{"id":"https://openalex.org/W2891213657","doi":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","title":"Patient-reported frustrations in renal cell carcinoma (RCC) care delivery: Results of a joint European Association of Urology (EAU)/KCCure survey.","display_name":"Patient-reported frustrations in renal cell carcinoma (RCC) care delivery: Results of a joint European Association of Urology (EAU)/KCCure survey.","publication_year":2018,"publication_date":"2018-05-20","ids":{"openalex":"https://openalex.org/W2891213657","doi":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","mag":"2891213657"},"language":"en","primary_location":{"id":"doi:10.1200/jco.2018.36.15_suppl.4570","doi":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","is_oa":false,"landing_page_url":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","pdf_url":null,"source":{"id":"https://openalex.org/S15137598","display_name":"Journal of Clinical Oncology","issn_l":"0732-183X","issn":["0732-183X","1527-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Oncology","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5020417976","display_name":"Cristiane Decat Bergerot","orcid":"https://orcid.org/0000-0003-0037-0303","observed_orcids":["https://orcid.org/0000-0003-0037-0303"]},"institutions":[{"id":"https://openalex.org/I4210110459","display_name":"City of Hope","ror":"https://ror.org/01z1vct10","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528","https://openalex.org/I4210110459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Cristiane Decat Bergerot","raw_affiliation_strings":["City of Hope Comprehensive Cancer Center, Monrovia, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope Comprehensive Cancer Center, Monrovia, CA;","institution_ids":["https://openalex.org/I4210110459"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047602239","display_name":"Dena J. Battle","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4405268264","display_name":"Kidney Cancer Research Alliance","ror":"https://ror.org/00cr6dj68","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4405268264"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Dena Battle","raw_affiliation_strings":["KCCure, Alexandria, VA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"KCCure, Alexandria, VA;","institution_ids":["https://openalex.org/I4405268264"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074270502","display_name":"Paulo Gustavo Bergerot","orcid":"https://orcid.org/0000-0001-5770-324X","observed_orcids":["https://orcid.org/0000-0001-5770-324X"]},"institutions":[{"id":"https://openalex.org/I4210110459","display_name":"City of Hope","ror":"https://ror.org/01z1vct10","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528","https://openalex.org/I4210110459"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Paulo Gustavo Bergerot","raw_affiliation_strings":["City of Hope Comprehensive Cancer Center, Monrovia, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope Comprehensive Cancer Center, Monrovia, CA;","institution_ids":["https://openalex.org/I4210110459"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020223699","display_name":"Daniel J. George","orcid":"https://orcid.org/0000-0003-1499-7203","observed_orcids":["https://orcid.org/0000-0003-1499-7203","https://orcid.org/0000-0002-0836-8542"]},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Daniel J. George","raw_affiliation_strings":["Duke University, Durham, NC;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Duke University, Durham, NC;","institution_ids":["https://openalex.org/I170897317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103085920","display_name":"Hans J. Hammers","orcid":"https://orcid.org/0000-0002-6224-4559","observed_orcids":["https://orcid.org/0000-0002-6224-4559"]},"institutions":[{"id":"https://openalex.org/I145311948","display_name":"Johns Hopkins University","ror":"https://ror.org/00za53h95","country_code":"US","type":"education","lineage":["https://openalex.org/I145311948"]},{"id":"https://openalex.org/I4210164401","display_name":"Sidney Kimmel Comprehensive Cancer Center","ror":"https://ror.org/05m5b8x20","country_code":"US","type":"facility","lineage":["https://openalex.org/I2799853436","https://openalex.org/I4210164401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hans J. Hammers","raw_affiliation_strings":["Johns Hopkins University Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Johns Hopkins University Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD;","institution_ids":["https://openalex.org/I145311948","https://openalex.org/I4210164401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5007689146","display_name":"Eric W. Jonasch","orcid":"https://orcid.org/0000-0003-0943-2806","observed_orcids":["https://orcid.org/0000-0003-0943-2806"]},"institutions":[{"id":"https://openalex.org/I1343551460","display_name":"The University of Texas MD Anderson Cancer Center","ror":"https://ror.org/04twxam07","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1343551460"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eric Jonasch","raw_affiliation_strings":["The University of Texas MD Anderson Cancer Center, Houston, TX;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The University of Texas MD Anderson Cancer Center, Houston, TX;","institution_ids":["https://openalex.org/I1343551460"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068678186","display_name":"Axel