002-2057-0516","observed_orcids":["https://orcid.org/0000-0002-2057-0516"]},"institutions":[{"id":"https://openalex.org/I217937681","display_name":"QIMR Berghofer Medical Research Institute","ror":"https://ror.org/004y8wk30","country_code":"AU","type":"facility","lineage":["https://openalex.org/I217937681"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Aleksandra Staneva","raw_affiliation_strings":["Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia","institution_ids":["https://openalex.org/I217937681"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039078895","display_name":"Caroline Nehill","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210087542","display_name":"Cancer Australia","ror":"https://ror.org/00510tw04","country_code":"AU","type":"government","lineage":["https://openalex.org/I2801453606","https://openalex.org/I3149551504","https://openalex.org/I4210087542"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Caroline Nehill","raw_affiliation_strings":["Cancer Australia, Sydney, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cancer Australia, Sydney, Australia","institution_ids":["https://openalex.org/I4210087542"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5051234699","display_name":"Vivienne Milch","orcid":"https://orcid.org/0000-0001-8834-0349","observed_orcids":["https://orcid.org/0000-0001-8834-0349"]},"institutions":[{"id":"https://openalex.org/I4210087542","display_name":"Cancer Australia","ror":"https://ror.org/00510tw04","country_code":"AU","type":"government","lineage":["https://openalex.org/I2801453606","https://openalex.org/I3149551504","https://openalex.org/I4210087542"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Vivienne Milch","raw_affiliation_strings":["Cancer Australia, Sydney, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cancer Australia, Sydney, Australia","institution_ids":["https://openalex.org/I4210087542"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058544793","display_name":"Felicity Hughes","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210087542","display_name":"Cancer Australia","ror":"https://ror.org/00510tw04","country_code":"AU","type":"government","lineage":["https://openalex.org/I2801453606","https://openalex.org/I3149551504","https://openalex.org/I4210087542"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Felicity Hughes","raw_affiliation_strings":["Cancer Australia, Sydney, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Cancer Australia, Sydney, Australia","institution_ids":["https://openalex.org/I4210087542"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5015618057","display_name":"Penelope M. Webb","orcid":"https://orcid.org/0000-0003-0733-5930","observed_orcids":["https://orcid.org/0000-0003-0733-5930","https://orcid.org/0000-0002-6171-3579"]},"institutions":[{"id":"https://openalex.org/I217937681","display_name":"QIMR Berghofer Medical Research Institute","ror":"https://ror.org/004y8wk30","country_code":"AU","type":"facility","lineage":["https://openalex.org/I217937681"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Penelope M. Webb","raw_affiliation_strings":["Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Gynaecological Cancers Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia","institution_ids":["https://openalex.org/I217937681"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5018444630"],"corresponding_institution_ids":["https://openalex.org/I217937681"],"apc_list":{"value":2980,"currency":"USD","value_usd":2980},"apc_paid":{"value":2980,"currency":"USD","value_usd":2980},"fwci":0.674,"has_fulltext":true,"cited_by_count":23,"citation_normalized_percentile":{"value":0.70168905,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"18","issue":"2","first_page":"170","last_page":"177"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9843999743461609,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9843999743461609,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13544","display_name":"Women's cancer prevention and management","score":0.004399999976158142,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.0034000000450760126,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/gynecologic-cancer","display_name":"gynecologic cancer","score":0.8989999890327454},{"id":"https://openalex.org/keywords/supportive-care","display_name":"supportive care","score":0.8709999918937683},{"id":"https://openalex.org/keywords/needs-assessment","display_name":"needs assessment","score":0.8479999899864197},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.7129999995231628},{"id":"https://openalex.org/keywords/clinical-practice","display_name":"clinical practice","score":0.6309999823570251},{"id":"https://openalex.org/keywords/barriers-to-care","display_name":"barriers to care","score":0.8069999814033508},{"id":"https://openalex.org/keywords/referral-pathways","display_name":"referral