{"id":"https://openalex.org/W2771667582","doi":null,"title":"What a patient wants: A consumer perspective of kidney supportive care","display_name":"What a patient wants: A consumer perspective of kidney supportive care","publication_year":2017,"publication_date":"2017-01-01","ids":{"openalex":"https://openalex.org/W2771667582","mag":"2771667582"},"language":"en","primary_location":{"id":"pmh:oai:eprints.qut.edu.au:110676","doi":null,"is_oa":true,"landing_page_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","pdf_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","source":{"id":"https://openalex.org/S4306402607","display_name":"QUT ePrints (Queensland University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I160993911","host_organization_name":"Queensland University of Technology","host_organization_lineage":["https://openalex.org/I160993911"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Nephrology","raw_type":"Contribution to Journal"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5050090954","display_name":"Louise Purtell","orcid":"https://orcid.org/0000-0001-6785-0817","observed_orcids":["https://orcid.org/0000-0001-6785-0817"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Louise Purtell","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-6785-0817","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063284875","display_name":"Ilse R. Berquier","orcid":"https://orcid.org/0009-0002-3756-1402","observed_orcids":["https://orcid.org/0009-0002-3756-1402"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"I. Berquier","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5040957554","display_name":"Douglas Ca","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Douglas Ca","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110536252","display_name":"B. Taylor","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"B. Taylor","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052446369","display_name":"Katrina Kramer","orcid":"https://orcid.org/0009-0003-4990-7973","observed_orcids":["https://orcid.org/0009-0003-4990-7973"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Katrina Kramer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025764445","display_name":"Dawn Heffernan","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dawn Heffernan","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5012585280","display_name":"Wendy E. Hoy","orcid":"https://orcid.org/0000-0002-8405-1539","observed_orcids":["https://orcid.org/0000-0002-8405-1539"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Wendy E. Hoy","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0002-8405-1539","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075537135","display_name":"Ann Bonner","orcid":"https://orcid.org/0000-0001-9920-6743","observed_orcids":["https://orcid.org/0000-0001-9920-6743"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ann Bonner","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-9920-6743","affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5075454822","display_name":"Helen Grania Healy","orcid":"https://orcid.org/0000-0003-4342-5300","observed_orcids":["https://orcid.org/0000-0003-4342-5300"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Helen Healy","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0003-4342-5300","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":93},"biblio":{"volume":"22","issue":null,"first_page":"49","last_page":"49"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8320000171661377,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.8320000171661377,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10291","display_name":"Dialysis and Renal Disease Management","score":0.15970000624656677,"subfield":{"id":"https://openalex.org/subfields/2727","display_name":"Nephrology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.002899999963119626,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/kidney-supportive-care","display_name":"kidney supportive care","score":0.9990000128746033},{"id":"https://openalex.org/keywords/end-stage-renal-disease","display_name":"end-stage renal disease","score":0.9950000047683716},{"id":"https://openalex.org/keywords/patient-satisfaction","display_name":"patient satisfaction","score":0.7350000143051147},{"id":"https://openalex.org/keywords/caregiver-perspectives","display_name":"caregiver perspectives","score":0.8870000243186951},{"id":"https://openalex.org/keywords/symptom-burden","display_name":"symptom burden","score":0.7070000171661377},{"id":"https://openalex.org/keywords/advance-care-planning","display_name":"advance care planning","score":0.7429999709129333},{"id":"https://openalex.org/keywords/place-of-death","display_name":"place of death","score":0.796999990940094},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.6269999742507935},{"id":"https://openalex.org/keywords/renal-care","display_name":"renal care","score":0.5400000214576721},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.8270000219345093},{"id":"https://openalex.org/keywords/self-determination","display_name":"self-determination","score":0.7120000123977661},{"id":"https://openalex.org/keywords/dialysis-decision-making","display_name":"dialysis decision-making","score":0.7490000128746033}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8451570272445679},{"id":"https://openalex.org/C2777995714","wikidata":"https://www.wikidata.org/wiki/Q18209059","display_name":"Advance care planning","level":3,"score":0.6229099035263062},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.6175401210784912},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.6043845415115356},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.603498101234436},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.5441315174102783},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.48830461502075195},{"id":"https://openalex.org/C2775944032","wikidata":"https://www.wikidata.org/wiki/Q22907659","display_name":"Patient