Bex","orcid":"https://orcid.org/0000-0002-8499-2662","observed_orcids":["https://orcid.org/0000-0002-8499-2662"]},"institutions":[{"id":"https://openalex.org/I2898336195","display_name":"The Netherlands Cancer Institute","ror":"https://ror.org/03xqtf034","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I2898336195"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Axel Bex","raw_affiliation_strings":["The Netherlands Cancer Institute, Amsterdam, Netherlands;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The Netherlands Cancer Institute, Amsterdam, Netherlands;","institution_ids":["https://openalex.org/I2898336195"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029542738","display_name":"B\u00f6rje Ljungberg","orcid":"https://orcid.org/0000-0002-4121-3753","observed_orcids":["https://orcid.org/0000-0002-4121-3753"]},"institutions":[{"id":"https://openalex.org/I90267481","display_name":"Ume\u00e5 University","ror":"https://ror.org/05kb8h459","country_code":"SE","type":"education","lineage":["https://openalex.org/I90267481"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Borje Ljungberg","raw_affiliation_strings":["Ume\u00e5 University, Ume\u00e5, Sweden;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Ume\u00e5 University, Ume\u00e5, Sweden;","institution_ids":["https://openalex.org/I90267481"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090821229","display_name":"Nazl\u0131 Dizman","orcid":"https://orcid.org/0000-0002-3907-8513","observed_orcids":["https://orcid.org/0000-0002-3907-8513"]},"institutions":[{"id":"https://openalex.org/I1301076528","display_name":"City Of Hope National Medical Center","ror":"https://ror.org/00w6g5w60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nazli Dizman","raw_affiliation_strings":["City of Hope Comprehensive Cancer Center, Duarte, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope Comprehensive Cancer Center, Duarte, CA;","institution_ids":["https://openalex.org/I1301076528"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041033274","display_name":"Sumanta Kumar Pal","orcid":"https://orcid.org/0000-0002-1712-0848","observed_orcids":["https://orcid.org/0000-0002-1712-0848"]},"institutions":[{"id":"https://openalex.org/I1301076528","display_name":"City Of Hope National Medical Center","ror":"https://ror.org/00w6g5w60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1301076528"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sumanta K. Pal","raw_affiliation_strings":["City of Hope, Duarte, CA;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"City of Hope, Duarte, CA;","institution_ids":["https://openalex.org/I1301076528"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5091833311","display_name":"Michael D. Staehler","orcid":"https://orcid.org/0000-0002-4574-6522","observed_orcids":["https://orcid.org/0000-0002-4574-6522"]},"institutions":[{"id":"https://openalex.org/I8204097","display_name":"Ludwig-Maximilians-Universit\u00e4t M\u00fcnchen","ror":"https://ror.org/05591te55","country_code":"DE","type":"education","lineage":["https://openalex.org/I8204097"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Michael D. Staehler","raw_affiliation_strings":["University Hospital Munich-Grosshadern, Ludwig Maximilian University, Munich, Germany;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Hospital Munich-Grosshadern, Ludwig Maximilian University, Munich, Germany;","institution_ids":["https://openalex.org/I8204097"]}]}],"institutions":[],"countries_distinct_count":4,"institutions_distinct_count":10,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"36","issue":"15_suppl","first_page":"4570","last_page":"4570"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.3637999892234802,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.3637999892234802,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10449","display_name":"Renal cell carcinoma treatment","score":0.3402999937534332,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.1120000034570694,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/renal-cell-carcinoma","display_name":"renal cell carcinoma","score":0.9990000128746033},{"id":"https://openalex.org/keywords/patient-frustration","display_name":"patient frustration","score":0.9679999947547913},{"id":"https://openalex.org/keywords/doctor-patient-communication","display_name":"physician-patient communication","score":0.8700000047683716},{"id":"https://openalex.org/keywords/fear-of-recurrence","display_name":"fear of recurrence","score":0.6940000057220459},{"id":"https://openalex.org/keywords/financial-burden","display_name":"financial burden","score":0.6539999842643738},{"id":"https://openalex.org/keywords/patient-information-needs","display_name":"patient information needs","score":0.6620000004768372},{"id":"https://openalex.org/keywords/psychosocial-problems","display_name":"psychosocial problems","score":0.5879999995231628},{"id":"https://openalex.org/keywords/clear-cell-histology","display_name":"clear cell histology","score":0.7229999899864197},{"id":"https://openalex.org/keywords/gender-differences","display_name":"gender differences","score":0.5580000281333923},{"id":"https://openalex.org/keywords/age-differences","display_name":"age differences","score":0.5350000262260437},{"id":"https://openalex.org/keywords/adjuvant-therapy","display_name":"adjuvant