pathways","score":0.9150000214576721},{"id":"https://openalex.org/keywords/care-planning","display_name":"care planning","score":0.6899999976158142},{"id":"https://openalex.org/keywords/consultation-time","display_name":"consultation time","score":0.7609999775886536},{"id":"https://openalex.org/keywords/multidisciplinary-care","display_name":"multidisciplinary care","score":0.8069999814033508},{"id":"https://openalex.org/keywords/culturally-diverse-patients","display_name":"culturally diverse patients","score":0.7799999713897705},{"id":"https://openalex.org/keywords/cancer-care-continuum","display_name":"cancer care continuum","score":0.6430000066757202},{"id":"https://openalex.org/keywords/australia","display_name":"Australia","score":0.3930000066757202}],"concepts":[{"id":"https://openalex.org/C2776135927","wikidata":"https://www.wikidata.org/wiki/Q5242559","display_name":"Referral","level":2,"score":0.6538235545158386},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.6197913289070129},{"id":"https://openalex.org/C28718268","wikidata":"https://www.wikidata.org/wiki/Q4118620","display_name":"Needs assessment","level":2,"score":0.6041339039802551},{"id":"https://openalex.org/C2779356329","wikidata":"https://www.wikidata.org/wiki/Q922625","display_name":"Checklist","level":2,"score":0.599026620388031},{"id":"https://openalex.org/C22467394","wikidata":"https://www.wikidata.org/wiki/Q849359","display_name":"Multidisciplinary approach","level":2,"score":0.5780941843986511},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5719825625419617},{"id":"https://openalex.org/C2780378061","wikidata":"https://www.wikidata.org/wiki/Q25351891","display_name":"Service (business)","level":2,"score":0.4966948628425598},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.41777941584587097},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.30211472511291504},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.10058963298797607},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C180747234","wikidata":"https://www.wikidata.org/wiki/Q23373","display_name":"Cognitive psychology","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001315","descriptor_name":"Australia","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005831","descriptor_name":"Genital Diseases, Female","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005831","descriptor_name":"Genital Diseases, Female","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D010166","descriptor_name":"Palliative Care","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":false},{"descriptor_ui":"D020380","descriptor_name":"Needs Assessment","qualifier_ui":"Q000639","qualifier_name":"trends","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1017/s147895151900052x","doi":"https://doi.org/10.1017/s147895151900052x","is_oa":true,"landing_page_url":"https://doi.org/10.1017/s147895151900052x","pdf_url":"https://www.cambridge.org/core/services/aop-cambridge-core/content/view/C29FBBE27DE073BB1336AED0BFE740A8/S147895151900052Xa.pdf/div-class-title-patterns-of-and-barriers-to-supportive-care-needs-assessment-and-provision-for-australian-women-with-gynecological-cancer-and-their-caregivers-a-mixed-methods-study-of-clinical-practice-div.pdf","source":{"id":"https://openalex.org/S204840698","display_name":"Palliative & Supportive Care","issn_l":"1478-9515","issn":["1478-9515","1478-9523"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative and Supportive Care","raw_type":"journal-article"},{"id":"pmid:31383044","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31383044","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative & supportive care","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1017/s147895151900052x","doi":"https://doi.org/10.1017/s147895151900052x","is_oa":true,"landing_page_url":"https://doi.org/10.1017/s147895151900052x","pdf_url":"https://www.cambridge.org/core/services/aop-cambridge-core/content/view/C29FBBE27DE073BB1336AED0BFE740A8/S147895151900052Xa.pdf/div-class-title-patterns-of-and-barriers-to-supportive-care-needs-assessment-and-provision-for-australian-women-with-gynecological-cancer-and-their-caregivers-a-mixed-methods-study-of-clinical-practice-div.pdf","source":{"id":"https://openalex.org/S204840698","display_name":"Palliative & Supportive Care","issn_l":"1478-9515","issn":["1478-9515","1478-9523"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311721","host_organization_name":"Cambridge University Press","host_organization_lineage":["https://openalex.org/P4310311721","https://openalex.org/P4310311702"],"host_organization_lineage_names":["Cambridge University Press","University of Cambridge"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Palliative and Supportive Care","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":1.0,"display_name":"Good