{"id":"https://openalex.org/W2936077943","doi":"https://doi.org/10.1037/hea0000733","title":"Psychological adaptation to diagnostic genomic sequencing results: The role of hope fulfillment.","display_name":"Psychological adaptation to diagnostic genomic sequencing results: The role of hope fulfillment.","publication_year":2019,"publication_date":"2019-04-08","ids":{"openalex":"https://openalex.org/W2936077943","doi":"https://doi.org/10.1037/hea0000733","mag":"2936077943","pmid":"https://pubmed.ncbi.nlm.nih.gov/30958015","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/6522310"},"language":"en","primary_location":{"id":"doi:10.1037/hea0000733","doi":"https://doi.org/10.1037/hea0000733","is_oa":true,"landing_page_url":"https://doi.org/10.1037/hea0000733","pdf_url":null,"source":{"id":"https://openalex.org/S34137071","display_name":"Health Psychology","issn_l":"0278-6133","issn":["0278-6133","1930-7810"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","erih-plus","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320262","host_organization_name":"American Psychological Association","host_organization_lineage":["https://openalex.org/P4310320262"],"host_organization_lineage_names":["American Psychological Association"],"type":"journal"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Psychology","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.1037/hea0000733","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5080770426","display_name":"Ida Griesemer","orcid":"https://orcid.org/0000-0001-6556-2520","observed_orcids":["https://orcid.org/0000-0001-6556-2520"]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ida Griesemer","raw_affiliation_strings":["Department of Health Behavior, University of North Carolina at Chapel Hill"],"raw_orcid":"https://orcid.org/0000-0001-6556-2520","affiliations":[{"raw_affiliation_string":"Department of Health Behavior, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065357336","display_name":"Elizabeth Moore","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Elizabeth Moore","raw_affiliation_strings":["Department of Health Behavior, University of North Carolina at Chapel Hill"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Health Behavior, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052878374","display_name":"Cynthia M. Khan","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Cynthia Khan","raw_affiliation_strings":["Thurston Arthritis Research Center, University of North Carolina at Chapel Hill"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Thurston Arthritis Research Center, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068354576","display_name":"Myra I. Roche","orcid":"https://orcid.org/0000-0001-9680-6006","observed_orcids":["https://orcid.org/0000-0001-9680-6006"]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Myra Roche","raw_affiliation_strings":["Department of Pediatrics, University of North Carolina at Chapel Hill"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Pediatrics, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068853592","display_name":"Gail E. Henderson","orcid":"https://orcid.org/0000-0002-4968-7064","observed_orcids":["https://orcid.org/0000-0002-4968-7064"]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Gail Henderson","raw_affiliation_strings":["Department of Social Medicine, University of North Carolina at Chapel Hill"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Social Medicine, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5076480843","display_name":"Christine Killingsworth Rini","orcid":"https://orcid.org/0000-0002-3169-3626","observed_orcids":["https://orcid.org/0000-0002-3169-3626"]},"institutions":[{"id":"https://openalex.org/I114027177","display_name":"University of North Carolina at Chapel Hill","ror":"https://ror.org/0130frc33","country_code":"US","type":"education","lineage":["https://openalex.org/I114027177"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Christine Rini","raw_affiliation_strings":["UNC Gillings School of Global Public Health, University of North Carolina at Chapel Hill"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"UNC Gillings School of Global Public Health, University of North Carolina at Chapel Hill","institution_ids":["https://openalex.org/I114027177"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I114027177"],"apc_list":null,"apc_paid":null,"fwci":2.9387,"has_fulltext":false,"cited_by_count":16,"citation_normalized_percentile":{"value":0.90568707,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":"38","issue":"6","first_page":"527","last_page":"535"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12485","display_name":"Optimism, Hope, and Well-being","score":0.8140000104904175,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12485","display_name":"Optimism, Hope, and Well-being","score":0.8140000104904175,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.14110000431537628,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.002099999925121665,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/psychological-adjustment","display_name":"psychological