{"id":"https://openalex.org/W2920165530","doi":"https://doi.org/10.1097/nnr.0000000000000335","title":"Best Practices for Obtaining Genomic Consent in Pediatric Traumatic Brain Injury Research","display_name":"Best Practices for Obtaining Genomic Consent in Pediatric Traumatic Brain Injury Research","publication_year":2019,"publication_date":"2019-03-01","ids":{"openalex":"https://openalex.org/W2920165530","doi":"https://doi.org/10.1097/nnr.0000000000000335","mag":"2920165530","pmid":"https://pubmed.ncbi.nlm.nih.gov/30829926","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/6400301"},"language":"en","primary_location":{"id":"doi:10.1097/nnr.0000000000000335","doi":"https://doi.org/10.1097/nnr.0000000000000335","is_oa":false,"landing_page_url":"https://doi.org/10.1097/nnr.0000000000000335","pdf_url":null,"source":{"id":"https://openalex.org/S57227388","display_name":"Nursing Research","issn_l":"0029-6562","issn":["0029-6562","1538-9847"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Nursing Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6400301","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5029072493","display_name":"Kaylee Schnur","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]},{"id":"https://openalex.org/I4210110704","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210110704"]},{"id":"https://openalex.org/I4210163313","display_name":"Seton Medical Center Austin","ror":"https://ror.org/052sw9d77","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1320343167","https://openalex.org/I4210163313"]},{"id":"https://openalex.org/I86519309","display_name":"The University of Texas at Austin","ror":"https://ror.org/00hj54h04","country_code":"US","type":"education","lineage":["https://openalex.org/I86519309"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kaylee C. Schnur","raw_affiliation_strings":["Kaylee C. Schnur is Nursing Honors Undergraduate Student, University of Texas at Austin School of Nursing. She is working toward earning her BSN. Eliana Gill, RN, BSN, is Registered Nurse, Seton Medical Center, Austin, Texas. Alejandro Guerrero is Undergraduate Student, University of Texas at Austin. He is working toward earning a BS in Neuroscience. Nicole Osier, PhD, RN, is Assistant Professor, University of Texas at Austin School of Nursing and Department of Neurology, University of Texas at Austin Dell Medical School. Karin Reuter-Rice, PhD, CPNP-AC, FCCM, FAAN, is Associate Professor, Duke University School of Nursing and Department of Pediatrics, Duke University School of Medicine, Durham, North Carolina","All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Kaylee C. Schnur is Nursing Honors Undergraduate Student, University of Texas at Austin School of Nursing. She is working toward earning her BSN. Eliana Gill, RN, BSN, is Registered Nurse, Seton Medical Center, Austin, Texas. Alejandro Guerrero is Undergraduate Student, University of Texas at Austin. He is working toward earning a BS in Neuroscience. Nicole Osier, PhD, RN, is Assistant Professor, University of Texas at Austin School of Nursing and Department of Neurology, University of Texas at Austin Dell Medical School. Karin Reuter-Rice, PhD, CPNP-AC, FCCM, FAAN, is Associate Professor, Duke University School of Nursing and Department of Pediatrics, Duke University School of Medicine, Durham, North Carolina","institution_ids":["https://openalex.org/I170897317","https://openalex.org/I4210163313","https://openalex.org/I86519309"]},{"raw_affiliation_string":"All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","institution_ids":[]},{"raw_affiliation_string":"Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","institution_ids":["https://openalex.org/I4210110704"]},{"raw_affiliation_string":"The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068162755","display_name":"Eliana R Gill","orcid":"https://orcid.org/0000-0002-5183-9338","observed_orcids":["https://orcid.org/0000-0002-5183-9338"]},"institutions":[{"id":"https://openalex.org/I4210110704","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210110704"]},{"id":"https://openalex.org/I4210163313","display_name":"Seton Medical Center Austin","ror":"https://ror.org/052sw9d77","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1320343167","https://openalex.org/I4210163313"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eliana Gill","raw_affiliation_strings":["All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","Eliana Gill, RN, BSN, is Registered Nurse, Seton Medical Center, Austin, Texas","Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","institution_ids":[]},{"raw_affiliation_string":"Eliana Gill, RN, BSN, is Registered Nurse, Seton Medical