health and well-being"},{"id":"https://metadata.un.org/sdg/5","score":0.6025999784469604,"display_name":"Gender equality"},{"id":"https://metadata.un.org/sdg/10","score":0.4074000120162964,"display_name":"Reduced inequalities"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320314063","display_name":"QIMR Berghofer Medical Research Institute","ror":"https://ror.org/004y8wk30"},{"id":"https://openalex.org/F4320315885","display_name":"Australian Government","ror":"https://ror.org/0314h5y94"},{"id":"https://openalex.org/F4320320501","display_name":"Cancer Australia","ror":"https://ror.org/00510tw04"},{"id":"https://openalex.org/F4320331873","display_name":"NSW Agency for Clinical Innovation","ror":"https://ror.org/02s2bjx51"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2966006993.pdf","grobid_xml":"https://content.openalex.org/works/W2966006993.grobid-xml"},"referenced_works_count":7,"referenced_works":["https://openalex.org/W1688725840","https://openalex.org/W1946746919","https://openalex.org/W1974976491","https://openalex.org/W1979290264","https://openalex.org/W2273012122","https://openalex.org/W2335436953","https://openalex.org/W2772046646"],"related_works":["https://openalex.org/W2810687895","https://openalex.org/W2891948983","https://openalex.org/W1971263766","https://openalex.org/W2772046646","https://openalex.org/W6892552791","https://openalex.org/W2376137581","https://openalex.org/W2892984498","https://openalex.org/W2920834683","https://openalex.org/W3008809984","https://openalex.org/W2980329975"],"abstract_inverted_index":{"OBJECTIVES:":[0],"To":[1],"document":[2],"the":[3,33,105,150,188,194,217,245,280],"current":[4,121],"clinical":[5],"practice":[6,122,224],"in":[7,28,104,207,244,279],"2017":[8],"for":[9,50,72,114,146,155,158,168,171,242],"assessment":[10,113,246,271],"of":[11,17,44,65,83,107,120,133,247,251,266,284,286],"supportive":[12,18,108,199,225,252],"care":[13,19,39,49,84,165,200,219,226,253],"needs":[14,66,112,148,208,248,270],"and":[15,25,30,36,70,76,79,88,102,116,193,214,221,232,249,259,273,282,296],"provision":[16,82,106,250],"to":[20,31,38,57,81,85,97,183,197,254,263,291],"women":[21,52,115,255],"with":[22,53,256],"gynecological":[23,54,257],"cancer":[24,55,218,258],"their":[26,63,260],"caregivers":[27,117],"Australia,":[29],"identify":[32],"main":[34],"enablers":[35,78],"barriers":[37,80],"provision.":[40,201],"METHODS:":[41],"A":[42],"total":[43],"64":[45],"health":[46],"professionals":[47],"who":[48],"Australian":[51],"responded":[56],"an":[58,93],"electronic":[59],"survey":[60,177],"which":[61],"explored":[62],"use":[64,265],"assessment,":[67],"service-level":[68],"processes":[69],"protocols":[71],"support":[73,287],"service":[74],"provision,":[75],"identified":[77],"both":[86,187],"patients":[87],"caregivers.":[89,261,298],"Eight":[90],"respondents":[91,134,141],"underwent":[92],"additional":[94],"in-depth":[95],"interview":[96],"elaborate":[98],"on":[99,210],"enablers,":[100],"barriers,":[101],"gaps":[103],"care.":[109],"RESULTS:":[110,237],"Mostly,":[111],"was":[118,186],"part":[119],"but":[123],"done":[124],"without":[125],"validated":[126],"tools":[127,272],"or":[128],"a":[129,144,163,229],"checklist.":[130],"Only":[131],"30%":[132],"reported":[135],"having":[136,180],"documented":[137],"referral":[138,274],"pathways.":[139],"Most":[140],"simply":[142],"recorded":[143],"plan":[145,166],"meeting":[147],"within":[149,216],"patients'":[151],"medical":[152],"record":[153],"(63%":[154],"patients;":[156,169],"46%":[157],"caregivers)":[159],"rather":[160],"than":[161],"using":[162],"formalized":[164],"(15%":[167],"6%":[170],"caregivers).":[172],"The":[173,202],"interviewees'":[174],"comments":[175],"supported":[176],"results":[178],"that":[179,222],"sufficient":[181],"time":[182,268],"discuss":[184],"issues":[185],"most":[189],"important":[190],"enabling":[191],"factor":[192],"greatest":[195],"barrier":[196],"successful":[198],"interviewees":[203],"further":[204],"discussed":[205],"variations":[206],"based":[209],"age,":[211],"cultural":[212],"background,":[213],"phases":[215],"continuum,":[220],"best":[223],"should":[227],"involve":[228],"multidisciplinary":[230],"team":[231],"customizable":[233],"protocols.":[234],"SIGNIFICANCE":[235],"OF":[236],"There":[238],"is":[239],"much":[240],"room":[241],"improvement":[243],"Approaches":[262],"optimize":[264],"consultation":[267],"(e.g.,":[269],"protocols)":[275],"are":[276],"necessary.":[277],"Flexibility":[278],"form":[281],"mode":[283],"delivery":[285],"may":[288],"be":[289],"required":[290],"meet":[292],"diverse":[293],"personal":[294],"preferences":[295],"incorporate":[297]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":5},{"year":2024,"cited_by_count":4},{"year":2023,"cited_by_count":6},{"year":2022,"cited_by_count":3},{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2019-08-13T00:00:00"}