{"id":"https://openalex.org/W2942880809","doi":"https://doi.org/10.1111/scs.12794","title":"No time for reflection: Patient experiences with treatment\u2010related decision\u2010making in advanced prostate cancer","display_name":"No time for reflection: Patient experiences with treatment\u2010related decision\u2010making in advanced prostate cancer","publication_year":2019,"publication_date":"2019-11-21","ids":{"openalex":"https://openalex.org/W2942880809","doi":"https://doi.org/10.1111/scs.12794","mag":"2942880809","pmid":"https://pubmed.ncbi.nlm.nih.gov/31749179"},"language":"en","primary_location":{"id":"doi:10.1111/scs.12794","doi":"https://doi.org/10.1111/scs.12794","is_oa":false,"landing_page_url":"https://doi.org/10.1111/scs.12794","pdf_url":null,"source":{"id":"https://openalex.org/S46883044","display_name":"Scandinavian Journal of Caring Sciences","issn_l":"0283-9318","issn":["0283-9318","1471-6712"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Caring Sciences","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://portal.findresearcher.sdu.dk/da/publications/0d69b8d7-94e2-4c24-8934-798869b1b358","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5034949904","display_name":"Mette Margrethe L\u00f8we Netsey\u2010Afedo","orcid":"https://orcid.org/0000-0002-9247-5083","observed_orcids":["https://orcid.org/0000-0002-9247-5083"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I4210142184","display_name":"Lillebaelt Hospital","ror":"https://ror.org/04jewc589","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210142184"]}],"countries":["DK"],"is_corresponding":true,"raw_author_name":"Mette Margrethe L\u00f8we Netsey\u2010Afedo","raw_affiliation_strings":["Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark","Urological Research Center, Department of Regional Health Research, Centre Hospital Lillebaelt, University of Southern Denmark, Odense, Denmark"],"raw_orcid":"https://orcid.org/0000-0002-9247-5083","affiliations":[{"raw_affiliation_string":"Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark","institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"]},{"raw_affiliation_string":"Urological Research Center, Department of Regional Health Research, Centre Hospital Lillebaelt, University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5053355992","display_name":"Jette Ammentorp","orcid":"https://orcid.org/0000-0001-6249-9431","observed_orcids":["https://orcid.org/0000-0001-6249-9431"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I4210142184","display_name":"Lillebaelt Hospital","ror":"https://ror.org/04jewc589","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210142184"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Jette Ammentorp","raw_affiliation_strings":["Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark","institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034755206","display_name":"Palle J\u00f8rn Sloth Osther","orcid":"https://orcid.org/0000-0001-7962-1640","observed_orcids":["https://orcid.org/0000-0001-7962-1640"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I4210091196","display_name":"Vejle Sygehus","ror":"https://ror.org/00e8ar137","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210091196","https://openalex.org/I4210142184"]},{"id":"https://openalex.org/I4210142184","display_name":"Lillebaelt Hospital","ror":"https://ror.org/04jewc589","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210142184"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Palle J\u00f8rn Sloth Osther","raw_affiliation_strings":["Department of Urology, Lillebaelt Hospital, Vejle, Denmark","Urological Research Center, Department of Regional Health Research, Centre Hospital Lillebaelt, University of Southern Denmark, Odense, Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Urology, Lillebaelt Hospital, Vejle, Denmark","institution_ids":["https://openalex.org/I4210091196","https://openalex.org/I4210142184"]},{"raw_affiliation_string":"Urological Research Center, Department of Regional Health Research, Centre Hospital Lillebaelt, University of Southern Denmark, Odense, Denmark","institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044453064","display_name":"Regner Birkelund","orcid":"https://orcid.org/0000-0002-5374-0630","observed_orcids":["https://orcid.org/0000-0002-5374-0630"]},"institutions":[{"id":"https://openalex.org/I177969490","display_name":"University of Southern Denmark","ror":"https://ror.org/03yrrjy16","country_code":"DK","type":"education","lineage":["https://openalex.org/I177969490"]},{"id":"https://openalex.org/I4210142184","display_name":"Lillebaelt Hospital","ror":"https://ror.org/04jewc589","country_code":"DK","type":"healthcare","lineage":["https://openalex.org/I4210142184"]}],"countries":["DK"],"is_corresponding":false,"raw_author_name":"Regner Birkelund","raw_affiliation_strings":["Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Regional