{"id":"https://openalex.org/W2902356852","doi":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","title":"Frustration and distress during treatment for advanced renal cell carcinoma.","display_name":"Frustration and distress during treatment for advanced renal cell carcinoma.","publication_year":2018,"publication_date":"2018-11-28","ids":{"openalex":"https://openalex.org/W2902356852","doi":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","mag":"2902356852"},"language":"en","primary_location":{"id":"doi:10.1200/jco.2018.36.34_suppl.47","doi":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","is_oa":false,"landing_page_url":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","pdf_url":null,"source":{"id":"https://openalex.org/S15137598","display_name":"Journal of Clinical Oncology","issn_l":"0732-183X","issn":["0732-183X","1527-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Oncology","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5020417976","display_name":"Cristiane Decat Bergerot","orcid":"https://orcid.org/0000-0003-0037-0303","observed_orcids":["https://orcid.org/0000-0003-0037-0303"]},"institutions":[{"id":"https://openalex.org/I88273585","display_name":"Universidade Federal de S\u00e3o Paulo","ror":"https://ror.org/02k5swt12","country_code":"BR","type":"education","lineage":["https://openalex.org/I88273585"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Cristiane Decat Bergerot","raw_affiliation_strings":["Universidade Federal de S\u00e3o Paulo (UNIFESP), S\u00e3o Paulo, Brazil;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Universidade Federal de S\u00e3o Paulo (UNIFESP), S\u00e3o Paulo, Brazil;","institution_ids":["https://openalex.org/I88273585"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047602239","display_name":"Dena J. Battle","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4405268264","display_name":"Kidney Cancer Research Alliance","ror":"https://ror.org/00cr6dj68","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4405268264"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dena Battle","raw_affiliation_strings":["KCCure, Alexandria, VA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"KCCure, Alexandria, VA;","institution_ids":["https://openalex.org/I4405268264"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074270502","display_name":"Paulo Gustavo Bergerot","orcid":"https://orcid.org/0000-0001-5770-324X","observed_orcids":["https://orcid.org/0000-0001-5770-324X"]},"institutions":[{"id":"https://openalex.org/I4210110459","display_name":"City of Hope","ror":"https://ror.org/01z1vct10","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528","https://openalex.org/I4210110459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Paulo Gustavo Bergerot","raw_affiliation_strings":["City of Hope Comprehensive Cancer Center, Monrovia, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope Comprehensive Cancer Center, Monrovia, CA;","institution_ids":["https://openalex.org/I4210110459"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020223699","display_name":"Daniel J. George","orcid":"https://orcid.org/0000-0003-1499-7203","observed_orcids":["https://orcid.org/0000-0003-1499-7203","https://orcid.org/0000-0002-0836-8542"]},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel J. George","raw_affiliation_strings":["Duke University, Durham, NC;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Duke University, Durham, NC;","institution_ids":["https://openalex.org/I170897317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103085920","display_name":"Hans J. Hammers","orcid":"https://orcid.org/0000-0002-6224-4559","observed_orcids":["https://orcid.org/0000-0002-6224-4559"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I4210164401","display_name":"Sidney Kimmel Comprehensive Cancer Center","ror":"https://ror.org/05m5b8x20","country_code":"US","type":"facility","lineage":["https://openalex.org/I2799853436","https://openalex.org/I4210164401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hans J. Hammers","raw_affiliation_strings":["Johns Hopkins University Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Johns Hopkins University Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD;","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I4210164401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5007689146","display_name":"Eric W. Jonasch","orcid":"https://orcid.org/0000-0003-0943-2806","observed_orcids":["https://orcid.org/0000-0003-0943-2806"]},"institutions":[{"id":"https://openalex.org/I1343551460","display_name":"The University of Texas MD Anderson Cancer Center","ror":"https://ror.org/04twxam07","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1343551460"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eric Jonasch","raw_affiliation_strings":["The University of Texas MD Anderson Cancer Center, Houston, TX;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The University of Texas MD Anderson Cancer Center, Houston, TX;","institution_ids":["https://openalex.org/I1343551460"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029542738","display_name":"B\u00f6rje Ljungberg","orcid":"https://orcid.org/0000-0002-4121-3753","observed_orcids":["https://orcid.org/0000-0002-4121-3753"]},"institutions":[{"id":"https://openalex.org/I90267481","display_name":"Ume\u00e5 