{"id":"https://openalex.org/W2914320375","doi":"https://doi.org/10.1002/bdr2.1474","title":"A proposal for the systematic assessment of data quality indicators in birth defects surveillance","display_name":"A proposal for the systematic assessment of data quality indicators in birth defects surveillance","publication_year":2019,"publication_date":"2019-02-11","ids":{"openalex":"https://openalex.org/W2914320375","doi":"https://doi.org/10.1002/bdr2.1474","mag":"2914320375","pmid":"https://pubmed.ncbi.nlm.nih.gov/30746866"},"language":"en","primary_location":{"id":"doi:10.1002/bdr2.1474","doi":"https://doi.org/10.1002/bdr2.1474","is_oa":false,"landing_page_url":"https://doi.org/10.1002/bdr2.1474","pdf_url":null,"source":{"id":"https://openalex.org/S23975315","display_name":"Birth Defects Research","issn_l":"2472-1727","issn":["2472-1727"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth Defects Research","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5005173636","display_name":"Boris Groisman","orcid":"https://orcid.org/0000-0001-6263-2562","observed_orcids":["https://orcid.org/0000-0001-6263-2562"]},"institutions":[{"id":"https://openalex.org/I151201029","display_name":"Consejo Nacional de Investigaciones Cient\u00edficas y T\u00e9cnicas","ror":"https://ror.org/03cqe8w59","country_code":"AR","type":"government","lineage":["https://openalex.org/I151201029","https://openalex.org/I4210123736","https://openalex.org/I4387155568"]},{"id":"https://openalex.org/I4210110275","display_name":"Ministerio de Salud","ror":"https://ror.org/024h8p458","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210110275"]},{"id":"https://openalex.org/I4210113115","display_name":"Administraci\u00f3n Nacional de Laboratorios e Institutos de Salud","ror":"https://ror.org/024hqjk04","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210113115"]}],"countries":["AR"],"is_corresponding":true,"raw_author_name":"Boris Groisman","raw_affiliation_strings":["National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","National Scientific and Technical Reasearch Council- (CONICET), Buenos Aires, Argentina"],"raw_orcid":"https://orcid.org/0000-0001-6263-2562","affiliations":[{"raw_affiliation_string":"National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","institution_ids":["https://openalex.org/I4210110275","https://openalex.org/I4210113115"]},{"raw_affiliation_string":"National Scientific and Technical Reasearch Council- (CONICET), Buenos Aires, Argentina","institution_ids":["https://openalex.org/I151201029"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5084787851","display_name":"Pierpaolo Mastroiacovo","orcid":"https://orcid.org/0000-0002-8318-8664","observed_orcids":["https://orcid.org/0000-0002-8318-8664"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Pierpaolo Mastroiacovo","raw_affiliation_strings":["International Centre on Birth Defects (ICBD), Rome, Italy"],"raw_orcid":"https://orcid.org/0000-0002-8318-8664","affiliations":[{"raw_affiliation_string":"International Centre on Birth Defects (ICBD), Rome, Italy","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088951299","display_name":"Pablo Barbero","orcid":"https://orcid.org/0000-0002-6026-744X","observed_orcids":["https://orcid.org/0000-0002-6026-744X"]},"institutions":[{"id":"https://openalex.org/I4210110275","display_name":"Ministerio de Salud","ror":"https://ror.org/024h8p458","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210110275"]},{"id":"https://openalex.org/I4210113115","display_name":"Administraci\u00f3n Nacional de Laboratorios e Institutos de Salud","ror":"https://ror.org/024hqjk04","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210113115"]}],"countries":["AR"],"is_corresponding":false,"raw_author_name":"Pablo Barbero","raw_affiliation_strings":["National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina"],"raw_orcid":"https://orcid.org/0000-0002-6026-744X","affiliations":[{"raw_affiliation_string":"National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","institution_ids":["https://openalex.org/I4210110275","https://openalex.org/I4210113115"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047023405","display_name":"Mar\u00eda Paz Bidondo","orcid":"https://orcid.org/0000-0002-4792-4775","observed_orcids":["https://orcid.org/0000-0002-4792-4775"]},"institutions":[{"id":"https://openalex.org/I4210110275","display_name":"Ministerio de Salud","ror":"https://ror.org/024h8p458","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210110275"]},{"id":"https://openalex.org/I4210113115","display_name":"Administraci\u00f3n Nacional de Laboratorios e Institutos de Salud","ror":"https://ror.org/024hqjk04","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210113115"]}],"countries":["AR"],"is_corresponding":false,"raw_author_name":"Mar\u00eda Paz