Center, Austin, Texas","institution_ids":["https://openalex.org/I4210163313"]},{"raw_affiliation_string":"Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","institution_ids":["https://openalex.org/I4210110704"]},{"raw_affiliation_string":"The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health","institution_ids":[]}]},{"author_position":"middle","author":{"id":null,"display_name":"Alejandro Guerrero","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210110704","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210110704"]},{"id":"https://openalex.org/I86519309","display_name":"The University of Texas at Austin","ror":"https://ror.org/00hj54h04","country_code":"US","type":"education","lineage":["https://openalex.org/I86519309"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Alejandro Guerrero","raw_affiliation_strings":["Alejandro Guerrero is Undergraduate Student, University of Texas at Austin. He is working toward earning a BS in Neuroscience","All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Alejandro Guerrero is Undergraduate Student, University of Texas at Austin. He is working toward earning a BS in Neuroscience","institution_ids":["https://openalex.org/I86519309"]},{"raw_affiliation_string":"All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","institution_ids":[]},{"raw_affiliation_string":"Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","institution_ids":["https://openalex.org/I4210110704"]},{"raw_affiliation_string":"The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076949434","display_name":"Nicole Danielle Osier","orcid":"https://orcid.org/0000-0002-2903-6774","observed_orcids":["https://orcid.org/0000-0002-2903-6774"]},"institutions":[{"id":"https://openalex.org/I4210110704","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210110704"]},{"id":"https://openalex.org/I86519309","display_name":"The University of Texas at Austin","ror":"https://ror.org/00hj54h04","country_code":"US","type":"education","lineage":["https://openalex.org/I86519309"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nicole Osier","raw_affiliation_strings":["All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","Nicole Osier, PhD, RN, is Assistant Professor, University of Texas at Austin School of Nursing and Department of Neurology, University of Texas at Austin Dell Medical School","Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","institution_ids":[]},{"raw_affiliation_string":"Nicole Osier, PhD, RN, is Assistant Professor, University of Texas at Austin School of Nursing and Department of Neurology, University of Texas at Austin Dell Medical School","institution_ids":["https://openalex.org/I86519309"]},{"raw_affiliation_string":"Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","institution_ids":["https://openalex.org/I4210110704"]},{"raw_affiliation_string":"The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5017915765","display_name":"Karin Reuter\u2010Rice","orcid":"https://orcid.org/0000-0003-1501-8994","observed_orcids":["https://orcid.org/0000-0003-1501-8994"]},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]},{"id":"https://openalex.org/I4210110704","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210110704"]},{"id":"https://openalex.org/I4210126298","display_name":"Duke Medical Center","ror":"https://ror.org/03njmea73","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210126298","https://openalex.org/I4210144876"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Karin Reuter-Rice","raw_affiliation_strings":["All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","Corresponding author: Karin Reuter-Rice, Duke University School of Nursing, DUMC 3322, 307 Trent Drive, Durham, NC 27710 (e-mail: [email\u00a0protected])","Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"All procedures performed in this study were in accordance with the ethical standards approved by the Duke University Institutional Review Board","institution_ids":[]},{"raw_affiliation_string":"Corresponding author: Karin Reuter-Rice, Duke University School of Nursing, DUMC 3322, 307 Trent Drive, Durham, NC 27710 (e-mail: [email\u00a0protected])","institution_ids":["https://openalex.org/I170897317","https://openalex.org/I4210126298"]},{"raw_affiliation_string":"Research reported in this publication was supported by the National Institutes of Health, the Adaptive Leadership for Cognitive Affective Symptom Science ADAPT Institute of Nursing Research Center of Excellence under Award Number NINR 1P30 NR014139-01, and the Robert Wood Johnson Foundation Nurse Faculty Scholar under Award Number 