{"id":"https://openalex.org/W2946879474","doi":"https://doi.org/10.1136/jnnp-2019-bnpa.19","title":"19 \u2018nobody prepared me for this!\u2019 parents\u2019 experiences of seeking help and support with post-brain injury symptoms and changes in children and adolescents with acquired brain injury","display_name":"19 \u2018nobody prepared me for this!\u2019 parents\u2019 experiences of seeking help and support with post-brain injury symptoms and changes in children and adolescents with acquired brain injury","publication_year":2019,"publication_date":"2019-05-01","ids":{"openalex":"https://openalex.org/W2946879474","doi":"https://doi.org/10.1136/jnnp-2019-bnpa.19","mag":"2946879474"},"language":"en","primary_location":{"id":"doi:10.1136/jnnp-2019-bnpa.19","doi":"https://doi.org/10.1136/jnnp-2019-bnpa.19","is_oa":true,"landing_page_url":"https://doi.org/10.1136/jnnp-2019-bnpa.19","pdf_url":"https://jnnp.bmj.com/content/jnnp/90/Suppl_2/A9.1.full.pdf","source":{"id":"https://openalex.org/S134773490","display_name":"Journal of Neurology Neurosurgery & Psychiatry","issn_l":"0022-3050","issn":["0022-3050","1468-330X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319945","host_organization_name":"BMJ","host_organization_lineage":["https://openalex.org/P4310319945"],"host_organization_lineage_names":["BMJ"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Members\u2019 POSTER Abstracts","raw_type":"proceedings-article"},"volume":null,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://jnnp.bmj.com/content/jnnp/90/Suppl_2/A9.1.full.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5009376314","display_name":"Robyn Henrietta McCarron","orcid":"https://orcid.org/0000-0002-9878-0345","observed_orcids":["https://orcid.org/0000-0002-9878-0345"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Robyn MCCarron","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5009376314"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":"A9.1","last_page":"A9"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10416","display_name":"Traumatic Brain Injury Research","score":0.82669997215271,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10416","display_name":"Traumatic Brain Injury Research","score":0.82669997215271,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.16189999878406525,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.001500000013038516,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/pediatric-acquired-brain-injury","display_name":"pediatric acquired brain injury","score":0.984000027179718},{"id":"https://openalex.org/keywords/parental-experiences","display_name":"parental experiences","score":0.7749999761581421},{"id":"https://openalex.org/keywords/help-seeking","display_name":"help-seeking","score":0.7760000228881836},{"id":"https://openalex.org/keywords/barriers-to-support","display_name":"barriers to support","score":0.7900000214576721},{"id":"https://openalex.org/keywords/pediatric-stroke","display_name":"pediatric stroke","score":0.5910000205039978},{"id":"https://openalex.org/keywords/traumatic-brain-injury","display_name":"traumatic brain injury","score":0.8939999938011169},{"id":"https://openalex.org/keywords/mental-health-services","display_name":"mental health services","score":0.4950000047683716},{"id":"https://openalex.org/keywords/family-impact","display_name":"family impact","score":0.5099999904632568},{"id":"https://openalex.org/keywords/psychoeducation","display_name":"psychoeducation","score":0.9089999794960022},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.39800000190734863}],"concepts":[{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.6640868782997131},{"id":"https://openalex.org/C2781017439","wikidata":"https://www.wikidata.org/wiki/Q1995526","display_name":"Traumatic brain injury","level":2,"score":0.6085679531097412},{"id":"https://openalex.org/C2779224077","wikidata":"https://www.wikidata.org/wiki/Q4674782","display_name":"Acquired brain injury","level":3,"score":0.5021548271179199},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.48776084184646606},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.38155055046081543},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.3298945426940918},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.3234592080116272},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.2596883177757263},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.16303250193595886},{"id":"https://openalex.org/C2778818304","wikidata":"https://www.wikidata.org/wiki/Q1819478","display_name":"Rehabilitation","level":2,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1136/jnnp-2019-bnpa.19","doi":"https://doi.org/10.1136/jnnp-2019-bnpa.19","is_oa":true,"landing_page_url":"https://doi.org/10.1136/jnnp-2019-bnpa.19","pdf_url":"https://jnnp.bmj.com/content/jnnp/90/Suppl_2/A9.1.full.pdf","source":{"id":"https://openalex.org/S134773490","display_name":"Journal of Neurology Neurosurgery & Psychiatry","issn_l":"0022-3050","issn":["0022-3050","1468-330X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319945","host_organization_name":"BMJ","host_organization_lineage":["https://openalex.org/P4310319945"],"host_organization_lineage_names":["BMJ"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Members\u2019 POSTER