University","ror":"https://ror.org/05kb8h459","country_code":"SE","type":"education","lineage":["https://openalex.org/I90267481"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Borje Ljungberg","raw_affiliation_strings":["Ume\u00e5 University, Ume\u00e5, Sweden;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Ume\u00e5 University, Ume\u00e5, Sweden;","institution_ids":["https://openalex.org/I90267481"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068678186","display_name":"Axel Bex","orcid":"https://orcid.org/0000-0002-8499-2662","observed_orcids":["https://orcid.org/0000-0002-8499-2662"]},"institutions":[{"id":"https://openalex.org/I2898336195","display_name":"The Netherlands Cancer Institute","ror":"https://ror.org/03xqtf034","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2898336195"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Axel Bex","raw_affiliation_strings":["The Netherlands Cancer Institute, Amsterdam, Netherlands;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The Netherlands Cancer Institute, Amsterdam, Netherlands;","institution_ids":["https://openalex.org/I2898336195"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090821229","display_name":"Nazl\u0131 Dizman","orcid":"https://orcid.org/0000-0002-3907-8513","observed_orcids":["https://orcid.org/0000-0002-3907-8513"]},"institutions":[{"id":"https://openalex.org/I1301076528","display_name":"City Of Hope National Medical Center","ror":"https://ror.org/00w6g5w60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nazli Dizman","raw_affiliation_strings":["City of Hope Comprehensive Cancer Center, Duarte, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope Comprehensive Cancer Center, Duarte, CA;","institution_ids":["https://openalex.org/I1301076528"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091833311","display_name":"Michael D. Staehler","orcid":"https://orcid.org/0000-0002-4574-6522","observed_orcids":["https://orcid.org/0000-0002-4574-6522"]},"institutions":[{"id":"https://openalex.org/I8204097","display_name":"Ludwig-Maximilians-Universit\u00e4t M\u00fcnchen","ror":"https://ror.org/05591te55","country_code":"DE","type":"education","lineage":["https://openalex.org/I8204097"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Michael D. Staehler","raw_affiliation_strings":["University Hospital Munich-Grosshadern, Ludwig Maximilian University, Munich, Germany;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Hospital Munich-Grosshadern, Ludwig Maximilian University, Munich, Germany;","institution_ids":["https://openalex.org/I8204097"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5041033274","display_name":"Sumanta Kumar Pal","orcid":"https://orcid.org/0000-0002-1712-0848","observed_orcids":["https://orcid.org/0000-0002-1712-0848"]},"institutions":[{"id":"https://openalex.org/I1301076528","display_name":"City Of Hope National Medical Center","ror":"https://ror.org/00w6g5w60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sumanta K. Pal","raw_affiliation_strings":["City of Hope, Duarte, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope, Duarte, CA;","institution_ids":["https://openalex.org/I1301076528"]}]}],"institutions":[],"countries_distinct_count":5,"institutions_distinct_count":11,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":3,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"36","issue":"34_suppl","first_page":"47","last_page":"47"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.8759999871253967,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.8759999871253967,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10449","display_name":"Renal cell carcinoma treatment","score":0.10989999771118164,"subfield":{"id":"https://openalex.org/subfields/2740","display_name":"Pulmonary and Respiratory Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12708","display_name":"Economic and Financial Impacts of Cancer","score":0.0019000000320374966,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/advanced-renal-cell-carcinoma","display_name":"advanced renal cell carcinoma","score":0.9990000128746033},{"id":"https://openalex.org/keywords/patient-frustration","display_name":"patient frustration","score":0.9739999771118164},{"id":"https://openalex.org/keywords/psychological-distress","display_name":"psychological distress","score":0.7210000157356262},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.4659999907016754},{"id":"https://openalex.org/keywords/fear-of-progression","display_name":"fear of progression","score":0.906000018119812},{"id":"https://openalex.org/keywords/patient-physician-communication","display_name":"patient-physician communication","score":0.7509999871253967},{"id":"https://openalex.org/keywords/financial-concerns","display_name":"financial concerns","score":0.8220000267028809},{"id":"https://openalex.org/keywords/psychosocial-support","display_name":"psychosocial support","score":0.8159999847412109},{"id":"https://openalex.org/keywords/non-clear-cell-renal-cell-carcinoma","display_name":"non-clear cell renal cell carcinoma","score":0.8759999871253967},{"id":"https://openalex.org/keywords/treatment-side-effects","display_name":"treatment side