adjustment","score":0.8820000290870667},{"id":"https://openalex.org/keywords/whole-exome-sequencing","display_name":"exome sequencing","score":0.6869999766349792},{"id":"https://openalex.org/keywords/coping-self-efficacy","display_name":"coping self-efficacy","score":0.5860000252723694},{"id":"https://openalex.org/keywords/self-esteem","display_name":"self-esteem","score":0.8999999761581421},{"id":"https://openalex.org/keywords/social-integration","display_name":"social integration","score":1.0},{"id":"https://openalex.org/keywords/disclosure-of-genetic-results","display_name":"disclosure of genetic results","score":0.6629999876022339},{"id":"https://openalex.org/keywords/neurological-disorders","display_name":"neurological disorders","score":0.5350000262260437},{"id":"https://openalex.org/keywords/cancer","display_name":"cancer","score":0.9929999709129333}],"concepts":[{"id":"https://openalex.org/C2779549880","wikidata":"https://www.wikidata.org/wiki/Q5542226","display_name":"PsycINFO","level":3,"score":0.7113927006721497},{"id":"https://openalex.org/C16671776","wikidata":"https://www.wikidata.org/wiki/Q5420592","display_name":"Exome sequencing","level":4,"score":0.5670422315597534},{"id":"https://openalex.org/C139807058","wikidata":"https://www.wikidata.org/wiki/Q352374","display_name":"Adaptation (eye)","level":2,"score":0.5406041145324707},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.4810200333595276},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.46096158027648926},{"id":"https://openalex.org/C2776795518","wikidata":"https://www.wikidata.org/wiki/Q7256373","display_name":"Psychological adaptation","level":2,"score":0.46088194847106934},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.4153529107570648},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.22117042541503906},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.19233438372612},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.17294254899024963},{"id":"https://openalex.org/C501734568","wikidata":"https://www.wikidata.org/wiki/Q42918","display_name":"Mutation","level":3,"score":0.0967245101928711},{"id":"https://openalex.org/C55493867","wikidata":"https://www.wikidata.org/wiki/Q7094","display_name":"Biochemistry","level":1,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0},{"id":"https://openalex.org/C104317684","wikidata":"https://www.wikidata.org/wiki/Q7187","display_name":"Gene","level":2,"score":0.0}],"mesh":[{"descriptor_ui":"D000073336","descriptor_name":"Whole Genome Sequencing","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":"Q000502","qualifier_name":"physiology","is_major_topic":true},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1037/hea0000733","doi":"https://doi.org/10.1037/hea0000733","is_oa":true,"landing_page_url":"https://doi.org/10.1037/hea0000733","pdf_url":null,"source":{"id":"https://openalex.org/S34137071","display_name":"Health Psychology","issn_l":"0278-6133","issn":["0278-6133","1930-7810"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","erih-plus","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320262","host_organization_name":"American Psychological Association","host_organization_lineage":["https://openalex.org/P4310320262"],"host_organization_lineage_names":["American Psychological Association"],"type":"journal"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Psychology","raw_type":"journal-article"},{"id":"pmid:30958015","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/30958015","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health psychology : official journal of the Division of Health Psychology, American Psychological Association","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:6522310","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6522310","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Health Psychol","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1037/hea0000733","doi":"https://doi.org/10.1037/hea0000733","is_oa":true,"landing_page_url":"https://doi.org/10.1037/hea0000733","pdf_url":null,"source":{"id":"https://openalex.org/S34137071","display_name":"Health Psychology","issn_l":"0278-6133","issn":["0278-6133","1930-7810"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","erih-plus","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320262","host_organization_name":"American Psychological Association","host_organization_lineage":["https://openalex.org/P4310320262"],"host_organization_lineage_names":["American Psychological Association"],"type":"journal"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Health Psychology","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.979200005531311,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G3969538665","display_name":"North Carolina Translational & Clinical Sciences Institute (NC TraCS)","funder_award_id":"UL1TR001111","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"},{"id":"https://openalex.org/G6656124834","display_name":"North Carolina Clinical Genomic Evaluation by Next-gen Exome Sequencing 2","funder_award_id":"U01HG006487","funder_id":"https://openalex.org/F4320337348","funder_display_name":"National