Health Research University of Southern Denmark & Lillebaelt Hospital Vejle Denmark","institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":["https://openalex.org/A5034949904"],"corresponding_institution_ids":["https://openalex.org/I177969490","https://openalex.org/I4210142184"],"apc_list":{"value":2500,"currency":"USD","value_usd":2500},"apc_paid":null,"fwci":1.8709,"has_fulltext":true,"cited_by_count":16,"citation_normalized_percentile":{"value":0.83917341,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"34","issue":"4","first_page":"880","last_page":"888"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.9965999722480774,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.002400000113993883,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/advanced-prostate-cancer","display_name":"advanced prostate cancer","score":0.9919999837875366},{"id":"https://openalex.org/keywords/patient-involvement-in-decision-making","display_name":"patient involvement in treatment decisions","score":0.7070000171661377},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.703000009059906},{"id":"https://openalex.org/keywords/doctor-patient-communication","display_name":"physician-patient communication","score":0.8090000152587891},{"id":"https://openalex.org/keywords/treatment-decision-making","display_name":"treatment decision-making","score":0.5950000286102295},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.734000027179718},{"id":"https://openalex.org/keywords/existential-questions","display_name":"existential questions","score":0.7239999771118164}],"concepts":[{"id":"https://openalex.org/C65682993","wikidata":"https://www.wikidata.org/wiki/Q1056451","display_name":"Reflection (computer programming)","level":2,"score":0.624257504940033},{"id":"https://openalex.org/C2780192828","wikidata":"https://www.wikidata.org/wiki/Q181257","display_name":"Prostate cancer","level":3,"score":0.5869594216346741},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.49796581268310547},{"id":"https://openalex.org/C2776235491","wikidata":"https://www.wikidata.org/wiki/Q9625","display_name":"Prostate","level":3,"score":0.48717185854911804},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.47746777534484863},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37531018257141113},{"id":"https://openalex.org/C29456083","wikidata":"https://www.wikidata.org/wiki/Q1221899","display_name":"Gynecology","level":1,"score":0.35790717601776123},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.356378436088562},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.3324124217033386},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.14688745141029358},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.1296883523464203},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010358","descriptor_name":"Patient Participation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011471","descriptor_name":"Prostatic Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D063868","descriptor_name":"Patient Outcome Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1111/scs.12794","doi":"https://doi.org/10.1111/scs.12794","is_oa":false,"landing_page_url":"https://doi.org/10.1111/scs.12794","pdf_url":null,"source":{"id":"https://openalex.org/S46883044","display_name":"Scandinavian Journal of Caring Sciences","issn_l":"0283-9318","issn":["0283-9318","1471-6712"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian Journal of Caring Sciences","raw_type":"journal-article"},{"id":"pmid:31749179","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/31749179","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Scandinavian journal of caring sciences","raw_type":"Journal Article"},{"id":"pmh:oai:sdu.dk:openaire/0d69b8d7-94e2-4c24-8934-798869b1b358","doi":null,"is_oa":true,"landing_page_url":"https://portal.findresearcher.sdu.dk/da/publications/0d69b8d7-94e2-4c24-8934-798869b1b358","pdf_url":null,"source":{"id":"https://openalex.org/S4306400423","display_name":"University of Southern Denmark Research Portal (University of Southern Denmark)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I177969490","host_organization_name":"University of Southern Denmark","host_organization_lineage":["https://openalex.org/I177969490"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"L\u00f8we Netsey-Afedo, M M, Ammentorp, J, Osther, P J S & Birkelund, R 2020, 'No time for reflection : Patient experiences with treatment-related decision-making in advanced prostate cancer', Scandinavian Journal of Caring Sciences, vol. 34, no. 4, pp. 880-888. https://doi.org/10.1111/scs.12794","raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"pmh:oai:sdu.dk:openaire/0d69b8d7-94e2-4c24-8934-798869b1b358","doi":null,"is_oa":true,"landing_page_url":"https://portal.findresearcher.sdu.dk/da/publications/0d69b8d7-94e2-4c24-8934-798869b1b358","pdf_url":null,"source":{"id":"https://openalex.org/S4306400423","display_name":"University