satisfaction","level":2,"score":0.4722442030906677},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.43096572160720825},{"id":"https://openalex.org/C2777896191","wikidata":"https://www.wikidata.org/wiki/Q22907655","display_name":"Patient experience","level":3,"score":0.4299650192260742},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4007745683193207},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.09027007222175598},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:eprints.qut.edu.au:110676","doi":null,"is_oa":true,"landing_page_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","pdf_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","source":{"id":"https://openalex.org/S4306402607","display_name":"QUT ePrints (Queensland University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I160993911","host_organization_name":"Queensland University of Technology","host_organization_lineage":["https://openalex.org/I160993911"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Nephrology","raw_type":"Contribution to Journal"},{"id":"mag:2771667582","doi":null,"is_oa":false,"landing_page_url":"https://eprints.qut.edu.au/110676/","pdf_url":null,"source":{"id":"https://openalex.org/S99619495","display_name":"Nephrology","issn_l":"1320-5358","issn":["1320-5358","1440-1797"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"Nephrology","raw_type":null}],"best_oa_location":{"id":"pmh:oai:eprints.qut.edu.au:110676","doi":null,"is_oa":true,"landing_page_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","pdf_url":"https://eprints.qut.edu.au/110676/2/110676.pdf","source":{"id":"https://openalex.org/S4306402607","display_name":"QUT ePrints (Queensland University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I160993911","host_organization_name":"Queensland University of Technology","host_organization_lineage":["https://openalex.org/I160993911"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Nephrology","raw_type":"Contribution to Journal"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2771667582.pdf","grobid_xml":"https://content.openalex.org/works/W2771667582.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4200368107","https://openalex.org/W2902579881","https://openalex.org/W4312058303","https://openalex.org/W2955382530","https://openalex.org/W2954904377","https://openalex.org/W7163562438","https://openalex.org/W7126723187","https://openalex.org/W3089917453","https://openalex.org/W7165735028","https://openalex.org/W2183814523"],"abstract_inverted_index":{"Aim":[0],"To":[1,128],"evaluate":[2],"benefits":[3,256],"patients":[4,75,158,166,237],"and":[5,17,22,36,98,111,134,140,159,167,176,192,203,219,251,261,263],"carers":[6,161,168,204,252],"derive":[7],"from":[8,125],"a":[9,102],"kidney":[10,47],"supportive":[11],"care":[12,73,88,210,268],"(KSC)":[13],"program,":[14],"integrating":[15],"renal":[16],"palliative":[18],"medicine.":[19],"Background":[20],"Patient":[21,97],"carer":[23,99,135],"perspectives":[24],"are":[25,32],"vital":[26],"for":[27,74,151,181,189],"developing":[28],"healthcare":[29,142],"strategies":[30],"that":[31,206,211],"equitable,":[33],"accessible,":[34],"effective":[35,70],"patient-centred.":[37],"This":[38],"is":[39,66],"especially":[40],"important":[41],"in":[42,58,106,226,242],"the":[43,107,138,148,173,193,265],"context":[44],"of":[45,109,120,137,228,247,267],"end-stage":[46],"disease":[48],"(ESKD),":[49],"where":[50],"treatment":[51],"options":[52],"can":[53],"be":[54,215],"extremely":[55],"burdensome":[56],"while,":[57],"many":[59],"cases,":[60],"providing":[61],"little":[62],"long-term":[63],"benefit.":[64],"KSC":[65,104,165,234,254],"emerging":[67],"as":[68],"an":[69],"way":[71],"to":[72,214,217],"with":[76,84,101,156,172],"ESKD\u2014whether":[77],"on":[78,147,196],"dialysis":[79,94],"or":[80],"not\u2014who":[81],"need":[82],"help":[83],"symptom":[85,112,223,259],"management,":[86],"advance":[87],"planning":[89],"and/or":[90],"complex":[91],"decision-making":[92],"around":[93],"options.":[95],"Methods":[96],"satisfaction":[100],"new":[103],"program":[105,139,174],"north":[108],"Brisbane":[110],"scores":[113],"were":[114,123,154,169],"assessed":[115],"using":[116],"self-reported":[117],"questionnaires.":[118],"Place":[119],"death":[121],"data":[122],"collected":[124],"medical":[126],"records.":[127],"obtain":[129],"detailed":[130,190],"information":[131],"about":[132],"patient":[133],"perceptions":[136],"their":[141,220,243],"needs,":[143],"semi-structured":[144],"interviews":[145],"based":[146],"Consolidated":[149],"Framework":[150],"Implementation":[152],"Research":[153],"conducted":[155],"10":[157],"5":[160],"receiving":[162,209,253],"KSC.":[163],"Results":[164],"highly":[170],"satisfied":[171],"(96%":[175],"91%":[177],"satisfaction,":[178],"respectively).":[179],"Reasons":[180],"this":[182],"included":[183],"feeling":[184],"supported,":[185],"having":[186],"enough":[187],"time":[188],"discussions":[191],"program\u2019s":[194],"focus":[195],"wellbeing":[197],"rather":[198],"than":[199],"biochemical":[200],"markers.":[201],"Patients":[202,250],"reported":[205],"they":[207,212,269],"valued":[208,264],"perceived":[213],"tailored":[216],"them":[218],"circumstances.":[221],"Overall":[222],"burden":[224],"decreased":[225],"69%":[227],"those":[229],"who":[230,238],"had":[231],"attended":[232],">1":[233],"visit.":[235],"Among":[236],"died,":[239],"75%":[240],"died":[241],"preferred":[244],"final":[245],"place":[246],"care.":[248],"Conclusions":[249],"derived":[255],"including":[257],"improved":[258],"control":[260],"self-determination,":[262],"quality":[266],"received.":[270]},"counts_by_year":[{"year":2025,"cited_by_count":1}],"updated_date":"2026-10-13T10:08:12.033832","created_date":"2017-12-22T00:00:00"}