Human Genome Research Institute"}],"funders":[{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337348","display_name":"National Human Genome Research Institute","ror":"https://ror.org/00baak391"},{"id":"https://openalex.org/F4320337472","display_name":"National Center for Advancing Translational Sciences","ror":"https://ror.org/04pw6fb54"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":35,"referenced_works":["https://openalex.org/W109728625","https://openalex.org/W1530155851","https://openalex.org/W1967189822","https://openalex.org/W1968689002","https://openalex.org/W1971749549","https://openalex.org/W1972353358","https://openalex.org/W1984609437","https://openalex.org/W2000366104","https://openalex.org/W2002969928","https://openalex.org/W2017953368","https://openalex.org/W2032004588","https://openalex.org/W2039707374","https://openalex.org/W2041834063","https://openalex.org/W2043023923","https://openalex.org/W2051792459","https://openalex.org/W2068553296","https://openalex.org/W2075476524","https://openalex.org/W2075715136","https://openalex.org/W2082801720","https://openalex.org/W2088954570","https://openalex.org/W2093274439","https://openalex.org/W2095536516","https://openalex.org/W2100613503","https://openalex.org/W2111859095","https://openalex.org/W2135028502","https://openalex.org/W2146360566","https://openalex.org/W2150697633","https://openalex.org/W2166395296","https://openalex.org/W2268475462","https://openalex.org/W2395800914","https://openalex.org/W2507497916","https://openalex.org/W2597662811","https://openalex.org/W2765567602","https://openalex.org/W2783613967","https://openalex.org/W4206443588"],"related_works":["https://openalex.org/W2961556416","https://openalex.org/W4300493400","https://openalex.org/W2929237720","https://openalex.org/W2268475462","https://openalex.org/W2953220732","https://openalex.org/W2569168718","https://openalex.org/W2906266261","https://openalex.org/W4221071899","https://openalex.org/W2947096092","https://openalex.org/W1980198788"],"abstract_inverted_index":{"OBJECTIVE:":[0],"Psychological":[1],"adaptation":[2,46,121,161,198,219,244],"is":[3],"an":[4,20,213],"important":[5,214],"but":[6],"understudied":[7],"outcome":[8],"among":[9],"patients":[10],"who":[11],"undergo":[12],"DNA":[13],"evaluation":[14],"to":[15,33,47,103,109,138,203,226,235],"identify":[16],"a":[17,61],"cause":[18],"of":[19,63,82,99,117,143,152,186,192,194,216],"unexplained":[21],"health":[22,80,105],"condition.":[23],"This":[24],"longitudinal":[25],"study":[26,77],"examines":[27],"the":[28,31,67,224,239],"relationship":[29],"between":[30],"degree":[32,151,193,202,225],"which":[34,204,227],"participants'":[35],"hopes":[36,208,229],"for":[37,149,242],"diagnostic":[38],"genomic":[39,144,206,221,250],"sequencing":[40,49,145],"were":[41,56,113],"fulfilled":[42,210,231],"and":[43,97,125,176],"their":[44,48,247],"psychological":[45,120,160,218],"results":[50,248],"over":[51],"time.":[52],"METHOD:":[53],"Secondary":[54],"analyses":[55],"conducted":[57],"on":[58,197],"data":[59],"from":[60,66,135,249],"subset":[62],"adult":[64],"participants":[65],"North":[68],"Carolina":[69],"Clinical":[70],"Genomic":[71],"Evaluation":[72],"by":[73],"Next-Generation":[74],"Exome":[75],"Sequencing":[76],"with":[78,157],"physical":[79],"conditions":[81],"suspected":[83],"genetic":[84],"etiology":[85],"(such":[86],"as":[87,115],"neurological":[88],"disorders":[89],"or":[90],"cancer;":[91],"n":[92],"=":[93,163,166,171,174,180,183],"192).":[94],"Hope":[95],"fulfillment":[96,154,196],"type":[98],"hope":[100,153,187,195],"(hopes":[101],"related":[102],"personal-family":[104],"implications":[106],"vs.":[107],"hoping":[108],"help":[110],"others-advance":[111],"science)":[112],"assessed":[114],"predictors":[116],"change":[118],"in":[119],"(Psychological":[122],"Adaptation":[123],"Scale)":[124],"4":[126],"subscales":[127],"(coping":[128],"efficacy,":[129],"self-esteem,":[130],"social":[131,168],"integration,":[132],"spiritual-existential":[133,177],"well-being),":[134],"2":[136],"weeks":[137],"6":[139],"months":[140],"after":[141,220,245],"disclosure":[142],"results.":[146],"RESULTS:":[147],"Controlling":[148],"covariates,":[150],"was":[155],"associated":[156],"increased":[158],"general":[159],"(\u03b2":[162,170,179],".14,":[164],"p":[165,173,182],".02),":[167],"integration":[169],".17,":[172],".01),":[175],"well-being":[178],".15,":[181],".02).":[184],"Type":[185],"did":[188],"not":[189],"modify":[190],"effects":[191],"outcomes.":[199],"CONCLUSIONS:":[200],"The":[201],"patients'":[205,228],"sequencing-related":[207],"are":[209,230],"may":[211,232],"be":[212],"driver":[215],"long-term":[217],"sequencing.":[222,251],"Evaluating":[223],"allow":[233],"clinicians":[234],"gain":[236],"insight":[237],"into":[238],"likely":[240],"trajectory":[241],"patient":[243],"learning":[246],"(PsycINFO":[252],"Database":[253],"Record":[254],"(c)":[255],"2019":[256],"APA,":[257],"all":[258],"rights":[259],"reserved).":[260]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":6},{"year":2020,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2019-04-25T00:00:00"}