71244","institution_ids":["https://openalex.org/I4210110704"]},{"raw_affiliation_string":"The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.6904,"has_fulltext":false,"cited_by_count":3,"citation_normalized_percentile":{"value":0.70181018,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":95},"biblio":{"volume":"68","issue":"2","first_page":"E11","last_page":"E20"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.8479999899864197},{"id":"https://openalex.org/keywords/pediatric-traumatic-brain-injury","display_name":"pediatric traumatic brain injury","score":0.9629999995231628},{"id":"https://openalex.org/keywords/biobanks","display_name":"biobanks","score":0.7739999890327454},{"id":"https://openalex.org/keywords/participant-recruitment","display_name":"participant recruitment","score":0.6669999957084656},{"id":"https://openalex.org/keywords/parental-consent","display_name":"parental consent","score":0.38199999928474426},{"id":"https://openalex.org/keywords/precision-health","display_name":"precision health","score":0.5720000267028809},{"id":"https://openalex.org/keywords/barriers-to-participation","display_name":"barriers to participation","score":0.515999972820282}],"concepts":[{"id":"https://openalex.org/C27158222","wikidata":"https://www.wikidata.org/wiki/Q5532422","display_name":"Generalizability theory","level":2,"score":0.7939431667327881},{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.7853333353996277},{"id":"https://openalex.org/C68122502","wikidata":"https://www.wikidata.org/wiki/Q764527","display_name":"Informed consent","level":3,"score":0.7547504901885986},{"id":"https://openalex.org/C2779171700","wikidata":"https://www.wikidata.org/wiki/Q7136783","display_name":"Parental consent","level":4,"score":0.5101452469825745},{"id":"https://openalex.org/C2780385302","wikidata":"https://www.wikidata.org/wiki/Q367158","display_name":"Protocol (science)","level":3,"score":0.5062633752822876},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5022594928741455},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.49424460530281067},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37989363074302673},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.19844889640808105},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.08889350295066833},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.08367383480072021},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000070642","descriptor_name":"Brain Injuries, Traumatic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010372","descriptor_name":"Pediatrics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true},{"descriptor_ui":"D010817","descriptor_name":"Physician-Patient Relations","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D012189","descriptor_name":"Retrospective Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true},{"descriptor_ui":"D033282","descriptor_name":"Parental Consent","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1097/nnr.0000000000000335","doi":"https://doi.org/10.1097/nnr.0000000000000335","is_oa":false,"landing_page_url":"https://doi.org/10.1097/nnr.0000000000000335","pdf_url":null,"source":{"id":"https://openalex.org/S57227388","display_name":"Nursing Research","issn_l":"0029-6562","issn":["0029-6562","1538-9847"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Nursing Research","raw_type":"journal-article"},{"id":"pmid:30829926","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/30829926","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Nursing research","raw_type":"Journal Article"},{"id":"pmh:oai:europepmc.org:5990208","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6400301","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:6400301","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6400301","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Nurs Res","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:europepmc.org:5990208","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6400301","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"Text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9789000153541565,"display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[],"study_designs":[],"awards":[{"id":"https://openalex.org/G1070225855","display_name":"Center for Adaptive Leadership in Symptom Science","funder_award_id":"4p30nr014139-05","funder_id":"https://openalex.org/F4320332161","funder_display_name":"National Institutes of Health"},{"id":"https://openalex.org/G79987432","display_name":null,"funder_award_id":"/P30 NR014139","funder_id":"https://openalex.org/F4320337353","funder_display_name":"National Institute of Nursing Research"}],"funders":[{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337353","display_name":"National Institute of Nursing