effects","score":0.6729999780654907}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.771735668182373},{"id":"https://openalex.org/C139265228","wikidata":"https://www.wikidata.org/wiki/Q5283089","display_name":"Distress","level":2,"score":0.67743980884552},{"id":"https://openalex.org/C38710091","wikidata":"https://www.wikidata.org/wiki/Q192242","display_name":"Frustration","level":2,"score":0.49583467841148376},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.4801430404186249},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.47647330164909363},{"id":"https://openalex.org/C2778321746","wikidata":"https://www.wikidata.org/wiki/Q621922","display_name":"Distrust","level":2,"score":0.44351309537887573},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.31448110938072205},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.2974284887313843},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.13854679465293884},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.12067610025405884},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.10935720801353455},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1200/jco.2018.36.34_suppl.47","doi":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","is_oa":false,"landing_page_url":"https://doi.org/10.1200/jco.2018.36.34_suppl.47","pdf_url":null,"source":{"id":"https://openalex.org/S15137598","display_name":"Journal of Clinical Oncology","issn_l":"0732-183X","issn":["0732-183X","1527-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Oncology","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9922999739646912,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2891213657","https://openalex.org/W2912054109","https://openalex.org/W3008719120","https://openalex.org/W3087696731","https://openalex.org/W4387812044","https://openalex.org/W2809611526","https://openalex.org/W4307940478","https://openalex.org/W2894199998","https://openalex.org/W2998336142","https://openalex.org/W2094450289"],"abstract_inverted_index":{"47":[0],"Background:":[1],"Treatment":[2],"strategies":[3],"for":[4],"advanced":[5],"renal":[6],"cell":[7,166,262],"carcinoma":[8],"(aRCC)":[9],"have":[10],"improved":[11],"over":[12],"the":[13,25,115,134,141,170,203],"past":[14],"15":[15],"years.":[16],"Durable":[17],"responses":[18,125],"are":[19,43],"now":[20],"achievable,":[21],"giving":[22],"rise":[23],"to":[24,53,82,108,123,127,139,200,241,300,303],"possibility":[26],"of":[27,33,49,56,69,88,148,178,187,193,202,209,213,230,235,247,254,270,282,295,311],"cure":[28],"in":[29,191],"a":[30,66],"small":[31],"proportion":[32],"this":[34],"population.":[35],"However,":[36],"it":[37],"is":[38],"not":[39],"clear":[40],"how":[41],"patients":[42,59,154,304,327],"coping":[44],"with":[45,61,155,251,260,277,286,328],"more":[46,264],"protracted":[47],"courses":[48],"treatment.":[50,290],"We":[51,64,85,111,151],"sought":[52],"determine":[54],"sources":[55,147],"frustration":[57,89,188,248,271,285,296,325],"among":[58],"diagnosed":[60],"aRCC.":[62,156,329],"Methods:":[63],"performed":[65,122],"cross-sectional":[67],"analysis":[68,120],"data":[70],"derived":[71],"from":[72,80],"an":[73,91,267],"online":[74],"survey":[75],"distributed":[76],"via":[77],"social":[78],"media":[79],"April":[81],"June,":[83],"2017.":[84],"assessed":[86,112],"source":[87,269],"using":[90,114],"open-ended":[92],"question:":[93],"\u201cIn":[94],"your":[95,104,109],"own":[96],"words,":[97],"what":[98],"has":[99],"frustrated":[100],"you":[101],"most":[102,171,197,292],"about":[103],"medical":[105],"care":[106,205,243],"related":[107,126,199],"diagnosis?\u201d.":[110],"distress":[113,179,255,283],"Distress":[116],"Thermometer.":[117],"Qualitative":[118],"content":[119],"was":[121,131,137,169],"characterize":[124],"frustration.":[128,149],"Descriptive":[129],"statistics":[130],"generated":[132],"and":[133,146,162,195,222,239,284,289,305,314,319],"Kruskal-Wallis":[135],"test":[136],"used":[138],"explore":[140],"relationship":[142],"between":[143,220],"clinical":[144],"characteristics":[145],"Results:":[150],"enrolled":[152],"217":[153],"The":[157,291],"majority":[158],"were":[159,189,196,249],"male":[160],"(52.3%),":[161],"white":[163],"(93.5%).":[164],"Clear":[165],"histology":[167],"(84.2%)":[168],"common":[172],"diagnosis.":[173],"Patients":[174,259,276],"reported":[175,266],"high":[176,280],"levels":[177,246,253,281],"(M":[180],"=":[181,184,257,273],"6.4;":[182],"SD":[183],"2.8).":[185],"Sources":[186],"documented":[190],"71.9%":[192],"patients,":[194],"commonly":[198,265],"distrust":[201],"cancer":[204],"system":[206],"(12.4%),":[207],"fear":[208],"progression":[210],"(11.5%),":[211],"lack":[212,229],"information":[214],"(11.1%),":[215],"financial":[216,317],"concerns":[217,318],"(9.7%),":[218],"communication":[219],"patient":[221],"physician":[223],"(7.8%),":[224],"treatment":[225],"side":[226],"effects":[227],"(4.6%),":[228],"available":[231],"research":[232],"(4.1%),":[233,238],"mistrust":[234],"physician\u2019s":[236],"knowledge":[237],"access":[240],"supportive":[242],"(2.8%).":[244],"Higher":[245],"associated":[250],"higher":[252],"(P":[256,272],"0.01).":[258],"non-clear":[261],"RCC":[263],"emotional":[268],"0.02).":[274],"Conclusions:":[275],"aRCC":[278],"report":[279],"their":[287,306,312],"diagnosis":[288],"frequent":[293],"drivers":[294],"can":[297],"suggest":[298],"opportunities":[299],"maximize":[301],"support":[302,322],"families.":[307],"A":[308],"better":[309],"understanding":[310],"disease":[313],"prognosis,":[315],"addressing":[316],"offering":[320],"psychosocial":[321],"may":[323],"alleviate":[324],"amongst":[326]},"counts_by_year":[{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":2}],"updated_date":"2026-11-03T10:50:19.383937","created_date":"2018-12-11T00:00:00"}