of Southern Denmark Research Portal (University of Southern Denmark)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I177969490","host_organization_name":"University of Southern Denmark","host_organization_lineage":["https://openalex.org/I177969490"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"L\u00f8we Netsey-Afedo, M M, Ammentorp, J, Osther, P J S & Birkelund, R 2020, 'No time for reflection : Patient experiences with treatment-related decision-making in advanced prostate cancer', Scandinavian Journal of Caring Sciences, vol. 34, no. 4, pp. 880-888. https://doi.org/10.1111/scs.12794","raw_type":"info:eu-repo/semantics/article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9391000270843506,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G94765995","display_name":null,"funder_award_id":"J.nr.16/13518","funder_id":"https://openalex.org/F2724257655","funder_display_name":"Region Syddanmark"}],"funders":[{"id":"https://openalex.org/F2724257655","display_name":"Region Syddanmark","ror":"https://ror.org/0290a6k23"},{"id":"https://openalex.org/F4320323799","display_name":"Syddansk Universitet","ror":"https://ror.org/03yrrjy16"},{"id":"https://openalex.org/F4320331687","display_name":"Sygehus Lilleb\u00e6lt","ror":"https://ror.org/04jewc589"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":22,"referenced_works":["https://openalex.org/W1962221950","https://openalex.org/W1977982721","https://openalex.org/W2031608243","https://openalex.org/W2041927436","https://openalex.org/W2042177251","https://openalex.org/W2054952563","https://openalex.org/W2065784096","https://openalex.org/W2090790366","https://openalex.org/W2093941725","https://openalex.org/W2106855021","https://openalex.org/W2147867922","https://openalex.org/W2156543684","https://openalex.org/W2163770929","https://openalex.org/W2315154775","https://openalex.org/W2511924174","https://openalex.org/W2513746567","https://openalex.org/W2765327647","https://openalex.org/W2785854794","https://openalex.org/W2791409850","https://openalex.org/W2889646458","https://openalex.org/W4232994047","https://openalex.org/W4411434571"],"related_works":["https://openalex.org/W2513746567","https://openalex.org/W7036678741","https://openalex.org/W4210431051","https://openalex.org/W2546570649","https://openalex.org/W3092754118","https://openalex.org/W2969843215","https://openalex.org/W2029755951","https://openalex.org/W2885859115","https://openalex.org/W4214579900","https://openalex.org/W7097850419"],"abstract_inverted_index":{"BACKGROUND:":[0],"The":[1,108,153,178],"rationale":[2],"of":[3,28,58,105],"the":[4,7,50,111,182],"study":[5,41,154],"was":[6,72,170],"predominant":[8],"understanding":[9],"that":[10,19,117,156,168,181],"patient":[11],"involvement":[12],"in":[13,85,94,124],"treatment-related":[14,63,165,185],"decision-making":[15],"is":[16],"essential":[17],"and":[18,33,35,55,60,74,116,134,144,164,167,174],"communication":[20,51,159],"with":[21,31,45,52,82],"cancer":[22,48],"patients":[23,44,97,109,157,179],"can":[24],"affect":[25],"their":[26,56],"quality":[27],"life,":[29],"satisfaction":[30],"care,":[32],"psychosocial":[34],"medical":[36],"outcomes":[37],"positively.":[38],"AIM:":[39],"This":[40],"explored":[42],"how":[43,59],"advanced":[46],"prostate":[47],"experience":[49],"health":[53],"professionals":[54],"experiences":[57],"by":[61],"whom":[62],"decisions":[64,118,186],"were":[65,76,100,122,128],"made.":[66],"METHODS:":[67],"A":[68],"phenomenological-hermeneutic":[69],"research":[70],"design":[71],"applied,":[73],"data":[75],"collected":[77],"using":[78,102],"qualitative":[79],"interviews":[80],"supplemented":[81],"participant":[83],"observations":[84],"a":[86,91],"urological":[87],"outpatient":[88],"clinic":[89],"at":[90],"regional":[92],"hospital":[93],"Denmark.":[95],"Thirteen":[96],"participated.":[98],"Data":[99],"analysed":[101],"Ricoeur's":[103],"theory":[104],"interpretation.":[106],"FINDINGS:":[107],"experienced":[110,158,180],"course":[112,138],"as":[113,172],"being":[114],"routine":[115],"related":[119],"to":[120],"treatment":[121],"made":[123,184],"advance.":[125],"Three":[126],"themes":[127],"identified:":[129],"(1)":[130],"Fast":[131],"track":[132],"diagnosing":[133],"treatment,":[135,143],"(2)":[136],"Off":[137],"I":[139],"should":[140],"have":[141],"this":[142],"(3)":[145],"They":[146],"don't":[147],"ask":[148],"about":[149],"existential":[150],"issues.":[151],"CONCLUSION:":[152],"concluded":[155],"primarily":[160],"revolved":[161],"around":[162],"disease-":[163],"issues":[166],"it":[169],"characterised":[171],"efficient":[173],"straightforward,":[175],"but":[176],"insufficient.":[177],"doctors":[183],"without":[187],"involving":[188],"them.":[189]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":4},{"year":2020,"cited_by_count":2}],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2019-05-09T00:00:00"}