Bidondo","raw_affiliation_strings":["National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina"],"raw_orcid":"https://orcid.org/0000-0002-4792-4775","affiliations":[{"raw_affiliation_string":"National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","institution_ids":["https://openalex.org/I4210110275","https://openalex.org/I4210113115"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081558101","display_name":"Rosa Liascovich","orcid":"https://orcid.org/0000-0002-7953-3197","observed_orcids":["https://orcid.org/0000-0002-7953-3197"]},"institutions":[{"id":"https://openalex.org/I151201029","display_name":"Consejo Nacional de Investigaciones Cient\u00edficas y T\u00e9cnicas","ror":"https://ror.org/03cqe8w59","country_code":"AR","type":"government","lineage":["https://openalex.org/I151201029","https://openalex.org/I4210123736","https://openalex.org/I4387155568"]},{"id":"https://openalex.org/I4210110275","display_name":"Ministerio de Salud","ror":"https://ror.org/024h8p458","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210110275"]},{"id":"https://openalex.org/I4210113115","display_name":"Administraci\u00f3n Nacional de Laboratorios e Institutos de Salud","ror":"https://ror.org/024hqjk04","country_code":"AR","type":"government","lineage":["https://openalex.org/I4210113115"]}],"countries":["AR"],"is_corresponding":false,"raw_author_name":"Rosa Liascovich","raw_affiliation_strings":["National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","National Scientific and Technical Reasearch Council- (CONICET), Buenos Aires, Argentina"],"raw_orcid":"https://orcid.org/0000-0002-7953-3197","affiliations":[{"raw_affiliation_string":"National Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics, National Administration of Health Laboratories and Institutes, National Ministry of Health, Buenos Aires, Argentina","institution_ids":["https://openalex.org/I4210110275","https://openalex.org/I4210113115"]},{"raw_affiliation_string":"National Scientific and Technical Reasearch Council- (CONICET), Buenos Aires, Argentina","institution_ids":["https://openalex.org/I151201029"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5043230326","display_name":"Lorenzo D. Botto","orcid":"https://orcid.org/0000-0002-5322-7116","observed_orcids":["https://orcid.org/0000-0002-5322-7116"]},"institutions":[{"id":"https://openalex.org/I223532165","display_name":"University of Utah","ror":"https://ror.org/03r0ha626","country_code":"US","type":"education","lineage":["https://openalex.org/I223532165"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lorenzo D. Botto","raw_affiliation_strings":["Division of Medical Genetics, University of Utah, Salt Lake City, Utah","International Centre on Birth Defects (ICBD), Rome, Italy"],"raw_orcid":"https://orcid.org/0000-0002-5322-7116","affiliations":[{"raw_affiliation_string":"Division of Medical Genetics, University of Utah, Salt Lake City, Utah","institution_ids":["https://openalex.org/I223532165"]},{"raw_affiliation_string":"International Centre on Birth Defects (ICBD), Rome, Italy","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5005173636"],"corresponding_institution_ids":["https://openalex.org/I151201029","https://openalex.org/I4210110275","https://openalex.org/I4210113115"],"apc_list":{"value":3200,"currency":"USD","value_usd":3200},"apc_paid":null,"fwci":0.8175,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.78401958,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":94},"biblio":{"volume":"111","issue":"6","first_page":"324","last_page":"332"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.6772000193595886,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T14400","display_name":"Medical Coding and Health Information","score":0.6772000193595886,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11819","display_name":"Data-Driven Disease Surveillance","score":0.15109999477863312,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12716","display_name":"Congenital Anomalies and Fetal Surgery","score":0.07000000029802322,"subfield":{"id":"https://openalex.org/subfields/2746","display_name":"Surgery"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/data-quality-metrics","display_name":"data quality metrics","score":0.9829999804496765},{"id":"https://openalex.org/keywords/birth-defect-surveillance","display_name":"birth defects surveillance","score":0.9980000257492065},{"id":"https://openalex.org/keywords/ascertainment","display_name":"ascertainment","score":0.7480000257492065},{"id":"https://openalex.org/keywords/quality-improvement","display_name":"quality improvement","score":0.7609999775886536},{"id":"https://openalex.org/keywords/resource-limited-settings","display_name":"resource-limited settings","score":0.9120000004768372},{"id":"https://openalex.org/keywords/congenital-malformations","display_name":"congenital malformations","score":0.7319999933242798}],"concepts":[{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.567615270614624},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.5243313908576965},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.4845665991306305},{"id":"https://openalex.org/C71405471","wikidata":"https://www.wikidata.org/wiki/Q757012","display_name":"Quality