therapy","score":0.765999972820282}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7641065716743469},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.5539419651031494},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.47675806283950806},{"id":"https://openalex.org/C38710091","wikidata":"https://www.wikidata.org/wiki/Q192242","display_name":"Frustration","level":2,"score":0.44721367955207825},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.42851269245147705},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.4273456037044525},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.33426064252853394},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.25744664669036865},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.15170955657958984},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.11098745465278625},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1200/jco.2018.36.15_suppl.4570","doi":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","is_oa":false,"landing_page_url":"https://doi.org/10.1200/jco.2018.36.15_suppl.4570","pdf_url":null,"source":{"id":"https://openalex.org/S15137598","display_name":"Journal of Clinical Oncology","issn_l":"0732-183X","issn":["0732-183X","1527-7755"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-200","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Oncology","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2912054109","https://openalex.org/W2902356852","https://openalex.org/W3008719120","https://openalex.org/W4212983849","https://openalex.org/W2947872006","https://openalex.org/W3087696731","https://openalex.org/W2977404371","https://openalex.org/W2891092722","https://openalex.org/W4387812044","https://openalex.org/W4324136146"],"abstract_inverted_index":{"4570":[0],"Background:":[1],"A":[2],"joint":[3],"survey":[4,37,59,76],"was":[5,60,109,119,139,147],"developed":[6],"by":[7],"the":[8,49],"EAU":[9],"RCC":[10,28,261],"Guidelines":[11],"Panel":[12],"and":[13,71,83,111,127,141,154,183,209,252,265,282,297],"KCCure,":[14],"a":[15],"non-profit":[16],"patient":[17,22,72,308],"advocacy":[18],"group,":[19],"to":[20,42,64,121,169,278,306],"ascertain":[21],"perceptions":[23],"towards":[24],"adjuvant":[25],"therapy":[26],"for":[27,87],"(Battle":[29],"D":[30],"et":[31],"al":[32],"ASCO":[33],"GU":[34],"2018).":[35],"This":[36],"included":[38],"open-ended":[39,84],"questions":[40,85],"pertaining":[41],"sources":[43,89,104,128,164,188,218],"of":[44,51,90,105,129,165,174,180,189,193,219,223,286],"frustration":[45,91,166,190,220],"in":[46,92,176,228,302],"cancer-related":[47,93],"care,":[48],"results":[50],"which":[52],"are":[53],"summarized":[54],"herein.":[55],"Methods:":[56],"An":[57],"online":[58],"conducted":[61],"from":[62],"April":[63],"June,":[65],"2017,":[66],"publicized":[67],"through":[68],"social":[69],"media":[70],"networking":[73],"platforms.":[74],"The":[75,116,145,161],"obtained":[77],"basic":[78],"clinicopathologic,":[79],"treatment":[80],"related":[81,168],"information,":[82,194],"asking":[86],"common":[88,163,199,227],"care.":[94,291],"Patients":[95,233],"were":[96,143,167,197,225],"also":[97],"asked":[98],"how":[99],"they":[100,254],"might":[101],"reconcile":[102],"these":[103],"frustration.":[106,130,309],"Each":[107],"response":[108],"analyzed":[110],"categorized":[112],"into":[113],"descriptive":[114],"categories.":[115],"Kruskal-Wallis":[117],"test":[118],"used":[120],"define":[122],"associations":[123],"between":[124],"baseline":[125,293],"characteristics":[126,294],"Results:":[131],"Among":[132],"450":[133],"patients":[134,156,201,262,281],"with":[135,149,202],"RCC,":[136],"median":[137],"age":[138,211],"56,":[140],"56%":[142],"female.":[144],"majority":[146],"diagnosed":[148],"clear":[150],"cell":[151,204],"histology":[152,205],"(85%)":[153],"most":[155,162],"had":[157],"non-metastatic":[158],"disease":[159],"(73%).":[160],"poor":[170],"communication":[171],"(20%),":[172],"lack":[173,192],"confidence":[175],"diagnosis":[177],"(18%),":[178],"fear":[179,222],"recurrence/progression":[181],"(14%)":[182],"financial":[184,195,257],"issues":[185,258,288],"(9%).":[186],"Practical":[187],"(e.g.,":[191,221],"issues)":[196],"more":[198,226,247],"among":[200],"non-clear":[203],"(P":[206,212,230],"=":[207,213,231],"0.05)":[208],"older":[210],"0.01).":[214],"In":[215],"contrast,":[216],"emotional":[217],"recurrence/progression)":[224],"females":[229],"0.001).":[232],"posited":[234],"that":[235],"care":[236,269,304],"could":[237,255],"be":[238,284,300],"improved":[239],"if":[240,253],"physicians":[241],"demonstrated":[242],"greater":[243],"compassion":[244],"(21%),":[245],"spent":[246],"time":[248],"supplying":[249],"information":[250],"(20%)":[251],"circumvent":[256],"(11%).":[259],"Conclusions:":[260],"have":[263],"varied":[264],"multiple":[266],"concerns":[267],"around":[268],"delivery.":[270],"Based":[271],"on":[272],"this":[273],"findings,":[274],"practitioners":[275],"should":[276,283],"aim":[277],"better":[279],"inform":[280],"cognizant":[285],"psychosocial":[287],"surrounding":[289],"their":[290],"Certain":[292],"(age,":[295],"gender":[296],"histology)":[298],"can":[299],"considered":[301],"individualizing":[303],"delivery":[305],"minimize":[307]},"counts_by_year":[],"updated_date":"2026-09-29T14:09:16.559479","created_date":"2018-09-27T00:00:00"}