Abstracts","raw_type":"proceedings-article"}],"best_oa_location":{"id":"doi:10.1136/jnnp-2019-bnpa.19","doi":"https://doi.org/10.1136/jnnp-2019-bnpa.19","is_oa":true,"landing_page_url":"https://doi.org/10.1136/jnnp-2019-bnpa.19","pdf_url":"https://jnnp.bmj.com/content/jnnp/90/Suppl_2/A9.1.full.pdf","source":{"id":"https://openalex.org/S134773490","display_name":"Journal of Neurology Neurosurgery & Psychiatry","issn_l":"0022-3050","issn":["0022-3050","1468-330X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310319945","host_organization_name":"BMJ","host_organization_lineage":["https://openalex.org/P4310319945"],"host_organization_lineage_names":["BMJ"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Members\u2019 POSTER Abstracts","raw_type":"proceedings-article"},"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"},{"score":0.7386000156402588,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2946879474.pdf","grobid_xml":"https://content.openalex.org/works/W2946879474.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W6920883264","https://openalex.org/W3028196828","https://openalex.org/W2281719648","https://openalex.org/W1531128178","https://openalex.org/W4393098463","https://openalex.org/W1562577895","https://openalex.org/W2614747282","https://openalex.org/W2090271537","https://openalex.org/W2305483789","https://openalex.org/W4416909620"],"abstract_inverted_index":{"Objectives/aims":[0],"This":[1],"research":[2,192],"aims":[3],"to:":[4],"Understand":[5],"the":[6,28,61,176,225,248,301,322,356],"journeys":[7],"and":[8,16,22,30,38,43,66,70,87,93,107,117,136,178,184,193,215,229,244,257,272,274,298,319,337,349],"processes":[9],"that":[10,32,164,172,180,195,332],"parents":[11,33,162,196,263,283,290,315],"follow":[12],"in":[13,24,35,53,95,251,300,321],"seeking":[14,85],"help":[15,37,86,177,243],"support":[17,39,88,179,186,202,245,281],"for":[18,40,89,203,227],"post-brain":[19,90,295],"injury":[20,91,127,296],"symptoms":[21,92,297],"changes":[23,94,299],"their":[25,41,71,82,96,173],"children.":[26,97],"Identify":[27],"barriers":[29,210],"challenges":[31,238],"face":[34],"obtaining":[36],"children":[42,65,100],"family":[44,250],"following":[45,304],"paediatric":[46,306,329],"Acquired":[47],"Brain":[48,122],"Injury":[49],"(ABI).":[50],"Propose":[51],"ways":[52],"which":[54],"services":[55,331,343],"can":[56,333],"be":[57,309,353],"more":[58,317,347],"responsive":[59,354],"to":[60,168,170,241,277,280,313,324,352,355],"evolving":[62],"needs":[63,357],"of":[64,84,141,191,220,232,239,253,358],"adolescents":[67],"with":[68,291,361],"ABI":[69,161,307,330],"families.":[72],"Method":[73],"Five":[74],"mothers":[75],"were":[76,101,108,134],"interviewed":[77],"using":[78,147],"semi-structured":[79],"interviews":[80,133],"about":[81],"experiences":[83],"The":[98,124,132,143,237],"participants\u2019":[99],"60%":[102],"male,":[103],"10\u201316":[104],"years":[105,110,130],"old":[106],"2\u20136":[109],"post":[111],"injury.":[112],"Four":[113],"had":[114,119],"suffered":[115],"strokes":[116],"one":[118],"a":[120,148,157,188,199,218,230,305,310,346],"Traumatic":[121],"Injury.":[123],"age":[125],"at":[126],"was":[128,145],"4\u201314":[129],"old.":[131],"audio-recorded":[135],"transcribed":[137],"into":[138],"2698":[139],"units":[140],"data.":[142],"data":[144],"analysed":[146],"Glaserian":[149],"grounded":[150],"theory":[151],"constant":[152],"comparative":[153],"approach.":[154],"Results":[155],"After":[156],"child":[158,174],"suffers":[159],"an":[160],"feel":[163,316],"it":[165],"is":[166,206],"down":[167],"them":[169],"ensure":[171],"gets":[175],"they":[181,275],"need.":[182],"Identifying":[183],"accessing":[185],"requires":[187],"high":[189],"level":[190],"persistence":[194],"experience":[197],"as":[198],"\u2018battle\u2019.":[200],"Obtaining":[201],"mental-health":[204],"problems":[205],"especially":[207],"challenging.":[208],"Common":[209],"include":[211],"communication":[212],"issues,":[213],"time":[214],"funding":[216],"delays,":[217],"lack":[219,231],"consistent":[221],"professionals,":[222],"not":[223],"meeting":[224],"criteria":[226],"services,":[228],"local":[233],"or":[234],"age-appropriate":[235],"services.":[236],"trying":[240],"seek":[242],"impact":[246],"upon":[247],"whole":[249],"terms":[252],"time,":[254],"finances,":[255],"socially":[256],"emotionally.":[258],"However,":[259],"through":[260,285],"this":[261,279],"process":[262],"do":[264],"become":[265],"expert":[266],"parents/carers.":[267],"They":[268],"gain":[269],"new":[270],"knowledge":[271],"language":[273],"look":[276],"share":[278],"other":[282],"going":[284],"similar":[286],"experiences.":[287],"Conclusions":[288],"Providing":[289],"accessible":[292],"psychoeducation":[293],"around":[294],"acute":[302],"period":[303],"could":[308],"helpful":[311],"intervention":[312],"make":[314],"prepared":[318],"supported":[320],"medium":[323],"long":[325],"term.":[326],"More":[327],"specialist":[328],"provide":[334],"integrated,":[335],"holistic":[336],"developmental":[338],"care":[339],"are":[340],"needed.":[341],"Current":[342],"may":[344],"need":[345],"flexible":[348],"longer-term":[350],"approach":[351],"young":[359],"people":[360],"ABI.":[362]},"counts_by_year":[{"year":2024,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2019-06-07T00:00:00"}