management","level":3,"score":0.4475739598274231},{"id":"https://openalex.org/C206345919","wikidata":"https://www.wikidata.org/wiki/Q20380951","display_name":"Resource (disambiguation)","level":2,"score":0.4372914433479309},{"id":"https://openalex.org/C21547014","wikidata":"https://www.wikidata.org/wiki/Q1423657","display_name":"Operations management","level":1,"score":0.13808804750442505},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.13359615206718445},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.07848262786865234},{"id":"https://openalex.org/C31258907","wikidata":"https://www.wikidata.org/wiki/Q1301371","display_name":"Computer network","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C198783460","wikidata":"https://www.wikidata.org/wiki/Q629173","display_name":"Management system","level":2,"score":0.0}],"mesh":[{"descriptor_ui":"D000013","descriptor_name":"Congenital Abnormalities","qualifier_ui":"Q000175","qualifier_name":"diagnosis","is_major_topic":true},{"descriptor_ui":"D000013","descriptor_name":"Congenital Abnormalities","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D000068598","descriptor_name":"Data Accuracy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D001118","descriptor_name":"Argentina","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011159","descriptor_name":"Population Surveillance","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D019984","descriptor_name":"Quality Indicators, Health Care","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.1002/bdr2.1474","doi":"https://doi.org/10.1002/bdr2.1474","is_oa":false,"landing_page_url":"https://doi.org/10.1002/bdr2.1474","pdf_url":null,"source":{"id":"https://openalex.org/S23975315","display_name":"Birth Defects Research","issn_l":"2472-1727","issn":["2472-1727"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-20","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth Defects Research","raw_type":"journal-article"},{"id":"pmid:30746866","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/30746866","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Birth defects research","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.8199999928474426}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":20,"referenced_works":["https://openalex.org/W944351916","https://openalex.org/W1583082789","https://openalex.org/W1909459825","https://openalex.org/W2011584846","https://openalex.org/W2016430253","https://openalex.org/W2036496695","https://openalex.org/W2051449346","https://openalex.org/W2071264152","https://openalex.org/W2136243502","https://openalex.org/W2163180962","https://openalex.org/W2178297453","https://openalex.org/W2337135418","https://openalex.org/W2397457170","https://openalex.org/W2485800006","https://openalex.org/W2557273214","https://openalex.org/W2790893223","https://openalex.org/W2883284210","https://openalex.org/W2972214123","https://openalex.org/W4240498669","https://openalex.org/W4250639036"],"related_works":["https://openalex.org/W2913550365","https://openalex.org/W1909459825","https://openalex.org/W4407117716","https://openalex.org/W2905391828","https://openalex.org/W2007029378","https://openalex.org/W2557273214","https://openalex.org/W2016430253","https://openalex.org/W2752266665","https://openalex.org/W2465580239","https://openalex.org/W337042827"],"abstract_inverted_index":{"BACKGROUND:":[0],"Quality":[1],"control":[2],"and":[3,54,79,96,140,143],"improvement":[4],"are":[5,21],"a":[6,32,38,128],"key":[7,22],"part":[8],"of":[9,12,40,44,70,76,120,134],"the":[10,68,132,135],"implementation":[11],"an":[13],"effective":[14],"surveillance":[15,94,125],"program.":[16],"Data":[17],"quality":[18,42,69,133,145],"indicators":[19,43],"(DQI)":[20],"tools":[23],"but":[24],"have":[25,85],"not":[26],"been":[27],"widely":[28,65],"used,":[29],"especially":[30],"in":[31,112,124],"low-resource":[33],"setting.":[34],"METHODS:":[35],"We":[36,57,116],"developed":[37,58],"list":[39,119],"data":[41,71,103],"birth":[45,74],"defects":[46,75],"surveillance.":[47],"These":[48],"DQI":[49,60,84,121],"address":[50],"ascertainment,":[51],"description,":[52],"coding,":[53],"classification.":[55],"RESULTS:":[56],"40":[59],"that":[61,106],"can":[62,108],"be":[63,87,109],"used":[64,110],"to":[66,73,86,130],"assess":[67,91],"relative":[72],"major":[77],"clinical":[78],"public":[80],"health":[81],"impact.":[82],"CONCLUSIONS:":[83],"both":[88],"comprehensive":[89],"(e.g.,":[90],"all":[92],"main":[93],"processes)":[95],"practical":[97],"(not":[98],"require":[99],"sophisticated":[100],"or":[101],"costly":[102],"elements),":[104],"so":[105],"they":[107],"effectively":[111],"many":[113],"different":[114],"settings.":[115],"propose":[117],"this":[118],"for":[122],"use":[123],"program":[126],"as":[127],"way":[129],"document":[131],"program;":[136],"detect":[137],"variations":[138],"within":[139],"between":[141],"programs,":[142],"support":[144],"improvements.":[146]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2019-02-21T00:00:00"}