Research","ror":"https://ror.org/01y3zfr79"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":37,"referenced_works":["https://openalex.org/W1490883923","https://openalex.org/W1995273920","https://openalex.org/W2027244049","https://openalex.org/W2030267707","https://openalex.org/W2032139455","https://openalex.org/W2045663952","https://openalex.org/W2051065193","https://openalex.org/W2052691157","https://openalex.org/W2086230970","https://openalex.org/W2087799514","https://openalex.org/W2089433450","https://openalex.org/W2106658292","https://openalex.org/W2122894279","https://openalex.org/W2126916787","https://openalex.org/W2143851427","https://openalex.org/W2153566674","https://openalex.org/W2159910364","https://openalex.org/W2166395296","https://openalex.org/W2168845777","https://openalex.org/W2257998514","https://openalex.org/W2477496347","https://openalex.org/W2496715541","https://openalex.org/W2506793933","https://openalex.org/W2514476884","https://openalex.org/W2519442629","https://openalex.org/W2561815839","https://openalex.org/W2597767405","https://openalex.org/W2736532569","https://openalex.org/W2741120766","https://openalex.org/W2743655632","https://openalex.org/W2758502635","https://openalex.org/W2770506401","https://openalex.org/W2795466123","https://openalex.org/W2796040354","https://openalex.org/W2861713976","https://openalex.org/W2883138399","https://openalex.org/W2915146854"],"related_works":["https://openalex.org/W2806988939","https://openalex.org/W3038605267","https://openalex.org/W4392606724","https://openalex.org/W2889597819","https://openalex.org/W2043130957","https://openalex.org/W1975494387","https://openalex.org/W2135249941","https://openalex.org/W3165606690","https://openalex.org/W4296588475","https://openalex.org/W2181708633"],"abstract_inverted_index":{"BACKGROUND:":[0],"Precision":[1],"health":[2],"relies":[3],"on":[4],"large":[5],"sample":[6],"sizes":[7],"to":[8,20,33,45,67,91,120,163,186,193,219,230,234,243],"ensure":[9],"adequate":[10],"power,":[11],"generalizability,":[12],"and":[13,61,111,143,200,212,215,239],"replicability;":[14],"however,":[15],"a":[16,41,82,224,236],"critical":[17],"first":[18],"step":[19],"any":[21],"study":[22,31,43,84],"is":[23],"the":[24,36,46,101,108,113,134,206,209],"successful":[25],"recruitment":[26],"of":[27,79,130,145,154,208,227],"participants.":[28],"OBJECTIVES:":[29],"This":[30],"seeks":[32],"explore":[34,92],"how":[35],"enrollment":[37],"strategies":[38],"used":[39,57],"in":[40,58],"parent":[42,83],"contributed":[44],"high":[47,86],"consent":[48,68,87,95,114,246],"rates,":[49],"establish":[50],"current":[51],"best":[52,221],"practices":[53],"that":[54,65,181,248],"can":[55,252],"be":[56,253],"future":[59],"studies,":[60],"identify":[62,231],"additional":[63],"factors":[64,93],"contribute":[66],"into":[69,96,166],"pediatric":[70,168],"traumatic":[71,169],"brain":[72,170],"injury":[73,171],"biobanks.":[74],"METHODS:":[75],"Retrospective":[76],"secondary":[77],"analysis":[78],"data":[80,156,229],"from":[81],"with":[85,147],"rates":[88],"was":[89],"examined":[90],"affecting":[94],"biobanking":[97],"studies.":[98],"RESULTS:":[99],"Of":[100],"76":[102],"subjects":[103],"who":[104,132],"were":[105,159,175],"approached,":[106],"met":[107,133],"eligibility":[109,135,149],"criteria,":[110],"reviewed":[112],"form,":[115],"only":[116,195],"16":[117],"(21.1%)":[118],"declined":[119],"participate.":[121],"The":[122],"consented":[123],"group":[124],"(n":[125,140,150],"=":[126,141,151],"60)":[127],"represents":[128],"64.5%":[129],"those":[131,146],"criteria":[136],"upon":[137],"initial":[138],"screening":[139,155],"93)":[142],"78.9%":[144],"confirmed":[148],"76).":[152],"Analysis":[153],"suggested":[157],"there":[158],"no":[160,176],"major":[161],"barriers":[162],"consenting":[164,241],"individuals":[165],"this":[167],"biobank.":[172],"DISCUSSION:":[173],"There":[174],"demographic":[177],"or":[178],"research-related":[179],"characteristics":[180],"significantly":[182],"explained":[183],"enrollment.":[184],"Ethically,":[185],"obtain":[187,244],"true":[188],"informed":[189,245],"consent,":[190],"parents":[191],"need":[192,218],"understand":[194],"their":[196],"child's":[197],"diagnosis,":[198],"prognosis,":[199],"medical":[201],"care,":[202],"as":[203,205],"well":[204],"purpose":[207],"proposed":[210],"research":[211],"its":[213],"risks":[214],"benefits.":[216],"Researchers":[217],"implement":[220],"practices,":[222],"including":[223],"comprehensive":[225],"review":[226],"census":[228],"eligible":[232],"participants":[233],"approach,":[235],"prescreening":[237],"protocol,":[238],"effective":[240],"process":[242],"so":[247],"precision":[249],"care":[250],"initiatives":[251],"pursued.":[254]},"counts_by_year":[{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2019-03-11T00:00:00"}
